Grandparent Connections Newsletter

Hello Everyone,

Welcome to the first monthly newsletter from NOAH’s Grandparent Connections. We are excited this year to announce that in order to build our NOAH Grandparent Community we will be offering some additional supports for our members. 

First – we will be offering grandparent tips of the month. If you have tips that you would like to share with other grandparents of children with albinism please send them to me at sadamo@albinism.org.

We also want to let you know about our Grandparent Connections Facebook page that you can join to connect with other NOAH Grandparents. Here you could ask questions and share photos and learn about upcoming events. To join please request membership at NOAH – GrandparentConnections on facebook and only members of Grandparent Connections will be allowed to join.

We are also looking for Grandparents that would like to share their stories for the Albinism InSight Magazine. If you are interested please contact ai@albinism.org.


NOAH member Rowdy on the Colorado Slopes. Image courtesy of Barbara Hrach

Tips of the month for February:

1. Do not forget the importance of a hat, glasses and sunscreen in the winter for our grandchildren with albinism. Often times the winter glare from the snow is more difficult than the summer months.

2. Make a special place or a special basket in your home for your grandchild to store his or her personal items so they do not lose them and so they can become more self sufficient.

3. When buying winter items try to get something besides black or blue because it can be very difficult to separate items from peers either at home or at school.


Grandparent Calls 2019

We are also excited about the upcoming schedule. Please note the day and times of the calls are different.

Shelia Adamo

February 12, 12:00 PM central time 

Social Aspects of Albinism – Sheila Adamo

Join this presentation that will outline the different social aspects a child with albinism may face and we will discuss strategies and tools that Grandparents can use to help the entire family. We will talk about building self esteem, developing good social skills, discussing albinism with your family and others, advocacy and the importance of how you and your grandchildren see the world.

Sheila Adamo, LCSW, CADC
Building Parent Connections

Sheila Adamo, LCSW, CADC is a Licensed Clinical Social Worker with an additional certification in Alcohol and Drug Abuse Counseling. She is the co-owner of Building Parent Connections which provides education, guidance and support to parents of children with special needs. She specializes in creating workshops, discussion groups, teleconferences and conference presentations that address the unique needs of parents of special needs children. Within NOAH, she currently manages the New Parent Program, Grandparent Connections and Parent Connections, as well as the Mother’s workshop. Ms. Adamo served on the NOAH board of directors for eight years and as board chair for two years. Ms. Adamo currently lives with her husband and their four children, one of which has albinism, in Naperville, Illinois.


Photo Collage of Grandparents with their Grandchildren

Saturday, April 13th, 1:00 – 2:00 PM central time

Adapting to the Diagnosis of Albinism – Sheila Adamo

Join us for a discussion on the common stages parents and grandparents may experience while adapting to albinism. We will explore some typical emotions and fears many parents and grandparents experience and strategies to help the family adjust and thrive. Grandparents with grandchildren of all ages will benefit from this call as the process of adapting is ongoing and the support we can offer one another is invaluable.


Sue Dalton

Monday, August 5th, 8:00 PM central time

Overview of Services from Birth Through Independence – Sue Dalton

Join us for this call as Sue will give an overview of what to expect and what services your grandchild with albinism will receive throughout their development. Sue will share her personal and professional experiences while providing valuable information on vision services, orientation and mobility, along with provide tips that grandparents can do to help with the major transitions in their grandchild’s life.

Susan M. Dalton, M.S.Ed., CVRT

Susan Dalton is a Certified Vision Rehabilitation Therapist, currently on the faculty of Northern Illinois University’s Department of Special and Early Education. She has worked as a developmental therapist, teacher of visually impaired and most recently directed a transition program for teens in Illinois for 17 years. The parent of three adult children, two who have albinism, Sue has walked the path of transition many times and appreciates the uniqueness of every child in this exciting and challenging experience.


Veterinarian, Dr. Sydney LaRue

Date TBA

Career Panel of Adults with Albinism

This call will host a panel of adults with albinism that will share their experiences along with their career choices. If you have questions for the panel, please send them to me so I can share them with the panel.