NOAH - The National Organization for Albinism and Hypopigmentation logo

Related Links

Personal Web Sites

These web sites were created by individuals interested in sharing information or experiences related to albinism.

The Albino Code Actor Dennis Hurley wrote, produced and starred in a film that spoofed "The Da Vinci Code". In "The Albino Code", Dennis shows what Silas would really be like if he actually had albinism.

Amber’s Page is a parent’s experience of raising their little girl who has albinism.

Brooke Fox is a NYC Singer/Songwriter who also has albinism. Brooke performed at NOAH's 2002 conference in Concord, CA, and at NOAH's very first Family Summer Camp in Mount Union, PA.

Craig's Web Site Craig shares his experience with albinism as well as some of his music.

The Golden Child This site was created to help people with albinism of dark-skinned races communicate with each other and share information and resources. It was created so that lighter-skinned races will understand what it is like to be born into a society where you are the only blond-haired, blue-eyed person for miles, or the only blond haired, white skinned person in your family.

Mad Woman Multimedia Enjoy the sights and sounds that are the performance artist “M”.

Mashawna’s Blog – Mashawna shares her own personal experiences in having a child with albinism. Her goal is to provide comfort to new parents in those first few months. She hopes to educate and answer questions that parents may have, based on her personal experiences.

Ocular Albinism Awareness Project  is dedicated to keeping you informed of the latest research, research opportunities and breakthroughs in OA1, OA2 and OCA.

See Me Drive.com - Low Vision Driving Resource    This site chronicles how a 39-year old with albinism earned his driver's license, after always hearing he never could.  The site also provides tips on driving for those with low vision and allows others to share their experiences.   

Skate Angel - Cassandra is a young figure skater with albinism.

Welcome To My World Kristina gives a personal and honest account of growing up in a world of difference.


These are sites that have information related to albinism or visual impairment. If you have a site that you would like to see added, please let us know. After consideration, relevant sites will be added.

Please note — These links are provided for informational purposes only. Listing on this page, does NOT constitute an endorsement by NOAH. 

 

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NOAH
The National Organization for Albinism and Hypopigmentation
PO Box 959, East Hampstead, NH 03826-0959
Phone: 800 473-2310 (US and Canada) Phone: 603 887-2310 Fax: 800-648-2310
http://www.albinism.org

If you have any questions or comments, please e-mail us at webmaster@albinism.org

NOAH is a volunteer organization for persons and families involved with the condition of albinism. It does not diagnose, treat, or provide genetic counseling. It is involved in self-help, while trying to promote research and education.

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