As we are all adjusting to the changes in our lives due to COVID-19 and working to find a new normal during social distancing, I encourage you to focus on self-care. With so much uncertainty in the news and many concerns to face in our daily lives, it can be a huge challenge to stay calm, informed, and connected. In times like this, it’s especially important to prioritize your own well-being. While we may all be physically distancing ourselves from others, a wonderful way to practice self-care in this challenging time is to connect virtually with family, friends, and your community. During this time of social distancing, NOAH is working to bring the albinism community together by hosting opportunities to share our stories and learn from each other throughout this unique situation. Please consider joining us for one of the upcoming video calls if you are able. I am also here to help you in any way I can. If you have any suggestions, concerns or you just need to talk, please reach out to me anytime.
Join us for our upcoming video call!
Grandparents Social Distancing
Thursday, April 2nd
1:00 PM ET // 12:00 PM CT // 11:00 AM MT // 10:00 AM PT
Calling all grandparents! Join us to discuss your survival tips and different resources that you have found to be the most helpful during this time of social distancing. We can all benefit from each others’ knowledge, experience, support and humor within this wonderful NOAH community. Please share your screens whenever possible to increase our connectivity and to let others into your home in this time of social distancing.
Join Zoom Meeting
Meeting ID: 364 372 429
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Meeting ID: 364 372 429
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If you would like your family/grandchildren featured in one of our newsletters please email firstname.lastname@example.org to tell us about your family, and share one (or more) pictures.
April Tips of the Month
1. Stay busy and connected.
Even though we may not be able to be physically with our family and friends at this time, we can all be creative with different ways to stay connected.
- Connect through an app! Set aside a time to play a game together virtually through an app (Ticket to Ride, Words with Friends, Family Feud to name a few)
- Schedule virtual story time with your grandchild. Read them a story over FaceTime or video chat. If your grandchild is older, start a book club together! Read the same book and discuss as you move through the chapters.
- Use your extra free time to connect with extended family with video calling. Some free services that you could use include zoom and google meet.
2. Create new traditions and share your old ones with your family. Put together your favorite recipes and share them with your children and grandchildren.
3. Collect a few pictures and share them with NOAH for next month’s newsletter. Sharing your story and family pictures is a wonderful way to give back to this community and help others that are just starting on this journey. Let’s get enough pictures and stories for the rest of the year!
Grandparent Connections Schedule 2020
Albinism and the Eye – Dr. Rick Thompson, O.D., FAAO
Tuesday, May 19th – 8:00 pm CT
This session will provide an opportunity for you to learn all about albinism and the eye from one of our highly respected conference presenters,Dr. Rick Thompson. He will provide a brief presentation of how albinism affects the eye and he will be available for your questions.
Albinism and the Educational System – Jill Gorman and Kathi Garza
Wednesday, August 5th, 8:00 pm CT
This session will provide you with a clear understanding of the educational system and your grandchild with albinism. Jill and Kathi will outline typical services that children with albinism may need in school and cover ways that as a grandparent you can assist in the process. They will also explain the tools that they created that are accessible on the NOAH webpage (www.albinism.org/schoolkit/) and they will allow time for questions and discussion.
Psychosocial Experiences of Living with Albinism – Kelsey Thompson, M.S., CRC, CCM, LCPC
Monday, October 5th, 8:00 pm CT
Join us for this call when Kelsey will outline some of the many psychosocial experiences of living with albinism. Using her personal and professional background she will discuss how adults with albinism interact with the world, how the world interacts with them, and what grandparents can do to support their kids with albinism throughout their journey.