NOAH National Conference
The 2004 NOAH conference will be in Atlanta!
Atlanta 2004 will be the first NOAH conference in the South! We’re just now beginning to plan plenty of new events for 2004, plus new twists on old conference favorites. To get an idea what events await you, however, check out the 2002 conference schedule.
Information of the 2002 NOAH Conference
Just to give you an idea of what you can anticipate in 2004!
If you've never attended a
NOAH conference, expect a magically life-changing
event!
If you're a NOAH conference veteran, brand new events await you!
Come see old friends and make new ones! Come Together and discover the amazing things we have in common as members of the Albinism Community.
For parents, adults, and teens,
we're planning brand new sessions and panel
discussions to get you hard to find answers to practical questions.
The children will love the new Kid's Konference, with info sessions designed specifically for kids in the morning and fun field trips in the afternoon.
NOAH's Ninth National Conference is a unique opportunity to gather, share, learn and laugh. Come share the magic!
Hotel
Conference Schedule
Conference Sessions
Conference Registration
Airline Discounts
Activites for Kids
Conference Tours
Positive Exposure
Albinism Town Square
How You Can Help NOAH
Assistance
Download a pdf version of the conference information
Download a pdf version of the attendee funding information
Download a pdf version of the conference program
Adobe Acrobat Reader is required to view the pdf files. 
The National Organization for Albinism and Hypopigmentation
9th National Conference
July 18-21, 2002
The Hotel:
The Concord Hilton
1970 Diamond Blvd
Concord, CA 94520
Hotel rates: $101.00/day plus local and state taxes (currently 10%)
The Hilton Concord provides
maximum accessibility while keeping the room
prices as reasonable as possible. The hotel is at the center of San
Francisco's East Bay, near airports and public transportation, as well as
great restaurants, shopping and attractions. There's even a shopping mall
with children's activities within walking distance of the Hotel. The Hilton
also has an on-site restaurant, heated outdoor swimming pool and fitness
center.
Call the hotel directly at 925-827-2000 to make your reservation. Make sure you mention NOAH to get the special rate.You can also register for your room on-line.
Either way, you must reserve your room by July 3, 2002
Conference Schedule:
Wednesday July 17th, 2002 |
|
| 7:00 pm - 9:00 pm 7:00 pm - 9:00 pm |
Albinism World Alliance Meeting NOAH People of Color Special Interest Group Mtg |
Thursday July 18th, 2002 |
|
|
Daytime |
Optional Tours of San Francisco Child Care Available Welcome Reception Keynote session Hospitality Suite Open |
Friday July 19, 2002 |
|
|
7:30 - 8:30 am 9:00 - 10:15 am |
Continental Breakfast General Session |
Saturday July 20, 2002 |
|
|
7:30 - 8:30 am 9:00 - 10:15 am |
Continental Breakfast General Session |
Sunday July 21, 2002 |
|
| 8:30 - 11:30 am | Continental Breakfast Closing Ceremoney Video wrap up |
Conference Sessions
Please note, sessions subject to change
Session |
Presenter |
|---|---|
| Albinism research update | Dr. Richard King, International Albinism Center, Dr. William Gahl, National Institutes of Health |
| Meet the Researchers | Dr. Murray Brilliant, Ph.D., University of Arizona, Dr. Richard King, M.D., Ph.D., International Albinism Center, Dr. William Gahl, M.D. Ph.D., National Institutes of Health, Dr. Richard Lewis, M. D., M.S. Baylor College of Medicine |
| Ask the panel |
M. McGowan (Moderator) |
| Positive Exposure | Rick Guidotti |
| The process of obtaining a license and influencing a state's driving laws | Chuck Huss, C.O.M.S. |
| Careers Panel | Connie Curry, Steve Garrison, Sam Herron, Heidi Brown others TBA |
| The ABC’s of skin care and Glamour | Cynthia Towers |
| Albinism. Now what? An Eye Professional’s perspective | Dr. Craig Hoyt, M.D. |
| What to expect from a Low Vision Exam | Dr. Patsy Harvey, O.D., M.P.H. |
| Low vision driving | Dr. Derrald Taylor, O.D., M. |
| Assistive Technology/ Funding Sources | Janice Knuth M.S.W. |
| Parenting Concerns for People with Albinism | June Waugh |
| Handling Negative Issues | June Waugh |
| Albinism in Later Life | Panel: Dr. Rick Thompson, Mike McGowan, Connie Curry, Dermatologist |
| Albinism In the Cinema | Dr. Vail Reese, M.D. |
| Ocular Albinism | Dr. Richard Lewis, M.D., M.S. |
| NPOC Panel | Debbie Wilson, Moderator Lee Edwards, Francia Malone Others TBA |
| IEP/504/ School issues | Panel Cynthia Towers (PWA - Teacher), IEP Advocate, Vision Teacher |
Conference Registration:
Thanks to NOAH’s generous supporters, your registration fees are
the same as they were for the 2000 conference.
