NOAH News Today

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Happy 39th Birthday, NOAH!

This Friday, October 15th is NOAH’s 39th birthday, and we hope our whole community will join us in celebrating.

All friends of NOAH are invited to join Executive Director, Karen Bly for NOAH’s Birthday BINGO Bash at 8pm ET//5pm PT, followed by NOAH After Hours Birthday Game Night just for NOAH adults (18+) at 9pm ET//6pm PT. 

See YOU there!!

Published: October 11, 2021

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• ​Have you heard of the Low Vision Moments podcast, hosted by Jennie Bovard? In her most recent episode, Jennie shares stories with special guest Stephen Ricci, NOAH member and fellow PWA. Check it out: https://podcasts.apple.com/us/podcast/low-vision-moments/id1536469789
  
  
• Check out this recent feature about the 2021 Space Camp for Interested Visually Impaired Students! Each year, NOAH provides scholarships for kids with albinism to attend – see if you can spot this year’s recipients, Axel and Aleena, in the news footage: https://whnt.com/news/u-s-space-and-rocket-center-hosts-camps-for-visually-impaired-students/

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: October 11, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections

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Did someone say BINGO?!

Executive Director, Karen Bly, invites you to join us in celebrating 39 years of NOAH with a fun-filled evening of BINGO!

-OR-
text BINGO to (417) 473-2310!

Published: October 4, 2021

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: October 4, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections

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• ​​​​​Xueli Abbing is an up-and-coming teen model with albinism who uses her platform to increase inclusivity and “help people to see that being different is good.” Check out this recent profile on Xueli in Positive News: https://www.positive.news/lifestyle/culture/being-different-is-good-the-teenage-model-making-fashion-more-inclusive/
  
  
• Have you seen Marlow, the Our Generation doll who is visually impaired and comes with a guide dog and cane? Check it out! https://www.ourgeneration.com/shop/dolls/marlow

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 27, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections

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• ​​​​​TONIGHT at 8:30pm ET: Occupational Therapy & Sensory Integration for Visual Impairment
  Join Dr. Vidya Pingale, MS, PhD, OTR/L for “Occupational Therapy and Sensory Integration for Visual Impairment” presented by Lighthouse Guild tonight at 8:30pm ET.
  Learn more or register to attend: https://lighthouseguild.org/support-services/telesupport-groups/tele-support-presentations/

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 20, 2021

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• ​​​​​Have you heard? The NIH has funded the development of a modern “white cane” featuring a 3D camera to accurately guide the user to their chosen location.
  Check it out: https://www.nih.gov/news-events/news-releases/nih-funded-modern-white-cane-brings-navigation-assistance-21st-century

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NOAH Events This Week!

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Published: September 13, 2021

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• ​​​​​Check out this inspiring personal essay written by model & activist with albinism, Thando Hopa! Her essay, titled “I Am a Black African Woman With Albinism & There’s Nothing “Deficient” About Me” was recently shared by Allure:
  https://www.allure.com/story/thando-hopa-personal-essay-albinism

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 6, 2021

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 30, 2021

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 23, 2021

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NOAH Events This Week!

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Published: August 16, 2021

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 9, 2021

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• American Foundation for the Blind (AFB) Seeking Adults with Low Vision to Participate in Survey. Now through August 8th, AFB seeks participants for The Journey Forward, a continuation of their Flatten Inaccessibility study. For more info visit:
  https://www.afb.org/research-and-initiatives/flatten-inaccessibility-survey​​​​​​​
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• Albinism in the News! Check out this recent video feature by Yahoo! News on Jennifer Renée and the line of false lashes for people with albinism that she launched in January 2020 through her beauty company, “Ivoree Beauty x J.Renée”: 
  https://news.yahoo.com/albino-makeup-artist-creates-inclusive-202450055.html

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 2, 2021

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• Colleen Young competed in her first Paralympic Games in 2012 at just 14 yrs old, and will be swimming for Team USA at her 3rd Paralympic Games this August. Check out this Blind Spot interview with Colleen from United States Association of Blind Athletes:
  https://www.facebook.com/115311768519523/videos/204556211502165
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• Track athlete Kym Crosby is headed to her 2nd Paralympic games this August to represent Team USA in the 100 and 400 meter race. Check out this recent feature about Kym from Women’s Running: https://www.womensrunning.com/events/olympics/how-paralympian-kym-crosby-gets-it-done/

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 26, 2021

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Karen’s First Day! 

In honor of Karen’s official first day as NOAH’s Executive Director, NOAH community member, Caroline V. has a few questions for her!

Do YOU have a question for Karen? Send us a video or written question with a photo of you for the chance to hear Karen’s answer!

Published: July 19, 2021

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• The Human Rights Council of the United Nations, during its 47th Session, appointed Muluka-Anne Miti-Drummond from Zambia as new Independent Expert in charge of the mandate addressing the enjoyment of human rights by persons with albinism. Thank you, Ikponwosa Ero for 6 years of tremendous commitment and devotion to human rights of people with albinism. We welcome Muluka-Anne Miti-Drummond as she takes on this important position!
  https://www.facebook.com/GlobalAlbinism/posts/359869162240257
  
  
• Albinism in the News! – Gavin Boulware is a photographer based in Charlotte, NC who is raising albinism awareness through his photography.
  Check out this recent feature about Gavin and his work:
  https://spectrumlocalnews.com/nc/charlotte/news/2021/07/08/albinism-awareness
  
  
• Sunscreen Recall – Recently, Johnson & Johnson announced a voluntary recall for 5 aerosol sunscreens from Neutrogena and Aveeno brands. 
  Read the full news story:
  https://www.npr.org/2021/07/15/1016247037/johnson-johnson-recalls-5-aerosol-sunscreens-after-finding-carcinogen-traces?
  
