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Raising a Child with Albinism

Raising a Child with Albinism Book CoverParents of children with albinism now have access to a one-of-a-kind book that will undoubtedly be a go-to resource for years to come. Unveiled at NOAH’s 12th National Conference in Las Vegas, Raising a Child with Albinism: A Guide to the Early Years is a 200-page volume containing contributions from close to 20 different writers. It provides a singularly authoritative source for new parents of children with albinism. Edited by NOAH member Susan DuBois, mother of two children with albinism, the reassuring and comforting book is illustrated with color photos contributed by Positive Exposure’s Rick Guidotti and eight others.

Topics include:

  • What is albinism?
  • How will albinism impact my child’s development?
  • How do I stimulate my child’s vision?
  • The social impact of albinism.
  • Sun safety
  • Early intervention and IEP programs
  • And MUCH more!

Funding for the four-year project comes from Northern Illinois NOAH and a grant from Delta Gamma sorority.

Order the book online now through NOAH’s secure server.

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NOAH
The National Organization for Albinism and Hypopigmentation
PO Box 959, East Hampstead, NH 03826-0959
Phone: 800 473-2310 (US and Canada) Phone: 603 887-2310 Fax: 800-648-2310
http://www.albinism.org

If you have any questions or comments, please e-mail us at webmaster@albinism.org

NOAH is a volunteer organization for persons and families involved with the condition of albinism. It does not diagnose, treat, or provide genetic counseling. It is involved in self-help, while trying to promote research and education.

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NOAH, National Organization for Albinism and Hypoprigmenation, is a 501(c)3 non-profit that is federally tax exempt. We are registered in state of Pennsylvania with the Pennsylvania State Charities Bureau. We are a volunteer organization for persons and families involved with the condition of albinism. NOAH does not diagnose, treat, or provide genetic counseling. NOAH is involved in self-help, while trying to promote research and education.

 

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