Grandparent Connections Newsletter

Hello Everyone,

I hope you all well and that you are settling into summer while adjusting to whatever your new normal looks like right now.  This big news of the month is NOAH’s upcoming virtual conference.  Please make sure that you are registered and that you have marked which sessions you would like to attend. 

This is a wonderful opportunity for you to learn all about albinism in the comfort of your own home.  If you are new to the albinism community, take a deep breath and give yourself plenty of breaks.  Do not worry if you miss information or if you need some time to process it all.  Take care of yourself! We will have time during the next Grandparent Connections call to answer questions and discuss the conference material


My Conference Picks for Grandparents

Are you excited to attend the conference but unsure which sessions are best for you? I highly recommend you sign up for the sessions below (click on the session name to view its description on the NOAH site):

Sheila's Picks for Grandparents

Thursday:

8:00am – 9:00am PT
Virtual Conference Welcome and Orientation

9:30am – 11:00am PT
Opening Session

2:30pm – 3:30pm PT
Positive Exposure with Rick Guidotti


Sheila's Picks for Grandparents

Friday:

8:00am – 9:30am PT
Latest Albinism Research

2:30pm – 3:30pm PT
NOAH Town Hall Meeting


Sheila's Picks for Grandparents

Saturday:

8:00am – 9:30am PT
Genetics of Albinism for Beginners

10:00am – 11:00am PT
Ask an Adult with Albinism

12:45pm – 1:45pm PT
How We See for All


Sheila's Picks for Grandparents

Sunday:

2:00pm – 3:30pm PT
Closing Session

*Do not miss the closing session. It will feature the virtual choir and will be a lot of fun!

Make sure you are signed up by tomorrow (July 2nd) so you don’t miss out!

*If you’ve already signed up for the conference but would like to add more sessions, go to the registration page and select the “registration adjustment” button. This will let you add sessions to your current registration!

Interested in learning more about the conference or checking out additional sessions? Visit www.albinism.org/NOAHCon2020 for more information!

I can’t wait to “see” you all there!


Photo Collage of Grandparents with their Grandchildren

Grandparent Spotlight

If you would like your family/grandchildren featured in one of our newsletters please email grandparents@albinism.org to tell us about your family, and share one (or more) pictures.


Grandparent Connections Schedule 2020

Kathi and Jill

Albinism and the Educational System – Jill Gorman and Kathi Garza

Wednesday, August 5th, 8:00 pm CT

This session will provide you with a clear understanding of the educational system and your grandchild with albinism. Jill and Kathi will outline typical services that children with albinism may need in school and cover ways that as a grandparent you can assist in the process. They will also explain the tools that they created that are accessible on the NOAH webpage (www.albinism.org/schoolkit/) and they will allow time for questions and discussion.

Learn more about Jill and Kathi.

Kelsey Thompson

Psychosocial Experiences of Living with Albinism – Kelsey Thompson, M.S., CRC, CCM, LCPC

Monday, October 5th, 8:00 pm CT

Join us for this call when Kelsey will outline some of the many psychosocial experiences of living with albinism. Using her personal and professional background she will discuss how adults with albinism interact with the world, how the world interacts with them, and what grandparents can do to support their kids with albinism throughout their journey.

Learn more about Kelsey.