NOAH News Today

Thank You from NOAHYear-End Match Success!

We’re celebrating NOAH earning the $5,000 year-end gift match! Thanks to all who generously gave. We couldn’t have done it without you.

Posted: January 7, 2019

JVIB_Special Focus on Albinism and VisionJVIB, Special Focus on Albinism and Vision

Congratulations to NOAH community member, Kimberly Avila, Ph.D., TVI, COMS for her tremendous work as guest editor of the Special Focus on Albinism and Vision issue of the Journal of Visual Impairment & Blindness (JVIB)!

Posted: January 7, 2019

RachelP_Mitchell ScholarRachel Petherbridge, BU’s First Mitchell Scholar

Congratulations Rachel Petherbridge, on being BU’s first Mitchell scholar. As a scholarship recipient, Rachel will spend a year in Ireland studying public policy.…

Posted: January 7, 2019

ColleenYColleen Young, Paralympic Athlete and Fairfield University Swimmer

Paralympic world record holder and Fairfield University swimming standout Colleen Young is in the news. Kudos to Colleen for her perseverance and positive attitude – join us in wishing her continued success in and out of the pool!

Posted: January 7, 2019

Owen D, Space Camp Experience

In this heartfelt video, scholarship recipient Owen D shares what attending Space Camp for Interested Visually Impaired Students (SCIVIS) meant to him!

Posted: December 3, 2018

Breaking Myths About Albinism

Have you seen this “Breaking Myths” documentary created by a group of European albinism organizations? Do aspects of this video resonate with you? If you were interviewed for a video like this, what would your message be?

Posted: December 3, 2018

Facebook Giving Tuesday

Facebook Giving Tuesday

Ready, set, give! Please donate NOW and SHARE this post so others can give before the Facebook match runs out! #GivingTuesday

Posted: November 27, 2018

Where’s Mike?

The face of NOAH at professional conferences, this month we find Executive Director Mike McGowan in Orlando, Florida at the 2018 American Academy of Pediatrics Conference! Thank you, Mike, for your tireless efforts in spreading albinism awareness.

Posted: Friday, November 23, 2018

Get to Know Sumner Johnson

Get to know NOAH community member Sumner Johnson, a 4-year Sul Ross Scholarship recipient at Texas A&M who was recently featured in the Texas A&M Foundation’s Spirit Magazine! 

Posted: Friday, November 23, 2018

Thank you, Facebook Fundraisers!

Facebook Fundraisers for NOAH

Did you know that there have been 89 Facebook Fundraisers benefiting NOAH this year? These Facebook community members raised more than $15,000 through their network of family and friends — AMAZING! Join us in thanking our NOAH Facebook family for their support – you can join in the fundraising fun at #BetterTogether

Posted: Saturday, November 17, 2018

NOAH Earns Through iGive

iGive.comDid you know that NOAH supporters have earned $3,429.10 for NOAH by shopping through iGive? In the month of November, you can help NOAH earn even more with iGive’s $3.00 new member iGive button bonus! As you begin your holiday shopping, consider shopping through iGive! Learn more at!

Posted: Monday, November 5, 2018

National Federation for the Blind Scholarship Program

National Federation of the BlindAll legally blind high school and college students have the opportunity to apply for one of the many scholarships offered by the National Federation for the Blind. The scholarship program began on November 1st and ends on March 31, 2019. To learn more and apply at

Posted: Monday, November 5, 2018

Through Nov 2, AmazonSmile is donating 5% (ten times the usual amount) to National Organization For Albinism And Hypopigmentation when you shop at #AmazonSmile #StartWithaSmile

Posted: Monday, October 29, 2018



Have you heard of SPOTMYUV? Members of the NOAH community are invited to try SPOTMYUV (, the world’s first UV indicator clinically proven to switch colors as you need to reapply sunscreen, all day long. Receive your first 4-pack for free by using the discount code NOAH at checkout. Rated for 1 day’s use, the sticker changes color to purple with any amount of UVA or UVB, and will reversibly switch back to clear in the sun after sunscreen has been applied.

