NOAH News Today
Year-End Match Success!
We’re celebrating NOAH earning the $5,000 year-end gift match! Thanks to all who generously gave. We couldn’t have done it without you.
Posted: January 7, 2019
JVIB, Special Focus on Albinism and Vision
Congratulations to NOAH community member, Kimberly Avila, Ph.D., TVI, COMS for her tremendous work as guest editor of the Special Focus on Albinism and Vision issue of the Journal of Visual Impairment & Blindness (JVIB)! https://www.afb.org/afbpress/newpubjvib.asp?DocID=jvib120601
Posted: January 7, 2019
Rachel Petherbridge, BU’s First Mitchell Scholar
Congratulations Rachel Petherbridge, on being BU’s first Mitchell scholar. As a scholarship recipient, Rachel will spend a year in Ireland studying public policy. www.bu.edu/today/2018/rachel-e-petherbridge-mitchell-scholarship-winner…
Posted: January 7, 2019
Colleen Young, Paralympic Athlete and Fairfield University Swimmer
Paralympic world record holder and Fairfield University swimming standout Colleen Young is in the news. Kudos to Colleen for her perseverance and positive attitude – join us in wishing her continued success in and out of the pool!
Posted: January 7, 2019
Owen D, Space Camp Experience
In this heartfelt video, scholarship recipient Owen D shares what attending Space Camp for Interested Visually Impaired Students (SCIVIS) meant to him!
Posted: December 3, 2018
Breaking Myths About Albinism
Have you seen this “Breaking Myths” documentary created by a group of European albinism organizations? Do aspects of this video resonate with you? If you were interviewed for a video like this, what would your message be?
Posted: December 3, 2018
Facebook Giving Tuesday
Posted: November 27, 2018
Where’s Mike?
The face of NOAH at professional conferences, this month we find Executive Director Mike McGowan in Orlando, Florida at the 2018 American Academy of Pediatrics Conference! Thank you, Mike, for your tireless efforts in spreading albinism awareness.
Posted: Friday, November 23, 2018
Get to Know Sumner Johnson
Posted: Friday, November 23, 2018
Thank you, Facebook Fundraisers!
Did you know that there have been 89 Facebook Fundraisers benefiting NOAH this year? These Facebook community members raised more than $15,000 through their network of family and friends — AMAZING! Join us in thanking our NOAH Facebook family for their support – you can join in the fundraising fun at https://fb.com/fund/NOAH.Albinism. #thankful #BetterTogether
Posted: Saturday, November 17, 2018
NOAH Earns Through iGive
Did you know that NOAH supporters have earned $3,429.10 for NOAH by shopping through iGive? In the month of November, you can help NOAH earn even more with iGive’s $3.00 new member iGive button bonus! As you begin your holiday shopping, consider shopping through iGive! Learn more at https://www.iGive.com/albinism!
Posted: Monday, November 5, 2018
National Federation for the Blind Scholarship Program
All legally blind high school and college students have the opportunity to apply for one of the many scholarships offered by the National Federation for the Blind. The scholarship program began on November 1st and ends on March 31, 2019. To learn more and apply at www.nfb.org/scholarships
Posted: Monday, November 5, 2018
Through Nov 2, AmazonSmile is donating 5% (ten times the usual amount) to National Organization For Albinism And Hypopigmentation when you shop at smile.amazon.com/ch/23-2265173. #AmazonSmile #StartWithaSmile
Posted: Monday, October 29, 2018
SPOTMYUV Offer
Have you heard of SPOTMYUV? Members of the NOAH community are invited to try SPOTMYUV (www.SPOTMYUV.com), the world’s first UV indicator clinically proven to switch colors as you need to reapply sunscreen, all day long. Receive your first 4-pack for free by using the discount code NOAH at checkout. Rated for 1 day’s use, the sticker changes color to purple with any amount of UVA or UVB, and will reversibly switch back to clear in the sun after sunscreen has been applied.
Posted: Monday, October 22, 2018
Learn more about community member Brandi Darby’s emotional journey to becoming the first legally blind woman to medal at a USA weight lifting competition.
This is a story about tears and the emotions that can be found in each drop.
Posted: Wednesday, October 17, 2018
Space Camp for Interested Visually Impaired Students is in the news!