  
• American Foundation for the Blind (AFB) Seeking Adults with Low Vision to Participate in Survey – Now through August 8th, AFB seeks participants for The Journey Forward, a continuation of their Flatten Inaccessibility study.
  For more info visit:
  https://www.afb.org/research-and-initiatives/flatten-inaccessibility-survey

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 19, 2021

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• Paralympic Goalball athlete, Marybai Huking, did a live interview with United States Association of Blind Athletes on Facebook last week. Check out the recording: 
  https://www.facebook.com/UnitedStatesABA/videos/919245461992796
  
  
• Susana Rodríguez is a Paralympic Triathlete for Spain and a physician who has been tirelessly working on the frontlines of the pandemic. Check out this inspiring feature on Susana recently published by Time magazine:
  https://time.com/6077122/tokyo-olympics-athletes-covid-19-frontlines/

NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 12, 2021

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Welcome, Karen!

We were thrilled to share the exciting news that Karen Bly will be joining NOAH as our first-ever, full-time Executive Director. 

Want to learn more about Karen? Video ~ Press Release

Published: July 5, 2021

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• Liza Corso will be representing Team USA in the women’s 1500m at the upcoming Paralympic games in Tokyo. Check out this recent article about Liza: 
  https://pcaschool.org/pca-graduate-liza-corso-to-compete-in-2020-paralympics/
  
  
• Check out this recent news article featuring NOAH member, Lyra T., a teen with albinism who has been refining her coding skills at Alphapointe’s annual technology camp for students with visual impairments!
  https://missouriindependent.com/2021/06/29/why-this-kc-tech-camp-draws-kids-with-visual-impairments-from-all-over-the-country/

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 5, 2021

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• Albinism in the News – Daryl Walker! Check out this recent news feature about Daryl Walker, a PWA and two-time Paralympic Goalball athlete for Team USA! Daryl will be competing in his 3rd Paralympic games this fall in Tokyo. https://www.news4jax.com/sports/2021/06/23/daryl-walker-ready-for-another-shot-on-team-usa-goalball-squad-in-paralympics/
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• Did you miss the Global Albinism Alliance – Pilot’s International Albinism Awareness Day celebration? No worries – the event recording is now available on their website!  Check it out at:
  https://www.albinismday.com/celebration?

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NOAH Events This Week!

Published: June 28, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, July 8th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, July 11th:

NOAH Connections: Canadian Adults

Monday, July 12th:

NOAH Connections: PWAs in the Legal Profession

Thursday, July 15th:

NOAH Connections: Adults

Thursday, July 22nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

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• Did you know that NOAH Connections host and parent, Hana Schank, wrote a book? Barak Obama says Power to the Public is “worth a read for anyone who cares about making change happen…”
  Check it out:https://bit.ly/3h6RY6f
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• Submissions for the Rare Artist Program are now Open!
  The Rare Artist Contest provides a national platform for rare artists to showcase their artwork and highlight their stories.
  Learn more or submit your art at: https://everylifefoundation.org/rare-artist/

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NOAH Events This Week!

Published: June 21, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Wednesday, June 30th:

NOAH Connections: Preschool

Thursday, July 1st:

NOAH Connections: Adults

Thursday, July 8th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, July 11th:

NOAH Connections: Canadian Adults

Thursday, July 22nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

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• The National Academies of Sciences, Engineering, & Medicine presents a free webinar about sunscreen this Thursday, June 17th at 2:00pm ET. Learn more & register: https://bit.ly/3wjtOvv
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• American Foundation for the Blind seeking survey participants. Read this recent blog post by Dr. Penny Rosenblum for more information: https://www.afb.org/blog/entry/reflections-education-students-visual-impairments?

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NOAH Events This Week!

Published: June 14, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Tuesday, June 22nd:

NOAH Connections: Aging with Albinism

NOAH Connections: PWAs in the Legal Profession

Thursday, June 24th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Saturday, June 26th:

NOAH Connections: BIPOC

Wednesday, June 30th:

NOAH Connections: Preschool

Thursday, July 1st:

NOAH Connections: Adults

Thursday, July 8th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, July 11th:

NOAH Connections: Canadian Adults

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• Update from American Foundation for the Blind (AFB)Have you seen this recent blog post from AFB about the impact of the COVID-19 pandemic on students with visual impairments? Check it out at: https://www.afb.org/blog/entry/nine-months-how-covid19-pandemic-impacted-education-children-visual-impairments?
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• National Research and Training Center on Blindness and Low Vision at Mississippi State University seeking study participants. Full details: http://www.albinism.org/wp-content/uploads/2021/06/Let-Your-Voice-Be-Heard.docx

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NOAH Events This Week!

Posted: June 7, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Monday, June 14th:

Parent Connections: To Whom Much is Given, Much is Required

Wednesday, June 16th:

NOAH Connections: PWA Book Club

Tuesday, June 22nd:

NOAH Connections: Aging with Albinism

NOAH Connections: PWAs in the Legal Profession

Thursday, June 24th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Wednesday, June 30th:

NOAH Connections: Preschool

Thursday, July 1st:

NOAH Connections: Adults

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Memorial Day

This Memorial Day, NOAH remembers and honors those who have given their lives serving our country. 