Posted: Monday, October 22, 2018

Learn more about community member Brandi Darby’s emotional journey to becoming the first legally blind woman to medal at a USA weight lifting competition.

Space Camp for Interested Visually Impaired Students is in the news!

Congratulations and a big THANK YOU to NOAH Board Member and SCIVIS Coordinator Dan Oates!

Posted: Thursday, October 11, 2018

NOAH Friends Gather Now and Next Fall 

NOAH FriendshipsNOAH friends Joni and Katrina recently met up for dinner while Katrina was in Wisconsin.  We hope to see more smiling faces in Atlanta, Georgia on September 27-19, 2019 as adults with albinism come together for Adult Weekend. Save the Date! 

Posted: Monday, October 8, 2018

NI Candlelight BallNorthern Illinois Candlelight Ball

Midwest friends of NOAH, you are all cordially invited to attend The Northern Illinois NOAH’s 2018 Fundraiser Candlelight Ball! The event is Friday, November 9th from 7pm-11pm at Victoria of Rosemont in Rosemont, IL. More details and how you can purchase your tickets can be found at

Posted: Monday, October 8, 2018

SCIVIS_6Space Camp Scrapbook

Campers have returned from 2018 SCIVIS: September 29 – October 4, 2018 and by all reports,it was an amazing experience! Check out the growing scrapbook at

Posted: Monday, October 8, 2018

NOAH Ed U Autumn 2018Autumn 2018 NOAH Ed U Is Available

The autumn edition of NOAH Ed U is now available! NOAH Ed U is a complimentary electronic supplement, geared toward educators, based on NOAH’s quarterly magazine. Share this publication with educators who work with children with Albinism at

Posted: Monday, October 8, 2018

CFC 2018Federal Employee Workplace Giving

Did you know that NOAH is an approved charity of the Combined Federal Campaign (CFC) – the workplace giving program of the federal government of the United States?100% of funds donated through the #CFC go directly to NOAH! Please share with family and friends who are federal employees and ask that they consider designating NOAH as the recipient of their workplace giving. We’re easy to locate using our CFC code 10028 or keyword search “NOAH” at

Posted: Monday, October 8, 2018

NOAH Autumn 2018 AI Cover - 100th100th Issue of Albinism InSight

The 100th issue of Albinism InSight is now available! Haven’t received your copy? There’s still time to subscribe or renew your subscription at or order an individual copy at

Posted: Monday, September 24, 2018

National Blind Sports Day 2018Get Up and Get Moving!

National Blind Sports Day – October 6, 2018

The United States Association of Blind Athletes’ (USABA) vision is for every American who is blind or visually impaired to lead a healthy lifestyle by actively participating in sports, recreation and physical activity. The goal of National Blind Sports Day is to provide Americans who are blind and visually impaired with opportunities to participate in a variety of sports and physical activities, and to raise awareness of blind sports in our society. National Blind Sports Day will take place during Blindness Awareness Month and a week before World Sight Day (October 11) and White Cane Day (October 15).

NOAH is a proud supporter of National Blind Sports Day.

Check out the list of Blind Sport Day events.

To set up an event of your own, contact Pam McGonigle at

Posted: Monday, September 10, 2018

Doctors with Albinism

Introducing “Doctors with Albinism”

The newly formed Doctors with Albinism is a group of physicians and prospective physicians with albinism, providing a forum to connect, ask questions, and support each other through the rigorous and rewarding process of becoming a doctor and practicing medicine as a person with albinism. If you are a physician or medical student with albinism or an adult, college student, or high school student with albinism interested in pursuing medicine, please reach out to the group at or check out their Facebook group at

Posted: Monday, September 10, 2018

Parent Liaison of the Year 2018Congratulations NOAH Parent Liaison of the Year

Congratulations to Regan Gentile for being named NOAH’s Parent Liaison of the Year. Thank you, Regan, for your dedicated and compassionate support of parents of newly diagnosed children with albinism.

