Skip to content →

NOAH News


T-minus 66 days until NOAHCon 2022! 

Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 


Two Weeks Left!

There are just under two weeks left to register for NOAHCon 2022.

Don’t miss out on the magical experience of NOAH’s national conference… register by May 21st!

www.albinism.org/NOAHCon

Published: May 9, 2022


Spiffy Shout-Outs!

Our favorite fundraising friend, Spiffy, has been sending special shout-outs to our awesome NOAH fundraisers. Check out Spiffy’s messages to Dallas Bowls for NOAHBunker BowlersMarch Madness for NOAH, and MuttStruts for NOAH

Feeling inspired to start your own fundraiser? Check out the options & create your fundraising page today at: www.albinism.org/fundraisers

Published: May 9, 2022


Run, Spiffy, Run!!

​​​​​​​

Spiffy is on his way to Orlando thanks to our awesome fundraising teams!

Can YOU help Spiffy make it to FL in time for NOAHCon 2022 this July??

Make your fundraising page today:
www.albinism.org/fundraisers

Published: May 9, 2022


NOAHCon Sponsorship Opportunities!

Do YOU know a company that would love to have their brand or logo prominently featured on NOAHCon 2022 lanyards, tote bags, and more?

Spread the word about limited NOAHCon 2022 sponsorship opportunities today!​​​​​​​
www.albinism.org/NOAHCon/sponsor

Published: May 9, 2022


Bly on the Fly: Board Edition!

Get to know NOAH board members with rapid fire questions in this special edition of Bly on the Fly.

Up first, we have Donna Appell, RN, who is the founder and president of the Hermansky-Pudlak Syndrome (HPS) Network. Donna serves on NOAH’s Board of Directors and Board of Scientific Advisors.

Bly on the Fly: Board Edition – Donna Appell

Published: May 9, 2022


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: May 9, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Thursday: Teen Connections

May 12th at 8:00pm ET // 5:00pm PT

Teens, you’re up next! We can’t wait to see YOU this Thursday for our next session of teen connections.

New to the group? Join today for the invite to this call, and we’ll send you email reminders for future chances to connect.

www.albinism.org/NOAH-Connections/#teens 

Published: May 9, 2022


Saturday: Kids Scavenger Hunt

May 14th at 2:00pm ET // 11:00am PT

Calling All NOAH Kids Grades K-5!

Join Casey and Caroline for a NOAH Kids Scavenger Hunt, this Saturday, May 14th at 2pm ET // 11am PT. Get ready to search around your house for all of the items…you may win a prize!

www.albinism.org/NOAH-Connections/#scavenger

Published: May 9, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: May 9, 2022

TWednesday, May 18th:
NOAH Connections: Young Adults
Thursday, May 19th:
NOAH Connections: Adults
Sunday, May 22nd:
NOAH Connections: LGBTQ+ and Allies
Monday, May 23rd:
NOAH Connections: Open Forum Discussion for Parents
Tuesday, May 24th:
NOAH Connections: Aging with Albinism (rescheduled!)
Wednesday, May 25th:
NOAH Connections: Albinism in Color – Parents
Thursday, May 26th:
NOAH Connections: Teens
Wednesday, June 1st:
NOAH Connections: Young Adults
Thursday, June 2nd:
NOAH Workshops: Parents, Grandparents, and Caregivers
NOAH Connections: Adults
Thursday, June 9th:
NOAH Connections: Teens

T-minus 73 days until NOAHCon 2022! 

Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 


Spiffy Runs to Orlando!

Our favorite fundraising friend, Spiffy, is trying to get to the NOAH Conference in Orlando…but he needs YOUR help to make it in time!

Check out Spiffy’s message and create YOUR fundraising page today!
www.albinism.org/fundraisers

Published: May 2, 2022


Spiffy Shout-Outs!

Our favorite fundraising friend, Spiffy, has been sending some special shout-outs to awesome NOAH fundraisers. Check out Spiffy’s messages to Dallas Bowls for NOAHBunker Bowlers, and March Madness for NOAH

Feeling inspired to start your own fundraiser? Check out the options & create your fundraising page today at: www.albinism.org/fundraisers

Published: May 2, 2022


NOAHCon Sponsorship Opportunities!

Do YOU know a company that would love to have their brand or logo prominently featured on NOAHCon 2022 lanyards, tote bags, and more?

Send them to our site for more details on NOAHCon 2022 sponsorship opportunities today!
www.albinism.org/NOAHCon/sponsor

Published: May 2, 2022


Are You Ready to Lend a Hand at NOAHCon?

 
We are looking for awesome volunteers to lend a hand with the Teens & Tweens and Preschoolers at NOAHCon 2022. Don’t miss out on this chance to connect with awesome NOAH kids and make a difference.

Call for Teens & Tweens Volunteers!

Call for Preschool Volunteers!

Learn more & sign up to volunteer today at: 
www.albinism.org/NOAHCon/volunteer​​​​​​​

Published: May 2, 2022


Announcing: IAAD 2022 Theme!

We are excited to share that the theme for International Albinism Awareness Day 2022 is United in Making Our Voice Heard.

How do YOU plan to spread awareness and celebrate this IAAD? Share your plans on our recent Facebook post!

Published: May 2, 2022


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: May 2, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Young Adult Connections

May 4th at 9:00pm ET // 6:00pm PT

Young adults, we can’t wait to “see” you this week for our next session of Young Adult Connections. Grab your devices and get ready for quality time with your friends with albinism!

Sign up today for the invite to this call, and we’ll send you email reminders for future chances to connect, too!

​​​​​​​http://​​​​​​​www.albinism.org/NOAH-Connections/#young-adults

Published: May 2, 2022


Thursday: Adult Connections

May 5th at 9:00pm ET // 6:00pm PT

Adults, join us this week to look back on our school days! Get ready with your best funny or embarrassing stories…pictures encouraged!

New to the group? There’s still time to sign up!

​​​​​​​http://​​​​​​​www.albinism.org/NOAH-Connections/#adults

Published: May 2, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: May 2, 2022

Thursday, May 12th:
NOAH Connections: Teens
Saturday, May 14th:
NOAH Connections: Kids Scavenger Hunt
Tuesday, May 17th:
NOAH Connections: Aging with Albinism
Wednesday, May 18th:
NOAH Connections: Young Adults
Thursday, May 19th:
NOAH Connections: Adults
Sunday, May 22nd:
NOAH Connections: LGBTQ+ and Allies
Monday, May 23rd:
NOAH Connections: Open Forum Discussion for Parents
Thursday, May 26th:
NOAH Connections: Teens
Thursday, June 2nd:
NOAH Workshops: Parents, Grandparents, and Caregivers

T-minus 80 days until NOAHCon 2022! 

Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 


A message from Beth to our NOAHCon Flamingos!

Hey everybody! Here’s a special message from Beth to our NOAHCon 2022 Preschoolers – the flamingos.

Check it out, then remind your grown-ups to visit www.albinism.org/NOAHCon/registration& register today!

Published: April 25, 2022


Hey NOAH Tweens & Teens!

Meet Kimberly, the Manatees & Alligators Program Lead for NOAHCon 2022. She has tons of fun activities planned for us this summer!!

Check out Kimberly’s message & register today:
www.albinism.org/NOAHCon

Published: April 25, 2022


Pre-Conference Workshops!

Did you know that there are two pre-conference workshops offered in addition to NOAHCon 2022 programming? Learn more about the Mothers’ Workshop and Low Vision Driving Workshop, and register today!

www.albinism.org/NOAHCon/pre-conference

Published: April 25, 2022


Get YOUR SPF Commemorative Finisher T-shirt!

Do you want a commemorative finisher t-shirt from NOAH’s 2nd Annual SPF 3K-5K-10K? Don’t wait – sign up today! 

Register by May 16th and select “Entry with Shirt” or “SPF Super Supporter with Shirt” to get your very own, stylish SPF race shirt!
www.albinism.org/spf

Published: April 25, 2022


Applications Due this Sunday!

Know a young leader with albinism? Remind them to finish up their application…there are 6 days left to apply for the Michael J. McGowan Leadership Scholarship Award!

Learn more & submit your application by this Sunday, May 1st:
www.albinism.org/leadership

Published: April 25, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: April 25, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Thursday: Teen Connections

April 28th at 8:00pm ET // 5:00pm PT

Teens, you’re up next! Join us this Thursday for social time with your PWA pals. 

New to the group? There’s still time to sign up!

​​​​​​​http://​​​​​​​www.albinism.org/NOAH-Connections/#teens

Published: April 25, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: April 25, 2022

Wednesday, May 4th:
NOAH Connections: Young Adults
Thursday, May 5th:
NOAH Connections: Adults
Thursday, May 12th:
NOAH Connections: Teens
Tuesday, May 17th:
NOAH Connections: Aging with Albinism
Wednesday, May 18th:
NOAH Connections: Young Adults
Thursday, May 19th:
NOAH Connections: Adults
Thursday, June 2nd:
NOAH Workshops: Parents, Grandparents, and Caregivers

T-minus 87 days until NOAHCon 2022! 

Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 

Spiffy Runs to Orlando!

Our favorite fundraising friend, Spiffy, is trying to get to the NOAH Conference in Orlando…but he needs YOUR help to make it in time!

Check out Spiffy’s message and create YOUR fundraising page today!
www.albinism.org/fundraisers

Published: April 18, 2022


Sign Up Today!

Parents, Grandparents, & Caregivers of young children with albinism – join Sheila Adamo on Thursday, June 2nd to join a community that will share and learn about adapting to your new albinism journey. 

Register by 5/31 to secure your spot!
www.albinism.org/workshops

Published: April 18, 2022


Two Weeks Left to Apply!

Know a young leader with albinism? Remind them to finish up their application…there are 2 weeks leftto apply for the Michael J. McGowan Leadership Scholarship Award!

Learn more & submit your application by May 1st:
www.albinism.org/leadership

Published: April 18, 2022


Happy National Volunteer Week!

Thank you to the countless volunteers who offer their time, energy, and talents to help NOAH further its mission of providing acceptance, support, and fellowship for PWAs. ​​​​​​​

Published: April 18, 2022


Looking to Share a Room at NOAHCon?


If you’re interested in sharing a room to make NOAHCon 2022 more affordable, email info@albinism.orgto be placed on the room share contact list! 

NOAH will facilitate introductions between individuals on the list (but is not providing roommate matching services).

Published: April 18, 2022


NOAH 2022 iPad Assistance Program

The 2022 NOAH iPad Assistance Program provides PWAs who do not have access to technology, the opportunity to receive an iPad. 

Learn more and apply today at www.albinism.org/ipad

Applications due Friday, April 22nd!

This program is made possible by the support of the Parker Hannifin Foundation.

Published: April 18, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: April 18, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: Aging with Albinism

April 19th at 5:00pm ET // 2:00pm PT

You’re invited to our next session of Aging with Albinism! 

Join June Waugh and friends this Tuesday, April 19th at 5pm ET // 2pm PT. 

www.albinism.org/NOAH-Connections/#aging

Published: April 18, 2022


Wednesday: Young Adult Connections

April 20th at 9:00pm ET // 6:00pm PT

Young adults with albinism, join us this Wednesday to discuss traveling as a person with low vision. Do you have any tips and tricks to share? 

www.albinism.org/NOAH-Connections/#young-adults

Published: April 18, 2022


Thursday: Adult Connections

April 21st at 9:00pm ET // 6:00pm PT

Adults, you’re up next! Join us this Thursday at 9pm ET // 6pm PT to connect and chat with fellow PWAs.  

www.albinism.org/NOAH-Connections/#adults

Published: April 18, 2022


Sunday: BIPOC Connections

April 24th at 4:30pm ET // 1:30pm PT

Calling all BIPOC PWAs! Join us as we gather socially and share ideas for future programming.  