Posted: June 1st, 2021

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Have YOU Registered for NOAH Camp?!

Don’t miss out on fun for the whole family with your NOAH friends – register for 2021 NOAH Family Summer Camp today! www.albinism.org/nh-camp

Check out this awesome camp memories slideshow made by NOAH member, Drake T.! See any familiar faces?

Posted: June 1st, 2021

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NOAH Night Updates!

Get Your NOAH Night Tickets Today!!

NOAH Night is just around the corner, and we can’t wait to celebrate the albinism                   community with our hosts Marleena & Casey  (and special guest Rupert!).

Check out our NOAH Night plans and get YOUR tickets now: www.albinism.org/NOAHNight

Special thanks to our NOAH Night Sponsors: Gatherly, Spot My UV, and Ocutech!

Posted: June 1st, 2021

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Want to See YOUR Favorite Company’s Name in Lights?

We are still accepting sponsors for NOAH Night! If you know of an awesome company that would want to join in supporting this celebration of the albinism community, share our sponsorship packet with them!​​​​​​​

www.albinism.org/NOAHNight/

Posted: June 1st, 2021

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• Check out this awesome news feature about 2021 McGowan Leadership Scholarship Recipient, Bianca McEvoy, who recently achieved her life-long dream of being accepted to Harvard College! https://bit.ly/34vgHv3
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• NOAH Board Chair, Donté Mickens, was recently appointed by Governor Ron DeSantis to the Florida Rehabilitation Council for the Blind. Congratulations, Donté!! https://bit.ly/3fWVf7s​​​​​​​

Posted: June 1st, 2021

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Wednesday: Parenting without Pigment

June 2nd at 8:30pm ET // 5:30pm PT

PWPs (parents without pigment), we can’t wait to see you for our next get-together this Wednesday! Join hosts Andrew & Katherine S. to connect with fellow parents.

www.albinism.org/NOAH-Connections/#pwp

Posted: June 1st, 2021

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Thursday: Adult Connections

June 3rd at 9:00pm ET // 6:00pm PT

Adult PWAs, we hope to see you this Thursday for our next session of NOAH Connections!

New to Adult Connections? Join today for the invite to this call and future opportunities to connect:

www.albinism.org/NOAH-Connections/#adults

Posted: June 1st, 2021

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Friday: Parent Connections

June 4th at 1:00pm ET // 10:00am PT

Parents of young children, we can’t wait to see you for our next Parent Connections call! Join Sheila Adamo to ask questions, share stories, and learn about adapting to the new role of a parent of a child with albinism.

Enroll in Parent Connections Today!
www.albinism.org/parent-connections

Posted: June 1st, 2021

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Sunday: Parent Connections

June 6th

Grades K-5 at 2pm ET // 11am PT

​​​​​​​Tweens/Teens at 3pm ET // 1pm PT 

NOAH Kids & Teens, join Jocelyn this Sunday for an afternoon of fun activities that promote the practice of mindfulness. We’ll learn grounding exercises, make our own stress balls, and more!

www.albinism.org/NOAH-Connections

Posted: June 1st, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, June 10th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, June 13th:

NOAH Connections: Canadian PWAs

Monday, June 14th:

Parent Connections: To Whom Much is Given, Much is Required

Wednesday, June 16th:

NOAH Connections: PWA Book Club

Tuesday, June 22nd:

NOAH Connections: Aging with Albinism

NOAH Connections: PWAs in the Legal Profession

Thursday, June 24th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Wednesday, June 30th:

NOAH Connections: Preschool

Posted: June 1st, 2021

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Register for Camp Today!

The moment we’ve been waiting for is finally here….registration is now open for NOAH Family Summer Camp 2021! 

Will we see YOU there? 

Register today! www.albinism.org/nh-camp

PS – have questions about camp? Join us for Family Camp Coffee Chat for more info.

Posted: May 24th, 2021

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One Week Left to Apply for NOAH Mentorship Program

The NOAH Mentorship Program seeks to connect young adult PWAs with older community members with shared interests. This near-peer mentorship program will pair participants over a year-long term.

Learn more and sign up now! www.albinism.org/mentorship

Posted: May 24th, 2021

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NOAH Night Updates!

Get Your NOAH Night Tickets Today!!

NOAH Night is just around the corner, and we can’t wait to celebrate the albinism                   community with our hosts Marleena & Casey  (and special guest Rupert!).

Check out our NOAH Night plans and get YOUR tickets now: www.albinism.org/NOAHNight

Posted: May 24th, 2021

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Introducing! NOAH Virtual Choir 2021 Ft. RobenX

Don’t miss YOUR chance to be part of the NOAH Has Talent! Showcase alongside this talented group! Send in a video featuring your talent or unique skill by this Friday, May 28th. 

Learn more & submit your talent:
www.albinism.org/NOAHNight/

Posted: May 24th, 2021

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Want to see YOUR name in lights?

There’s still time to sponsor NOAH Night! Join our NOAH Night sponsors, Gatherly & Ocutech, in supporting this celebration of the albinism community, and YOU could be featured throughout this exciting event.

www.albinism.org/NOAHNight/

Posted: May 24th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Wednesday: Preschool Connections

May 26th at 12:00pm ET // 9:00am PT

Preschoolers, You’re Next! 