Posted: Monday, August 27, 2018

Ashley HicksCommunity Member Receives 2018 NBC Universal Tony Coelho Media Scholarship

Join us in congratulating Ashley Hicks on receiving a 2018 NBC Universal Tony Coelho Media Scholarship. Ashley will be pursuing her MFA in performance at The American Conservatory Theater this fall.

Posted: Monday, August 27, 2018

Welcome New Board Members

Welcome New NOAH Board Members

NOAH is excited to welcome Brandi Darby of Pittsburgh, PA and Torey Alford of Denver, CO as our newest board members. Brandi and Torey were each appointed to two-year terms on NOAH’s Board of Directors.

Posted: Wednesday, August 13, 2018

2018 Award Recipients2018 Award Recipients

Last month in Kansas City, NOAH honored seven amazing members with prestigious awards! Please join us in recognizing; Founders’ Award recipients Tim Laughlin, Michelle O’Connor, and Sheila Adamo; Distinguished Service Award recipients Ed Dalton and Debbie Kitchin; Carl Witkop Award recipient Dr. Gail Summers; and 2018 Michael J. McGowan Leadership Scholarship Award recipient Elizabeth Schafer.

Posted: Wednesday, August 13, 2018

2018 Space Camp Scholarship Winners

Congratulations to NOAH Space Camp Scholarship Winners

Congratulations to this year’s NOAH Space Camp for Interested Visually Impaired Students (SCIVIS) Scholarship Winners: Gabriel M., John T., Leah S., Lilith H., Nicholas W. and Owen D.!

Posted: Wednesday, August 13, 2018

NOAH Board Member Makes History at USA Weightlifting Competition

Brandi Darby a Pittsburgh native and NOAH Board Member made history at USA Weightlifting’s American Open Series 2 in Valley Forge, PA. Read the full story to hear how Brandi won a silver and two bronze medals becoming the first in recent history as a legally blind lifter to win at a national level.

Posted: Wednesday, August 8, 2018

Confronted with Her Daughter’s Disease, She Dedicated Her Career to Finding a Cure

Her focus and dedication to find a cure and to support the many diagnosed with HPS led NOAH Board Member Donna Appell on a path to creating the HPS Network. Read the full story as Donna shares her journey following her daughter’s diagnoses of HPS.

Posted: Wednesday, August 8, 2018

NOAH Member on the Cover of the Detroit Free Press 

NOAH member Ryan Huizdos made the cover of the Detroit Free Press in celebration of his family’s successful three-year advocacy effort to allow the use of a yellow baseball in Little League tournament play. Read the full story to learn how Ryan and his family were able to successfully advocate for Ryan’s needs.

Posted: Wednesday, May 7, 2018

Fundraising_2018 NOAH FUNDRAISERS graphic for packet reverseSpring Fundraiser Inspiration

Looking for inspiration for planning a Spring Fundraiser that’s NOT a bowl-a-thon? Check out Julie’s video to learn how the Bluegrass Blondies are moving away from a bowl-a-thon to a fun spring event! Find other inspiring videos and event resources at

Posted: Monday, February 12, 2018

Is Your Clinical Low Vision Specialist Listed?

The Directory of Pediatric Low Vision Service Providers lists, by state, those ophthalmologists and optometrists who are able to provide clinical low vision evaluations for children in the U.S. and Canada. The Directory may be found at If your provider is missing, please contact Dr. Corn at and provide the missing provider’s name and state.

Posted: Monday, February 12, 2018

New Year New NOAH 5 Things to KnowNew Year, New NOAH!

It’s a new year and a new NOAH. Read more… 5 Things to Know about the New NOAH in 2018.

Posted: Wednesday, January 31, 2018