Posted: Thursday, October 11, 2018
NOAH Friends Gather Now and Next Fall
NOAH friends Joni and Katrina recently met up for dinner while Katrina was in Wisconsin. We hope to see more smiling faces in Atlanta, Georgia on September 27-19, 2019 as adults with albinism come together for Adult Weekend. Save the Date! Posted: Monday, October 8, 2018
Northern Illinois Candlelight Ball
Midwest friends of NOAH, you are all cordially invited to attend The Northern Illinois NOAH’s 2018 Fundraiser Candlelight Ball! The event is Friday, November 9th from 7pm-11pm at Victoria of Rosemont in Rosemont, IL. More details and how you can purchase your tickets can be found at www.albinism.org/gala
Posted: Monday, October 8, 2018
Space Camp Scrapbook
Posted: Monday, October 8, 2018
Autumn 2018 NOAH Ed U Is Available
The autumn edition of NOAH Ed U is now available! NOAH Ed U is a complimentary electronic supplement, geared toward educators, based on NOAH’s quarterly magazine. Share this publication with educators who work with children with Albinism at www.albinism.org/ed-u
Posted: Monday, October 8, 2018
Federal Employee Workplace Giving
Posted: Monday, October 8, 2018
100th Issue of Albinism InSight
The 100th issue of Albinism InSight is now available! Haven’t received your copy? There’s still time to subscribe or renew your subscription at www.albinism.org/albinism-insight-subscription or order an individual copy at https://www.albinism.org/online-store/
Posted: Monday, September 24, 2018
Get Up and Get Moving!
National Blind Sports Day – October 6, 2018
The United States Association of Blind Athletes’ (USABA) vision is for every American who is blind or visually impaired to lead a healthy lifestyle by actively participating in sports, recreation and physical activity. The goal of National Blind Sports Day is to provide Americans who are blind and visually impaired with opportunities to participate in a variety of sports and physical activities, and to raise awareness of blind sports in our society. National Blind Sports Day will take place during Blindness Awareness Month and a week before World Sight Day (October 11) and White Cane Day (October 15).
NOAH is a proud supporter of National Blind Sports Day.
Check out the list of Blind Sport Day events.
To set up an event of your own, contact Pam McGonigle at pmcgonigle@usaba.org
Posted: Monday, September 10, 2018
Introducing “Doctors with Albinism”
The newly formed Doctors with Albinism is a group of physicians and prospective physicians with albinism, providing a forum to connect, ask questions, and support each other through the rigorous and rewarding process of becoming a doctor and practicing medicine as a person with albinism. If you are a physician or medical student with albinism or an adult, college student, or high school student with albinism interested in pursuing medicine, please reach out to the group at DoctorsWithAlbinism@gmail.com or check out their Facebook group at www.doctorswithalbinism.org.
Posted: Monday, September 10, 2018
Congratulations NOAH Parent Liaison of the Year
Congratulations to Regan Gentile for being named NOAH’s Parent Liaison of the Year. Thank you, Regan, for your dedicated and compassionate support of parents of newly diagnosed children with albinism.
Posted: Monday, August 27, 2018
Community Member Receives 2018 NBC Universal Tony Coelho Media Scholarship
Posted: Monday, August 27, 2018
Welcome New NOAH Board Members
NOAH is excited to welcome Brandi Darby of Pittsburgh, PA and Torey Alford of Denver, CO as our newest board members. Brandi and Torey were each appointed to two-year terms on NOAH’s Board of Directors.
Posted: Wednesday, August 13, 2018
2018 Award Recipients
Posted: Wednesday, August 13, 2018
Congratulations to NOAH Space Camp Scholarship Winners
Posted: Wednesday, August 13, 2018
NOAH Board Member Makes History at USA Weightlifting Competition
Brandi Darby a Pittsburgh native and NOAH Board Member made history at USA Weightlifting’s American Open Series 2 in Valley Forge, PA. Read the full story to hear how Brandi won a silver and two bronze medals becoming the first in recent history as a legally blind lifter to win at a national level.
Posted: Wednesday, August 8, 2018
Confronted with Her Daughter’s Disease, She Dedicated Her Career to Finding a Cure
Her focus and dedication to find a cure and to support the many diagnosed with HPS led NOAH Board Member Donna Appell on a path to creating the HPS Network. Read the full story as Donna shares her journey following her daughter’s diagnoses of HPS.
Posted: Wednesday, August 8, 2018
NOAH Member on the Cover of the Detroit Free Press
NOAH member Ryan Huizdos made the cover of the Detroit Free Press in celebration of his family’s successful three-year advocacy effort to allow the use of a yellow baseball in Little League tournament play. Read the full story to learn how Ryan and his family were able to successfully advocate for Ryan’s needs.
Posted: Wednesday, May 7, 2018
Spring Fundraiser Inspiration
Posted: Monday, February 12, 2018
Is Your Clinical Low Vision Specialist Listed?
The Directory of Pediatric Low Vision Service Providers lists, by state, those ophthalmologists and optometrists who are able to provide clinical low vision evaluations for children in the U.S. and Canada. The Directory may be found at http://www.tsbvi.edu/lowvisionservices. If your provider is missing, please contact Dr. Corn at Anne123C@gmail.com and provide the missing provider’s name and state.
Posted: Monday, February 12, 2018
New Year, New NOAH!
It’s a new year and a new NOAH. Read more… 5 Things to Know about the New NOAH in 2018.
Posted: Wednesday, January 31, 2018