Torey Alford hosts our next session of BIPOC NOAH Connections this Sunday, April 24th at 4:30pm ET // 1:30pm PT.  

New to the group? Sign up today!
www.albinism.org/NOAH-Connections/#bipoc

Published: April 18, 2022


Sunday: LGBTQ+ and Allies Connections

April 24th at 8:00pm ET // 5:00pm PT

You’re Invited! 

Join us for our next session of LGBTQ+ and Allies NOAH Connections on Sunday, April 24th at 8pm ET // 5pm PT.

New to the group? We can’t wait to meet you! 
text LGBTQ+ to (417)473-2310 or visit www.albinism.org/NOAH-Connections/#lgbtq to sign up now!

Published: April 18, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: April 18 2022

Thursday, April 28th:
NOAH Connections: Teens
Wednesday, May 4th:
NOAH Connections: Young Adults
Thursday, May 5th:
NOAH Connections: Adults
Thursday, June 2nd:
NOAH Workshops: Parents, Grandparents, and Caregivers

T-minus 94 days until NOAHCon 2022! 

Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 

You’re Invited to the 2nd Annual SPF 3K-5K-10K!

We just got a letter from Spiffy, our favorite fundraising friend! Check out what he has to say:

“Dear Friend,

You’re invited to NOAH’s 2nd Annual SPF 3K-5K-10K! You can run, bike, hike, or do any activity you’d like.

It’s soooo easy to make a difference. Make a fundraising page today!

Love, Spiffy”

Want to join Spiffy for NOAH’s 2nd Annual SPF 3K-5K-10K? Sign up today!
www.albinism.org/spf

Published: April 11, 2022


NOAHCon Keynote Address

NOAH is thrilled to share that NOAHCon 2022 will feature a Keynote Address by Dr. Niya Pickett Miller,  “The Magic of Your story” Using Narratives to Empower Albinism Identity.

Learn more and register for NOAHCon 2022 today!
www.albinism.org/NOAHCon

Published: April 11, 2022


NOAH Research Program Spotlight!

Join us in congratulating Principal Investigator Carol Ann Mason, PhD, who is an Established Researcher Program Grant Awardee. 

Dr. Mason and team are conducting a study that “aims to reveal the causes of altered connections between the albino retina and the brain, which ultimately lead to poor stereo vision.”

Learn more about the NOAH Research Program and 2022 grant awardees: www.albinism.org/research

Support the NOAH Research Program: https://app.donorview.com/jWZ7Y

Published: April 11, 2022


Albinism InSight’s New Look!

Have you seen Albinism InSight‘s new look?! 

Don’t miss out on this fresh new design & great content for the whole family…subscribe to NOAH’s quarterly magazine today!
www.albinism.org/AI

Published: April 11, 2022


NOAH 2022 iPad Assistance Program

The 2022 NOAH iPad Assistance Program provides PWAs who do not have access to technology, the opportunity to receive an iPad. 

Learn more and apply today at www.albinism.org/ipad

Applications due Friday, April 22nd!


This program is made possible by the support of the Parker Hannifin Foundation.

Published: April 11, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: April 11, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Parenting without Pigment

April 13th at 9:00pm ET // 6:00pm PT

Calling All Parents Without Pigment!

Join Marleena Barber this Wednesday for a special session of Adults with Albinism: Parenting without Pigment to discuss tips and tricks for self-care this spring. 

New the group? There’s still time to join!
www.albinism.org/NOAH-Connections/#pwp

Published: April 11, 2022


Thursday: Teen Connections

April 14th at 8:00pm ET // 5:00pm PT

Teens, you’re up next! Join us this Thursday for our next session of teen connections to make new friends and catch up with old ones. 

New to the group? This is the perfect chance to join for your first time! 

www.albinism.org/NOAH-Connections/#teens

Published: April 11, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: April 11 2022

Tuesday, April 19th:
NOAH Connections: Aging with Albinism
Wednesday, April 20th:
NOAH Connections: Young Adults
Thursday, April 21st:
NOAH Connections: Adults
Sunday, April 24th:
NOAH Connections: LGBTQ+ & Allies
Thursday, April 28th:
NOAH Connections: Teens
Wednesday, May 4th:
NOAH Connections: Young Adults
Thursday, May 5th:
NOAH Connections: Adults

T-minus 101 days until NOAHCon 2022! 

Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 

Conference Volunteers Needed!

Many different talents are required to hold a NOAH conference, and YOU might have what it takes to be the perfect volunteer. Take a look at the NOAHCon 2022 volunteer opportunities and please consider helping to make NOAH magic!

www.albinism.org/NOAHCon/volunteer

Published: April 4, 2022


It’s So Easy to Make a Difference!

NOAH has been working hard to keep the albinism community connected, and we need YOUR help to continue our mission. Join us to celebrate you, your child, family member, friend, and our community! 

Check out the options and create a fundraising page today!
www.albinism.org/fundraisers

Published: April 4, 2022


NOAH Research Program

Join us in congratulating Principal Investigators, Carol Ann Mason, PhD; Benoit Arveiler, PharmD, PhD; and Leah Byrne, PhD who are recipients of NOAH’s Inaugural Research Program Grants.

Learn more about their research: www.albinism.org/research/#meet

Support the NOAH Research Program: https://app.donorview.com/jWZ7Y

Published: April 4, 2022


NOAH 2022 iPad Assistance Program

The 2022 NOAH iPad Assistance Program provides PWAs who do not have access to technology, the opportunity to receive an iPad. 

Learn more and apply today at www.albinism.org/ipad

Applications due Friday, April 22nd!

This program is made possible by the support of the Parker Hannifin Foundation.

Published: April 4, 2022


McGowan Leadership Scholarship – Where Are They Now?

Aidan O’Connor, 2020 scholarship recipient, graduated magna cum laude from Yale University last May and is currently working as a management consultant in Chicago!

Young leaders with albinism – check out Aidan’s full update and start YOUR application for the McGowan Leadership Scholarship today!!

www.albinism.org/leadership

Applications due May 1st!

Published: April 4, 2022


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: April 4, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Young Adult Connections

April 6th at 9:00pm ET // 6:00pm PT

Young adults, we can’t wait to “see” you this Wednesday! Grab your devices and get ready for social time with your PWA pals. 

New to the group? There’s still time to join! Sign up today at: www.albinism.org/NOAH-Connections/#young-adults

Published: April 4, 2022


Thursday: Adult Connections

April 7th at 9:00pm ET // 6:00pm PT

Adults with albinism, get ready to join us for our next session of NOAH Connections that’s just for you! Bring a drink or your favorite snack, and get ready to connect with fellow PWAs this Thursday at 9pm ET // 6pm PT.

www.albinism.org/NOAH-Connections/#adults

Published: April 4, 2022


Saturday: NOAH Kids Dance Party!

April 9th at 3:00pm ET // 12:00pm PT

NOAH kids of all ages, get ready to dance the day away with Casey Greer and Mackenzie Strong this Saturday at 3:00pm ET // 12:00pm PT! 

Have a song request? Send it to cgreer@albinism.org

www.albinism.org/NOAH-Connections/#dance-party

Published: April 4, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: April 4 2022

Wednesday, April 13th:
NOAH Connections: Parenting without Pigment 
Thursday, April 14th:
NOAH Connections: Teens
Tuesday, April 19th:
NOAH Connections: Aging with Albinism
Wednesday, April 20th:
NOAH Connections: Young Adults
Thursday, April 21st:
NOAH Connections: Adults
Sunday, April 24th:
NOAH Connections: LGBTQ+ & Allies
Thursday, April 28th:
NOAH Connections: Teens

Conference Funding!

In an effort to help attendees figure out conference funding, NOAH is delighted to offer two great resources! The Funding Sources Information Packet provides tips and suggestions for conference funding assistance, and NOAH’s Conference Personal Grant Program is an additional resource to help bridge the funding gap for those who, without assistance, would be unable to attend. 

www.albinism.org/NOAHCon/funding

Published: March 28, 2022


Calling All Parents Without Pigment!

Join Marleena Barber for a special session of Adults with Albinism: Parenting without Pigment on Wednesday, April 13th to discuss tips and tricks for self-care this spring. 

New the group? There’s still time to join!
www.albinism.org/NOAH-Connections/#pwp

Published: March 28, 2022


NOAH Kids Dance Party!

NOAH kids of all ages, get ready to dance the day away with Casey Greer and Mackenzie Strong on Saturday, April 9th at 3:00pm ET // 12:00pm PT! 

Have a song request? Send it to cgreer@albinism.org

www.albinism.org/NOAH-Connections/#dance-party

Published: March 28, 2022


Aging with Albinism!

Mark your calendars to join June Waugh and friends for the next session of Aging with Albinism.

We can’t wait to see YOU Tuesday, April 19th at 5pm ET // 2pm PT!

www.albinism.org/NOAH-Connections/#aging

Published: March 28, 2022


  • The #RAREis Scholarship Fund will award up to 53 scholarships of $5,000 each to college/vocational school students for the Fall 2022 semester. The scholarship application is open through April 22, 2022. Learn more at www.rarescholarship.org

  • Did you know? James and Andrea Moread co-authored a children’s book, titled “The Brightest Star,” which shares James’ story of growing up as an African-American boy with albinism, and how he was able to find acceptance and success throughout his life.
    https://www.barnesandnoble.com/w/the-brightest-star-andrea-morehead/1140870070

NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: March 28, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: Grandparent Connections

March 29th at 8:00pm ET // 5:00pm PT

Calling All Grandparents!

Join Sue Dalton to connect with fellow grandparents of PWAs this Tuesday at 8pm ET // 5pm PT. Grandparents of PWAs of all ages are invited to join our discussion on visual fatigue.

New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#grandparents

Published: March 28, 2022


Thursday: Teen Connections

March 31st at 8:00pm ET // 5:00pm PT

Teens, don’t miss out! Our next session of Teen NOAHConnections is this Thursday at 8pm ET // 5pm PT, and there’s still time to sign up if you’re new to the group.​​​​​​​

We can’t wait to see YOU there!
www.albinism.org/NOAH-Connections/#teens

Published: March 28, 2022


Thursday: Dads Connections

March 31st at 9:00pm ET // 6:00pm PT

Calling All Super Dads! 

Join Sam McClung and fellow dads of kids with albinism to connect and share in our unique experiences as fathers of PWAs.

There’s still time to sign up!
Visit www.albinism.org/NOAH-Connections/#dads or text DADS to (417)473-2310

Published: March 28, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: March 28, 2022

Wednesday, April 6th:
NOAH Connections: Young Adults
Thursday, April 7th:
NOAH Connections: Adults
Saturday, April 9th:
NOAH Connections: NOAH Kids Dance Party
Wednesday, April 13th:
NOAH Connections: Parenting without Pigment
Thursday, April 14th:
NOAH Connections: Teens
Tuesday, April 19th:
NOAH Connections: Aging with Albinism
Wednesday, April 20th:
NOAH Connections: Young Adults
Thursday, April 21st:
NOAH Connections: Adults
Sunday, April 24th:
NOAH Connections: LGBTQ+ & Allies
Thursday, April 28th:
NOAH Connections: Teens

NOAHCon Registration Now Open!

Your favorite fundraising friend, Spiffy, has an important message for you…

Registration is now open for NOAHCon 2022!

Will we see YOU in Orlando?!

www.albinism.org/NOAHCon

Published: March 21, 2022


NOAH Awards Inaugural Grants to Fund Albinism Research!

