NOAH — Albinism World Alliance

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Albinism Fellowship of Australia’s Next Conference April 2008

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Albinism World Alliance

The Albinism World Alliance (AWA) is a network of albinism support groups in various countries. The AWA was founded in 1992 by representatives from Australia, Canada, Tanzania, the United Kingdom, and the United States of America. The AWA has grown to include albinism support groups in Germany, Mali, Malawi, the Netherlands, Puerto Rico, Norway, and South Africa, and other countries.

The objectives for the organization are:

To serve as a network of albinism support groups,
To share information regarding albinism,
To promote awareness of albinism internationally,
To promote development of albinism support groups throughout the world.
To share information about technology that will benefit persons with albinism.

Printed materials about albinism, in English and Spanish, are available through the National Organization for Albinism and Hypopigmentation (NOAH) in the United States of America. Some of the organizations in other countries also have printed materials in their languages.

The AWA provides information about albinism support groups in various countries. These support groups hold meetings, sponsor workshops and national conferences, publish newsletters, and conduct other networking activities. Groups in countries in Africa are also trying to help persons with albinism by providing sunscreens, eye glasses, and other optical aids. Some groups are also trying to help provide protective clothing and vocational assistance.

Through television appearances, newspaper articles, information packets for libraries, and outreach to professional persons, AWA and its member organizations spread knowledge about albinism and work to improve attitudes about individuals who have the condition.

For information about how your albinism related organization can become a member of the Albinism World Alliance,contact awa@albinism.org.

NOAH
The National Organization for Albinism and Hypopigmentation
PO Box 959, East Hampstead, NH 03826-0959
Phone: 800 473-2310 (US and Canada)

Phone: 603 887-2310

Fax: 800-648-2310
http://www.albinism.org

NOAH is a volunteer organization for persons and families involved with the condition of albinism. It does not diagnose, treat, or provide genetic counseling. It is involved in self-help, while trying to promote research and education.

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