Get Involved with Research Opportunities
Are you interested in learning more about ongoing research studies involving people with albinism for yourself, your child or your patients? Here you will find information about current research studies and opportunities on many aspects and types of albinism. Please check back often to learn about new and upcoming opportunities!
Research Study for Bioptic Telescope Users - Schepens Eye Research Institute
People using bioptic telescopes are invited to participate in a research study to evaluate the use of bioptic telescopes in a driving simulator. Prior driving experience is not required. The study takes place at the Schepens Eye Research Institute in Boston, MA., and involves 1-2 visits, each lasting about 3 hours. Volunteers will be reimbursed for travel-related costs, including airfare and one night accommodation for volunteers outside of Boston and parking for volunteers within Boston.
For more information, contact Chris: 617-912-2505 or firstname.lastname@example.org
Laboratory for Low-Vision Research at the University of Minnesota
Study on Visual Reading Technology for Adults with Low VisionResearch is being conducted at the Minnesota Laboratory for Low-Vision Research at the University of Minnesota. The project is directed by Dr. Gordon E. Legge. The goal of the research is to enhance our understanding of the use of reading technology by people with low vision. The results will be useful in designing reading aids for low-vision reading and for guidance in selection of appropriate reading aids for individuals with different forms of low vision.
The study involves filling out an online survey. It will take about one hour to complete. It involves questions about your vision status, the types of reading aids you use, and the reading activities you do. We invite you to participate in this survey if you are an adult with low vision, if your vision has not gone through any major changes in the past year, and if you read visually for some purposes. Low vision is defined as acuity less than 20/60 with best prescribed glasses or contacts, or a visual field less than 20 deg in extent. Low vision does not refer to people who can achieve normal vision with the aid of glasses or contacts, nor to people who have normal vision in one eye and reduced vision in the other eye. Subjects will be compensated with $20 gift cards (such as iTunes, Target, Amazon or Starbucks gift cards). We welcome people who live outside of the U.S. to take our survey. Unfortunately however, we are only able to compensate U.S. residents with gift cards.
To access the survey, please email Christina Granquist at email@example.com and she will send you a personalized link to the reading survey.
For questions or more information about the survey, please contact Christina Granquist at the Minnesota Laboratory for Low-Vision Research:
HPS Research Centers are opening nation-wide to conduct new research on the lung disease of HPS. Please contact the HPS Network at (516) 922-4022 or e-mail: firstname.lastname@example.org for more information.
The Wilmer Eye Institute at John Hopkins University is conducting a clinical trial of Lutein and Zeaxanthin supplementation and its effect on macular pigment in albinism.
Do you know of additional research studies for people with albinism? Contact the NOAH Webmaster for the opportunity to have it added to this page.
Sharing the above information does not constitute an endorsement by NOAH of these or any research studies.