NOAH is pleased to announce the award of research grants totaling $125,000, presented to three institutions conducting albinism research. This funding is provided through the NOAH Research Program, established in 2021, to support and fund patient-centered research that leads to developing a greater understanding of albinism…

www.albinism.org/research/pr

Published: March 21, 2022


  • Have you seen rapper & advocate with albinism, RobenX‘s new video about overcoming bullying and his journey to becoming a rapper?CW: brief visual depiction & description of violence/bullying 
    https://www.instagram.com/reel/Ca0TgLUJyar/?utm_source=ig_web_copy_link

  • NOAH community member, Mercy, is a 5th grade student with albinism who had the unique experience of learning English as a second language as a young child. Mercy’s mom shared her story in a recent blog post featured on Paths to Literacy:https://www.pathstoliteracy.org/blog/mercys-path-literacy?

  • Writer, actor, and comedian with albinism, Dennis Hurley, has a big wish for NOAHCon2022…that anyone who wants to go, can go!! (We have this wish too, Dennis!) Check out his video: https://vimeo.com/243556950​​​​​​​

NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: March 21, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Young Adult Connections

March 23rd at 9:00pm ET // 6:00pm PT

Young adults with albinism, you’re up next! Join us on Wednesday for our next session just for you. 

New to the group? There’s still time to sign up!

www.albinism.org/NOAH-Connections/#young-adults​​​​​​​

Published: March 21, 2022


Thursday: Adult Connections

March 24th at 9:00pm ET // 6:00pm PT

Adults, we can’t wait to see YOU! Join us this Thursday at 9pm ET // 6pm PT to connect and chat with fellow PWAs.

www.albinism.org/NOAH-Connections/#adults​​​​​​​

Published: March 21, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: March 21, 2022

Tuesday, March 29th:
NOAH Connections: Grandparent Connections
Thursday, March 31st:
NOAH Connections: Teens
NOAH Connections: Dads
Wednesday, April 6th:
NOAH Connections: Young Adults
Thursday, April 7th:
NOAH Connections: Adults
Wednesday, April 13th:
NOAH Connections: Parenting without Pigment
Thursday, April 14th:
NOAH Connections: Teens
Wednesday, April 20th:
NOAH Connections: Young Adults
Thursday, April 21st:
NOAH Connections: Adults
Sunday, April 24th:
NOAH Connections: LGBTQ+ & Allies

NOAHCon Site Visit!

Did you know that our Conference Core Team recently visited the beautiful conference hotel in Orlando, FL to prepare for NOAHCon2022?

Stay tuned to meet the team, learn about conference programming, and more!

www.albinism.org/NOAHCon

Published: March 14, 2022


Last Chance – Get Your Disney Tickets Before Prices Increase!

NOAH is thrilled to share that Walt Disney World will provide exclusive ticket discounts to NOAHCon 2022 attendees that are not available at the Disney Ticket Windows. 

Purchase your tickets by TOMORROW (3/15) at 3pm ET to lock in extra-discounted pricing! This is the lowest ticket prices will go!​​​​​​​
www.albinism.org/NOAHCon/#disney-tix

Published: March 14, 2022


We Want to Hear From YOU!

Since our founding in 1982, NOAH has served the albinism community by providing information and support.  As our 40th anniversary approaches, we have engaged The BenderStone Group to help the Board of Directors and Leadership team frame critical choices about our strategic direction.  An important part of our this process is incorporating feedback and input from those whose lives we touch.

We invite you to participate in a survey to help us understand how YOU perceive, value, and engage with us.

Thank you for taking a few minutes to share your confidential insights and ideas to help NOAH set a direction for the future. 

Take the survey:

https://bit.ly/35we8fT

Published: March 14, 2022


7 Weeks Left to Apply!

Know a young leader with albinism? Remind them to start their application…there are just under 7 weeks left to apply for the Michael J. McGowan Leadership Scholarship Award!

Learn more & get that application started today at:
www.albinism.org/leadership

Published: March 14, 2022


Call Recording Available!

Are you planning to visit Universal Studios while in Orlando for NOAHCon 2022, but missed the tips & tricks shared on our recent NOAH Connections call?

Check out the call recording & other resources shared by call hosts Andrew & Nick at: www.albinism.org/NOAHCon/#park-tips

Published: March 14, 2022


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: March 14, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: Aging with Albinism

March 15th at 5:00pm ET // 2:00pm PT

Get ready to join June Waugh and friends for our next session of Aging with Albinism, What Happens After Cataract Surgery? TOMORROW at 5pm ET // 2pm PT!

New to the group? Sign up today!
www.albinism.org/NOAH-Connections/#aging

Published: March 14, 2022


Thursday: Parent Connections

March 17th at 7:00pm ET // 4:00pm PT

Parents, you’re up next!

Join Laicee Burkhart and fellow parents of kids with albinism for a social session of Parent Connections, this Thursday at 7pm ET // 4pm PT.

New to Parent Connections? Sign up today!
www.albinism.org/NOAH-Connections/#parents

Published: March 14, 2022


Thursday: Teen Connections

March 17th at 8:00pm ET // 5:00pm PT

Teens, this one’s for YOU! Join us Thursday at 8pm ET // 5pm PT to connect with fellow teens with albinism!

New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#teens

Published: March 14, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: March 14, 2022

Wednesday, March 23rd:
NOAH Connections: Young Adults
Thursday, March 24th:
NOAH Connections: Adults
Tuesday, March 29th:
NOAH Connections: Grandparent Connections
Thursday, March 31st:
NOAH Connections: Teens
NOAH Connections: Dads
Wednesday, April 6th:
NOAH Connections: Young Adults
Thursday, April 7th:
NOAH Connections: Adults
Thursday, April 14th:
NOAH Connections: Teens

Albinism InSight is getting a new look!

Check out NOAH’s quarterly magazine through the years in our recent video, and get ready for the big reveal of its redesign, just in time for the Spring 2022 issue.

Don’t miss out – subscribe today!
www.albinism.org/AI

Published: March 7, 2022


Where are they now?

2014 McGowan Leadership Scholarship recipient, Arielle Lewis, is in law school, and is an intern at the Health Law Partnership Legal Services Clinic & is an incoming intern at the Georgia Department of Law’s Medicaid Fraud Control Unit. 

Young leaders with albinism – check out Arielle’s full update and start YOUR application for the McGowan Leadership Scholarship today!!

www.albinism.org/leadership

Published: March 7, 2022


Parents, Grandparents, and Caregivers…oh my!

Did you know that there are 3 NOAH Connections calls for parents, grandparents, and caregivers coming up later this month?!

Check out our upcoming NOAH Connections offerings & sign up today!
www.albinism.org/NOAH-Connections/#p-g-c

Published: March 7, 2022


We Want to Hear From YOU!

Since our founding in 1982, NOAH has served the albinism community by providing information and support.  As our 40th anniversary approaches, we have engaged The BenderStone Group to help the Board of Directors and Leadership team frame critical choices about our strategic direction.  An important part of our this process is incorporating feedback and input from those whose lives we touch.  

We invite you to participate in a survey to help us understand how YOU perceive, value, and engage with us.

Thank you for taking a few minutes to share your confidential insights and ideas to help NOAH set a direction for the future. 

Take the survey: https://bit.ly/35we8fT

Published: March 7, 2022


Calling All Siblings of People with Albinism!

In an attempt to get to know our population better and to meet the needs of our NOAH family, we would like to invite siblings of all ages to share their experiences, ideas and their unique point of view as someone growing up with albinism in their family. The survey is anonymous and can be used for children as well as adult siblings. Feel free to expand as much as you like. The results of this survey will be used to help direct programming as well as used within the NOAH Workshops.

Take the survey today! 

Published: March 7, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: March 7, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


TODAY: Parents of Newly Diagnosed Children Workshop

March 7th at 8:30pm ET // 5:30pm PT

Registered attendees – join Sheila Adamo TONIGHT at 8:30pm ET // 5:30pm PT to begin building a community of fellow parents that understand and support each other in adapting to parenting a child with albinism.

Learn more about NOAH Workshops: www.albinism.org/workshops

Published: March 7, 2022


Thursday: Young Adult Connections

March 9th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Get ready to join us this Wednesday at 9pm ET // 6pm PT for friendship & fun with NOAH friends!

New to NOAH Connections? Now is the perfect time to join!

www.albinism.org/NOAH-Connections/#young-adults

Published: March 7, 2022


Thursday: Adult Connections

March 10th at 9:00pm ET // 6:00pm PT

Adults with albinism – are you looking to reconnect with PWA pals or meet some new friends with albinism? We have the perfect group for you! 

Join us for Adult Connections this Thursday at 9pm ET // 6pm PT. 

www.albinism.org/NOAH-Connections/#adults

Published: March 7, 2022


Saturday: Kids’ PWA Book Club

March 12th at 3:00pm ET // 12:00pm PT

Book Club Members:

Courtney & Alison can’t wait to see you for our final book discussion this Saturday at 3pm ET // 12pm PT! Please finish reading “Roll With It” for this meeting.

www.albinism.org/NOAH-Connections/#kids-book-club

Published: March 7, 2022


Sunday: BIPOC Connections

March 13th at 4:30pm ET // 1:30pm PT

BIPOC adults with albinism, join Mashall Zaheer for our next session of BIPOC Connections this Sunday at 4:30pm ET.

​​​​​​​New to the group? Sign up today for info for this call, and you’ll be invited to future gatherings too!

www.albinism.org/NOAH-Connections/#bipoc

Published: March 7, 2022


Sunday: LGBTQ+ & Allies Connections

March 13th at 8:00pm ET // 5:00pm PT

LGBTQ+ PWAs & Allies, you’re invited to our next session of NOAH Connections just for you! 

Join us this Sunday to reconnect with old friends, and make new ones!

New to the group? There’s still time to sign up:
www.albinism.org/NOAH-Connections/#lgbtq

Published: March 7, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: March 7, 2022

Tuesday, March 15th:
NOAH Connections: Aging with Albinism
Thursday, March 17th:
NOAH Connections: Parents
NOAH Connections: Teens​​​​​​​
Wednesday, March 23rd:
NOAH Connections: Young Adults
Thursday, March 24th:
NOAH Connections: Adults
Tuesday, March 29th:
NOAH Connections: Grandparent Connections
Thursday, March 31st:
NOAH Connections: Teens
NOAH Connections: Dads

EXTRA! EXTRA! Breaking News!

NOAH is thrilled to announce that Walt Disney World will provide exclusive ticket discounts to NOAHCon 2022 attendees that are not available at the Disney Ticket Windows. 

Purchase your tickets by March 15th to lock in extra-discounted pricing!
www.albinism.org/NOAHCon/#disney-tix

Published: February 28, 2022


Why do teens love the NOAH Connections Teen calls?

For so many reasons! (Hear about a few reasons in our recent video)

Teens, don’t miss out! Sign up to join us for our next session of Teen Connections, this Thursday at 8pm ET // 5pm PT.

www.albinism.org/NOAH-Connections/#teens

Published: February 28, 2022


We Want to Hear From YOU!

Since our founding in 1982, NOAH has served the albinism community by providing information and support.  As our 40th anniversary approaches, we have engaged The BenderStone Group to help the Board of Directors and Leadership team frame critical choices about the our strategic direction.  An important part of our this process is incorporating feedback and input from those whose lives we touch.  

We invite you to participate in a survey to help us understand how YOU perceive, value, and engage with us.

Thank you for taking a few minutes to share your confidential insights and ideas to help NOAH set a direction for the future. 

Take the survey:
https://bit.ly/35we8fT

Published: February 28, 2022


Calling All Siblings of People with Albinism!

