Connect with the Albinism Online Community
The Albinism Online Community (AOC) is Retiring!
NOAH is seeking volunteers to join a small team to study the feasibility of replacing of the retiring Albinism Online Community (AOC) - a place for members of the albinism community to share information and support online since 1995. If you, or someone you know, has experience in online forums (or other platforms!) and is interested in helping out with this short-term project, please complete the Volunteer Position Form.
We also welcome your thoughts and comments as we work towards the next generation of online connections and support! Please send them to firstname.lastname@example.org.
NOAH will update this page when the AOC is retired. In the meantime, it is still accessible Here.
NOTE: While NOAH values your privacy, the Albinism Online Community is administered by Infopop, and everything you post is available to the public via Internet searches. Please also remember that every person is unique, and you should always check with a medical or educational professional to verify the accuracy of information with relation to your specific circumstances.
The Albinism Online Community exists to promote the free exchange of ideas, opinions and information. Following is the NOAH Usage Policy. Your participation in the Albinism Online Community constitutes your agreement to comply with each of these tenets.
The statements and opinions expressed on the Albinism Online Community are solely those of the respective posters, and they do not constitute official statements or positions of NOAH. NOAH is NOT responsible for any opinions expressed and / or the accuracy of any information posted on the Albinism Online Community.
Misuse of Albinism Online Community
NOAH leadership reserves, in its complete and sole discretion, the right to delete any post and / or suspend user privileges for any reason, without notice.
NOAH leadership will not redact or otherwise edit the posts on the Albinism Online Community.
As examples and without limiting its discretion, NOAH leadership is particularly concerned with and can delete posts that it believes:
As examples and without limiting its discretion, NOAH leadership further reserves the right to delete posts and / or suspend user privileges for any user whose participation disrupts relevant discussion on the Albinism Online Community. Such a disruption could stem from:
Finally as examples and without limiting its discretion, NOAH leadership reserves the right to delete posts and / or suspend user privileges for any user who:
Official NOAH Communication
Please keep in mind that the Albinism Online Community is NOT an official form of communication between NOAH and its members. NOAH members receive official notices from NOAH by email and mail. If you wish to communicate with NOAH personnel, please do so via the NOAH contact information or at the NOAH Facebook Page – “NOAH Albinism.”