Miss Kathi can’t wait to see your smiling faces for Preschool Connections next Wednesday, May 26th at 12pm ET. We’ll read “My No, No, No Day!” and share about hard days and the ways we can make them better.

www.albinism.org/NOAH-Connections/#preschool

Posted: May 24th, 2021

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Wednesday: Makeup Basics for PWAs

May 26th at 8:30pm ET // 5:30pm PT

Calling all PWAs ages 12-25! Interested in makeup but not sure where to start? Join Mashall and Mackenzie as they discuss makeup basics and share their personal tips & tricks for PWAs!

www.albinism.org/NOAH-Connections/#makeup

Posted: May 24th, 2021

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Thursday: Teen Connections

May 27th at 8:00pm ET // 5:00pm PT

Teens, join Gabriella & Yasmine Straker for our next session of Teen Connections to discuss advocating for yourself at school. Whether you have suggestions to share, or would like some new tips & tricks, you won’t want to miss out on this chance to connect!

www.albinism.org/NOAH-Connections/#teens

Posted: May 24th, 2021

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Thursday: Young Adult Connections

May 27th at 9:15pm ET // 6:15pm PT

Young adults, we hope to see you this Thursday for our next session of NOAH Connections!

New to Young Adult Connections? Join today for the invite to this call and future opportunities to connect:

www.albinism.org/NOAH-Connections/#young-adults

Posted: May 24th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Tuesday, June 1st:

NOAH Connections: All About Guide Dogs

Wednesday, June 2nd:

NOAH Connections: Family Camp Coffee Chat

NOAH Connections: Parenting without Pigment

Thursday, June 3rd:

NOAH Connections: Adults

Saturday, June 6th:

NOAH Connections: Conversations with Jocelyn – Mindfulness

Grades K-5 ~ Tweens & Teens

Thursday, June 10th:

NOAH Connections:

Posted: May 24th, 2021

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Family Camp Registration Opening Soon!

Get ready to slide into summer with NOAH Family Camp! 

Camp registration is opening soon and we can’t contain our excitement! In just a few short months, we’ll be sliding on the big slip-and-slide with our NOAH friends. Will we see you there?!

www.albinism.org/nh-camp

Posted: May 17th, 2021

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Help Us Spread the Word!

Exciting NOAH Night Sponsorship opportunities are available, and we need your help finding sponsors! Do you know someone who would be eager to celebrate and support the albinism community? Make sure they don’t miss out!

www.albinism.org/NOAHNight/

Posted: May 17th, 2021

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• Check out this article about 16-year-old Xueli Abbing, a very successful model with albinism who has been featured in Vogue Magazine, as well as campaigns for top fashion designers! ​​​​​​https://www.bbc.com/news/world-asia-china-56464881
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• Have you heard? Tomorrow, May 18th, TLC is premiering a new special called “Born with Albinism” that follows Jon and Liz Grabowski, who have adopted five children from China, four of whom have albinism! https://realscreen.com/2021/05/17/exclusive-tlc-slates-thinkfactory-media-produced-special-born-with-albinism/

Posted: May 17th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: Aging with Albinism – Your Albinism Adventure

May 18th at 4:30pm ET // 1:30pm PT

Join host June Waugh this Tuesday to share your story of the impact albinism has had in your life, how it shaped your decisions, and influenced who you are today.

www.albinism.org/NOAH-Connections/#aging

Posted: May 17th, 2021

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Wednesday: Canadian Parents Connections

May 19th at 8:00pm ET // 5:00pm PT

Canadian Parents, we can’t wait to see you this Wednesday at 8pm ET!  Led by Katie B. and Emily U., we’ll connect with other parents of kids with albinism of all ages across the country for an open discussion.

www.albinism.org/NOAH-Connections/#canadian-parents

Posted: May 17th, 2021

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Wednesday: PWAs in STEM

May 19th at 9:00pm ET // 6:00pm PT

Calling All PWAs in the STEM Fields! 

You’re invited to a social gathering just for PWAs in STEM! Join Sarah and Derek this Wednesday to connect with others in the field.

Sign up now! www.albinism.org/NOAH-Connections/#STEM

Posted: May 17th, 2021

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Thursday: Adult Connections

May 20th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections, hosted by Casey Greer! Log on at 9pm ET // 6pm PT on Thursday, May 20th for social time with fellow adults with albinism!

www.albinism.org/NOAH-Connections/#adults

Posted: May 17th, 2021

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Thursday: Parent Connections – Fathers Only

May 20th at 9:00pm ET // 6:00pm PT

Dads, You’re Up Next! 

We hope to see you this Thursday at 9pm ET // 8pm CT for a Parent Connections call just for fathers. This is a great chance to connect with other dads of kids with albinism. Fathers with children of all ages are welcome!

www.albinism.org/parent-connections

Posted: May 17th, 2021

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Sunday: Book Reading & Chat with RobenX

May 23rd at 2:00pm ET // 11:00am PT

We are so excited to have author RobenX join us this Sunday to read and chat about his book, “The Colors of Olleh”.  All community members are welcome to join us for this special session of NOAH Connections.

www.albinism.org/NOAH-Connections/#RobenX

Posted: May 17th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Wednesday, May 26th

NOAH Connections: Preschool

NOAH Connections: Make-Up Basics for PWAs

Thursday, May 27th

NOAH Connections: Teens

NOAH Connections: Young Adults

Tuesday, June 1st:

NOAH Connections: All About Guide Dogs

Thursday, June 3rd:

NOAH Connections: Adults

Saturday, June 6th:

NOAH Connections: Conversations with Jocelyn – Mindfulness

Grades K-5 ~ Tweens & Teens

Thursday, June 10th:

NOAH Connections: Teens

Posted: May 17th, 2021

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Announcing! Adult Weekend 2021

We are thrilled to announce that Adult Weekend 2021 will be held in Memphis, TN! Adults with albinism, save the date and clear your schedules for October 1-3, 2021. We can’t wait to see you there!

www.albinism.org/adult-weekend

Posted: May 10th, 2021

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NOAH Night Talent Search!

