Local Events and Groups
Get involved locally and enjoy fun and fellowship in the albinism community. Both people with albinism as well as parents of children with albinism can share their experiences. It’s a place where questions can be asked and answered about living with this rare genetic condition.
Get the Word Out
Is an event happening in your area? Contact the NOAH Webmaster to have it posted here.
Ideas for Get Togethers
Picnic
Bowling
Lunch or Dinner
Ice Cream Social
Roller Skating
Miniature Golf
Play Date (Kids or Adults!)
Happy Hour
Pool Party
Game Night
Planetarium
Pub Trivia
Movie (everyone sits up front)
Museum (ask for tours for the visually impaired!)
Do you have other ideas for our get-together list? Send them to the NOAH Webmaster.
Local NOAH Events
NI NOAH Play Date!
Sunday, May 3rd
2:30 – 4:30 PM
The Exploratorium
4701 Oakton St.
Skokie, IL
www.skokieparks.org/exploratorium
$10 per family
light refreshments will be served
RSVP: ninoah@albinism.org
Join us for a fun afternoon and a chance to mingle with other families from the NI NOAH community!
Positive Exposure – Redefining Beauty
RARE Disease Day Celebration
Saturday, February 29th
9:30 AM – 7:00 PM
(Albinism in FRAME will be screened 4:00-6:00 PM)
On RARE Disease 2020 Day February 29, Positive Exposure will be featuring several of their FRAME Films at Positive Exposure 109 gallery and inviting students, families, friends to come together and Celebrate RARE 2020. Positive Exposure will be featuring Albinism in FRAME and would love to have you and your amazing families join for the screening, discussion and fun. The films will also be live-streamed so that ‘STARS’ and families that can’t make it in person can join via Zoom.
More information: https://conta.cc/2uzvkyX
Albinism in FRAME will be screened during Session #3 from 4 pm – 6 pm.
https://positiveexposure.org/frame/albinism/
FRAME (FACES REDEFINING THE ART OF MEDICAL EDUCATION) Films are brief films created for med student and other health care providers in training. Each film presents the basic hallmark characteristics of a certain condition/ diagnosis by someone living with the condition and their families, placing humanity front row and center in medical education.
Past Local Events
Past events have included:
- Pool Party
- Candlelight Ball Fundraiser
- Space Center Visual Impairment Program
- Bites with the Board
- Low Vision Conference
- Albinism Book Discussion Group
- Run, Walk, and Roll
- Albinism Community Outing
- Play Date
- and many more!
Local NOAH Groups
Do you have a local group that you would like listed? Send your information to the NOAH Webmaster.