NOAH News Today

Karen’s First Day! 

In honor of Karen’s official first day as NOAH’s Executive Director, NOAH community member, Caroline V. has a few questions for her!

Do YOU have a question for Karen? Send us a video or written question with a photo of you for the chance to hear Karen’s answer!

Published: July 19, 2021

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• The Human Rights Council of the United Nations, during its 47th Session, appointed Muluka-Anne Miti-Drummond from Zambia as new Independent Expert in charge of the mandate addressing the enjoyment of human rights by persons with albinism. Thank you, Ikponwosa Ero for 6 years of tremendous commitment and devotion to human rights of people with albinism. We welcome Muluka-Anne Miti-Drummond as she takes on this important position!
  https://www.facebook.com/GlobalAlbinism/posts/359869162240257
  
  
• Albinism in the News! – Gavin Boulware is a photographer based in Charlotte, NC who is raising albinism awareness through his photography.
  Check out this recent feature about Gavin and his work:
  https://spectrumlocalnews.com/nc/charlotte/news/2021/07/08/albinism-awareness
  
  
• Sunscreen Recall – Recently, Johnson & Johnson announced a voluntary recall for 5 aerosol sunscreens from Neutrogena and Aveeno brands. 
  Read the full news story:
  https://www.npr.org/2021/07/15/1016247037/johnson-johnson-recalls-5-aerosol-sunscreens-after-finding-carcinogen-traces?
  
  
• American Foundation for the Blind (AFB) Seeking Adults with Low Vision to Participate in Survey – Now through August 8th, AFB seeks participants for The Journey Forward, a continuation of their Flatten Inaccessibility study.
  For more info visit:
  https://www.afb.org/research-and-initiatives/flatten-inaccessibility-survey

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 19, 2021

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• Paralympic Goalball athlete, Marybai Huking, did a live interview with United States Association of Blind Athletes on Facebook last week. Check out the recording: 
  https://www.facebook.com/UnitedStatesABA/videos/919245461992796
  
  
• Susana Rodríguez is a Paralympic Triathlete for Spain and a physician who has been tirelessly working on the frontlines of the pandemic. Check out this inspiring feature on Susana recently published by Time magazine:
  https://time.com/6077122/tokyo-olympics-athletes-covid-19-frontlines/

NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 12, 2021

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Welcome, Karen!

We were thrilled to share the exciting news that Karen Bly will be joining NOAH as our first-ever, full-time Executive Director. 

Want to learn more about Karen? Video ~ Press Release

Published: July 5, 2021

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• Liza Corso will be representing Team USA in the women’s 1500m at the upcoming Paralympic games in Tokyo. Check out this recent article about Liza: 
  https://pcaschool.org/pca-graduate-liza-corso-to-compete-in-2020-paralympics/
  
  
• Check out this recent news article featuring NOAH member, Lyra T., a teen with albinism who has been refining her coding skills at Alphapointe’s annual technology camp for students with visual impairments!
  https://missouriindependent.com/2021/06/29/why-this-kc-tech-camp-draws-kids-with-visual-impairments-from-all-over-the-country/

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NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 5, 2021

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• Albinism in the News – Daryl Walker! Check out this recent news feature about Daryl Walker, a PWA and two-time Paralympic Goalball athlete for Team USA! Daryl will be competing in his 3rd Paralympic games this fall in Tokyo. https://www.news4jax.com/sports/2021/06/23/daryl-walker-ready-for-another-shot-on-team-usa-goalball-squad-in-paralympics/
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• Did you miss the Global Albinism Alliance – Pilot’s International Albinism Awareness Day celebration? No worries – the event recording is now available on their website!  Check it out at:
  https://www.albinismday.com/celebration?

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NOAH Events This Week!

Published: June 28, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, July 8th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, July 11th:

NOAH Connections: Canadian Adults

Monday, July 12th:

NOAH Connections: PWAs in the Legal Profession

Thursday, July 15th:

NOAH Connections: Adults

Thursday, July 22nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

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• Did you know that NOAH Connections host and parent, Hana Schank, wrote a book? Barak Obama says Power to the Public is “worth a read for anyone who cares about making change happen…”
  Check it out:https://bit.ly/3h6RY6f
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• Submissions for the Rare Artist Program are now Open!
  The Rare Artist Contest provides a national platform for rare artists to showcase their artwork and highlight their stories.
  Learn more or submit your art at: https://everylifefoundation.org/rare-artist/

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NOAH Events This Week!

Published: June 21, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Wednesday, June 30th:

NOAH Connections: Preschool

Thursday, July 1st:

NOAH Connections: Adults

Thursday, July 8th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, July 11th:

NOAH Connections: Canadian Adults

Thursday, July 22nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

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• The National Academies of Sciences, Engineering, & Medicine presents a free webinar about sunscreen this Thursday, June 17th at 2:00pm ET. Learn more & register: https://bit.ly/3wjtOvv
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• American Foundation for the Blind seeking survey participants. Read this recent blog post by Dr. Penny Rosenblum for more information: https://www.afb.org/blog/entry/reflections-education-students-visual-impairments?

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NOAH Events This Week!

Published: June 14, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Tuesday, June 22nd:

NOAH Connections: Aging with Albinism

NOAH Connections: PWAs in the Legal Profession

Thursday, June 24th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Saturday, June 26th:

NOAH Connections: BIPOC

Wednesday, June 30th:

NOAH Connections: Preschool

Thursday, July 1st:

NOAH Connections: Adults

Thursday, July 8th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, July 11th:

NOAH Connections: Canadian Adults

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• Update from American Foundation for the Blind (AFB)Have you seen this recent blog post from AFB about the impact of the COVID-19 pandemic on students with visual impairments? Check it out at: https://www.afb.org/blog/entry/nine-months-how-covid19-pandemic-impacted-education-children-visual-impairments?
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• National Research and Training Center on Blindness and Low Vision at Mississippi State University seeking study participants. Full details: http://www.albinism.org/wp-content/uploads/2021/06/Let-Your-Voice-Be-Heard.docx

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NOAH Events This Week!

Posted: June 7, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Monday, June 14th:

Parent Connections: To Whom Much is Given, Much is Required

Wednesday, June 16th:

NOAH Connections: PWA Book Club

Tuesday, June 22nd:

NOAH Connections: Aging with Albinism

NOAH Connections: PWAs in the Legal Profession

Thursday, June 24th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Wednesday, June 30th:

NOAH Connections: Preschool

Thursday, July 1st:

NOAH Connections: Adults

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Memorial Day

This Memorial Day, NOAH remembers and honors those who have given their lives serving our country. 

Posted: June 1st, 2021

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Have YOU Registered for NOAH Camp?!

Don’t miss out on fun for the whole family with your NOAH friends – register for 2021 NOAH Family Summer Camp today! www.albinism.org/nh-camp

Check out this awesome camp memories slideshow made by NOAH member, Drake T.! See any familiar faces?

Posted: June 1st, 2021

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NOAH Night Updates!

Get Your NOAH Night Tickets Today!!

NOAH Night is just around the corner, and we can’t wait to celebrate the albinism                   community with our hosts Marleena & Casey  (and special guest Rupert!).

Check out our NOAH Night plans and get YOUR tickets now: www.albinism.org/NOAHNight

Special thanks to our NOAH Night Sponsors: Gatherly, Spot My UV, and Ocutech!

Posted: June 1st, 2021

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Want to See YOUR Favorite Company’s Name in Lights?

We are still accepting sponsors for NOAH Night! If you know of an awesome company that would want to join in supporting this celebration of the albinism community, share our sponsorship packet with them!​​​​​​​

www.albinism.org/NOAHNight/

Posted: June 1st, 2021

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• Check out this awesome news feature about 2021 McGowan Leadership Scholarship Recipient, Bianca McEvoy, who recently achieved her life-long dream of being accepted to Harvard College! https://bit.ly/34vgHv3
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• NOAH Board Chair, Donté Mickens, was recently appointed by Governor Ron DeSantis to the Florida Rehabilitation Council for the Blind. Congratulations, Donté!! https://bit.ly/3fWVf7s​​​​​​​

Posted: June 1st, 2021

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Wednesday: Parenting without Pigment

June 2nd at 8:30pm ET // 5:30pm PT

PWPs (parents without pigment), we can’t wait to see you for our next get-together this Wednesday! Join hosts Andrew & Katherine S. to connect with fellow parents.

www.albinism.org/NOAH-Connections/#pwp

Posted: June 1st, 2021

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Thursday: Adult Connections

June 3rd at 9:00pm ET // 6:00pm PT

Adult PWAs, we hope to see you this Thursday for our next session of NOAH Connections!

New to Adult Connections? Join today for the invite to this call and future opportunities to connect:

www.albinism.org/NOAH-Connections/#adults

Posted: June 1st, 2021

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Friday: Parent Connections

June 4th at 1:00pm ET // 10:00am PT

Parents of young children, we can’t wait to see you for our next Parent Connections call! Join Sheila Adamo to ask questions, share stories, and learn about adapting to the new role of a parent of a child with albinism.

Enroll in Parent Connections Today!
www.albinism.org/parent-connections

Posted: June 1st, 2021

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Sunday: Parent Connections

June 6th

Grades K-5 at 2pm ET // 11am PT

​​​​​​​Tweens/Teens at 3pm ET // 1pm PT 

NOAH Kids & Teens, join Jocelyn this Sunday for an afternoon of fun activities that promote the practice of mindfulness. We’ll learn grounding exercises, make our own stress balls, and more!

www.albinism.org/NOAH-Connections

Posted: June 1st, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, June 10th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, June 13th:

NOAH Connections: Canadian PWAs

Monday, June 14th:

Parent Connections: To Whom Much is Given, Much is Required

Wednesday, June 16th:

NOAH Connections: PWA Book Club

Tuesday, June 22nd:

NOAH Connections: Aging with Albinism

NOAH Connections: PWAs in the Legal Profession

Thursday, June 24th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Wednesday, June 30th:

NOAH Connections: Preschool

Posted: June 1st, 2021

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Register for Camp Today!

The moment we’ve been waiting for is finally here….registration is now open for NOAH Family Summer Camp 2021! 

Will we see YOU there? 

Register today! www.albinism.org/nh-camp

PS – have questions about camp? Join us for Family Camp Coffee Chat for more info.

Posted: May 24th, 2021

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One Week Left to Apply for NOAH Mentorship Program

The NOAH Mentorship Program seeks to connect young adult PWAs with older community members with shared interests. This near-peer mentorship program will pair participants over a year-long term.

Learn more and sign up now! www.albinism.org/mentorship

Posted: May 24th, 2021

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NOAH Night Updates!

Get Your NOAH Night Tickets Today!!

NOAH Night is just around the corner, and we can’t wait to celebrate the albinism                   community with our hosts Marleena & Casey  (and special guest Rupert!).

Check out our NOAH Night plans and get YOUR tickets now: www.albinism.org/NOAHNight

Posted: May 24th, 2021

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Introducing! NOAH Virtual Choir 2021 Ft. RobenX

Don’t miss YOUR chance to be part of the NOAH Has Talent! Showcase alongside this talented group! Send in a video featuring your talent or unique skill by this Friday, May 28th. 