| Early Bird Registration (Before July 3, 2002) |
Regular Registration (After July 3, 2002) |
|
|---|---|---|
| NOAH Members | ||
| Adults & Teens |
$100.00 | $125.00 |
| Children (12 & under) | $60.00 | $85.00 |
| Professional | $150.00 | $175.00 |
| Non Members | ||
| Adults & Teens | $125.00 | $150.00 |
| Children (12 & under) | $85.00 | $110.00 |
Joining NOAH is easy! Call 800-473-2310 or visit our membership page, become a NOAH member, and get the member registration discount!
Register Early!
Your early registration not only saves you money, but it guarentees you will
be part of the learning, sharing and fun.
Special discounts on TWO great airlines!
Concord California is easily accessible from three airports;
- Oakland International (the closest)
- San Jose International
- San Francisco International
Both United Airlines and Southwest Airlines are offering special airline
discounts to help you attend the conference.
United Airlines offers up to a 15%
discount on unrestricted fares or a 10% discount on restricted fares.
For details and reservations,
contact United Airlines Meeting Center at 1-800-521-4041 and mention tour code
593ST. United Airlines flies to all three airports
Southwest Airlines offers
a 10% discount on most of their already
low fares. For details and reservations, call Southwest Airlines at 1-800-433-4368
and mention code R9675. Southwest flies into Oakland and San Jose.
Activities for Kids
We'll have supervised childcare for children
ages 0-4. We encourage parents
to let your kids enjoy these programs. You'll get the most out of the
conference sessions, while your children play and learn in a safe,
supervised environment. (If your child is not accustomed to being away from
you for extended periods of time, however, or isn't comfortable in group
environments, please consider making alternative arrangements.)
Kids Konference
We're thrilled to announce
the Kid's Konference, a program structured
specifically for kids 5 and up. During the morning, your child will
participate in sessions on issues such as "What is Albinism," "Careers,"
"Tips and Techniques for Handling Bullies," and discussion groups.
A special
session on driving issues just for pre-teens and teens is also on the
roster. While these sessions will be oriented around albinism, siblings are
encouraged to participate, too. There will be separate discussion sessions
just for siblings.
Friday afternoon kids ages
5-7 will be going to The
Jungle
(www.junglefunandadventure.com).
“The Jungle is the West's premier indoor family entertainment center.
The
Jungle includes: 20,000 sq. ft. play facilities, a massive play structure,
a wide variety of skill games, hands-on activities all in a fun-filled
environment that is adult friendly, clean, and secure.”
Kids ages 8 and up will be
going to Rocktopia,
an indoor climbing
facility. (www.encoregym.com/PAGES/rocktopia.html):
“Rock climbing is a fun and challenging sport, for people of all
sizes, and
abilities. ROCKTOPIA is set up to meet the needs of all types of climbers,
from the first timer to the advanced climber who wants to crank down on our
new campus board. ROCKTOPIA's goal is to see that everyone has an enjoyable
climbing experience. Come step into the vertical at ROCKTOPIA.”
Saturday Afternoon, kids
ages 5 and up will be visiting the San Francisco
Exploratorium.
(www.exploratorium.edu):
“Housed within the walls of San Francisco's Palace of Fine Arts,
the
Exploratorium is a collage of over 650 science, art, and human perception exhibits.
It provides access to, and information about, science, nature, art and technology.”
Kids 7 and up will be able to explore The Tactile Dome. At the Tactile
Dome, kids can “discover a world where the walls seem alive and your hands
tell you more than your eyes. You will crawl, climb and slide through
amazing textures in complete darkness, using only your sense of touch to
guide you.”
Thanks to the generosity of our members, these trips will be included in the cost of your child's registration.