In an attempt to get to know our population better and to meet the needs of our NOAH family, we would like to invite siblings of all ages to share their experiences, ideas and their unique point of view as someone growing up with albinism in their family. The survey is anonymous and can be used for children as well as adult siblings. Feel free to expand as much as you like. The results of this survey will be used to help direct programming as well as used within the NOAH Workshops.

Take the survey today! 

Published: February 28, 2022


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: February 28, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: PWA Book Club

March 2nd at 9:00pm ET // 6:00pm PT

Book club members – finish up reading “The English Patient” by Michael Ondaatje, and join us to discuss this Wednesday, March 2nd. We can’t wait to “see” you!

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: February 28, 2022


Thursday: Teen Connections

March 3rd at 8:00pm ET // 5:00pm PT

Teens with albinism, get ready for game night! Join us for a fun night of Jackbox Games with friends – make sure to have two devices ready (1 for zoom and one for Jackbox!). 

www.albinism.org/NOAH-Connections/#teens

Published: February 28, 2022


Saturday: Kids’ PWA Book Club

March 5th at 3:00pm ET // 12:00pm PT

Book Club Members:

Courtney & Alison can’t wait to see YOU for our next book discussion this Saturday at 3pm ET // 12pm PT! 

www.albinism.org/NOAH-Connections/#kids-book-club

Published: February 28, 2022


Sunday: Canadian Parent Connections

March 6th at 3:00pm ET // 12:00pm PT

Canadian Parents, you’re invited to our next session of NOAH Connections! 

Join Rebekah Zigby  to connect and chat with fellow parents of PWAs from Canada this Sunday, March 6th at 3pm ET // 12pm PT.

New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#canadian-parents

Published: February 28, 2022


Sunday: Universal Studios Theme Park Planning

March 6th at 4:00pm ET // 1:00pm PT

Are you planning to visit Universal Studios while in Florida for NOAHCon2022? 

Join Nick Smith & Andrew Sartorius this Sunday, March 6th as they share their personal experiences, tips, & tricks for planning a visit to this popular theme park.

www.albinism.org/NOAH-Connections/#universal

Published: February 28, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: February 28, 2022

Monday, March 7th:
NOAH Workshops: Parents of Newly Diagnosed Children
Wednesday, March 9th:
NOAH Connections: Young Adults
Thursday, March 10th:
NOAH Connections: Adults
Saturday, March 12th:
NOAH Connections: Middle Grade Kids Book Club
Sunday, March 13th:
NOAH Connections: BIPOC
NOAH Connections: LGBTQ+ & Allies
Tuesday, March 15th:
NOAH Connections: Aging with Albinism
Thursday, March 17th:
NOAH Connections: Teens
Saturday, March 19th:
NOAH Connections: Middle Grade Kids Book Club
Wednesday, March 23rd:
NOAH Connections: Young Adults
Thursday, March 24th:
NOAH Connections: Adults
Tuesday, March 29th:
NOAH Connections: Grandparent Connections

Happy Presidents’ Day!

Happy Presidents’ Day from NOAH! 

Published: February 21, 2022


Calling All Siblings of People with Albinism!

In an attempt to get to know our population better and to meet the needs of our NOAH family, we would like to invite siblings of all ages to share their experiences, ideas and their unique point of view as someone growing up with albinism in their family. The survey is anonymous and can be used for children as well as adult siblings. Feel free to expand as much as you like. The results of this survey will be used to help direct programming as well as used within the NOAH Workshops.

Take the survey today! 

Published: February 21, 2022


There’s Still Time to Sign Up!

Parents & caregivers, join Sheila Adamo for the Parents of Newly Diagnosed Children workshop March 7th at 8:30pm ET, to begin building a community of fellow parents that understand  and support each other in adapting to parenting a child with albinism. 

Register by March 5th! 
www.albinism.org/workshops

Published: February 21, 2022


BIPOC Connections

BIPOC adults with albinism, join Mashall Zaheer for our next session of BIPOC Connections, Sunday, March 13th at 4:30pm ET.

New to the group? Sign up today for info for this call, and you’ll be invited to future gatherings too!
www.albinism.org/NOAH-Connections/#bipoc

Published: February 21, 2022


Did You Know?

Did you know that the NOAHCon 2022 hotel offers 50% off self-parking for all guests staying in the NOAHCon attendee room block?!​​​​​​​

The NOAHCon room block is filling fast, so book your room today! www.albinism.org/NOAHCon

Published: February 21, 2022


Giving Tuesday Match!

We’ve heard from some community members that their Giving Tuesday donation to NOAH was matched at 10% by Facebook!

If you donated to NOAH through Facebook for Giving Tuesday, let us know on our recent post – did you receive a notification that your donation was matched?

Published: February 21, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: February 21, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: Parenting without Pigment

February 22nd at 9:00pm ET // 6:00pm PT

PWPs (parents without pigment), we can’t wait to see YOU this Tuesday at 9:00pm ET // 6:00pm PT for our next session of Parenting without Pigment! Join host Andrew S. to discuss travel. 

www.albinism.org/NOAH-Connections/#pwp

Published: February 21, 2022


Wednesday: Young Adult Connections

February 23rd at 9:00pm ET // 6:00pm PT

Young adults, we can’t wait to “see” you Wednesday for our next session of NOAH Connections just for you! Grab your computer and get ready for an evening of fun with your NOAH friends.

New to the group? There’s still time to join:
www.albinism.org/NOAH-Connections/#young-adults

Published: February 21, 2022


Thursday: Adult Connections

February 24th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our final Adult Connections call of February! Get ready to join us on Zoom this Thursday at 9pm ET // 6pm PT.

www.albinism.org/NOAH-Connections/#adults

Published: February 21, 2022


Saturday: Kids’ PWA Book Club

February 26th at 3:00pm ET // 12:00pm PT

Book Club Members:

Courtney & Alison can’t wait to see YOU for our next book discussion this Saturday at 3pm ET // 12pm PT! Finish reading Chapters 3-5 of “Roll with It” by Jamie Sumner, and get ready to discuss.

www.albinism.org/NOAH-Connections/#kids-book-club

Published: February 21, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: February 21, 2022

Wednesday, March 2nd:
NOAH Connections: PWA Book Club 
Thursday, March 3rd:
NOAH Connections: Teens
Saturday, March 5th:
NOAH Connections: Middle Grade Kids Book Club
Sunday, March 6th:
NOAH Connections: Canadian Parents
NOAH Connections: Universal Theme Park Planning
Monday, March 7th:
NOAH Workshops: Parents of Newly Diagnosed Children
Wednesday, March 9th:
NOAH Connections: Young Adults
Thursday, March 10th:
NOAH Connections: Adults
Saturday, March 12th:
NOAH Connections: Middle Grade Kids Book Club
Sunday, March 13th:
NOAH Connections: BIPOC
NOAH Connections: LGBTQ+ & Allies
Tuesday, March 15th:
NOAH Connections: Aging with Albinism

Happy Valentine’s Day!

Roses are red
Violets are blue
Our NOAH family appreciates YOU! 

Happy Valentine’s Day from NOAH! 

Published: February 14, 2022


Parenting without Pigment

PWPs (parents without pigment), we can’t wait to see you for our next get-together on Tuesday, February 22nd at 9:00pm ET // 6:00pm PT! 

Join host Andrew S. to discuss travel. 

www.albinism.org/NOAH-Connections/#pwp

Published: February 14, 2022


Get Ready to Read!

PWAs who love to read, now is the perfect time to join NOAH’s Book Club! We’ve just begun “The English Patient” by Michael Ondaatje and will meet to discuss March 2nd.

Sign up today!

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: February 14, 2022


Did You Know?

Did you know that the NOAHCon 2022 hotel has 4 onsite dining options? 

Citrus 28 is gourmet market and café featuring Starbucks coffee, freshly prepared light meals, gourmet bites and local favorites prepared daily by an expert culinary team.

The NOAHCon room block is filling fast, so book your room today! www.albinism.org/NOAHCon

Published: February 14, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: February 14, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: Aging with Albinism

February 15th at 5:00pm ET // 2:00pm PT

Cataract surgery can be a daunting prospect for those considering it, and a liberating experience for those who have already gone through it. Join us TOMORROW at 5pm ET to discuss! 

www.albinism.org/NOAH-Connections/#aging

Published: February 14, 2022


Thursday: Teen Connections

February 17th at 8:00pm ET // 5:00pm PT

Teens, we can’t wait to “see” you Thursday! 

New to the group? Sign up today for the info for this call, and you’ll get email reminders for future calls too! 

www.albinism.org/NOAH-Connections/#teens

Published: February 14, 2022


Saturday: Kids’ PWA Book Club

February 19th at 3:00pm ET // 12:00pm PT

Courtney & Alison can’t wait to see YOU for our first book discussion this Saturday! Make sure to read chapters 1 & 2 of “Roll with It” by Jamie Sumner before we meet this weekend. 

Missed the first meeting? No worries – read chapters 1 & 2, and get ready to join us this weekend!

www.albinism.org/NOAH-Connections/#kids-book-club

Published: February 14, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: February 14, 2022

Tuesday, February 22nd:
NOAH Connections: Parenting without Pigment
Wednesday, February 23rd:
NOAH Connections: Young Adults
Saturday, February 26th:
NOAH Connections: Middle Grade Kids Book Club
Wednesday, March 2nd:
NOAH Connections: PWA Book Club 
Thursday, March 3rd:
NOAH Connections: Teens
Saturday, March 5th:
NOAH Connections: Middle Grade Kids Book Club
Monday, March 7th:
NOAH Workshops: Parents of Newly Diagnosed Children
Wednesday, March 9th:
NOAH Connections: Young Adults
Thursday, March 10th:
NOAH Connections: Adults

Black History Month

“Diversity is not about how we differ. Diversity is about embracing one another’s uniqueness” – Ola Joseph

This Black History Month, we invite our community members to share their diverse experiences. Black PWAs – what does Black History Month mean to you? Let us know on our recent Facebook post!

Published: February 7, 2022


ONE Week Left to Submit!

Do you have an idea for a NOAHCon 2022 presentation that would benefit the albinism community? There’s still time to submit a proposal!​​​​​​​

NOAH welcomes professionals, vendors, and our community members to submit proposals. This is an open call, so help us spread the word! 

Submit by Feb. 14th at 5pm ET

www.albinism.org/NOAHCon/presentations

Published: February 7, 2022


2022 McGowan Leadership Scholarship Application Now Open!

The Michael J. McGowan Leadership Scholarship Award aims to empower young PWAs by annually recognizing one NOAH member (enrolled in an undergraduate program) who demonstrates outstanding leadership qualities. 

Do you know a young leader in the albinism community? Encourage them to apply by May 1st!

For more information, visit: www.albinism.org/leadership

Published: February 7, 2022


Shop for NOAH!

Did you know, you can support NOAH while shopping for your sweetheart?! 

Check out NOAH Love heart mugs and other cute products on the NOAH Zazzle store, and grab a gift for your Valentine while supporting a great cause.

What are you waiting for? Start shopping!
www.zazzle.com/store/noahgear

Published: February 7, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: February 7, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: Career Corner

February 8th at 8:00pm ET // 5:00pm PT

Join us TOMORROW at 8pm ET for a NOAH Connections Career Corner Panel!  Panelists Rebecca Smith, Mayia Warren, Hafeez Shaka, & Jocelyn Leworthy will share info about their careers & answer questions about being a PWA in their fields.