Learn more & submit your talent:
www.albinism.org/NOAHNight/

Posted: May 24th, 2021

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Want to see YOUR name in lights?

There’s still time to sponsor NOAH Night! Join our NOAH Night sponsors, Gatherly & Ocutech, in supporting this celebration of the albinism community, and YOU could be featured throughout this exciting event.

www.albinism.org/NOAHNight/

Posted: May 24th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Wednesday: Preschool Connections

May 26th at 12:00pm ET // 9:00am PT

Preschoolers, You’re Next! 

Miss Kathi can’t wait to see your smiling faces for Preschool Connections next Wednesday, May 26th at 12pm ET. We’ll read “My No, No, No Day!” and share about hard days and the ways we can make them better.

www.albinism.org/NOAH-Connections/#preschool

Posted: May 24th, 2021

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Wednesday: Makeup Basics for PWAs

May 26th at 8:30pm ET // 5:30pm PT

Calling all PWAs ages 12-25! Interested in makeup but not sure where to start? Join Mashall and Mackenzie as they discuss makeup basics and share their personal tips & tricks for PWAs!

www.albinism.org/NOAH-Connections/#makeup

Posted: May 24th, 2021

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Thursday: Teen Connections

May 27th at 8:00pm ET // 5:00pm PT

Teens, join Gabriella & Yasmine Straker for our next session of Teen Connections to discuss advocating for yourself at school. Whether you have suggestions to share, or would like some new tips & tricks, you won’t want to miss out on this chance to connect!

www.albinism.org/NOAH-Connections/#teens

Posted: May 24th, 2021

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Thursday: Young Adult Connections

May 27th at 9:15pm ET // 6:15pm PT

Young adults, we hope to see you this Thursday for our next session of NOAH Connections!

New to Young Adult Connections? Join today for the invite to this call and future opportunities to connect:

www.albinism.org/NOAH-Connections/#young-adults

Posted: May 24th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Tuesday, June 1st:

NOAH Connections: All About Guide Dogs

Wednesday, June 2nd:

NOAH Connections: Family Camp Coffee Chat

NOAH Connections: Parenting without Pigment

Thursday, June 3rd:

NOAH Connections: Adults

Saturday, June 6th:

NOAH Connections: Conversations with Jocelyn – Mindfulness

Grades K-5 ~ Tweens & Teens

Thursday, June 10th:

NOAH Connections:

Posted: May 24th, 2021

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Family Camp Registration Opening Soon!

Get ready to slide into summer with NOAH Family Camp! 

Camp registration is opening soon and we can’t contain our excitement! In just a few short months, we’ll be sliding on the big slip-and-slide with our NOAH friends. Will we see you there?!

www.albinism.org/nh-camp

Posted: May 17th, 2021

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Help Us Spread the Word!

Exciting NOAH Night Sponsorship opportunities are available, and we need your help finding sponsors! Do you know someone who would be eager to celebrate and support the albinism community? Make sure they don’t miss out!

www.albinism.org/NOAHNight/

Posted: May 17th, 2021

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• Check out this article about 16-year-old Xueli Abbing, a very successful model with albinism who has been featured in Vogue Magazine, as well as campaigns for top fashion designers! ​​​​​​https://www.bbc.com/news/world-asia-china-56464881
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• Have you heard? Tomorrow, May 18th, TLC is premiering a new special called “Born with Albinism” that follows Jon and Liz Grabowski, who have adopted five children from China, four of whom have albinism! https://realscreen.com/2021/05/17/exclusive-tlc-slates-thinkfactory-media-produced-special-born-with-albinism/

Posted: May 17th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: Aging with Albinism – Your Albinism Adventure

May 18th at 4:30pm ET // 1:30pm PT

Join host June Waugh this Tuesday to share your story of the impact albinism has had in your life, how it shaped your decisions, and influenced who you are today.

www.albinism.org/NOAH-Connections/#aging

Posted: May 17th, 2021

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Wednesday: Canadian Parents Connections

May 19th at 8:00pm ET // 5:00pm PT

Canadian Parents, we can’t wait to see you this Wednesday at 8pm ET!  Led by Katie B. and Emily U., we’ll connect with other parents of kids with albinism of all ages across the country for an open discussion.

www.albinism.org/NOAH-Connections/#canadian-parents

Posted: May 17th, 2021

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Wednesday: PWAs in STEM

May 19th at 9:00pm ET // 6:00pm PT

Calling All PWAs in the STEM Fields! 

You’re invited to a social gathering just for PWAs in STEM! Join Sarah and Derek this Wednesday to connect with others in the field.

Sign up now! www.albinism.org/NOAH-Connections/#STEM

Posted: May 17th, 2021

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Thursday: Adult Connections

May 20th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections, hosted by Casey Greer! Log on at 9pm ET // 6pm PT on Thursday, May 20th for social time with fellow adults with albinism!

www.albinism.org/NOAH-Connections/#adults

Posted: May 17th, 2021

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Thursday: Parent Connections – Fathers Only

May 20th at 9:00pm ET // 6:00pm PT

Dads, You’re Up Next! 

We hope to see you this Thursday at 9pm ET // 8pm CT for a Parent Connections call just for fathers. This is a great chance to connect with other dads of kids with albinism. Fathers with children of all ages are welcome!

www.albinism.org/parent-connections

Posted: May 17th, 2021

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Sunday: Book Reading & Chat with RobenX

May 23rd at 2:00pm ET // 11:00am PT

We are so excited to have author RobenX join us this Sunday to read and chat about his book, “The Colors of Olleh”.  All community members are welcome to join us for this special session of NOAH Connections.

www.albinism.org/NOAH-Connections/#RobenX

Posted: May 17th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Wednesday, May 26th

NOAH Connections: Preschool

NOAH Connections: Make-Up Basics for PWAs

Thursday, May 27th

NOAH Connections: Teens

NOAH Connections: Young Adults

Tuesday, June 1st:

NOAH Connections: All About Guide Dogs

Thursday, June 3rd:

NOAH Connections: Adults

Saturday, June 6th:

NOAH Connections: Conversations with Jocelyn – Mindfulness

Grades K-5 ~ Tweens & Teens

Thursday, June 10th:

NOAH Connections: Teens

Posted: May 17th, 2021

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Announcing! Adult Weekend 2021

We are thrilled to announce that Adult Weekend 2021 will be held in Memphis, TN! Adults with albinism, save the date and clear your schedules for October 1-3, 2021. We can’t wait to see you there!

www.albinism.org/adult-weekend

Posted: May 10th, 2021

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NOAH Night Talent Search!

Calling all PWAs! Do you have a noteworthy talent that makes YOU uniquely you? Share your skills in our talent showcase, NOAH Has Talent!, during our NOAH Night celebration.

Learn more & submit YOUR talent today (submissions due May 19th): www.albinism.org/NOAHNight/#talent

Posted: May 10th, 2021

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NOAH Research Program

With your support, NOAH will become a leading voice in albinism research through the work of its self-sustained Research Program to support and enhance quality of life for PWAs of all ages.

Learn more: www.albinism.org/research

Posted: May 10th, 2021

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Spring for NOAH 

Shout out to our #SpringForNOAH teams who are off and running, walking, biking, stitching and more! 

How will YOU use YOUR passion and skills to raise awareness and funds with your community? 

Sign up today to join in the fun! www.albinism.org/fundraisers

Posted: May 10th, 2021

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Don’t Miss Out!!

Do you want a commemorative finisher t-shirt from NOAH’s Inaugural SPF 3K-5K-10K? Don’t wait – sign up today! 

Register by May 16th and select “Entry with Shirt” or “SPF Super Supporter with Shirt” to get your very own, stylish SPF race shirt!

Don’t miss out! Sign up today: www.albinism.org/spf​​​​​​​

Posted: May 10th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Monday: Grandparent Connections – Grandparenting a Child with Albinism

May 10th at 8:30pm ET // 5:30pm PT

Do you have a special Grandma, Grandpa, Papa, Nana or other grandparent in your life?

Let them know about our next Grandparent Connections call,  tonight at 8:30pm ET!

Grandparents, enroll now!

albinism.org/grandparentconnections

Posted: May 10th, 2021

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Tuesday: Coffee Chat

May 11th at 8:00pm ET // 5:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

https://www.albinism.org/noah-connections/#coffee

Posted: May 10th, 2021

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Thursday: Teen Connections

May 13th at 8:00pm ET // 5:00pm PT

Teens, you’re invited to our next Teen Connections call, this Thursday at 8pm ET. 

New to Teen Connections? Sign up today and you’ll be invited to future virtual gatherings too!

www.albinism.org/NOAH-Connections/#teens

Posted: May 10th, 2021

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Thursday: Parent Connections – Mothers Only

May 13th at 9:00pm ET // 6:00pm PT

Mom, it’s your turn!

Join us for our next Parent Connections call, Mothers Only, this Thursday at 9pm ET, to connect with fellow moms of PWAs! Moms with children of all ages are welcome to join.

Not a member? Enroll in Parent Connections today! www.albinism.org/parent-connections

Posted: May 10th, 2021

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Thursday: Young Adult Connections

May 13th at 9:15pm ET // 6:15pm PT

Young adults, we can’t wait to see you this Thursday!

New to Young Adult Connections? Sign up today and you’ll be invited to future virtual gatherings too!

www.albinism.org/NOAH-Connections/#young-adults

Posted: May 10th, 2021

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Sunday: Kids’ PWA Book Club

May 16th at 3:00pm ET // 12:00pm PT

Book club kids, finish up reading “A Blind Guide to Normal” and get ready to join Kathi & Beth for a discussion this Sunday at 3:00pm ET // 12:00pm PT. We can’t wait to hear what you thought of the book!

www.albinism.org/NOAH-Connections/#book-club

Posted: May 10th, 2021

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Sunday: Canadian Adult PWA Connections

May 16th at 4:00pm ET // 1:00pm PT

Calling All Canadian PWAs!

Join host Shelly Francis for social time with fellow Canadian adults with albinism this Sunday, May 16th at 4pm ET / 1pm PT.

www.albinism.org/NOAH-Connections/#canadian-pwas

Posted: May 10th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Tuesday, May 18th

NOAH Connections: Aging with Albinism

Wednesday, May 19th 

NOAH Connections: Canadian Parents

NOAH Connections: PWAs in STEM

Thursday, May 20th 

Parent Connections: Fathers Only

Posted: May 10th, 2021

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Announcing the NOAH Research Program!

With your support, NOAH will become a leading voice in albinism research through the work of its self-sustained Research Program to support and enhance quality of life for PWAs of all ages.

Learn more: www.albinism.org/research

Posted: May 3rd, 2021

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Announcing the NOAH Mentorship Program!

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An initiative of the Junior Advisory Council, the NOAH Mentorship Program seeks to connect young adult PWAs with older members of the community who share their interests. This near-peer mentorship program will pair high school students, college/trade students, and recent graduates in the workforce for a year-long term.

Learn more and sign up today! www.albinism.org/mentorship

Posted: May 3rd, 2021

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New Date for NOAH Night!

We’re so excited for International Albinism Awareness Day that we’re starting the party early! Join us on Saturday, June 12th for NOAH Night: A Cause for Celebration. You won’t want to miss this virtual celebration of the albinism community – the perfect blend of fellowship, albinism awareness, and FUNdraising!