Conference Tours:
For those who are interested, we will be offering activities around
the San
Francisco Bay area. These tours will be booked on a first come first
served basis, so register early!
San Francisco The City By the Bay
$13.50 per person (children 5 and under riding on a parent's lap free).
Join us for a fabulous four hour narrated adventure as we explore San
Francisco! The tour includes sights such as: Chinatown, Seal Rock, The
Palace of Fine Arts Fisherman's Wharf, North Beach and the Golden Gate
Bridge!
Muir Woods National Monument and Sausalito
$24 per person (children 5 and under riding on a parent's lap free).
Muir
Woods is one of the San Francisco Bay Area's last uncut stands of old-growth
redwood. It was made a national monument in 1908. This four and a half
hour tour includes a walking tour in the woods with a professional guide and
a one and a half hour stop in Sausalito to sight see and have lunch (on your
own).
Wine Country
$51.75 per person (This tour is for adults only. You must be 21 with
valid ID
to participate in this tour).
Join us for a taste of California's fine wines with an eight-hour tour of three of Northern California's fine wineries. We'll visit S. Anderson, V. Suttui, and St. Supery. Price includes tours, wine tasting and lunch at V. Suttui.
Friday Evening Out - Pier 39
$12 per person (children 5 and under riding on a parent's lap free).
Dinner is on your own for Friday evening. Those interested can visit San
Francisco's famed Pier 39 (www.pier39.com).
“Whether it's family fun, distinctive shopping, an up-close look
at
California's playful sea lions, an encounter with a street performer or
superb dining with a Bay view, San Francisco's PIER 39 is the place to be -
for PIER FUN.”
The bus will depart the Concord Hilton at 6pm and Depart Pier 39 at 10pm.
Sunday Afternoon Oakland A's game
We have secured 25 tickets in the (section close to field along either
the
1st or 3rd base lines) to the Oakland A's game vs. the Texas Rangers at 1:05
pm on Sunday. Transportation to the game will be as a group via BART (Bay
Area Rapid Transit). The cost is $30.00 per person and includes your BART
fare.
Positive Exposure
NOAH is delighted to welcome the West Coast debut of Positive Exposure
to
the 2002 conference. Fresh from an exhibit at the Smithsonian Institution,
National Museum of Natural History (NMNH) in Washington, DC, Positive
Exposure brings an innovative perspective on albinism. (www.positiveexposure.org).
Albinism Town Square
New to NOAH's 9th national conference, the Albinism Town Square is a
place
to take a break, relax and meet others with albinism. Stop in between sessions!
Exhibitors
This year's conference will feature exhibits of products and services
for people with albinism and their families. For more information about being
an exhibitor please contact Jeannine Joyce at 603 358-3116 or jeannine.joyce@albinism.org
How you can help NOAH....
Volunteer!
Attending a conference is tons of fun. Helping make the conference happen
is even more exciting! You might have too much fun to notice just how
hard you’re working. But rest assured, your hard work will make
the conference a magical experience for everyone!
To join the conference team, contact Jerrilyn Ankenman 925 552-6378 or jer@ankenman22.com
Raffle Items
We are also looking for items to be raffled at the conference. We are
requesting NOAH-esque items (things picturing Noah and his ark and animal
friends, etc.), or, albinism related items (sun protective clothing, sun
glasses, hats etc.). If you can donate any raffle items please bring them
along.
Donate!
Your donations ensure that NOAH can
- maintain the website,
- answer the 800 number
- publish the newsletter
- keep conference registration fees affordable for everybody by funding
- children's day care and bus trips, audio visual equipment and other hotel
- conference costs.
Assistance
For information on organizations that might offer assistance with conference expenses or contact NOAH at 800-473-2310.
NOAH
The National Organization for Albinism and Hypopigmentation
PO Box 959, East Hampstead, NH 03826-0959
Phone: 800 473-2310 (US and Canada) 
Phone:
603 887-2310 Fax:
800-648-2310
http://www.albinism.org
If you have any questions or comments, please e-mail us at webmaster@albinism.org
NOAH is a volunteer organization for persons and families involved with the condition of albinism. It does not diagnose, treat, or provide genetic counseling. It is involved in self-help, while trying to promote research and education.
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Copyright 1995-2002 The National Organization for Albinism and Hypopigmentation
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