Calling all PWAs! Do you have a noteworthy talent that makes YOU uniquely you? Share your skills in our talent showcase, NOAH Has Talent!, during our NOAH Night celebration.

Learn more & submit YOUR talent today (submissions due May 19th): www.albinism.org/NOAHNight/#talent

Posted: May 10th, 2021

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NOAH Research Program

With your support, NOAH will become a leading voice in albinism research through the work of its self-sustained Research Program to support and enhance quality of life for PWAs of all ages.

Learn more: www.albinism.org/research

Posted: May 10th, 2021

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Spring for NOAH 

Shout out to our #SpringForNOAH teams who are off and running, walking, biking, stitching and more! 

How will YOU use YOUR passion and skills to raise awareness and funds with your community? 

Sign up today to join in the fun! www.albinism.org/fundraisers

Posted: May 10th, 2021

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Don’t Miss Out!!

Do you want a commemorative finisher t-shirt from NOAH’s Inaugural SPF 3K-5K-10K? Don’t wait – sign up today! 

Register by May 16th and select “Entry with Shirt” or “SPF Super Supporter with Shirt” to get your very own, stylish SPF race shirt!

Don’t miss out! Sign up today: www.albinism.org/spf​​​​​​​

Posted: May 10th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Monday: Grandparent Connections – Grandparenting a Child with Albinism

May 10th at 8:30pm ET // 5:30pm PT

Do you have a special Grandma, Grandpa, Papa, Nana or other grandparent in your life?

Let them know about our next Grandparent Connections call,  tonight at 8:30pm ET!

Grandparents, enroll now!

albinism.org/grandparentconnections

Posted: May 10th, 2021

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Tuesday: Coffee Chat

May 11th at 8:00pm ET // 5:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

https://www.albinism.org/noah-connections/#coffee

Posted: May 10th, 2021

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Thursday: Teen Connections

May 13th at 8:00pm ET // 5:00pm PT

Teens, you’re invited to our next Teen Connections call, this Thursday at 8pm ET. 

New to Teen Connections? Sign up today and you’ll be invited to future virtual gatherings too!

www.albinism.org/NOAH-Connections/#teens

Posted: May 10th, 2021

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Thursday: Parent Connections – Mothers Only

May 13th at 9:00pm ET // 6:00pm PT

Mom, it’s your turn!

Join us for our next Parent Connections call, Mothers Only, this Thursday at 9pm ET, to connect with fellow moms of PWAs! Moms with children of all ages are welcome to join.

Not a member? Enroll in Parent Connections today! www.albinism.org/parent-connections

Posted: May 10th, 2021

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Thursday: Young Adult Connections

May 13th at 9:15pm ET // 6:15pm PT

Young adults, we can’t wait to see you this Thursday!

New to Young Adult Connections? Sign up today and you’ll be invited to future virtual gatherings too!

www.albinism.org/NOAH-Connections/#young-adults

Posted: May 10th, 2021

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Sunday: Kids’ PWA Book Club

May 16th at 3:00pm ET // 12:00pm PT

Book club kids, finish up reading “A Blind Guide to Normal” and get ready to join Kathi & Beth for a discussion this Sunday at 3:00pm ET // 12:00pm PT. We can’t wait to hear what you thought of the book!

www.albinism.org/NOAH-Connections/#book-club

Posted: May 10th, 2021

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Sunday: Canadian Adult PWA Connections

May 16th at 4:00pm ET // 1:00pm PT

Calling All Canadian PWAs!

Join host Shelly Francis for social time with fellow Canadian adults with albinism this Sunday, May 16th at 4pm ET / 1pm PT.

www.albinism.org/NOAH-Connections/#canadian-pwas

Posted: May 10th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Tuesday, May 18th

NOAH Connections: Aging with Albinism

Wednesday, May 19th 

NOAH Connections: Canadian Parents

NOAH Connections: PWAs in STEM

Thursday, May 20th 

Parent Connections: Fathers Only

Posted: May 10th, 2021

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Announcing the NOAH Research Program!

With your support, NOAH will become a leading voice in albinism research through the work of its self-sustained Research Program to support and enhance quality of life for PWAs of all ages.

Learn more: www.albinism.org/research

Posted: May 3rd, 2021

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Announcing the NOAH Mentorship Program!

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An initiative of the Junior Advisory Council, the NOAH Mentorship Program seeks to connect young adult PWAs with older members of the community who share their interests. This near-peer mentorship program will pair high school students, college/trade students, and recent graduates in the workforce for a year-long term.

Learn more and sign up today! www.albinism.org/mentorship

Posted: May 3rd, 2021

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New Date for NOAH Night!

We’re so excited for International Albinism Awareness Day that we’re starting the party early! Join us on Saturday, June 12th for NOAH Night: A Cause for Celebration. You won’t want to miss this virtual celebration of the albinism community – the perfect blend of fellowship, albinism awareness, and FUNdraising!