For more details including sponsorship opportunities  www.albinism.org/NOAHNight

Posted: May 3rd, 2021

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The Colors of Olleh

We are so excited to have author RobenX join us Sunday, May 23rd at 2pm ET to read and chat about his book, “The Colors of Olleh”.  All community members are welcome to join us for this special session of NOAH Connections.

www.albinism.org/NOAH-Connections/#RobenX

Posted: May 3rd, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: PWAs in the Legal Profession

May 4th at 8:30pm ET // 5:30pm PT

Law students, lawyers, judges, and paralegals – we can’t wait to see you for social time this Tuesday!

New to PWAs in the Legal Profession? Sign up now and you’ll be invited to future gatherings too! www.albinism.org/NOAH-Connections/#legal

Posted: May 3rd, 2021

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Wednesday: PWA Book Club

May 5th at 9:00pm ET // 6:00pm PT

Book club members, finish up reading “The Dog Stars” by Peter Heller, and get ready to discuss on Wednesday!

www.albinism.org/NOAH-Connections/#pwa-book-club

Posted: May 3rd, 2021

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Thursday: Adult Connections

May 6th at 9:00pm ET // 6:00pm PT

Adults, we can’t wait to see you this Thursday for our next session of Adult Connections. 

New to Adult Connections? Sign up today and you’ll get reminders for future sessions of Adult Connections: www.albinism.org/NOAH-Connections/#adults

Posted: May 3rd, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Tuesday, May 11th

NOAH Connections: Coffee Chat

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Parent Connections: Mothers Only 

Sunday, May 16th

NOAH Connections: Kids’ PWA Book Club

Tuesday, May 18th

NOAH Connections: Aging with Albinism

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Thursday, May 20th 

Parent Connections: Fathers Only

Friday, May 21st

NOAH Workshop Fundraiser: Opinion Writing Workshop with Hana Schank

Sunday, May 23rd

NOAH Connections: Book Reading & Chat with RobenX – The Colors of Olleh

Thursday, May 27th

NOAH Connections: Teens

NOAH Connections: Young Adults

Posted: May 3rd, 2021

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Thank You, Volunteers!

This past week was National Volunteer Week, and NOAH took to social media to thank its many, wonderful volunteers. The volunteers pictured represent only a fraction of the many individuals who share their time, energy, talents, and more with NOAH. 

Thank you to each and every one of our volunteers!

Posted: April 28th, 2021

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NOAH Camp: Save the Dates!

​​​​​​​We are planning to hold NOAH Family Summer Camp in-person from July 31-August 4, 2021, and we can’t wait to see you there! 

More details will be available in mid-May.

www.albinism.org/nh-camp

Posted: April 28th, 2021

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Less Than One Week Left to Apply!

Applications for the McGowan Leadership Scholarship are due May 1st, which means there’s less than one week left to apply.

Do you know a young leader with albinism? Remind them to finish up their application!

www.albinism.org/leadership

Posted: April 28th, 2021

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FYI: A.S.P.E.C.T. Program

​​​​​​​The Prevent Blindness A.S.P.E.C.T. Program aims to empower individuals to be engaged in their eye health. NOAH community member Brandi Green participated last year, and encourages interested community members to apply. 

Learn more and apply by May 28th:

https://bit.ly/3era4hK

Posted: April 28th, 2021

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• Check out this article about Paralympic bronze medal sprinter, Kym Crosby, and how running track increased her confidence.https://go.teamusa.org/2QS4r4e

• ReBokeh, created for low vision users by founder and PWA, Rebecca Rosenberg, needs your help to create the next generation of vision assistive technology for people with low vision! ReBokeh is seeking engaged beta testers of all ages, genders, and races to try out their app and provide critical feedback that will shape the future of the technology. 
  
  Sign up through their online form to receive free, pre-release access to the ReBokeh mobile app assistive technology system: https://bit.ly/3gAtzad

Posted: April 28th, 2021

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NOAH Events this week

Check out the great opportunities to connect this week!

Monday: Parents that have Adopted Children with Albinism

April 26th at 9:00pm ET // 6:00pm PT

Parents that have adopted children with albinism – join Martha Bonneau today at 9pm ET to hear about her journey as an adoptive mother of two children, one PWA, and connect with fellow parents in an open discussion. 

Enroll in Parent Connections Today!
www.albinism.org/parent-connections

Posted: April 28th, 2021

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Wednesday: Preschool Connections

April 28th at 12:00pm ET // 9:00am PT

Preschoolers, you’re invited to a fun, Earth Day-Themed Activity with Kathi Garza on Wednesday, April 28th at 12pm ET! 

Grown-ups, check out the craft supply list and register your preschooler now: www.albinism.org/NOAH-Connections/#preschool

Posted: April 28th, 2021

Wednesday: PWAs in STEM

April 28th at 8:30pm ET // 5:30pm PT

You’re invited to a social gathering just for PWAs in STEM! Join Sarah Kane and Derek Schindelman this Wednesday to connect with others in the field.

Sign up now! www.albinism.org/NOAH-Connections/#STEM

Posted: April 28th, 2021

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Thursday: Teen Connections

April 29th at 8:00pm ET // 5:00pm PT

NOAH Teens, you’re invited to our next Teen Connections call! We will be saying farewell to Aidan on his last call as our host and thanking him for facilitating many great get-togethers.

https://www.albinism.org/noah-connections/#teens ​​​​​​​

Posted: April 28th, 2021

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Thursday: Young Adult Connections

April 29th at 9:15pm ET // 6:15pm PT

Young Adults, join us for our next session to say farewell to Aidan on his last call as our host, and thank him for hosting many of our recent gatherings!

https://www.albinism.org/noah-connections/#young-adults

Posted: April 28th, 2021

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Sunday: Conversations with Jocelyn – Coping with Feelings

May 2nd

NOAH Kids & Teens – how do you deal with not-so-great feelings that might come from visual challenges, bullying, and more? Join Jocelyn and your NOAH friends on Sunday, May 2nd to discuss and learn healthy ways to cope.

K-5 at 1:30pm ET // 10:30am PT

6-8 at 2:15pm ET // 11:15am PT

Teens at 3:00pm ET // 12:00pm PT

Posted: April 28th, 2021

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Sunday: The Beauty of Inclusion

May 2nd at 4:00pm ET // 1:00pm PT

Watch The Beauty of Inclusion with Thando Hopa at https://youtu.be/_q-aP_Ru4w8, then join Dr. Niya Pickett Miller this Sunday for a cultivated conversation open to all NOAH community members.

www.albinism.org/NOAH-Connections/#thando-hopa

Posted: April 28th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Tuesday, May 4th

NOAH Connections: PWAs in the Legal Profession

Wednesday, May 5th

NOAH Connections: PWA Book Club

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Tuesday, May 11th

NOAH Connections: Coffee Chat

Thursday, May 13th

NOAH Connections:

Posted: April 28th, 2021

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Spread the Word!

We’re looking for our next Executive Director, and we need your help to share the job listing with your networks. 

Letter of interest and resumé due by Wednesday, April 21st!

For more information, visit: www.albinism.org/ed-search

Posted: April 19th, 2021

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You’re Invited to NOAH’s  Inaugural SPF 3K-5K-10K!

NOAH member & board member, Kris Baker, will be running for NOAH’s Inaugural SPF 3K-5K-10K, and she wants YOU to join her! Check out her video message at https://fb.watch/4XedlZQjYC/.

Register today: www.albinism.org/spf

Posted: April 19th, 2021

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NOAH needs YOU!

Help NOAH keep virtual programming fresh and relevant – apply to join the NOAH Connections Advisory Committee. 

Learn more or apply today: www.albinism.org/NOAH-Connections/advisory

Posted: April 19th, 2021

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McGowan Leadership Scholarship – Where are they now?

We caught up with Trisha Laughlin, Silpa Tadavarthy, and Joe Adamo to see what they’ve been up to since receiving the McGowan Leadership Scholarship Award.

Check out their stories and apply for the McGowan Leadership Scholarship today. Applications due May 1st!

​​​​​​​

www.albinism.org/leadership

Posted: April 19th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

McGowan Leadership Scholarship – Where are they now?

We caught up with Trisha Laughlin, Silpa Tadavarthy, and Joe Adamo to see what they’ve been up to since receiving the McGowan Leadership Scholarship Award.

Check out their stories and apply for the McGowan Leadership Scholarship today. Applications due May 1st!

​​​​​​​

www.albinism.org/leadership

Posted: April 19th, 2021

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Thursday: Adult Connections 

April 22nd at 9:00pm ET // 6:00pm PT

Adult PWAs, join host Anne Harris this Thursday for social time to discuss life hacks and tips/tricks for low vision! 

​​​​​​​

New to NOAH Connections? Sign up now for the link to this call and you’ll also be invited to future opportunities to connect! 

www.albinism.org/NOAH-Connections/#adults

Posted: April 19th, 2021

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Sunday: BIPOC Connections

April 25th at 4:00pm ET // 1:00pm PT

Adults with albinism who identify as Black, Indigenous, People of Color (BIPOC), join host Silpa Tadavarthy for our next session of BIPOC Connections this Sunday. 

www.albinism.org/NOAH-Connections/#bipoc

Posted: April 19th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Tuesday, April 28th

NOAH Connections: PWAs in the STEM Fields

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, May 2nd

NOAH Connections: Thando Hopa: The Beauty of Inclusion

NOAH Connections: Coping with Feelings

Grades K-5 ~ Grades 6-8 ~ Teens

Tuesday, May 4th

NOAH Connections: PWAs in the Legal Profession

Wednesday, May 5th

NOAH Connections: PWA Book Club

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Parent Connections: Mothers Only 

Sunday, May 16th

NOAH Connections: Kids’ PWA Book Club

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Thursday, May 20th 

Parent Connections: Fathers Only

Friday, May 21st

NOAH Workshop Fundraiser: Opinion Writing Workshop with Hana Schank

Posted: April 19th, 2021

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Spring for NOAH
Shout Out!

Shout out to our first Spring for NOAH teams who are off and running, walking, biking, hiking ,etc. How will YOU use YOUR passion and skills to raise awareness and funds with your community? Sign up today to join in the fun! www.albinism.org/fundraisers

Posted: April 14th, 2021

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We need YOU for the NOAH Night Committee!

NOAH has many exciting ideas for the NOAH Night celebration on IAAD, but we need your help to make our dreams a reality! Apply to join the NOAH Night Committee for the chance to be involved with this fun celebration of the albinism community that will bring PWAs and their loved ones together while raising much-needed funds and awareness.

Apply today: www.albinism.org/NOAHNight

Posted: April 14th, 2021

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Support New Parents!