Sign up today! www.albinism.org/NOAH-Connections/#career-corner

Published: February 7, 2022


Wednesday: Young Adult Connections

February 9th at 9:00pm ET // 6:00pm PT

Young adults, we can’t wait to “see” you this Wednesday. Don’t miss out on social time with your friends with albinism – mark YA Connections on your calendar now!

New to the group? Join today at: www.albinism.org/NOAH-Connections/#young-adults

Published: February 7, 2022


Thursday: Adult Connections

February 10th at 9:00pm ET // 6:00pm PT

Adults with albinism, grab your phone, computer, or tablet and hop on Zoom this Thursday at 9pm ET // 6pm PT for camaraderie & connection with your PWA pals!

www.albinism.org/NOAH-Connections/#adults

Published: February 7, 2022


Saturday: Kids’ PWA Book Club

February 12th at 3:00pm ET // 12:00pm PT

Middle grade kids with albinism, get ready to read! 

Alison is so excited for our new kids’ book club, and we hope you are too! Check out what book we’ll be reading, and get ready to join our first book club meeting this  Saturday!

Sign up today:
www.albinism.org/NOAH-Connections/#kids-book-club

Published: February 7, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: February 7, 2022

Tuesday, February 15th:
NOAH Connections: Aging with Albinism
Thursday, February 17th:
NOAH Connections: Teens
Saturday, February 19th:
NOAH Connections: Kids’ PWA Book Club
Tuesday, February 22nd:
NOAH Connections: Parenting without Pigment
Wednesday, February 23rd:
NOAH Connections: Young Adults
Wednesday, March 2nd:
NOAH Connections: PWA Book Club 
Monday, March 7th:
NOAH Workshops: Parents of Newly Diagnosed Children

Deadline Extended!

Do you have an idea for a NOAHCon 2022 presentation that would benefit the albinism community? There’s still time to submit a proposal!​​​​​​​

NOAH welcomes professionals, vendors, and our community members to submit proposals. This is an open call, so help us spread the word! 

Submit by Feb. 14th at 5pm ET

www.albinism.org/NOAHCon/presentations

Published: January 31, 2022


2022 McGowan Leadership Scholarship Application Now Open!

The Michael J. McGowan Leadership Scholarship Award aims to empower young PWAs by annually recognizing one NOAH member (enrolled in an undergraduate program) who demonstrates outstanding leadership qualities. 

Do you know a young leader in the albinism community? Encourage them to apply by May 1st!

For more information, visit: www.albinism.org/leadership

Published: January 31, 2022


Middle Grade Kids’ Book Club!

Middle grade kids with albinism, get ready to read! 

Alison is so excited for our new kids’ book club, and we hope you are too! Check out what book we’ll be reading, and get ready to join our first book club meeting Saturday, February 12th at 3pm ET.

Sign up today:
www.albinism.org/NOAH-Connections/#kids-book-club

Published: January 31, 2022


Parents of Newly Diagnosed Children Workshop!

Parents & caregivers, join Sheila Adamo for the Parents of Newly Diagnosed Children workshop March 7th at 8:30pm ET, to begin building a community of fellow parents that understand  and support each other in adapting to parenting a child with albinism. 

Register by March 5th! 
www.albinism.org/workshops

Published: January 31, 2022


Did You Know?

Did You Know that the #NOAHCon2022 hotel has a fitness center with cardio machines, weights, and other workout equipment? 

Rooms are filling up fast – book your room today at: www.albinism.org/NOAHCon

Published: January 31, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: January 31, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: PWA Book Club

February 2nd at 9:00pm ET // 6:00pm PT

Book Club members, finish up reading “Night” by Elie Wiesel, and join us to discuss this Wednesday, February 2nd. 

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: January 31, 2022


Thursday: Teen Connections

February 3rd at 8:00pm ET // 5:00pm PT

Teens with albinism, we can’t wait to “see” you this Thursday for our next session of NOAH Connections.​​​​​​​

New to the group? Join today!
www.albinism.org/NOAH-Connections/#teens

Published: January 31, 2022


Sunday: BIPOC Connections

February 6th at 4:00pm ET // 1:00pm PT

BIPOC adults with albinism, get ready to join Dale Hamilton for our next session of BIPOC Connections, this Sunday, February 6th at 4pm ET.

New to the group? Sign up today for info for this call, and you’ll be invited to future gatherings too!
www.albinism.org/NOAH-Connections/#bipoc

Published: January 31, 2022


Sunday: LGBTQ+ & Allies Connections

February 6th at 8:00pm ET // 5:00pm PT

LGBTQ+ PWAs and Allies, we can’t wait to see YOU  this Sunday, February 6th at 8pm ET // 5pm PT on Zoom!

Feel free to join with audio only, if you prefer.

New to the group? Sign up today for info on joining this call, and you’ll be invited to future gatherings too!
www.albinism.org/NOAH-Connections/#lgbtq

Published: January 31, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 31, 2022

Tuesday, February 8th:
NOAH Connections: Career Corner
Wednesday, February 9th:
NOAH Connections: Young Adults
Thursday, February 10th:
NOAH Connections: Adults
Saturday, February 12th:
NOAH Connections: Kids’ PWA Book Club
Tuesday, February 15th:
NOAH Connections: Aging with Albinism
Thursday, February 17th:
NOAH Connections: Teens
Saturday, February 19th:
NOAH Connections: Kids’ PWA Book Club
Wednesday, February 23rd:
NOAH Connections: Young Adults

Parent Liaison Openings

NOAH Parent Liaisons guide parents of newly diagnosed children with albinism through the many resources NOAH has to offer and provide the opportunity to speak directly to a parent of a child with albinism who truly understands. If you are interested in learning more and sharing your experiences as a parent of a child with albinism, please complete the NOAH Parent Liaison Volunteer Interest Form to begin the process.

To be considered for limited Parent Liaison openings in the next training cycle, complete the interest form by February 1st.

https://app.donorview.com/ljy6V

Published: January 24, 2022


Book Your Room Today!

Rooms are still available in the NOAHCon 2022 conference attendee room block. ​​Book your room now to secure special, discounted rates just for the NOAH community.

www.albinism.org/NOAHCon

Published: January 24, 2022


PWA Book Club!

PWAs who love to read, you’re invited to join NOAH’s Book Club! Read “Night” by Elie Wiesel, and join us to discuss on Wednesday, February 2nd. 

Sign up today! www.albinism.org/NOAH-Connections/#pwa-book-club

Published: January 24, 2022


Calling All Middle Grade Kids with Albinism!

You’re invited to join the new NOAH Kids’ Book Club! 

Fill out the book club survey so we can plan for our meeting times, and stay tuned to find out the first book we’ll be reading together! 

https://forms.gle/7fo45YbArroGTStp6

Published: January 24, 2022


Inquire to Inspire!

Did you see Kathi’s most recent i2i? Check it out and join in the conversation on our recent Facebook post:

Hey everyone! With the wintery weather, I’m betting we’re all doing a lot of binge watching. Relaxing in front of the tv this weekend led me to inquire about how my PWA pals access their favorite shows. Inspire me with how you like to watch your weekly favorites. Do you use devices or descriptive audio on the tv or watch on a hand-held device? ​​​​​​​

Published: January 24, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: January 24, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Young Adult Connections

January 26th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Grab your computer, tablet, or phone and get ready to join us on Zoom.

New to the group? There’s still time to sign up:​​​​​​​

www.albinism.org/NOAH-Connections/#young-adults

Published: January 24, 2022


Thursday: Adult Connections

January 27th at 9:00pm ET // 6:00pm PT

Adult PWAs, join us this Thursday for our next session of Young Adult Connections! Will we “see” you there?

www.albinism.org/NOAH-Connections/#adults​​​​​​​

Published: January 24, 2022


Sunday: Walt Disney World Theme Park Planning

January 30th at 4:00pm ET // 1:00pm PT

Planning to come to NOAHCon2022 and want to visit Walt Disney World Theme Parks during your trip? 

Join Nick Smith, Sunday, January 30th at 4pm ET to share tips, tricks, and planning ideas!

www.albinism.org/NOAH-Connections/#disney

Published: January 24, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 24, 2022

Wednesday, February 2nd:
NOAH Connections: PWA Book Club
Thursday, February 3rd:
NOAH Connections: Teens
Sunday, February 6th:
NOAH Connections: BIPOC
NOAH Connections: LGBTQ+ and Allies
Tuesday, February 8th:
NOAH Connections: Career Corner
Wednesday, February 9th:
NOAH Connections: Young Adults
Thursday, February 10th:
NOAH Connections: Adults
Tuesday, February 15th:
NOAH Connections: Aging with Albinism
Thursday, February 17th:
NOAH Connections: Teens
Wednesday, February 23rd:
NOAH Connections: Young Adults

Martin Luther King Jr. Day

In observance of Martin Luther King Jr. Day, we share this interview with Rev. Jesse Douglas Sr., an African American PWA who was a colleague and personal friend of Rev. King.

https://www.youtube.com/watch?v=M8YLSeg9LmA

Published: January 17, 2022


Call for Proposals!

Community Members:

Do you have a presentation in mind you’d like to give at NOAHCon? Would you like to provide information, share your skills or hobbies, or provide knowledge to the NOAH community on a specific topic? 

NOAH would love to hear your ideas! 

Click here to submit a Community Session Presentation Proposal

Deadline: Tuesday February 1, 2022 at 5pm ET

Published: January 17, 2022


Professionals:

Do you have information to share with members of the albinism community? Would you like the opportunity to provide the NOAH community with knowledge and/or resources that are relevant to people with albinism and their loved ones?​​​​​​​

NOAH welcomes your proposal for session or poster presentation.

Click here to submit a (Scientific) Session or Poster Presentation Proposal.

Deadline: Tuesday February 1, 2022 at 5pm ET

Published: January 17, 2022


Deadline Extended!

Submitting an article is a great way to share your knowledge and experience with the albinism community, and there’s still time to contribute to the Spring Issue of Albinism InSight! 

Deadline extended – submissions due Monday, January 24th.

More info: www.albinism.org/AI/call-for-content

Published: January 17, 2022


Parent Liaison Openings

NOAH Parent Liaisons guide parents of newly diagnosed children with albinism through the many resources NOAH has to offer and provide the opportunity to speak directly to a parent of a child with albinism who truly understands.

If you are interested in learning more and sharing your experiences as a parent of a child with albinism, please complete the NOAH Parent Liaison Volunteer Interest Form to begin the process. To be considered for limited Parent Liaison openings in the next training cycle, complete the interest form by February 1st.

https://app.donorview.com/ljy6V

Published: January 17, 2022


Calling All Middle Grade Kids with Albinism!

You’re invited to join the new NOAH Kids’ Book Club! 

Fill out the book club survey so we can plan for our meeting times, and stay tuned to find out the first book we’ll be reading together! 

https://forms.gle/7fo45YbArroGTStp6

Published: January 17, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: January 17, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: Aging with Albinism

January 18th at 5:00pm ET // 2:00pm PT

You’re invited to Aging with Albinism: Self-Disclosure, tomorrow at 5pm ET // 2pm PT. 

How do you decide how much to share about your life with Albinism – the positives and/or the negatives? Join us for a lively discussion!

www.albinism.org/NOAH-Connections/#aging

Published: January 17, 2022


Tuesday: Parenting without Pigment

January 18th at 9:00pm ET // 6:00pm PT

Calling All Parents without Pigment – NOAH Connections: Parenting without Pigment is back.

Join Kathi Garza on Tuesday for a fun game of Never Have I Ever, Parenting without Pigment edition!

New to the group? Sign up now:
www.albinism.org/NOAH-Connections/#pwp

Published: January 17, 2022


Thursday: Teen Connections

January 20th at 8:00pm ET // 5:00pm PT

NOAH teens, join us for our next teen connections call! 

