Welcome to the Family!
NOAH has a team of parents, professionals and adults with albinism who would like to assure you that you are not alone and that there are plenty of resources available to your family.
To begin with, NOAH’s New Parent Program offers a trained parent liaison volunteer to each newly adopted family. The parent liaison will guide you through the many resources NOAH has to offer, and also provide you with the opportunity to speak directly to a parent of a child with albinism who truly understands. To connect with a parent liaison, please complete this online request form.
Once we have your information, a parent liaison will email you with further resources and information. Additionally, NOAH sends a special gift* for parents of recently adopted children which includes useful, age-appropriate items for your child and the family. NOAH also offers additional programming and events, including teleconference calls for parents which include calls specific to new diagnosis.
NOAH also encourages you to screen for a rare type of albinism called Hermansky-Pudlak Syndrome (HPS). For information regarding HPS or Chediak Higashi, contact the HPS Network at firstname.lastname@example.org or visit their website at www.hpsnetwork.org
*Note: The toolkit, when available, is offered as an independent gift to families with a recent adoption, and is not a membership benefit.