Purchase an item from NOAH’s New Parent Program Wish List today to help welcome parents of newly-diagnosed or newly-adopted kids into our NOAH family!

https://amzn.to/31OHa5u

Posted: April 14th, 2021

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The Beauty of Inclusion

Watch The Beauty of Inclusion with Thando Hopa at https://youtu.be/_q-aP_Ru4w8, then join Dr. Niya Pickett Miller on May 2nd at 4pm ET for a cultivated conversation to unpack and discuss.

www.albinism.org/NOAH-Connections/#thando-hopa

Posted: April 14th, 2021

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• Shoutout to former Board Chair, Pam McGonigle, who was recently featured in USABA’s “45-for-45” series: https://fb.watch/4Jx6R2s9Q6/

• Congratulations to community member and long-time teacher, Erika Evans, who was recently named as the recipient of the 2021 Alma J. Washington Educator of the Year award: https://bit.ly/2PLRatT

• NOAH members, the Troxell family, are working to preserve high quality vision services for the children of Rhode Island, and to obtain secure, equitable funding. https://turnto10.com/i-team/families-of-blind-and-visually-challenged-students-fight-for-continuity. If you’d like to show your support for VI students in Rhode Island, check out the petition at https://www.change.org/p/governor-mckee-and-the-ri-legislature-rhode-island-s-blind-and-v-i-students-deserve-equitable-access-to-a-quality-education ​​​​​​​

Posted: April 14th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Wednesday: Could Adults with Albinism Miss HPS?

April 14th at 8:30pm ET // 5:30pm PT

Adult PWAs, don’t miss this informative session about Hermansky-Pudlak Syndrome (HPS) presented by Donna Appell. Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being.

www.albinism.org/NOAH-Connections/#HPS

Posted: April 14th, 2021

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Thursday: Teen Connections 

April 15th at 8:00pm ET // 5:00pm PT

Teens, join host Aidan O’Connor for social time with fellow teens with albinism.

www.albinism.org/NOAH-Connections/#teens-4-15

Posted: April 14th, 2021

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Sunday: NOAH Kids’ PWA Book Club

April 18th at 3:00pm ET // 12:00pm PT

Join Kathi Garza and Beth Vrabel for NOAH Kids’ PWA Book Club, this Sunday as they introduce our next book choice, “A Blind Guide to Normal” by Beth Vrabel. 

Not a member? Register today! 

www.albinism.org/NOAH-Connections/#book-club

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Executive Director Search Update

NOAH has launched a search for our next Executive Director, and we need your help to share info about the position with your network. Read an update from Pam McGonigle (Chair, Executive Director Search Committee) at www.albinism.org/ed-search

Posted: April 5th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Tuesday, April 20th

NOAH Connections: Aging with Albinism

Thursday, April 22nd

NOAH Connections: Adults

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, May 2nd

NOAH Connections: Thando Hopa: The Beauty of Inclusion

Tuesday, May 4th

NOAH Connections: PWAs in the Legal Profession

Wednesday, May 5th

NOAH Connections: PWA Book Club

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Parent Connections: Mothers Only 

Sunday, May 16th

NOAH Connections: Kids’ PWA Book Club

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Thursday, May 20th 

Parent Connections: Fathers Only

Friday, May 21st

NOAH Workshop Fundraiser: Opinion Writing Workshop with Hana Schank

Posted: April 14th, 2021

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We Need YOU for the NOAH Night Committee!

NOAH has many exciting ideas for the NOAH Night celebration on IAAD, but we need your help to make our dreams a reality! Apply to join the NOAH Night Committee for the chance to be involved with this fun celebration of the albinism community that will bring PWAs and their loved ones together while raising much-needed funds and awareness.

Apply today: www.albinism.org/NOAHNight

Posted: April 5th, 2021

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There’s Still Time to Register for NOAH Virtual Choir!

Emails have been sent to registered choir participants with a link to practice materials. 

If you are interested in being part of this exciting project, get a jump-start on learning your music and register today!

www.albinism.org/choir

Posted: April 5th, 2021

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1 Month Left to Apply!

PWAs in the US or Canada enrolled in an undergraduate program, don’t miss your chance to apply for the 2021 McGowan Leadership Scholarship Award! 

Learn more and apply by May 1st at: www.albinism.org/leadership

Posted: April 5th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: PWAs in the Legal Profession

April 6th at 8:30pm ET // 5:30pm PT

Law students, lawyers, paralegals, and judges with albinism – you’re invited to a gathering just for PWAs in the legal profession! 

www.albinism.org/NOAH-Connections/#legal

Posted: April 5th, 2021

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Thursday: Adult Connections 

April 8th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections hosted by Kathi Garza! We hope to see you on Zoom for social time with fellow PWAs. 

www.albinism.org/NOAH-Connections/#adults-4-8

Posted: April 5th, 2021

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Friday: Parent Connections – What You Need to Know About HPS

April 9th at 3:00pm ET // 12:00pm PT

Parents – Wondering About HPS?

Join Donna Appell, RN this Friday for a safe & supportive session about Hermansky-Pudlak Syndrome (HPS). NOAH encourages HPS screening for all PWAs and this call will lead you in the right direction. 

Enroll in Parent Connections today: www.albinism.org/parent-connections

Posted: April 5th, 2021

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Sunday: Albinism & Performing Arts

April 11th at 4:00pm ET // 1:00pm PT

Join Marleena B., Caroline V., & Casey G. on Sunday to discuss albinism and the performing arts.

All are welcome to join to hear their stories, ask questions, and connect. 

www.albinism.org/NOAH-Connections/#performing-arts

Posted: April 5th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Wednesday, April 14th

NOAH Connections: Could Adults with Albinism Miss HPS?

Thursday, April 15th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, April 18th

NOAH Connections: NOAH Kids’ PWA Book Club

Tuesday, April 20th

NOAH Connections: Aging with Albinism

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Thursday, May 6th

Parent Connections: Mothers Only 

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Posted: April 5th, 2021

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Announcing: NOAH Virtual Choir!

PWAs Ages 12+, Get Ready to SING!!  Led by Marleena Barber, the NOAH Virtual Choir is back with an edgy, new song featuring musical rap artist with albinism, RobenX, which will premiere at NOAH Night on IAAD!

Learn more & register today: www.albinism.org/choir

Posted: March 29th, 2021

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We Need YOU for the NOAH Night Committee!

NOAH has many exciting ideas for the NOAH Night celebration on IAAD, but we need your help to make our dreams a reality! Apply to join the NOAH Night Committee for the chance to be involved with this fun celebration of the albinism community that will bring PWAs and their loved ones together while raising much-needed funds and awareness.

Apply today: www.albinism.org/NOAHNight

Posted: March 29th, 2021

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NOAH Connections Advisory Committee!

Do you have programming suggestions to share? The NOAH Connections Advisory Committee will provide recommendations and review suggested topics for virtual gatherings. Adult PWAs and family members are encouraged to apply!

Learn more or apply today: www.albinism.org/NOAH-Connections/advisory

Posted: March 29th, 2021

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McGowan Leadership Scholarship – Where are they now?

We caught up with Cassandra Mèndez, Elizabeth Schafer, and Lee-Anne Thompson to see what they’ve been up to since receiving the McGowan Leadership Scholarship Award.

Check out their stories and apply for the McGowan Leadership Scholarship today: www.albinism.org/leadership

Posted: March 29th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Thursday: Teen Connections

April 1st at 8:00pm ET // 5:00pm PT

Teens, do you have suggestions for future session topics? Join us Thursday to connect with fellow teens and share your ideas!

​​​​​​​

www.albinism.org/NOAH-Connections/#teens-4-1

Posted: March 29th, 2021

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Thursday: Young Adult Connections

April 1st at 9:15pm ET // 6:15pm PT

It may be April fools, but we we really do want to hear from you! Young adults, we hope you’ll join us on zoom to connect and share your suggestions for future session topics.

​​​​​​​www.albinism.org/NOAH-Connections/#ya-4-1

Posted: March 29th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Tuesday, April 6th

NOAH Connections: PWAs in the Legal Profession

Friday, April 9th

Parent Connections: What You Need to Know About HPS

Sunday, April 11th

NOAH Connections: Albinism and Performing Arts

Wednesday, April 14th

NOAH Connections: Could Adults with Albinism Miss HPS?

Thursday, April 15th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, April 18th

NOAH Connections: NOAH Kids’ PWA Book Club

Tuesday, April 20th

NOAH Connections: Aging with Albinism

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Thursday, May 6th

Parent Connections: Mothers Only 

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Posted: March 29th, 2021

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Getting to Know the Board

We asked NOAH Board members Brandi Darby and Kris Baker a few questions to get to know them a bit better. Check out their responses at: www.albinism.org/board-of-directors/gtk

Posted: March 22nd, 2021

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Thank You, K-Deer!

Last year, K-Deer launched their April Stripe signature leggings, named after a young girl with albinism. The leggings sold out, and K-Deer donated $2,382.06 of the proceeds to NOAH!

Check out this article about K-Deer from Albinism InSight Summer 2020: http://www.albinism.org/wp-content/uploads/2021/03/K-Deer-Lauren-Stripe.pdf 

Posted: March 22nd, 2021

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Shoutout to AmazonSmile Shoppers & Facebook Fundraisers!

Purchases using AmazonSmile raised over $800 for NOAH from Oct-Dec 2020, and individual Facebook Fundraisers raised over $5k for NOAH in 2020. Thank you, shoppers and fundraisers!!

Want to be a part of these contributions? Learn how to start a Facebook Fundraiser:   https://bit.ly/311GDN2, and start shopping on AmazonSmile today: smile.amazon.com/ch/23-2265173

Posted: March 22nd, 2021

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FYI: New Research Studies

2 new research studies recruiting PWAs of various ages have been added to our albinism research page. Learn more at www.albinism.org/research

Posted: March 22nd, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: Aging with Albinism – Your Vision of Vision

March 23rd at 4:00pm ET // 1:00pm PT

PWAs 55+, join June Waugh next Tuesday at 4pm ET to connect and share your tips for coping with ever-changing visual circumstances. 

Sign up today: www.albinism.org/NOAH-Connections/#aging

Posted: March 22nd, 2021

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Wednesday: PWA Book Club

March 24th at 9:00pm ET // 6:00pm PT

NOAH PWA Book Club is the perfect chance for adult PWAs to connect with fellow readers! Finish up reading “There There” by Tommy Orange, and join us on Wednesday, March 24th at 9pm ET to discuss. 

www.albinism.org/NOAH-Connections/#pwa-book-club

Posted: March 22nd, 2021

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Thursday: Parent Connections – Early Intervention: Preschool & Albinism

March 25th at 9:00pm ET // 6:00pm PT

Parents, join Kayla Hamlin for our next Parent Connections call on Thursday to discuss early intervention and navigating into preschool and kindergarten for kids with albinism.

Not a member of Parent Connections? Enroll now! www.albinism.org/parent-connections

Posted: March 21st, 2021

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Sunday: Positively Unique – Celebrating What Makes Us Rare

March 28th

Grades K-5 at 2:00pm ET

Grades 6-8 at 3:00pm ET

Teens at 4:00pm ET

What makes you unique? Join Jocelyn on Sunday to share and celebrate our uniqueness as people with albinism! 

Posted: March 22nd, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, April 1st

NOAH Connections: Teens

NOAH Connections: Young Adults

Friday, April 9th

Parent Connections: What You Need to Know About HPS

Sunday, April 11th

NOAH Connections: Albinism and Performing Arts

Wednesday, April 14th

NOAH Connections: Could Adults with Albinism Miss HPS?