New to the group? There’s still time to sign up!

www.albinism.org/NOAH-Connections/#teens

Published: January 17, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 17, 2022

Wednesday, January 26th:
NOAH Connections: Young Adults
Thursday, January 27th:
NOAH Connections: Adults
Sunday, January 30th:
NOAH Connections: Walt Disney World Theme Park Planning
Wednesday, February 2nd:
NOAH Connections: PWA Book Club
Thursday, February 3rd:
NOAH Connections: Teens
Sunday, February 6th:
NOAH Connections: BIPOC
NOAH Connections: LGBTQ+ and Allies
Tuesday, February 8th:
NOAH Connections: Career Corner
Wednesday, February 9th:
NOAH Connections: Young Adults
Thursday, February 10th:
NOAH Connections: Adults


Announcing…the NOAHCon2022 Theme!

Check out our recent conference theme announcement & the latest conference information at www.albinism.org/NOAHCon

Published: January 10, 2022


Conference Hotel Room Block is Now Open!

Orlando, here we come!!

​​​​The conference attendee room block is now open for NOAHCon2022! Book your room now to secure special, discounted rates just for the NOAH community.

www.albinism.org/NOAHCon

Published: January 10, 2022


NOAH Text Alerts

Have you signed up for NOAH texts? Let us know if our call reminders are reaching you! 

Not signed up yet but want a text reminder for your favorite NOAH Connections calls?

Sign up now! https://app.donorview.com/Wb7R7

Published: January 10, 2022


Make New Connections in the New Year!

Have you heard about our upcoming NOAH Connections calls? We hope you’ll join us for one of our many upcoming opportunities to connect including NOAH Connections calls for BIPOC, LBGTQ+ and Allies, Parenting without Pigment, and more!

Check out the full schedule at www.albinism.org/NOAH-Connections

Published: January 10, 2022



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: January 10, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


TONIGHT: Career Corner

January 10th at 8:00pm ET // 5:00pm PT

Join us TONIGHT at 8pm ET for a NOAH Connections Career Corner Panel!  Panelists Kathi Garza, Nick Smith, Claire Sterling, and Marshall Cohen will share information about their careers, and answer participant questions about being a PWA in their respective fields.

All are welcome, so spread the word, and sign up today!
www.albinism.org/NOAH-Connections/#career-corner

Published: January 10, 2022


Tuesday: NOAH Kids – Create an Empower Flower

January 11th at 8:00pm ET // 5:00pm PT

NOAH kids, join Casey & Marleena this Tuesday at 8pm ET // 5pm PT to create your very own “Empower Flower” of affirmations and motivations to start the New Year.

Sign up today!
www.albinism.org/NOAH-Connections/#empower

Published: January 10, 2022


Tuesday: Word of the Year!

January 11th at 9:00pm ET // 6:00pm PT

Are you looking for some extra motivation as you head into 2022?

Join Casey Greer and Marleena Barber this Tuesday for a guided session in choosing a “Word of the Year.” Your WOTY will represent what you want to be, feel, do, and bring into your life for the coming year. 

Open to adults and young adults with albinism!
Sign up now: www.albinism.org/NOAH-Connections/#word

Published: January 10, 2022


Wednesday: Young Adult Connections

January 12th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Join us Wednesday at 9pm ET // 6pm PT to connect with fellow young adult PWAs. 

www.albinism.org/NOAH-Connections/#young-adults

Published: January 10, 2022


Thursday: Adult Connections

January 13th at 9:00pm ET // 6:00pm PT

Adults with Albinism, join special guest host, NOAH Executive Director Karen Bly for our next session of Adult Connections, this Thursday at 9pm ET // 6pm PT.

New to the group? Sign up now!
www.albinism.org/NOAH-Connections/#adults

Published: January 10, 2022


Sunday: Your Mind Matters Workshop

January 15th at 4:00pm ET // 1:00pm PT

Teens & Parents, there’s still time to sign up!

Join Bianca Rivera MSW, LCSW & Ashley Ullyot MA, LMFT for Your Mind Matters – A Parent & Teen Guide on January 15th.  This workshop will empower parents and teens to develop an individualized plan that focuses on the unique stress that teens with albinism face in school. 

Register by Thursday, 1/13! 
www.albinism.org/workshops

Published: January 10, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 10, 2022

Tuesday, January 18th:
NOAH Connections: Parenting without Pigment
Thursday, January 20th:
NOAH Connections: Teens
Wednesday, January 26th:
NOAH Connections: Young Adults
Thursday, January 27th:
NOAH Connections: Adults
Thursday, February 3rd:
NOAH Connections: Teens
Sunday, February 6th:
NOAH Connections: BIPOC
NOAH Connections: LGBTQ+ and Allies


Conference Hotel Room Block Opens Friday!

With NOAHCon2022 just over 6 months away, we are thrilled to announce that the hotel room block, with special pricing for conference attendees, will open this Friday, January 7th. Stay tuned for more details…

www.albinism.org/NOAHCon

Published: January 3, 2022


NOAH Kids: Create an Empower Flower!

NOAH kids, join Casey & Marleena next Tuesday (1/11) at 8pm ET // 5pm PT to create your very own “Empower Flower” of affirmations and motivations to start the New Year.

Sign up today!
www.albinism.org/NOAH-Connections/#empower

Published: January 3, 2022


Adult PWAs: You’re Invited to Word of the Year!

Are you looking for some extra motivation as you head into 2022?

Join Casey Greer and Marleena Barber on Tuesday, January 11th for a guided session in choosing a “Word of the Year.” Your WOTY will represent what you want to be, feel, do, and bring into your life for the coming year. 

Open to adults and young adults with albinism!

Sign up now: www.albinism.org/NOAH-Connections/#word

Published: January 3, 2022


Thank YOU for Shopping for NOAH!

NOAH received over $600 from AmazonSmile purchases between September & December. Thank you, shoppers!

It’s so easy to support NOAH through AmazonSmile! Select NOAH as your designated charity today & Amazon will donate 0.5% from every purchase you make through AmazonSmile: 
https://smile.amazon.com/ch/23-2265173

Published: January 3, 2022


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: January 3, 2022

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Thursday: Teen Connections

January 6th at 8:00pm ET // 5:00pm PT

Teens, kick off the new year right and join us for our next session of Teen Connections, this Thursday at 8pm ET // 5pm PT. 

New to the group? The first call of the new year is the perfect time to join in for your first time!

Sign up today: www.albinism.org/NOAH-Connections/#teens

Published: January 3, 2022


Sunday: LGBTQ+ and Allies Connections

January 9th at 8:00pm ET // 5:00pm PT

YOU belong here! 

Join us for a social gathering open to all LGBTQ+ and allies with albinism this Sunday, January 9th at 8pm ET. Feel free to leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

www.albinism.org/NOAH-Connections/#lgbtq

Published: January 3, 2022


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 3, 2022

Monday, January 10th:
NOAH Connections: Career Corner
Tuesday, January 11th:
NOAH Connections: NOAH Kids: Create an Empower Flower
NOAH Connections: Word of the Year
Wednesday, January 12th:
NOAH Connections: Young Adults
Thursday, January 13th:
NOAH Connections: Adults
Saturday, January 15th:
NOAH Workshops: Teens & Parents
Thursday, January 20th:
NOAH Connections: Teens


Thank YOU for considering an end-of-year gift to NOAH!

“I’ve never felt more relatable and normal than I have with you guys.” – Chelsie (PWA and first time Adults with Albinism Weekend attendee)

With your donation, NOAH can continue to provide a space for the albinism community to meet at in-person events where attendees are able to enjoy a fun and relaxing time together with their NOAH friends and family. Thank you for considering an end-of-year gift to NOAH!

https://app.donorview.com/VX4R

Published: December 27, 2021


Activity Leaders Needed for New Year with NOAH!

We need YOUR help to start the new year right! If you’d be willing to lead a brief game or activity at New Year with NOAH on Gatherly, send us a message! Bonus points if you have an activity in mind.

www.albinism.org/NOAH-Connections/#new-year

Published: December 27, 2021


Your Mind Matters!

Teens & Parents, our next NOAH Workshop is just for YOU!

Join Bianca Rivera MSW, LCSW and Ashley Ullyot MA, LMFT on January 15th for Your Mind Matters – A Parent & Teen Guide.  This workshop will empower parents and teens to develop an individualized plan that focuses on the unique stress that teens with albinism face in school. 

Register by January 13th! 
www.albinism.org/workshops

Published: December 27, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: December 27, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Young Adult Connections

December 29th at 9:00pm ET // 6:00pm PT

Young adults – join us this Thursday at 9pm ET for some much-needed relaxation time with NOAH friends! 

Will we see your smiling face on zoom for our last Young Adult Connections call of 2021? 

www.albinism.org/NOAH-Connections/#young-adults

Published: December 27, 2021


Thursday: Adult Connections

December 30th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our final Adult Connections call of 2021, this Thursday at 9pm ET! We know the holidays can be stressful, and this is the perfect chance to relax and connect with your NOAH friends from the comfort of your couch.

www.albinism.org/NOAH-Connections/#adults

Published: December 27, 2021


Sunday: New Year with NOAH! on Gatherly

January 2nd at 7:00pm ET // 4:00pm PT

You’re Invited to New Year with NOAH! 

Join NOAH to start the year off right, Sunday, January 2nd at 7pm ET // 4pm PT on Gatherly. Show off your skills in games & activities, or just log on for some social time and relaxation with NOAH Friends!

RSVP now: www.albinism.org/NOAH-Connections/#new-year

Published: December 27, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 27, 2021

​​​​​​​Thursday, January 6th:
NOAH Connections: Teens
Sunday, January 9th:
NOAH Connections: LGBTQ+ & Allies
Monday, January 10th:
NOAH Connections: Career Corner
Wednesday, January 12th:
NOAH Connections: Young Adults
Thursday, January 13th:
NOAH Connections: Adults
Saturday, January 15th:
NOAH Workshops: Teens & Parents
Thursday, January 20th:
NOAH Connections: Teens

You’re Invited to New Year with NOAH!

Join NOAH to start the year off right, Sunday, January 2nd at 7pm ET // 4pm PT on Gatherly. Show off your skills in games & activities, or just log on for some social time and relaxation with NOAH Friends!

RSVP now: www.albinism.org/NOAH-Connections/#new-year

Published: December 20, 2021


Did You Know? NOAHCon2022

Did you know that the NOAHCon2022 hotel is connected by pedestrian skybridge to Disney Springs®, including more than 150 dining, shopping, and entertainment venues? 

Learn more about this summer’s conference hotel at: www.albinism.org/NOAHCon

*Room block opens January 2022!

Published: December 20, 2021


Announcing: Career Corner Panel!

Join us Monday, January 10th at 8pm ET for a NOAH Connections Career Corner Panel!  Panelists Kathi Garza, Nick Smith, Claire Sterling, and Marshall Cohen will share information about their careers, and answer participant questions about being a PWA in their respective fields. 

All are welcome, so spread the word, and sign up today! www.albinism.org/NOAH-Connections/#career-corner

Published: December 20, 2021


Travel Tips!

With holiday travel just around the corner, we invite you to share your best low-vision travel tips!

Check out the awesome tips shared or add your own on our recent Facebook Post.

Published: December 20, 2021


  • In 1977, Dr. Anne Corn wrote the children’s book, Monocular Mac, which shares the story of a young child who receives his first monocular telescope. She has generously shared her book with NOAH to pass on to families with young children: https://albinism.org/books/#monocular-mac
  • Student with Albinism Seeks School Project Survey ParticipantsHigh school freshman Noah M. is collecting demographic and behavioral data about people with albinism in the USA for a school project.  Adults with albinism are invited to complete the survey at:https://bit.ly/3FkuaXe 
    **Please note, NOAH is not affiliated with this school project.

NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: December 20, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Thursday: Teen Connections

December 23rd at 8:00pm ET // 5:00pm PT

Teens with albinism – we can’t wait to see YOU this Thursday! Get ready to join us on Zoom for our final Teen Connections call of 2021!

www.albinism.org/NOAH-Connections/#teens

Published: December 20, 2021


NOAH Connections Holiday Break

December 24th – 29th

NOAH Connections is taking a Holiday Break from December 24th – 29th. We look forward to seeing you at future sessions at the end of December, and in the new year!

While we’re away, check out our upcoming offerings at: www.albinism.org/NOAH-Connections

Published: December 20, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 20, 2021

Wednesday, December 29th:
NOAH Connections: Young Adults
Thursday, December 30th:
NOAH Connections: Adults
Sunday, January 2nd:
NOAH Connections: New Year with NOAH!​​​​​​​
Thursday, January 6th:
NOAH Connections: Teens
Sunday, January 9th:
NOAH Connections: LGBTQ+ & Allies
Monday, January 10th:
NOAH Connections: Career Corner
Wednesday, January 12th:
NOAH Connections: Young Adults
Thursday, January 13th:
NOAH Connections: Adults
Saturday, January 15th:
NOAH Workshops: Teens & Parents
Thursday, January 20th:
NOAH Connections: Teens


Looking for a way to help?

Joining a NOAH Connections Advisory Task Force is the perfect way to let your voice be heard! We are currently looking for members for the following task force groups:​​​​​​​

  • LBGTQ+
  • Young Adults
  • Parenting without Pigment 
  • BIPOC Adults 
  • Parents & Caregivers 
  • Adults with Albinism 
  • Grandparents 

Learn more or apply to join a NOAH Connections Task Force today at: www.albinism.org/NOAH-Connections/task-force

Published: December 13, 2021


Thank you, Facebook Fundraisers!

Thank you, Facebook Fundraisers!

Join us in thanking everyone who hosted a Facebook fundraiser to benefit NOAH in the month of November!

Creating a FB fundraiser for NOAH is so easy, and really makes a difference. Create your own fundraiser today: https://bit.ly/3pQHLyV

Published: December 13, 2021


Are you bothered by the flicker?

Many people with albinism say the flicker of some LED lights bothers them – especially in holiday displays. What is your experience?​​​​​​ 

Join in on the discussion on our recent Facebook post: https://bit.ly/3DRmkCQ

Published: December 13, 2021


Thank YOU for donating to NOAH’s Amazon Wish List!

Check out all of these awesome donations! Sending a special shoutout to our generous community members who donated items for New Parent Toolkits through our Amazon Wish List!

Looking for a way to support?
Check out our Wish List at https://amzn.to/3y4dKj3

Published: December 13, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: December 13 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: Aging with Albinism

December 14th at 5:00pm ET // 2:00pm PT

We can’t wait to see YOU for our next session of Aging with Albinism! Join June Waugh and friends on December 14th to discuss ways you’ve enhanced your mental health over the years. 

All ideas and experiences are welcome!
www.albinism.org/NOAH-Connections/#aging

Published: December 13, 2021


Wednesday: Young Adult Connections

December 15th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Join us this Wednesday for the perfect chance to relax and unwind with your NOAH friends during the busy holiday season!

www.albinism.org/NOAH-Connections/#young-adults

Published: December 13, 2021


Thursday: Adult Connections

December 16th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of NOAH Connections, this Thursday at 9pm ET // 6pm PT. 

New to NOAH Connections? There’s still time to sign up! 

www.albinism.org/NOAH-Connections/#adults

Published: December 13, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 13, 2021

Thursday, December 23rd:
NOAH Connections: Teens
NOAH Connections Holiday Break:
Friday, December 24th – Tuesday, December 28th
Wednesday, December 29th:
NOAH Connections: Young Adults
Thursday, December 30th:
NOAH Connections: Adults
Thursday, January 6th:
NOAH Connections: Teens
Sunday, January 9th:
NOAH Connections: LGBTQ+ & Allies
Wednesday, January 12th:
NOAH Connections: Young Adults

THANK YOU!

We are thrilled to share that we have earned the $4,000 NOAH Board of Directors match and EXCEEDED our GivingTuesday goal, thanks to the generosity of our community members! Thank you so much to all who have donated and shared our fundraiser.​​​​​​​

Published: December 6, 2021


Career Corner – Rebecca Smith​​​​​​​

Rebecca Smith is an educator who works with kids preschool through grade 12 with moderate/intensive disabilities & visual impairments! 

Check out her story (or submit info about YOUR job or career) at: www.albinism.org/career-corner

Published: December 6, 2021


Parent Liaison Spotlight!​​​​​​​

This week, we featured Parent Liaisons, Anne Contant & Regan Gentile as part of our Parent Liaison spotlight. Get to know Anne, Regan, and other Parent Liaisons at www.albinism.org/new-parent-program/PL

Published: December 6, 2021


Did You Know?

Did you know that the #NOAHCon2022 hotel has a float lagoon (lazy river) with beach-style entry & complimentary floats? 

Learn more about this summer’s conference at www.albinism.org/NOAHCon

*Room block opens January 2022!

Published: December 6, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: December 6 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Thursday: Teen Connections

December 9th at 8:00pm ET // 5:00pm PT

Teens, we look forward to seeing you again this week at our regularly scheduled time. Join us Thursday at  8:00pm ET // 5:00pm PT. We can’t wait to see you!

www.albinism.org/NOAH-Connections/#teens

Published: December 6, 2021


Thursday: LGBTQ+ and Allies

December 9th at 9:00pm ET // 6:00pm PT

PWAs who identify as LGBTQ+ and allies, mark your calendars for our next session of NOAH Connections, Thursday, December 9th at 9pm ET // 6pm PT. New to the group? Sign up now for the invite to this session, and future ones too!

www.albinism.org/NOAH-Connections/#lgbtq

Published: December 6, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 6, 2021

Tuesday, December 14th:
NOAH Connections: Aging with Albinism
Wednesday, December 15th:
NOAH Connections: Young Adults
Thursday, December 16th:
NOAH Connections: Adults
Thursday, December 23rd:
NOAH Connections: Teens
Wednesday, December 29th:
NOAH Connections: Young Adults
Thursday, December 30th:
NOAH Connections: Adults

TOMORROW – Giving Tuesday!

Thanks to the generosity of NOAH’s Board of Directors, NOAH can earn a guaranteed $4,000 in matching funds this Giving Tuesday with YOUR support. Additionally, beginning TOMORROW at 8:00am ET, gifts to NOAH made via Facebook will be eligible for the $8 million Facebook match until funds run out. Your support of NOAH goes even further this Giving Tuesday – no gift is too small! 

Get ready to give TOMORROW at 8am ET!!

Donate or share NOAH’s GivingTuesday Fundraiser: ​​​​​https://bit.ly/3ptMeHV

OR create your own fundraiser: https://bit.ly/31cuJmC

Published: November 29, 2021


NOAH is Thankful for YOU!​​​​​​​

This holiday season, NOAH is thankful for our Board of Directors, Parent Liaisons, community members, fundraisers, and volunteers! We are so grateful that YOU are part of our NOAH family!​​​​​​​

Published: November 29, 2021


Career Corner – Mayia Warren!​​​​​​​

Mayia Warren is an advocate & content creator with albinism! 

Check out her story (or submit info about YOUR job or career) at: www.albinism.org/career-corner

Published: November 29, 2021


Friday Favorites

This past Friday, we shared a special Black Friday edition of Jessica’s Friday Favorites…but we know the deals have been continuing all weekend. Check out the awesome products shared, and add your own suggestions to our recent Jessica’s Friday Favorites Post!

Let’s help make this gift-giving season easier for everyone.

Published: November 29, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: November 29 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Young Adult Connections

December 1st at 9:00pm ET // 6:00pm PT

Young adults – you’re up next! Grab your computer, tablet, or phone, and get ready to join us for our next session of NOAH Connections. This is the perfect chance to relax and unwind with friends during the busy holiday season.

www.albinism.org/NOAH-Connections/#young-adults

Published: November 29, 2021


Thursday: Teen Connections

December 2nd at 8:00pm ET // 5:00pm PT

Teens, we know you were busy with Thanksgiving last week, so we rescheduled our Teen Connections call to this Thursday! Log on at 8:00pm ET // 5:00pm PT to let us know how your Thanksgiving was, fill us in on your upcoming holiday plans, and more.

www.albinism.org/NOAH-Connections/#teens

Published: November 29, 2021


Thursday: Grandparenting a Child with Albinism Workshop

December 2nd at 8:30pm ET // 5:30pm PT

NOAH Grandparents – join Sheila Adamo this Thursday to explore some typical emotions and fears many grandparents experience and discuss strategies to help the family adjust and thrive. 

Register by November 30th! 
www.albinism.org/workshops

Published: November 29, 2021


Thursday: Adult Connections

December 2nd at 9:00pm ET // 6:00pm PT

Adults with albinism, join us this Thursday at 9pm ET // 6pm PT to connect and relax with your NOAH friends! 

New to the group? There’s still time to join!
www.albinism.org/NOAH-Connections/#adults

Published: November 29, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 29, 2021

Thursday, December 9th:
NOAH Connections: Teens
NOAH Connections: LGBTQ+ and Allies
Tuesday, December 14th:
NOAH Connections: Aging with Albinism
Wednesday, December 15th:
NOAH Connections: Young Adults
Thursday, December 16th:
NOAH Connections: Adults
Thursday, December 23rd:
NOAH Connections: Teens

Thanks for Coming to NOAH Friendsgiving!

We had a blast at NOAH Friendsgiving yesterday! 

Special shoutout to our wonderful game and activity leaders, and everyone who attended this holiday celebration with the albinism community.

Published: November 22, 2021


Career Corner​​​​​​​

Dr. Hafeez Shaka is a Board Certified Internist and Illinois-Licensed Physician with albinism! 

Check out his story (or submit info about YOUR job or career) at: www.albinism.org/career-corner​​​​​​​

Published: November 22, 2021


i2i – Inquire to Inspire!​​​​​​​

It’s time for Inquire to Inspire. Here comes Kathi with an i2i!

Thanksgiving is this week and my most favorite holiday. I’ve always loved being in the kitchen cooking with my mom, at least until we start getting bossy with one another.

Let’s talk kitchen hacks! What tricks do you use to help you get the job done, or what helped you learn how to handle the swords and fire in the kitchen?

Join the conversation on our recent Facebook Post!​​​​​​​

Published: November 22, 2021


Adoption Stories: Morrow Family

FROM CONGO TO CHINA: AN ADOPTEE & ADOPTIVE DAD SHARES HIS STORY

“My story begins in a small village in Eastern Congo. My mother passed away while giving birth to me. And per the customs I was born into, my tribe blamed me for her death. Tradition determined I should be buried with my mother…”

Check out the Morrow Family’s full story at www.albinism.org/adoption-stories or submit your story to info@albinism.org to share with the community!​​​​​​​

Published: November 22, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: November 22 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


TODAY: Canadian Parents Education Session

November 22nd at 8:15pm ET // 5:15pm PT

Calling all Canadian parents! Join Amanda Grant, TVI, for a session about the education system TONIGHT at 8:15pm ET // 5:15pm PT. This call will be focused on Ontario, but parents from all provinces are welcome to attend.

www.albinism.org/NOAH-Connections/#canadian-parents

Published: November 22, 2021


NOAH Connections Thanksgiving Break!

