Related Links

ALBA (Asociación de ayuda a personas con albinismo) is the Spanish association that aims to help and support people with albinism and their relatives. ALBA also promotes a wider knowledge about albinism through conferences and seminars.

Albinism and Development This group exists for parents of children with a diagnosis of ocular or oculocutaneous albinism who also have developmental issues such as language, social and/or behavior. Join the group to share information, give and receive support and to keep in touch with others.

Albinism Fellowship of Australia the Fellowship provides a united voice to encourage productive developments and support within business, government and media.

Albinism Fellowship (UK) provides advice and support for people with an interest in albinism. The site offers a range of appropriate services that:

• Provides information
• Raises awareness
• Challenges misrepresentations
• Improves self-esteem
• Gives opportunities to meet other people affected by albinism

Albinism in Popular Culture explores the mythology of albinism. Take an in-depth look at the various ways in which this unique trait has been perceived and presented across cultures and during various eras.

Albinism Trust New Zealand - We are established to share ideas and information which enable people with Albinism to live, learn, work and play. We do this through promotion of general understanding and the encouraging of positive enabling attitudes about Albinism.

Albinismus Info a German site that provides medical and ophthalmological, low-vision and educational information for persons with albinism.

Albinismus Selbsthifegruppe a German web site for people with albinism

The Albino Foundation In Nigeria (TAF) is the largest albinism association in Africa. The Albino Foundation is committed to addressing the plight of albinos and to change negative mind-sets and socio-cultural stereotypes about albinism in Nigeria and the world.

BAI China is an online adoption support group for friends and family of Children from China with albinism. BAI China provides information and support for people in the process of adopting a child with albinism from an Asian country and for families who have already adopted an Asian child with albinism

Bioptic Driving This site is devoted to disseminating information about low-vision driving with the use of a bioptic. The purpose is to inform others that there is an option available that may allow them to obtain their driver's license even if they cannot meet their state's standard vision requirements for driving. Here you will find information that will aid in making an informed decision as to whether this is a feasible option.

Chicago Connection for Minorities with Albinism CCMA’s goal is to bring together persons who are isolated to inform them about issues related to their ethnicity and the condition of albinism in order to bring about empowerment and a sense of community for all minorities or relative(s) of persons with albinism.

Bioptic Driving Network   The BiOptic Driving Network is a not-for-profit site concerned with developing/advancing the use of bioptics for driving. The bioptics telescope is a useful driving aid for people with conditions that reduce resolution or visual acuity while maintaining the peripheral vision substantially intact.

Chicago Connection for Minorities with Albinism CCMA’s goal is to bring together persons who are isolated to inform them about issues related to their ethnicity and the condition of albinism in order to bring about empowerment and a sense of community for all minorities or relative(s) of persons with albinism.

Dermatology in the Cinema This site has been put together by Vail Reese, MD, a dermatologist who is also a film buff. Albinism is only one of the conditions covered.

A Dutch site about albinism includes drawings of how albinism affects the eye.

The Golden Child Welcome to a site dedicated to a small but fascinating segment of the population – PEOPLE OF COLOR WITH ALBINISM.

The Hermansky Pudlak Syndrome Network The Hermansky-Pudlak Syndrome Network Inc. is a volunteer, not-for-profit, self-help support group for persons and families dealing with Hermansky-Pudlak Syndrome.

The International Albinism Center at the University of Minnesota. The IAC is a team of research professionals interested in understanding the basis of albinism in humans. This site features a current paper on human pigmentation and albinism as well as a bibliography of papers on different aspects of albinism. It also has an email link where you can submit questions about albinism to graduate students in genetic counseling. Special thanks goes to Dr. Bill Oetting of the IAC for getting this site together and also to Dr. Richard King and Dr. Gail Summers for their ongoing commitment and support.

Nigerian Albinism Support Group A Nigerian non-profit group whose aim is to enhance the well-being of people with albinism by providing information, increasing awareness and organizing workshops and conferences.

Nineteenth Century Images of Albinism  This site shows a variety of American images that date from the 1870s - 1890s.

Norwegian Association For Albinism (NFFA) A Norwegian site about albinism.

Positive Exposure is a project with a goal to complete a portfolio of empowering, evocative photographs representing persons of various ages and cultures with albinism. Like many others, people with albinism face the fears, myths and stereotypes associated with difference. This project challenges the stigma associated with physical difference using one of the 20th century's most powerful tools to fight discrimination: photography. These pages also include copies of the much-celebrated photo essay in Life magazine “Redefining Beauty”.

Vision of Children An organization funding specific targeted research to find a treatment or cure for OA, which will be used as the template for finding cures for other related genetic retinal disorders and diseases.

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These are sites that have information related to albinism or visual impairment. If you have a site that you would like to see added, please let us know. After consideration, relevant sites will be added.

Please note — These links are provided for informational purposes only. Listing on this page does NOT constitute an endorsement by NOAH.