Thursday, April 15th

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Thursday, May 6th

Parent Connections: Mothers Only 

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Posted: March 22nd, 2021

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Adult Weekend Planning Committee

Adults with albinism – do you want to help create plans for Adult Weekend 2021? Apply today for the Adult Weekend Planning Committee!

Applications due Wednesday, March 17th.

For more information or to apply now, visit: www.albinism.org/adult-weekend

Posted: March 15th, 2021

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NOAH Night Planning Committee

NOAH community, we need your help to to make NOAH Night, our upcoming fundraiser celebrating the albinism community on IAAD a success!

Apply to join the planning committee by March 20th at: www.albinism.org/NOAHNight

Posted: March 15th, 2021

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NOAH Night Planning Committee

NOAH community, we need your help to to make NOAH Night, our upcoming fundraiser celebrating the albinism community on IAAD a success!

Apply to join the planning committee by March 20th at: www.albinism.org/NOAHNight

Posted: March 15th, 2021

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Courtney’s March Madness for NOAH!

Check out NOAH member Courtney’s creative and COVID-friendly FUNdraiser for NOAH:

https://bit.ly/2OViyEC

Posted: March 15th, 2021

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International Women’s Day

In honor of International Women’s Day last Monday, March 8th, we shared this photo from NOAH’s 25th anniversary celebration, featuring Jan Knuth, Lee (Ryan) Laughlin, and Jeanne (Leek) Bruneau – 3 of NOAH’s founders!

Learn more about the early days of NOAH: www.albinism.org/about-noah/#history

Posted: March 15th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: People with Albinism in the Legal Profession

March 16th at 8:30pm ET // 6:30pm PT

Law students, lawyers, paralegals, and judges with albinism – we hope you’ll join us next Tuesday to connect with fellow PWAs in the legal profession.

Sign up now! www.albinism.org/NOAH-Connections/#legal

Note: this is a social gathering – legal advice will not be provided.

Posted: March 15th, 2021

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Thursday: Teen Connections

March 18th at 8:00pm ET // 5:00pm PT

Teens, we hope to see you this Thursday for games and fun with NOAH friends!

www.albinism.org/NOAH-Connections/#teens-3-18

Posted: March 15th, 2021

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Thursday: Young Adult Connections – Planning for Parenting

March 18th at 9:15pm ET // 6:15pm PT

Young adults, join host Aidan O’Connor and special guest Kathi Garza for the chance to discuss parenting as PWAs. Kathi, a parent herself, will be there to share her experiences and answer any questions you might have. ​​​​​​​

www.albinism.org/NOAH-Connections/#ya-3-18

Posted: March 15th, 2021

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Sunday: NOAH Fundraising Coffee Chat

March 21st at 3:00pm ET // 12:00pm PT

Let’s talk about fundraising! 

We hope you’ll join us for NOAH Connections Coffee Chat to brainstorm and share creative ideas of how we can safely raise funds for NOAH.

www.albinism.org/NOAH-Connections/#coffee-3-21

Posted: March 15th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Tuesday, March 23rd

NOAH Connections: Aging with Albinism

Wednesday, March 24th

NOAH Connections: PWA Book Club

Thursday, March 25th

Parent Connections: Early Intervention – Preschool and Albinism

Sunday, March 28th

NOAH Connections: Positively Unique – What Makes Us Rare

Grades K-5 ~ Grades 6-8 ~ Teens

Thursday, April 1st

NOAH Connections: Teens

NOAH Connections: Young Adults

Friday, April 9th

Parent Connections: What You Need to Know About HPS

Sunday, April 11th

NOAH Connections: Albinism and Performing Arts

Wednesday, April 14th

NOAH Connections: Could Adults with Albinism Miss HPS?

Thursday, April 15th

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Posted: March 15th, 2021

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Getting to Know the NOAH Board – Sonja Harris!

We asked NOAH board members to answer a few questions to share a more personal side of themselves with the community.

Check out Sonja’s responses at:

www.albinism.org/board-of-directors/gtk​​​​​​​

Posted: March 8th, 2021

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McGowan Leadership Scholarship – Where are they now?

2014 Recipient, Arielle Lewis is a first year law student at Georgia State University College of Law!

Learn more about the McGowan Leadership Scholarship Award and past recipients:

www.albinism.org/leadership

Posted: March 8th, 2021

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Teen Spotlight!

Check out stories from five NOAH teens recently added to our Teen Spotlight page! 

www.albinism.org/teenspotlight

Teens with albinism – do you have something to share? Send your story to teenspotlight@albinism.org!

Posted: March 8th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Wednesday: Fundraising Coffee Chat

March 10th at 5:00pm ET // 2:00pm PT

Let’s talk about fundraising! We hope you’ll join us to brainstorm and share creative ideas of how we can safely raise funds for NOAH.

www.albinism.org/NOAH-Connections/#coffee-3-10

Posted: March 8th, 2021

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Thursday: When to Disclose Low Vision in the Workplace

March 11th at 8:00pm ET // 5:00pm PT

PWAs – when do you disclose your low vision at work?

Join Casey Greer and Katy Carroll to connect and discuss. 

https://www.albinism.org/NOAH-Connections/#adults-3-11

Posted: March 8th, 2021

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Friday: Grandparent Connections – Overview of Services from Birth to Independence

March 12th at 1:00pm ET // 10:00am PT

Grandparents – wondering what services are available for your grandchild with albinism? 

Join Susan Dalton for our next Grandparent Connections call this Friday to learn more!

Invite the grandparents in your life to enroll today!​​​​​​​

​​​​​​​www.albinism.org/grandparentconnections

Posted: March 8th, 2021​​​

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Sunday: Exploring the World of Accessible Technology Products for Low Vision Solutions with Stephen Ricci

March 14th at 3:00pm ET // 12:00pm PT

Join Assistive Technology Specialist, Stephen Ricci to learn more about accessible technology products. This is a great NOAH Connections call for everyone in the community!

Sign up today: www.albinism.org/NOAH-Connections/#tech

Posted: March 8th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Tuesday, March 16th

NOAH Connections: People With Albinism in the Legal Profession

Thursday, March 18th
NOAH Connections: Teens​​​​​​​
NOAH Connections: Young Adults

Sunday, March 21st

NOAH Connections: Coffee Chat – Let’s Talk About Fundraising!

Tuesday, March 23rd

NOAH Connections: Aging with Albinism

Wednesday, March 24th

NOAH Connections: PWA Book Club

Thursday, March 25th

Parent Connections: Early Intervention – Preschool and Albinism

Sunday, March 28th

NOAH Connections: Positively Unique – What Makes Us Rare

Grades K-5 ~ Grades 6-8 ~ Teens

Thursday, April 1st

NOAH Connections: Teens

NOAH Connections: Young Adults

Friday, April 9th

Parent Connections: What You Need to Know About HPS

Sunday, April 11th

NOAH Connections: Albinism and Performing Arts

Wednesday, April 14th

NOAH Connections: Could Adults with Albinism Miss HPS?

Posted: March 8th, 2021

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Albinism In The News: Black Excellence!

Check out this inspiring TEDx Talk by Diandra Forrest from 2015 about her experiences as an aspiring Black model with albinism:
          https://youtu.be/qqcfWT0jM0Q

Read about Ava & Logan, two sisters featured in the book Glory: Magical Visions of Black Beauty:

www.wrdw.com/2020/10/20/two-sc-young-sisters-featured-in-book-showcasing-black-beauty/

Sign up for email updates about Jasmine Star, a coming-of-age movie starring a young, Black PWA:

www.jasminestarmovie.com/about

Posted: March 2nd, 2021

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Rare Disease Day

In honor of our albinism community members with Hermansky-Pudlak Syndrome (HPS), NOAH celebrated Rare Disease Day on Sunday, February 28th to help bring widespread recognition of rare genetic conditions.

Want to learn more about HPS?

Join HPS Network founder and president Donna Appell, RN as she provides invaluable information about this rare form of albinism:

Friday, April 9th – Parent Connections: What You Need to Know About HPS

www.albinism.org/parent-connections/#hps

Wednesday, April 14th – Could Adults with Albinism Miss HPS?

 www.albinism.org/NOAH-Connections/#hps

Posted: March 2nd, 2021

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Get Ready to Write!

Join seasoned Op Ed writer (and NOAH member) Hana Schank as she shares her secrets to writing powerful opinion essays for publication on Friday, May 21st at 12pm ET. This workshop is an incredible opportunity for writers – spread the word!

NOAH Workshops are educational fundraisers offering opportunities for community members and professionals to come together and explore a variety of topics while supporting a great cause.

www.albinism.org/NOAH-Workshops

Posted: March 2nd, 2021

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Spotlight on Albinism InSight

You won’t want to miss the conclusion of Dr. Anne Corn’s informative article, After the IEP is Signed, featured in the winter issue of Albinism InSight!

Get your copy of AI today! www.albinism.org/AI

Posted: March 2nd, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Thursday: Teen Connections – Overcoming Social Pressure

March 4th at 8:00pm ET // 5:00pm PT

Sometimes social pressure can feel like it’s pushing down on you, so how do you overcome it? Teens, join hosts Casey Greer and Mackenzie Strong to discuss!​​​​​​​

www.albinism.org/NOAH-Connections/#teens-3-4

Posted: March 2nd, 2021

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Thursday: Young Adult Connections – Low Vision Hacks

March 4th at 9:15pm ET // 6:15pm PT

Young adults, do you have tips or tricks to share for navigating various situations with low vision? Join us on Thursday to share and discuss with others who get it!

www.albinism.org/NOAH-Connections/#ya-3-4

Posted: March 2nd, 2021

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Thursday: Parent Connections – Elementary Education & Albinism

March 4th at 9:00pm ET // 6:00pm PT

Join Kathi Garza M.Ed, TVI and Jill Gorman, to discuss how parents can best meet the educational needs of students with albinism during elementary school.

Not a member of Parent Connections? Enroll now! 

www.albinism.org/parent-connections​​​​​​​

Posted: March 2nd, 2021

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Sunday: Kids’ PWA Book Club!

March 7th at 3:00pm ET // 12:00pm PT

Finish up reading “A Blind Guide to Stinkville” and get ready to join us this Sunday to talk about it!

www.albinism.org/NOAH-Connections/#book-club

Posted: March 2nd, 2021

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Sunday: NOAH Connections – Writing About Albinism

March 7th at 4:00pm ET // 1:00pm PT

We can’t wait to see you on Sunday for Writing About Albinism, a complimentary workshop with Hana Schank for NOAH adults!

www.albinism.org/NOAH-Connections/#writing-workshop

Posted: March 2nd, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Wednesday, March 10th
NOAH Connections: Coffee Chat – Let’s Talk About Fundraising

Friday, March 12th

Grandparent Connections: Overview of Services from Birth to Independence

Sunday, March 14th
NOAH Connections: Exploring the World of Accessible Technology Products for Low Vision Solutions with Stephen Ricci

Tuesday, March 16th

NOAH Connections: People With Albinism in the Legal Profession

Thursday, March 18th
NOAH Connections: Teens​​​​​​​
NOAH Connections: Young Adults

Sunday, March 21st

NOAH Connections: Coffee Chat – Let’s Talk About Fundraising!