For more details including sponsorship opportunities  www.albinism.org/NOAHNight

Posted: May 3rd, 2021

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The Colors of Olleh

We are so excited to have author RobenX join us Sunday, May 23rd at 2pm ET to read and chat about his book, “The Colors of Olleh”.  All community members are welcome to join us for this special session of NOAH Connections.

www.albinism.org/NOAH-Connections/#RobenX

Posted: May 3rd, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: PWAs in the Legal Profession

May 4th at 8:30pm ET // 5:30pm PT

Law students, lawyers, judges, and paralegals – we can’t wait to see you for social time this Tuesday!

New to PWAs in the Legal Profession? Sign up now and you’ll be invited to future gatherings too! www.albinism.org/NOAH-Connections/#legal

Posted: May 3rd, 2021

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Wednesday: PWA Book Club

May 5th at 9:00pm ET // 6:00pm PT

Book club members, finish up reading “The Dog Stars” by Peter Heller, and get ready to discuss on Wednesday!

www.albinism.org/NOAH-Connections/#pwa-book-club

Posted: May 3rd, 2021

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Thursday: Adult Connections

May 6th at 9:00pm ET // 6:00pm PT

Adults, we can’t wait to see you this Thursday for our next session of Adult Connections. 

New to Adult Connections? Sign up today and you’ll get reminders for future sessions of Adult Connections: www.albinism.org/NOAH-Connections/#adults

Posted: May 3rd, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Tuesday, May 11th

NOAH Connections: Coffee Chat

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Parent Connections: Mothers Only 

Sunday, May 16th

NOAH Connections: Kids’ PWA Book Club

Tuesday, May 18th

NOAH Connections: Aging with Albinism

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Thursday, May 20th 

Parent Connections: Fathers Only

Friday, May 21st

NOAH Workshop Fundraiser: Opinion Writing Workshop with Hana Schank

Sunday, May 23rd

NOAH Connections: Book Reading & Chat with RobenX – The Colors of Olleh

Thursday, May 27th

NOAH Connections: Teens

NOAH Connections: Young Adults

Posted: May 3rd, 2021

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Thank You, Volunteers!

This past week was National Volunteer Week, and NOAH took to social media to thank its many, wonderful volunteers. The volunteers pictured represent only a fraction of the many individuals who share their time, energy, talents, and more with NOAH. 

Thank you to each and every one of our volunteers!

Posted: April 28th, 2021

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NOAH Camp: Save the Dates!

​​​​​​​We are planning to hold NOAH Family Summer Camp in-person from July 31-August 4, 2021, and we can’t wait to see you there! 

More details will be available in mid-May.

www.albinism.org/nh-camp

Posted: April 28th, 2021

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Less Than One Week Left to Apply!

Applications for the McGowan Leadership Scholarship are due May 1st, which means there’s less than one week left to apply.

Do you know a young leader with albinism? Remind them to finish up their application!

www.albinism.org/leadership

Posted: April 28th, 2021

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FYI: A.S.P.E.C.T. Program

​​​​​​​The Prevent Blindness A.S.P.E.C.T. Program aims to empower individuals to be engaged in their eye health. NOAH community member Brandi Green participated last year, and encourages interested community members to apply. 

Learn more and apply by May 28th:

https://bit.ly/3era4hK

Posted: April 28th, 2021

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• Check out this article about Paralympic bronze medal sprinter, Kym Crosby, and how running track increased her confidence.https://go.teamusa.org/2QS4r4e

• ReBokeh, created for low vision users by founder and PWA, Rebecca Rosenberg, needs your help to create the next generation of vision assistive technology for people with low vision! ReBokeh is seeking engaged beta testers of all ages, genders, and races to try out their app and provide critical feedback that will shape the future of the technology. 
  
  Sign up through their online form to receive free, pre-release access to the ReBokeh mobile app assistive technology system: https://bit.ly/3gAtzad

Posted: April 28th, 2021

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NOAH Events this week

Check out the great opportunities to connect this week!

Monday: Parents that have Adopted Children with Albinism

April 26th at 9:00pm ET // 6:00pm PT

Parents that have adopted children with albinism – join Martha Bonneau today at 9pm ET to hear about her journey as an adoptive mother of two children, one PWA, and connect with fellow parents in an open discussion. 

Enroll in Parent Connections Today!
www.albinism.org/parent-connections

Posted: April 28th, 2021

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Wednesday: Preschool Connections

April 28th at 12:00pm ET // 9:00am PT

Preschoolers, you’re invited to a fun, Earth Day-Themed Activity with Kathi Garza on Wednesday, April 28th at 12pm ET! 

Grown-ups, check out the craft supply list and register your preschooler now: www.albinism.org/NOAH-Connections/#preschool

Posted: April 28th, 2021

Wednesday: PWAs in STEM

April 28th at 8:30pm ET // 5:30pm PT

You’re invited to a social gathering just for PWAs in STEM! Join Sarah Kane and Derek Schindelman this Wednesday to connect with others in the field.

Sign up now! www.albinism.org/NOAH-Connections/#STEM

Posted: April 28th, 2021

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Thursday: Teen Connections

April 29th at 8:00pm ET // 5:00pm PT

NOAH Teens, you’re invited to our next Teen Connections call! We will be saying farewell to Aidan on his last call as our host and thanking him for facilitating many great get-togethers.

https://www.albinism.org/noah-connections/#teens ​​​​​​​

Posted: April 28th, 2021

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Thursday: Young Adult Connections

April 29th at 9:15pm ET // 6:15pm PT

Young Adults, join us for our next session to say farewell to Aidan on his last call as our host, and thank him for hosting many of our recent gatherings!

https://www.albinism.org/noah-connections/#young-adults

Posted: April 28th, 2021

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Sunday: Conversations with Jocelyn – Coping with Feelings

May 2nd

NOAH Kids & Teens – how do you deal with not-so-great feelings that might come from visual challenges, bullying, and more? Join Jocelyn and your NOAH friends on Sunday, May 2nd to discuss and learn healthy ways to cope.

