Grandparent Connections Newsletter

Hello Everyone,

I hope you and your loved ones are staying healthy and safe as we continue to socially distance. While gathering in person is not currently possible, NOAH continues to work to bring the albinism community together by hosting opportunities to share our stories and learn from each other throughout this unique situation. In addition to our upcoming Grandparent Connections call this month, we will also be holding another Grandparents Social Distancing video call, so that we have two opportunities to connect in the coming weeks. Please consider joining us for one of the upcoming calls if you are able. I am also here to help if you have any concerns or need to talk.


Join us for our upcoming calls!

Dr. Rick Thompson

Albinism and the Eye – Dr. Rick Thompson, O.D., FAAO

Tuesday, May 19th – 8:00 pm CT

This session will provide an opportunity for you to learn all about albinism and the eye from one of our highly respected conference presenters,Dr. Rick Thompson. He will provide a brief presentation of how albinism affects the eye and he will be available for your questions.

Learn more about Dr. Thompson.


Grandparents Social Distancing (Video Call)

Thursday, May 28th
1:00 PM ET // 12:00 PM CT // 11:00 AM MT // 10:00 AM PT

Calling all grandparents! Join us to discuss your survival tips and different resources that you have found to be the most helpful during this time of social distancing. We can all benefit from each others’ knowledge, experience, support and humor within this wonderful NOAH community. Please share your screens whenever possible to increase our connectivity and to let others into your home in this time of social distancing.

Join Zoom Meeting
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Meeting ID: 364 372 429

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Meeting ID: 364 372 429

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Grandparent Spotlight

If you would like your family/grandchildren featured in one of our newsletters please email grandparents@albinism.org to tell us about your family, and share one (or more) pictures. 


Grandparent Connections Schedule 2020

Kathi and Jill

Albinism and the Educational System – Jill Gorman and Kathi Garza

Wednesday, August 5th, 8:00 pm CT

This session will provide you with a clear understanding of the educational system and your grandchild with albinism. Jill and Kathi will outline typical services that children with albinism may need in school and cover ways that as a grandparent you can assist in the process. They will also explain the tools that they created that are accessible on the NOAH webpage (www.albinism.org/schoolkit/) and they will allow time for questions and discussion.

Learn more about Jill and Kathi.

Kelsey Thompson

Psychosocial Experiences of Living with Albinism – Kelsey Thompson, M.S., CRC, CCM, LCPC

Monday, October 5th, 8:00 pm CT

Join us for this call when Kelsey will outline some of the many psychosocial experiences of living with albinism. Using her personal and professional background she will discuss how adults with albinism interact with the world, how the world interacts with them, and what grandparents can do to support their kids with albinism throughout their journey.

Learn more about Kelsey.