Tuesday, March 23rd

NOAH Connections: Aging with Albinism

Wednesday, March 24th

NOAH Connections: PWA Book Club

Thursday, March 25th

Parent Connections: Early Intervention – Preschool and Albinism

Sunday, March 28th

NOAH Connections: Positively Unique – What Makes Us Rare

Grades K-5 ~ Grades 6-8 ~ Teens

Posted: March 2nd, 2021

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Northern Illinois NOAH Members Recognized for Valued Community Partnership!

We are thrilled to share that our NOAH friends in Northern Illinois recently had the honor of receiving Illinois Association for the Education and Rehabilitation of the Blind and Visually Impaired’s 2021 Community Partner Award.

Congratulations to all involved for this recognition!

Posted: February 23rd, 2021

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Albinism in the News – Throwback!

Check out this inspiring article about NOAH Board member, Brandi Darby, and her journey to becoming the first blind female lifter to place at a USA Weightlifting National Competition in 2018. 

https://theshadowleague.com/black-girl-strength-brandi-darby-the-complexity-of-albino-excellence/

Posted: February 23rd, 2021

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Podcasts by PWAs!

Check out this recent episode of Low Vision Moments, featuring NOAH community member and comedian, Dennis Hurley!

https://spoti.fi/3ububHS

Posted: February 23rd, 2021

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FYI: AFB Study

​​Adults with low vision, AFB invites you to share your experiences with technology and accommodation in the workplace in their survey open now through February 28th.

For more information, visit: http://www.albinism.org/research/#afb

Posted: February 23rd, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: Aging with Albinism, The Challenges and Joys of Our Senior Years!

February 23rd at 4:00pm ET // 1:00pm PT

Join NOAH veteran June Waugh to connect, share and celebrate navigating life’s passages as adults with albinism.

http://www.albinism.org/NOAH-Connections/#aging

Posted: February 23rd, 2021

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Thursday: Adult Connections – Hobbies

February 25th at 9:00pm ET // 6:00pm PT

Join us on Thursday to talk about hobbies! Whether you have many hobbies or are looking for something new to get into, this is a great chance to connect with the NOAH community!

www.albinism.org/NOAH-Connections/#adults-2-25​​​​​​​

Posted: February 23rd, 2021

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Thursday: Parent Connections – Transitioning to College for Teens & Parents

February 25th at 9:00pm ET // 6:00pm PT

Parents of Teens, you won’t want to miss this!! Join Sue Dalton for an informative call about transitioning to college this Thursday.

Not a member? Enroll today!

http://www.albinism.org/parent-connections

Posted: February 23rd, 2021

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Friday: Parenting Without Pigment

February 26th at 9:00pm ET // 6:00pm PT

Are you a PWA with kids? This is the perfect group for you! Join together with fellow parents without pigment to connect, discuss, share, and more! 

www.albinism.org/noah-connections/#parents-2-26 ​​​​​​​

Posted: February 23rd, 2021

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Sunday: Military Families

February 28th at 8:30pm ET // 6:30pm PT

 Calling all Military Families! (active, reserve, retired)
Join us on Sunday to connect, share experiences, and discuss the challenges of being a military family navigating life with albinism.

www.albinism.org/NOAH-Connections/#military

Posted: February 23rd, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, March 4th
NOAH Connections: Teens

Parent Connections: Elementary Education and Albinism
NOAH Connections: Young Adults

Sunday, March 7th

NOAH Connections: Kids’ PWA Book Club

NOAH Connections: Writing About Albinism for Adults

Wednesday, March 10th
NOAH Connections: Coffee Chat – Let’s Talk About Fundraising

Friday, March 12th

Grandparent Connections: Overview of Services from Birth to Independence

Sunday, March 14th
NOAH Connections: Exploring the World of Accessible Technology Products for Low Vision Solutions with Stephen Ricci

Tuesday, March 16th

NOAH Connections: People With Albinism in the Legal Profession

Thursday, March 18th
NOAH Connections: Teens​​​​​​​
NOAH Connections: Young Adults

Sunday, March 21st

NOAH Connections: Coffee Chat – Let’s Talk About Fundraising!

Wednesday, March 24th

NOAH Connections: PWA Book Club

Posted: February 23rd, 2021

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Thank You, Parent Liaisons!

An integral part of NOAH’s New Parent Program, parent liaisons are specially trained, on-call volunteers that serve as a point of contact for parents who are new to the albinism community through a recent diagnosis or adoption. Providing the perspective of someone who truly understands, our amazing volunteers are available to new parents as they embark on their albinism journey, and guide families through the many available NOAH resources.

Posted: February 15th, 2021

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NOAH Couples Share Their Love!

Join us as we celebrate love & albinism in the month of February! We invite you to read the stories of PWAs and their partners at www.albinism.org/NOAH-Couples, and submit your story to NOAHCouples@albinism.org

Posted: February 15th, 2021

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Interview with Reverend Jesse Douglas

​​Want to learn more about Rev Jesse Douglas? Check out this interview where he discusses his experiences marching with Martin Luther King Jr.

CW: historical photos/videos that depict violence against Black people

Posted: February 15th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Monday: NOAH Connections Coffee Chat!

February 15th at 1:00pm ET // 10:00am PT

See you this afternoon for the next NOAH Connections Coffee Chat! Join NOAH staff on Zoom to share your voice, or simply join us for some social time.

There’s still time to sign up: www.albinism.org/NOAH-Connections/#coffee-2-15

Posted: February 15th, 2021

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Thursday: Teen NOAH Connections

February 18th at 8:00pm ET // 5:00pm PT

NOAH Teens, join special guest hosts Mackenzie Strong and Casey Greer to talk about overcoming challenges!

www.albinism.org/NOAH-Connections/#teens-2-18​​​​​​​

Posted: February 15th, 2021

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Thursday: Young Adult NOAH Connections

February 18th at 9:15pm ET // 6:15pm PT

Young Adults, join us for our next session to discuss family dynamics with albinism. This is a great chance to share our experiences and connect with fellow PWAs!

www.albinism.org/NOAH-Connections/#ya-2-18​​​​​​​

Posted: February 15th, 2021

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Saturday: BIPOC NOAH Connections

February 20th at 5:00pm ET / 2:00pm PT

We hope you’ll join us on Saturday for BIPOC Connections! This gathering, facilitated by Brandi Green and Natalie Devoramonifa, is intended for adults with albinism who identify as Black, Indigenous, People of Color (BIPOC).

www.albinism.org/NOAH-Connections/#BIPOC-2-20

Posted: February 15th, 2021

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Sunday: Ask the Doctors – Doctors with Albinism

February 21st at 5:00pm ET // 2:00pm PT

Join Drs. Bob Gabbay and Megan Duffey and medical student Silpa Tadavarthy to hear about becoming a doctor with albinism!​​​​​​​

Please note: medical advice will not be provided during this session

www.albinism.org/NOAH-Connections/#doctors

Posted: February 15th, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect

Tuesday, February 23rd
NOAH Connections: Aging with Albinism

Thursday, February 25th

Parent Connections: Transitioning to College for Teens and Parents

NOAH Connections: Adult Connections – Hobbies

Friday, February 26th

NOAH Connections: Parenting Without Pigment

Sunday, February 28th

NOAH Connections: Positively Unique – Celebrating What Makes us Rare

K – 5 ~ Grades 6-8 ~ Teens
NOAH Connections: Military Families

Thursday, March 4th

Parent Connections: Elementary Education and Albinism

Sunday, March 7th

NOAH Connections: Kids’ PWA Book Club

NOAH Connections: Writing About Albinism for Adults

Friday, March 12th

Grandparent Connections: Overview of Services from Birth to Independence

Tuesday, March 16th

NOAH Connections: People With Albinism in the Legal Profession

Thursday, March 18th

Parent Connections: Early Intervention – Preschool & Albinism

Wednesday, March 24th

NOAH Connections: PWA Book Club

Posted: February 15th, 2021

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Black History Month

“We must never forget that Black History is American History” – Yvette Clarke, U.S. Congresswoman 🇺🇸

This Black History Month, we invite our Black community members to share their experiences. How do you celebrate or observe Black History Month?

Share your experiences on our recent Facebook post!

Posted: February 8th, 2021

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Announcing! NOAH Connections: Aging with Albinism
The Challenges and Joys of Our Senior Years – Hosted by June Waugh

Tuesday, February 23rd ~ 4:00pm ET / 1:00pm PT

Join us to discuss the challenges and joys of our senior years as adults with albinism. Together we’ll connect with others, share, renew old friendships, celebrate, and acknowledge how albinism continues to be an integral part of our lives.

​​​​​​​Sign Up Now:

https://app.donorview.com/w7yyl

Posted: February 8th, 2021

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Announcing: Writing About Albinism for Adults!

Sunday, March 7th at 4:00pm ET / 1:00pm PT

Back by popular demand, Hana Schank presents Writing About Albinism, a complimentary NOAH Connections workshop for adults! 

Sign up today: 

www.albinism.org/NOAH-Connections/#writing-workshop​​​​​​

Posted: February 8th, 2021

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Announcing! Albinism in the Legal Profession

Hosted by Arielle Lewis and Katy Carroll

Tuesday, March 16th at 8:30pm ET

Calling all law students, lawyers, judges, and paralegals with albinism – join with fellow PWAs in the legal profession for a NOAH Connections social time just for you.

Note: This is a social time for people with albinism in the legal profession – legal advice will not be provided. 

Sign up today!www.albinism.org/NOAH-Connections/#legal

Posted: February 8th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: Preschool NOAH Connections – Friendship Day

February 9th at 12:00pm ET // 9:00am PT

NOAH Preschoolers, are you ready for Preschool NOAH Connections – Friendship Day? We’ll read “Pete the Cat – Valentine’s Day is Cool,” make a valentine, and share the love with our NOAH friends!

Don’t miss out – sign up today! www.albinism.org/NOAH-Connections/#preschool-2-9

Posted: February 8th, 2021

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Thursday: Parent Connections – Parenting Teens with Albinism

February 11th at 9:00 pm ET // 6:00 pm PT

Parents of teens w/ albinism, our next Parent Connections call is just for you!! Join us this Thursday for Parenting Teens with Albinism with Sheila Adamo. 

Not a member of Parent Connections? Join today! www.albinism.org/parent-connections

Posted: February 8th, 2021

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Thursday: Adult NOAH Connections

February 11th at 9pm ET // 6pm PT

Join Casey Greer for a casual get-together with fellow PWAs. New to NOAH? This relaxed gathering is a great chance to connect from the comfort of your home!

Sign up for Adult NOAH Connections now! www.albinism.org/NOAH-Connections/#adults-2-11​​​​​​​

Posted: February 8th, 2021

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Saturday: NOAH Kids – Show Your Love for Albinism

A discussion and coloring session with Marleena Barber

February 13th at 1:00pm ET / 10:00am PT

NOAH Kids – join Marleena to discuss what YOU love about albinism, and color together with your NOAH friends (downloadable coloring page coming soon). See you there!

Sign up now: www.albinism.org/NOAH-Connections/#love

Posted: February 8th, 2021

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Saturday: Dating with Albinism

A panel discussion hosted by Rebecca & Nick Smith

February 13th at 3:00pm ET // 12:00pm PT

Join us for an open discussion about dating with albinism from a variety of perspectives, experiences and backgrounds. Singles and couples will be represented.