K-5 at 1:30pm ET // 10:30am PT

6-8 at 2:15pm ET // 11:15am PT

Teens at 3:00pm ET // 12:00pm PT

Posted: April 28th, 2021

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Sunday: The Beauty of Inclusion

May 2nd at 4:00pm ET // 1:00pm PT

Watch The Beauty of Inclusion with Thando Hopa at https://youtu.be/_q-aP_Ru4w8, then join Dr. Niya Pickett Miller this Sunday for a cultivated conversation open to all NOAH community members.

www.albinism.org/NOAH-Connections/#thando-hopa

Posted: April 28th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Tuesday, May 4th

NOAH Connections: PWAs in the Legal Profession

Wednesday, May 5th

NOAH Connections: PWA Book Club

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Tuesday, May 11th

NOAH Connections: Coffee Chat

Thursday, May 13th

NOAH Connections:

Posted: April 28th, 2021

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Spread the Word!

We’re looking for our next Executive Director, and we need your help to share the job listing with your networks. 

Letter of interest and resumé due by Wednesday, April 21st!

For more information, visit: www.albinism.org/ed-search

Posted: April 19th, 2021

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You’re Invited to NOAH’s  Inaugural SPF 3K-5K-10K!

NOAH member & board member, Kris Baker, will be running for NOAH’s Inaugural SPF 3K-5K-10K, and she wants YOU to join her! Check out her video message at https://fb.watch/4XedlZQjYC/.

Register today: www.albinism.org/spf

Posted: April 19th, 2021

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NOAH needs YOU!

Help NOAH keep virtual programming fresh and relevant – apply to join the NOAH Connections Advisory Committee. 

Learn more or apply today: www.albinism.org/NOAH-Connections/advisory

Posted: April 19th, 2021

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McGowan Leadership Scholarship – Where are they now?

We caught up with Trisha Laughlin, Silpa Tadavarthy, and Joe Adamo to see what they’ve been up to since receiving the McGowan Leadership Scholarship Award.

Check out their stories and apply for the McGowan Leadership Scholarship today. Applications due May 1st!

​​​​​​​

www.albinism.org/leadership

Posted: April 19th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

McGowan Leadership Scholarship – Where are they now?

We caught up with Trisha Laughlin, Silpa Tadavarthy, and Joe Adamo to see what they’ve been up to since receiving the McGowan Leadership Scholarship Award.

Check out their stories and apply for the McGowan Leadership Scholarship today. Applications due May 1st!

​​​​​​​

www.albinism.org/leadership

Posted: April 19th, 2021

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Thursday: Adult Connections 

April 22nd at 9:00pm ET // 6:00pm PT

Adult PWAs, join host Anne Harris this Thursday for social time to discuss life hacks and tips/tricks for low vision! 

​​​​​​​

New to NOAH Connections? Sign up now for the link to this call and you’ll also be invited to future opportunities to connect! 

www.albinism.org/NOAH-Connections/#adults

Posted: April 19th, 2021

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Sunday: BIPOC Connections

April 25th at 4:00pm ET // 1:00pm PT

Adults with albinism who identify as Black, Indigenous, People of Color (BIPOC), join host Silpa Tadavarthy for our next session of BIPOC Connections this Sunday. 

www.albinism.org/NOAH-Connections/#bipoc

Posted: April 19th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Tuesday, April 28th

NOAH Connections: PWAs in the STEM Fields

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, May 2nd

NOAH Connections: Thando Hopa: The Beauty of Inclusion

NOAH Connections: Coping with Feelings

Grades K-5 ~ Grades 6-8 ~ Teens

Tuesday, May 4th

NOAH Connections: PWAs in the Legal Profession

Wednesday, May 5th

NOAH Connections: PWA Book Club

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Parent Connections: Mothers Only 

Sunday, May 16th

NOAH Connections: Kids’ PWA Book Club

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Thursday, May 20th 

Parent Connections: Fathers Only

Friday, May 21st

NOAH Workshop Fundraiser: Opinion Writing Workshop with Hana Schank

Posted: April 19th, 2021

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Spring for NOAH
Shout Out!

Shout out to our first Spring for NOAH teams who are off and running, walking, biking, hiking ,etc. How will YOU use YOUR passion and skills to raise awareness and funds with your community? Sign up today to join in the fun! www.albinism.org/fundraisers

Posted: April 14th, 2021

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We need YOU for the NOAH Night Committee!

NOAH has many exciting ideas for the NOAH Night celebration on IAAD, but we need your help to make our dreams a reality! Apply to join the NOAH Night Committee for the chance to be involved with this fun celebration of the albinism community that will bring PWAs and their loved ones together while raising much-needed funds and awareness.

Apply today: www.albinism.org/NOAHNight

Posted: April 14th, 2021

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Support New Parents!