Participation link will be sent to members of Adult NOAH Connections and Young Adult NOAH Connections. Not a member? Use the links to join.​​​​​​​

Posted: February 8th, 2021

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Save the Date! Mark your calendars for these upcoming opportunities to connect! Monday, February 15th NOAH Connections: Coffee Chat​​​​​​​ Thursday, February 18th NOAH Connections: TeensNOAH Connections: Young Adults Saturday, February 20th NOAH Connections: BIPOC Connections Sunday, February 21st NOAH Connections: Ask the Doctors – Doctors with Albinism Tuesday, February 23rd NOAH Connections: Aging with Albinism Thursday, February 25th Parent Connections: Transitioning to College for Teens and Parents NOAH Connections: Adult Connections – Hobbies Friday, February 26th NOAH Connections: Parenting Without Pigment Sunday, February 28th NOAH Connections: Positively Unique – Celebrating What Makes us RareK – 5 ~ Grades 6-8 ~ Teens

Posted: February 8th, 2021

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2021 McGowan Leadership Scholarship Applications Now Open!

The Michael J. McGowan Leadership Scholarship Award aims to empower young PWAs by annually recognizing one NOAH member (enrolled in an undergraduate program) who demonstrates outstanding leadership qualities. 

Do you know a young leader in the albinism community? Encourage them to apply by May 1st!

For more information, visit: www.albinism.org/leadership

Posted: February 1st, 2021

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Thank You, Kathi!

Special thanks to Kathi Garza for sharing her time and talents with NOAH again this past weekend in the Valentine’s edition of Cookies with Kathi. We had a wonderful time decorating cookies with you!​​​​​​​

Did you attend Cookies with Kathi? Be sure to tag NOAH on social media when you share your pictures!

Posted: February 1st, 2012

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Albinism in the News!

Have you seen this Newsday story featuring NOAH Junior Advisory Council Member and past McGowan Leadership Scholarship Recipient, Elizabeth Schafer? You’re an inspiration, Liz! 

https://www.newsday.com/long-island/splashes-of-hope-continues-mission-to-lift-spirits-during-pandemic-1.50131708?​​​​​​​

Posted: February 1, 2021

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Announcing! Preschool NOAH Connections – Friendship Day

Tuesday, February 9th at 12:00pm ET // 9:00am PT

NOAH Preschoolers, we can’t wait to see your smiling faces for our next session of Preschool NOAH Connections – Friendship Day! We’ll read “Pete the Cat – Valentine’s Day is Cool,” make a valentine, and share the love with our NOAH friends!

Don’t miss out – sign up today! www.albinism.org/NOAH-Connections/#preschool-2-9

Posted: February 1, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Thursday: Teens – Let’s Talk About College!

February 4th at 8:00 pm ET // 5:00 pm PT

We hope you’ll join us for our next session of Teen NOAH Connections this Thursday, Feb. 4th at 8pm ET to discuss college.

Not a member? Join today! www.albinism.org/NOAH-Connections/#teens-2-4

Posted: February 1, 2021

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Thursday: Young Adults – Awkward Moments with Albinism!

February 4th at 9:15 pm ET //6:15 pm PT

Young Adults, we can’t wait to see you this Thursday at 9:15pm ET to share stories about awkward moments with albinism. This will be the perfect chance to share a laugh with other PWAs who just get it!

Not a member? Join today! www.albinism.org/NOAH-Connections/#ya-2-4

Posted: February 1, 2021

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Sunday: NOAH Kids’ PWA Book Club!

February 7th at 3pm ET // 12pm PT

It’s almost time for the first meeting of the NOAH Kids’ PWA Book Club!  Award-winning author (and parent of a daughter with albinism) Beth Vrabel and Certified Teacher of Students with Visual Impairments, Kathi Garza,  are ready for the official kick-off of the NOAH Kids’ PWA Book Club Sunday! 

No need to read before joining – we will discuss “A Blind Guide to Stinkville” when we meet for our second session on March 7th! NOAH Kids’ PWA Book club is recommended for NOAH Kids Grades 5-8. 

Register Today!www.albinism.org/NOAH-Connections/#book-club

Posted: February 1, 2021

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Save the Date!

Mark your calendars for these upcoming opportunities to connect!

Parent Connections: Parenting Teens with Albinism

Thursday, February 11th at 9:00pm ET // 6:00pm PT

NOAH Connections: Dating with Albinism

Saturday, February 13th at 3:00pm ET // 12:00pm PT.

NOAH Connections: Coffee Chat 
Monday, February 15th at 1:00 pm ET / 10:00am PT

NOAH Connections: BIPOC Connections
Saturday, February 20th at 5:00pm ET // 2:00pm PT

NOAH Connections: Ask the Doctors – Doctors with Albinism

Sunday, February 21st at 5:00pm ET // 2:00pm PT

NOAH Connections: Aging with Albinism

Tuesday, February 23rd at 4:00pm ET // 1:00pm PT

Parent Connections: Transitioning to College for Teens and Parents

Thursday, February 25th at 9:00pm ET // 6:00pm PT

NOAH Connections: Positively Unique – Celebrating What Makes us Rare

Sunday, February 28th

K – 5 at 2:00pm ET // 11:00am PT

Grades 6-8 at 3:00pm ET // 12:00pm PT

Teens at 4:00pm ET // 1:00pm PT

Posted: February 1, 2021

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Take a moment to stop by and have a look at the newly refreshed NOAH website! And while you’re there, be sure to check out the many upcoming opportunities to connect, as well as the new “Share with NOAH” form – think of it as a virtual suggestion box! We look forward to hearing from you! 

Posted: January 25th, 2021

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What’s YOUR Superpower?

The albinism community needs your talents and your expertise for NOAH Connections! Check out this awesome video calling NOAH Superheroes to action: 

Ready to share your superpower? Answer the call at www.albinism.org/noah-connections

​​​​​​​
Video credit to the amazing and talented Sophie Ostrove, longtime NOAH member and student at the Tisch School of the Arts at NYU.

Posted: January 25th, 2021

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Announcing NOAH Kids’ PWA Book Club!

Sunday, February 7th at 3pm ET // 12pm PT

Kids grades 5-8, join award-winning author (and parent of a daughter with albinism) Beth Vrabel and Certified Teacher of Students with Visual Impairments, Kathi Garza, for our first meeting and official kick-off of the NOAH Kids’ PWA Book Club. 

At our initial meeting, Kathi will introduce the first book we’ll be reading, “A Blind Guide to Stinkville” by Beth Vrabel, and Beth will provide some background on the story and read us an excerpt. No need to read the book before joining – we will discuss “A Blind Guide to Stinkville” when we meet for our second session on March 7th!

Register Today!www.albinism.org/NOAH-Connections/#book-club

Posted: January 25th, 2021

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Announcing! NOAH Connections: Dating with Albinism

Join hosts Rebecca & Nick Smith for this #SharetheNOAHLove NOAH Connections panel about dating with albinism on Saturday, February 13th at 3:00 pm ET / 12:00 pm PT. 

Participation link will be sent to members of Adult NOAH Connections and Young Adult NOAH Connections. 

Not a member of NOAH Connections? There’s still time to sign-up to participate!

Join Adult NOAH Connections:

https://app.donorview.com/w7vjb

Join Young Adult NOAH Connections:

https://app.donorview.com/o4p07

Posted: January 25th, 2021

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REMINDER: Check Your Facebook Settings to Keep NOAH in your News Feed! 

With evolving social media algorithms and notification options, we encourage our followers to take a few minutes to review their NOAH Facebook Page settings, so they don’t miss out on the latest news and information relevant to the community! Start by clicking the Like button, then click on the 3 dots on the top right to customize your Follow settings. Choose how you’ll see posts from NOAH in your News Feed, and what types of posts you want to be notified about. 

Posted: January 25th, 2021

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Thank You Jennifer Renée, Diandra, Mira and Hana!

Special thanks to our awesome NOAH Connections Hosts this past weekend! Thank you, Jennifer Renée and Diandra Forrest, for hosting New Year, New Look: Makeup Fun in 2021 on Saturday, and thank you, Mira Shaklan and Hana Schank for hosting Writing About Albinism for NOAH Tweens and Teens on Sunday. 

Your generosity in sharing your time and talent with the NOAH community is truly appreciated! ​​​​​​​

Posted: January 25th, 2021

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NOAH Events This Week

Check out the great opportunities to connect this week!

Parents without Pigment, Share Your Tips & Tricks!

Friday January 29th 9:00 pm ET / 6:00 pm PT

Whether you’re a brand new parent or have kids who are in college or beyond, you won’t want to miss the next session of Parenting without Pigment! Led by Marleena and Ali, we’ll share our best parenting tips and tricks. See you on Zoom!

Sign up now: www.albinism.org/NOAH-Connections/#parents-1-29

Posted: January 25th, 2021

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It Would be “Crumby” to Miss Cookies with Kathi – Valentine’s edition!

Back by popular demand, Kathi is once again generously sharing her skills with NOAH for this Valentine’s cookie decorating fundraiser. Join us for one of two sessions on Sunday, January 31st: Friends of NOAH at 2:00pm ET or Adults with Low Vision at 4:00pm ET.

In order to #ShareTheNOAHLove and make this Valentine’s cookie decorating class accessible to as many people as possible, a donation of any size grants access to Cookies with Kathi (suggested donation $10 per person). Be sure to invite your friends!

Sign up for Cookies with Kathi Now!

Posted: January 25th, 2021

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Save the Date!

Mark your calendars for these upcoming NOAH gatherings and teleconferences:

NOAH Connections: 

Teens: Let’s Talk About College!

Thursday, February 4th at 8:00 pm ET // 5:00 pm PT

NOAH Connections

Young Adults: Awkward Moments with Albinism!

Thursday, February 4th at 9:15 pm ET //6:15 pm PT

NOAH Connections: 
Kids’ Book Club (Grades 5-8)
with author Beth Vrabel & educator Kathi Garza

Sunday, February 7th at 3:00pm ET // 12:00pm PT

Parent Connections:

Parenting Teens with Albinism

Thursday, February 11th at 9:00pm ET // 6:00pm PT

NOAH Connections:

Dating with Albinism

Saturday, February 13th at 5:00 pm ET /// 2:00 pm PT

NOAH Connections:

Coffee Chat 
Monday, February 15th at 5:00 pm ET / 2:00 pm PT

NOAH Connections:

BIPOC Connections
Saturday, February 20th at 5:00pm ET // 2:00pm PT

NOAH Connections:

Ask the Doctors – Doctors with Albinism

Sunday, February 21st at 5:00pm ET // 2:00pm PT

NOAH Connections:

Positively Unique – Celebrating What Makes us Rare

Sunday, February 28th

K – 5 at 2:00pm ET // 11:00am PT

Grades 6-8 at 3:00pm ET // 12:00pm PT

Teens at 4:00pm ET // 1:00pm PT

Posted: January 25th, 2021

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Martin Luther King Jr. Day

In observance of Martin Luther King Jr. Day, we share this photo captured at a march in Selma, Alabama in 1965 that features Dr. King alongside colleague and personal friend with albinism, Rev. Jesse L. Douglas. #AlbinismInHistory #MLKDay

Posted: January 19th, 2021

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Keep NOAH in your News Feed! 