Purchase an item from NOAH’s New Parent Program Wish List today to help welcome parents of newly-diagnosed or newly-adopted kids into our NOAH family!

https://amzn.to/31OHa5u

Posted: April 14th, 2021

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The Beauty of Inclusion

Watch The Beauty of Inclusion with Thando Hopa at https://youtu.be/_q-aP_Ru4w8, then join Dr. Niya Pickett Miller on May 2nd at 4pm ET for a cultivated conversation to unpack and discuss.

www.albinism.org/NOAH-Connections/#thando-hopa

Posted: April 14th, 2021

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• Shoutout to former Board Chair, Pam McGonigle, who was recently featured in USABA’s “45-for-45” series: https://fb.watch/4Jx6R2s9Q6/

• Congratulations to community member and long-time teacher, Erika Evans, who was recently named as the recipient of the 2021 Alma J. Washington Educator of the Year award: https://bit.ly/2PLRatT

• NOAH members, the Troxell family, are working to preserve high quality vision services for the children of Rhode Island, and to obtain secure, equitable funding. https://turnto10.com/i-team/families-of-blind-and-visually-challenged-students-fight-for-continuity. If you’d like to show your support for VI students in Rhode Island, check out the petition at https://www.change.org/p/governor-mckee-and-the-ri-legislature-rhode-island-s-blind-and-v-i-students-deserve-equitable-access-to-a-quality-education ​​​​​​​

Posted: April 14th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Wednesday: Could Adults with Albinism Miss HPS?

April 14th at 8:30pm ET // 5:30pm PT

Adult PWAs, don’t miss this informative session about Hermansky-Pudlak Syndrome (HPS) presented by Donna Appell. Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being.

www.albinism.org/NOAH-Connections/#HPS

Posted: April 14th, 2021

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Thursday: Teen Connections 

April 15th at 8:00pm ET // 5:00pm PT

Teens, join host Aidan O’Connor for social time with fellow teens with albinism.

www.albinism.org/NOAH-Connections/#teens-4-15

Posted: April 14th, 2021

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Sunday: NOAH Kids’ PWA Book Club

April 18th at 3:00pm ET // 12:00pm PT

Join Kathi Garza and Beth Vrabel for NOAH Kids’ PWA Book Club, this Sunday as they introduce our next book choice, “A Blind Guide to Normal” by Beth Vrabel. 

Not a member? Register today! 

www.albinism.org/NOAH-Connections/#book-club

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Executive Director Search Update

NOAH has launched a search for our next Executive Director, and we need your help to share info about the position with your network. Read an update from Pam McGonigle (Chair, Executive Director Search Committee) at www.albinism.org/ed-search

Posted: April 5th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Tuesday, April 20th

NOAH Connections: Aging with Albinism

Thursday, April 22nd

NOAH Connections: Adults

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, May 2nd

NOAH Connections: Thando Hopa: The Beauty of Inclusion

Tuesday, May 4th

NOAH Connections: PWAs in the Legal Profession

Wednesday, May 5th

NOAH Connections: PWA Book Club

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Parent Connections: Mothers Only 

Sunday, May 16th

NOAH Connections: Kids’ PWA Book Club

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Thursday, May 20th 

Parent Connections: Fathers Only

Friday, May 21st

NOAH Workshop Fundraiser: Opinion Writing Workshop with Hana Schank

Posted: April 14th, 2021

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We Need YOU for the NOAH Night Committee!

NOAH has many exciting ideas for the NOAH Night celebration on IAAD, but we need your help to make our dreams a reality! Apply to join the NOAH Night Committee for the chance to be involved with this fun celebration of the albinism community that will bring PWAs and their loved ones together while raising much-needed funds and awareness.

Apply today: www.albinism.org/NOAHNight

Posted: April 5th, 2021

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There’s Still Time to Register for NOAH Virtual Choir!

Emails have been sent to registered choir participants with a link to practice materials. 

If you are interested in being part of this exciting project, get a jump-start on learning your music and register today!

www.albinism.org/choir

Posted: April 5th, 2021

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1 Month Left to Apply!

PWAs in the US or Canada enrolled in an undergraduate program, don’t miss your chance to apply for the 2021 McGowan Leadership Scholarship Award! 

Learn more and apply by May 1st at: www.albinism.org/leadership

Posted: April 5th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: PWAs in the Legal Profession

April 6th at 8:30pm ET // 5:30pm PT

Law students, lawyers, paralegals, and judges with albinism – you’re invited to a gathering just for PWAs in the legal profession! 

www.albinism.org/NOAH-Connections/#legal

Posted: April 5th, 2021

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Thursday: Adult Connections 

April 8th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections hosted by Kathi Garza! We hope to see you on Zoom for social time with fellow PWAs. 

www.albinism.org/NOAH-Connections/#adults-4-8

Posted: April 5th, 2021

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Friday: Parent Connections – What You Need to Know About HPS

April 9th at 3:00pm ET // 12:00pm PT

Parents – Wondering About HPS?

Join Donna Appell, RN this Friday for a safe & supportive session about Hermansky-Pudlak Syndrome (HPS). NOAH encourages HPS screening for all PWAs and this call will lead you in the right direction. 

Enroll in Parent Connections today: www.albinism.org/parent-connections

Posted: April 5th, 2021

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Sunday: Albinism & Performing Arts

April 11th at 4:00pm ET // 1:00pm PT

Join Marleena B., Caroline V., & Casey G. on Sunday to discuss albinism and the performing arts.

All are welcome to join to hear their stories, ask questions, and connect. 

www.albinism.org/NOAH-Connections/#performing-arts

Posted: April 5th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Wednesday, April 14th

NOAH Connections: Could Adults with Albinism Miss HPS?

Thursday, April 15th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, April 18th

NOAH Connections: NOAH Kids’ PWA Book Club

Tuesday, April 20th

NOAH Connections: Aging with Albinism

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Thursday, May 6th

Parent Connections: Mothers Only 

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Posted: April 5th, 2021

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