With evolving social media algorithms and notification options, we encourage our followers to take a few minutes to review their NOAH Facebook Page settings, so they don’t miss out on the latest news and information relevant to the community! Start by clicking the Like button, then click on the 3 dots on the top right to customize your Follow settings. Choose how you’ll see posts from NOAH in your News Feed, and what types of posts you want to be notified about. 

Posted: January 19th, 2021

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Announcing Cookies with Kathi – Valentine’s edition!

Back by popular demand, Kathi is generously sharing her skills with NOAH again in this Valentine’s cookie decorating fundraiser. Join us for one of two sessions on Sunday, January 31st: Friends of NOAH at 2:00pm ET or Adults with Low Vision at 4:00pm ET.

In order to spread the love and make this Valentine’s cookie decorating class accessible to as many people as possible, a donation of any size grants access to Cookies with Kathi (suggested donation $10 per person). Be sure to invite your friends!

Sign up for Cookies with Kathi Now!

Posted: January 19th, 2021

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NOAH Events This Week!

Check out the great opportunities to connect this week!

TODAY! NOAH Connections Coffee Chat

​​​​​​​Monday, January 18th

5:00pm ET // 4:00pm CT // 3:00pm MT // 2:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

Join NOAH Connections Coffee Chat!

Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect.

Posted: January 19th, 2021

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Thursday! Teen NOAH Connections
Bring a Friend with Albinism

​​​​​​Thursday, January 21st

8:00pm ET //7:00pm CT // 6:00pm MT // 5:00pm PT

NOAH Teens, get ready for our first social NOAH Connections of 2021! Lead by our call host, Aidan O’Connor, we’ll connect with friends new and old. Let’s kick-off the new year with a bang – invite a friend with albinism to sign up and join in the fun. See you on Zoom!

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!

Posted: January 19th, 2021

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Thursday! Young Adult NOAH Connections

​​​​​​Thursday, January 21st

9:15pm ET // 8:15pm CT // 7:15pm MT // 6:15pm PT

Young Adults, we are so excited for our first session of the new year, facilitated by Aidan O’Connor! We hope you’ll join us for casual discussion about socializing and dating with albinism, as we connect with friends new and old. We can’t wait to “see” you on Zoom!

Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Young Adult NOAH Connections!

Posted: January 19th, 2021

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Friday! Parent Connections – Parenting a Young Child with Albinism

Friday, January 22nd
1:00PM ET // 12:00PM CT // 11:00AM MT // 10:00AM PT

Parents of young children – you won’t want to miss this informative call that will focus on the journey that parents take while adapting to the diagnosis of albinism in their child. Join Parent Connections today for the opportunity to be part of a community that will support you and provide a path for you and your child.  We will discuss adapting to the diagnosis of albinism and provide a space to deal with questions and concerns that may have arisen.  

Note: You must be a member of the Parent Connections program to participate in Parent Connections Calls. Not a member? It’s easy to join! Learn more or join now!

Posted: January 19th, 2021

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Saturday! Makeup Fun in 2021 – New Year New Look!
With Beauty Influencer, Jennifer Renée & Model and Actress, Diandra Forrest.

Saturday, January 23rd
4:00pm ET // 3:00pm CT // 2:00pm MT // 1:00pm PT

People with albinism ages 16+, you’re invited to a special NOAH Connections makeup tutorial featuring Jennifer Renée and Diandra Forrest. Tune in for special tips and tricks just for PWAs, Jennifer’s personal recommendations for makeup brands and products, and fun suggestions for changing up your look in the new year!

Sign Up for Makeup Fun in 2021!

Posted: January 19th, 2021

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Sunday! NOAH Connections – Writing About Albinism

Sunday, January 24th
4:00pm ET // 3:00pm CT // 2:00pm MT // 1:00pm PT

NOAH teens & tweens, you won’t want to miss this complimentary writing workshop featuring author Hana Schank and her daughter, Mira Shaklan. In this one-hour workshop, NOAH members Hana Schank and her daughter Mira Shaklan will share what they both know about writing, and specifically writing about albinism. 

Sign up today!

Posted: January 19th, 2021

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Save the Date!

Mark your calendars for these upcoming NOAH gatherings and teleconferences:

NOAH Connections: 
Parenting without Pigment – Tips and Tricks 

with Marleena Barber & Ali Adema

Friday, January 29th at 9:00pm ET // 6:00pm PM

NOAH Connections: 
Kids’ Book Club (Grades 5-8)
with author Beth Vrabel & educator Kathi Garza

Sunday, February 7th at 3:00pm ET // 12:00pm PT

Parent Connections:

Parenting Teens with Albinism

Thursday, February 11th at 9:00pm ET // 6:00pm PT

NOAH Connections:

BIPOC Connections
Saturday, February 20th at 5:00pm ET // 2:00pm PT

NOAH Connections:

Ask the Doctors – Doctors with Albinism

Sunday, February 21st at 5:00pm ET // 2:00pm PT

Posted: January 19th, 2021

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Have You Read the Winter Issue of Albinism InSight? 

The most recent issue of NOAH’s quarterly magazine features articles about:
– PWAs who use mobility aids to live more independent lives. 
– Celebrating ourselves as we are
– Celebrating different cultural background of PWAs
– And much more!!

You don’t want to miss this exciting issue – learn more, subscribe, or get your copy today at www.albinism.org/AI

Posted: January 13th, 2021

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NOAH Connections Update

NOAH Tweens & Teens, There’s Still Time to Sign Up for “Writing About Albinism”

​​​​Date Change! Sunday, January 24th

4:00pm ET // 3:00pm CT // 2:00pm MT // 1:00pm PT

Writing about the personal experience of living with albinism is a story only you can tell. Hana Schank and her daughter Mira Shaklan will help you tell that story as they share what they both know about writing, and specifically writing about albinism. In the workshop we will discuss different types of writing, including various types of fiction, personal essays, opinion essays, and journaling.

Learn more or register now!

Posted: January 13th, 2021

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NEW! Teens & Young Adults

NOAH teens & young adults, get ready for our first NOAH Connections of 2021! See you Thursday, January 21st for a chance to catch up and chat with NOAH friends.

Teens, join us at 8:00pm ET for Bring a Friend with Albinism week! We’ll start off the new year making some new friends and catching up with the old as we chat, relax, and play games. 

Young Adults, be there at 9:15pm ET. This week’s topic will be socializing and dating with albinism. 

New to the community? The first call of the new year is the perfect chance to join in for your first time! Join NOAH Connections today at www.albinism.org/NOAH-Connections

Posted: January 13th, 2021

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Save the Date!

Mark your calendars for these exciting, upcoming NOAH Connections gatherings:

Makeup Fun in 2021 – New Year New Look

with Beauty Influencer, Jennifer Renée & Model and Actress, Diandra Forrest

Saturday, January 23rd – time TBA

More info coming soon!

Parenting without Pigment – Tips and Tricks 

with Marleena Barber & Ali Adema

Friday, January 29th at 9:00pm ET // 6:00pm PM

Kids’ Book Club (Grades 5-8)
Sunday, February 7th at 3:00pm ET // 12:00pm PT

More info coming soon!

Ask the Doctors – Doctors with Albinism

Sunday, February 21st at 5:00pm ET // 2:00pm PT

Posted: January 13th 2021

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Parent & Grandparent Connections Update

Last Chance – Sign Up Now to Join Us for “Building Family Resilience” Tonight!

If you aren’t a member of Parent Connections, join now for info on how to attend tonight’s teleconference, “Building Family Resilience” with Sheila Adamo, L.C.S.W, C.A.D.C. at 9:00pm ET // 6:00pm PT. This informative call will give parents the chance to connect with others, while gaining tools to increase resilience for themselves and their families. 

Join Parent Connections today!

Posted: January 13th, 2021

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Join Grandparent Connections today!

The next teleconference for Grandparent Connections is this Friday…which means the’re still time to join! Sign up for Grandparent Connections today, and you’ll be invited to join us for “Connecting via the Internet” this Friday, January 15th at 1:00pm ET // 10:00am PT. 

Posted: January 13th, 2021

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FYI: Free Online Yoga for the NOAH Community in January!

Other News

Did you know that NOAH Interim Executive Director Diana McCown is also a yoga instructor? And her yoga studio is offering free online yoga classes to the NOAH community for the month of January! 

Take a look at the class schedule at https://www.willowstreetyoga.com/online-classes/, and if you’re interested, sign up with NOAH to receive the code for free yoga classes: https://app.donorview.com/8WqPb

Posted: January 13th, 2021

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Happy New Year! 

NOAH wishes you and your loved ones a happy and healthy new year. We look forward to connecting with you in 2021!

Posted: January 10th, 2021

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Opinion Writing Workshop – Postponed to Late Spring

Join author Hana Schank for a special 90-minute Opinion Writing Workshop. This incredible opportunity is open to the general public – spread the word! Special rates for NOAH members!

Learn more or sign-up today at: https://www.albinism.org/NOAH-workshops/

Posted: January 10th, 2021

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NOAH Connections Update

Educating Others About Albinism

We can’t wait for another special session with Jocelyn, this time focusing on educating others about albinism! NOAH kids & teens, we hope you’ll join us on Sunday, January 10th to discuss strategies and explanations that you can use in your everyday life when talking about albinism. We’ll connect and share feelings while working together to make a resource that you can share with your classmates and peers!

“Educating Others About Albinism” 
Sunday, January 10th

Grades K-5 @ 2:00pm ET

Grades 6-8  @ 3:00pm ET

Teens @ 4:00pm ET

Not signed up for NOAH Connections yet? There’s still time! Select the correct age group above for more info on this session and how to join today!

Posted: January 10th, 2021

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You’re Invited to “Writing About Albinism”

A complimentary NOAH Connections workshop for NOAH tweens & teens​​​​​

New Date! Sunday, January 24th

4:00pm ET // 3:00pm CT // 2:00pm MT // 1:00pm PT

We’re so excited about this special NOAH Connections writing workshop for tweens and teens featuring NOAH members Hana Schank and her daughter Mira Shaklan! Workshop participants will have the opportunity to write and share their work.

Learn more or register now!

Posted: January 10th, 2021

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Parent & Grandparent Connections Update

Calling All Parents & Grandparents!

Did you know that NOAH offers opportunities to learn and connect for parents & grandparents too? Sign up for Parent Connections or Grandparent Connections today and join us for one of our upcoming teleconferences:

Parent Connections – Monday, January 11th:

Building Family Resilience

Grandparent Connections – Friday, January 15th:

Connecting via the Internet

Join Parent Connections today!

Join Grandparent Connections today!​​​​​​​

Posted: January 10th, 2021

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Other News

FYI: Free Online Yoga for the NOAH Community in January!

Did you know that NOAH Interim Executive Director Diana McCown is also a yoga instructor? And her yoga studio is offering free online yoga classes to the NOAH community for the month of January! 

Take a look at the class schedule at https://www.willowstreetyoga.com/online-classes/, and if you’re interested, sign up with NOAH to receive the code for free yoga classes: https://app.donorview.com/8WqPb

Posted: January 10th, 2021

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