November 23rd – 30th

NOAH Connections is taking a Thanksgiving Break from November 23rd – 30th. We look forward to seeing you at future sessions in December!

While we’re away, check out our upcoming offerings at: www.albinism.org/NOAH-Connections

Published: November 22, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 22, 2021

Wednesday, December 1st:
NOAH Connections: Young Adults
Thursday, December 2nd:
NOAH Connections: Teens (rescheduled from Thanksgiving)
NOAH Workshops: Grandparents
NOAH Connections: Adults
Thursday, December 9th:
NOAH Connections: Teens
NOAH Connections: LGBTQ+ and Allies
Tuesday, December 14th:
NOAH Connections: Aging with Albinism
Wednesday, December 15th:
NOAH Connections: Young Adults
Thursday, December 16th:
NOAH Connections: Adults
Thursday, December 23rd:
NOAH Connections: Teens

Costume Contest Winners!

Congratulations to the winners of NOAH’s first-ever, virtual costume contest! 

#14 – Hayden M.
#18 – submitted by Jodi V.
#31 – Rachel E.
#66 – submitted by Tanily B.

Winners – please contact us with your mailing address so we can send you a NOAH prize pack!

Special shoutout to our honorable mention costume submission #21 – The Lee Family!

Published: November 15, 2021


Adoption Stories!​​​​​​​

In honor of National Adoption Awareness Month, we’ve been sharing stories from community members on social media and our website. 

Check out the adoption stories of NOAH families at www.albinism.org/adoption-stories, or submit your story to info@albinism.org to share with the community!

Published: November 15, 2021


Holiday Shopping Made Easy!​​​​​​​

The holiday season is just around the corner, and we have the perfect gift for the NOAH-lovers in your life.

Check out the NOAH gear store on Zazzle to complete holiday shopping for the whole family while supporting a great cause!

www.zazzle.com/noahgear

Published: November 15, 2021


Spotlight on Albinism InSight!

6 year old Madelyn shared information about albinism, how she sees, and the tools she uses, with her kindergarten class. 

Get your copy of AI now to read the full story! www.albinism.org/AI

Published: November 15, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: November 15 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: Stares, Smirks, and Shoutouts Workshop

November 16th at 8:00pm ET // 5:00pm PT

Registered attendees, we look forward to seeing you at our upcoming NOAH Workshop, Stares, Smirks, & Shout-outs, facilitated by Kelsey Thompson! We’ll discuss dealing with negative experiences in public & more.

Registration deadline extended! 

Want to join us but haven’t signed up yet? Register by midnight ET!

 www.albinism.org/workshops

Published: November 15, 2021


Wednesday: Young Adult Connections

November 17th ​​​​​​​at 9:00pm ET // 6:00pm PT

Game Night – 90s Trivia! 

Young adults, we can’t wait to see you this Wednesday at 9pm ET // 6pm PT for a 90’s Trivia & Game Night!! 

Who will be the 90’s trivia champion? Grab a friend and join us on zoom to find out!

www.albinism.org/NOAH-Connections/#young-adults

Published: November 15, 2021


Thursday: Practical Considerations for Early Literacy

November 18th ​​​​​​​at 8:00pm ET // 5:00pm PT

Parents, grandparents, & caregivers of PWAs ages 0-5, you won’t want to miss this informative session with Kathi Garza! 

All members of Parent or Grandparent Connections will get the invite, so join today:
www.albinism.org/NOAH-Connections/#p-g-c

Published: November 15, 2021


Thursday: Adult Connections

November 18th ​​​​​​​at 9:00pm ET // 6:00pm PT

Trivia night!

Adult PWAs, join us on Thursday, November 18th at 9pm ET // 6pm PT to test your knowledge with trivia on a variety of fun topics! 

Who will emerge the trivia champion? You’ll have to log on to find out…

www.albinism.org/NOAH-Connections/#adults

Published: November 15, 2021


Sunday: Kids’ Mindfulness Workshop

November 21st at 3:00pm ET // 12:00pm PT

Are YOU registered for the Kids’ Mindfulness workshop? 

NOAH kids & families, get ready to join Jocelyn this Sunday, November 21st to make a calming glitter jar and learn about mindfulness!

Register by November 19th
www.albinism.org/workshops

Published: November 15, 2021


Sunday: NOAH Friendsgiving on Gatherly!

November 21st at 7:00pm ET // 4:00pm PT

Friendsgiving doesn’t have to be fancy!

No need to look fabulous or cook a gourmet meal…come as you are to NOAH Friendsgiving on Gatherly this Sunday. Enjoy social time, or participate in your choice of games and activities, including a recipe swap with NOAH friends. Sweatpants & microwave meals are welcome.

RSVP today: www.albinism.org/NOAH-Connections/#friendsgiving

Published: November 15, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 15, 2021

Monday, November 22nd:
NOAH Connections: Canadian Parents
**NOAH Connections Thanksgiving Break ~ November 23 – November 30**
Wednesday, December 1st:
NOAH Connections: Young Adults
Thursday, December 2nd:
NOAH Connections: Teens (rescheduled from Thanksgiving)
NOAH Workshops: Grandparents
NOAH Connections: Adults
Thursday, December 9th:
NOAH Connections: Teens
NOAH Connections: LGBTQ+ and Allies
Wednesday, December 15th:
NOAH Connections: Young Adults
Thursday, December 16th:
NOAH Connections: Adults

Halloween Costume Contest – Vote Today!!

We received so many awesome subimssions for our first-ever, virtual Halloween costume contest, and we are so excited to share them with you! Check out all of our contestants in our Halloween Costume Contest Album on Facebook, and “like” your favorite costume to vote. 

Vote by November 12th to help us pick our contest winners!

Published: November 8, 2021


Looking for a way to help NOAH?​​​​​​​

We have the perfect opportunity for YOU! Let your voice be heard –  represent the interests of the community in planning for future NOAH Connections sessions through volunteering on a NOAH Connections Advisory Task Force. 

Learn more or apply to join a NOAH Connections Advisory Task Force today at:
www.albinism.org/NOAH-Connections/task-force

Published: November 8, 2021


Research Program Update!​​​​​​​

Excitement is building as our Research Program Committee and Scientific Advisory Board have received all of the applications for NOAH’s FIRST RESEARCH GRANTS! The team is currently reviewing applications to determine grant awardees.

STAY TUNED – Awardees will be announced in JANUARY 2022!!

www.albinism.org/research

Published: November 8, 2021


Help us choose the #NOAHCon2022 theme!

Thank goodness we had #AVisionBeyond 2020…and now NOAHCon 2022 is fast-approaching and we can’t wait to bring together the albinism community, in-person! 

What do YOU think our next conference theme should be? Share your ideas on our recent Facebook post or submit via email by Friday, November 12th

Published: November 8, 2021


National Adoption Awareness Month

In observance of National Adoption Awareness Month, we invite community members to share their family’s story for the chance to be featured on NOAH social media. 

Submit your story & photos via email today!

Use the Share with NOAH form or email us at info@albinism.org

Photo Credit: Positive Exposure

Published: November 8, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: November 8 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Today: NOAH Connections – Dads!

November 8th at 8:00pm ET // 5:00pm PT

Calling All Super Dads!

Join host Sam McClung TONIGHT at 8pm ET for a call just for dads! You won’t want to miss this chance to share experiences & join together in the goal of being the best dad we can be for our kids with albinism. 

Sign up now:
www.albinism.org/NOAH-Connections/#dads

Published: November 8, 2021


Wednesday: Could Adults with Albinism Miss HPS?

November 9th ​​​​​​​at 8:00pm ET // 5:00pm PT

Adult PWAs, don’t miss this informative session about Hermansky-Pudlak Syndrome (HPS) presented by Donna Appell. Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being.

www.albinism.org/NOAH-Connections/#hps

Published: November 8, 2021


Thursday: Teen Connections

November 11th ​​​​​​​at 8:00pm ET // 5:00pm PT

Teens- we can’t wait to see you Thursday for our next session of NOAH Connections. First-timers welcome!

www.albinism.org/NOAH-Connections/#teens

Published: November 8, 2021


Thursday: LGBTQ+ & Allies Connections

November 11th ​​​​​​​at 9:00pm ET // 6:00pm PT

We’re Saving a Square for YOU!

PWAs who identify as LGBTQ+ and allies – join us this Thursday for our next NOAH Connections session just for you! Feel free to join with voice only if preferred.

Sign up today:
www.albinism.org/NOAH-Connections/#lgbtq

Published: November 8, 2021


Sunday: Podcast Panel

November 14th at 4:00pm ET // 1:00pm PT

Join us on this Sunday as Jennie Bovard, Dale Hamilton, Casey Greer, & Cassandra Mendez share their experiences as PWAs who host podcasts!

All are welcome, so spread the word & sign up today!
www.albinism.org/NOAH-Connections/#podcast

Published: November 8, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 8, 2021

Tuesday, November 16th:
NOAH Workshops: Adults with Albinism
Wednesday, November 17th:
NOAH Connections: Young Adults
Thursday, November 18th:
NOAH Connections: Parents, Grandparents & Caregivers
NOAH Connections: Adults
Sunday, November 21st:
NOAH Workshops: Children & Families
NOAH Connections: NOAH Friendsgiving
Monday, November 22nd:
NOAH Connections: Canadian Parents
Wednesday, December 1st:
NOAH Connections: Young Adults
Thursday, December 2nd:
NOAH Workshops: Grandparents
NOAH Connections: Adults
Thursday, December 9th:
NOAH Connections: Teens


Submit YOUR costume for NOAH’s Halloween Costume Contest!

Whether it’s funny, scary, cute, or spooky, we want to see YOUR Halloween costume! PWAs – share a photo of your costume with NOAH by Friday, November 5th to be entered into our first ever, virtual costume contest. Costume photos can be sent via email, social media DM, or posted in the comments on our recent Facebook Post.

Published: November 1, 2021


Looking for a way to help? Let YOUR voice be heard!​​​​​​​

NOAH seeks volunteers to represent the interests of the community in planning for future NOAH Connections sessions. 

Learn more or apply to join a NOAH Connections Advisory Task Force today at: www.albinism.org/NOAH-Connections/task-force

Published: November 1, 2021


Help us choose the #NOAHCon2022 theme!

Thank goodness we had #AVisionBeyond 2020…and now NOAHCon 2022 is fast-approaching and we can’t wait to bring together the albinism community, in-person! 

What do YOU think our next conference theme should be? Share your ideas on our recent Facebook post or submit via email by Friday, November 12th

Published: November 1, 2021


Announcing: Podcast Panel!

Join us on Sunday, November 14that 4pm ET // 1pm PT as Jennie Bovart, Dale Hamilton, Casey Greer, & Cassandra Mendez share their experiences as PWAs who host podcasts!

All are welcome, so spread the word & sign up today!
www.albinism.org/NOAH-Connections/#podcast

Published: November 1, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: November 1 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Young Adult Connections

November 3rd at 9:00pm ET // 6:00pm PT

Extra, extra, read all about it! The next Young Adult Connections call is sure to be newsworthy. Join us this Wednesday for the full scoop. 

New to the group? Sign up today and you’ll get reminders for future sessions, too!
www.albinism.org/NOAH-Connections/#young-adults

Published: November 1, 2021


Thursday: Dealing with Comments & Questions

November 4th ​​​​​​​at 8:30pm ET // 5:30pm PT

Parents, grandparents, & caregivers – don’t miss out on our upcoming NOAH Workshop: Dealing with Comments & Questions this Thursday, November 4th. We hope you’ll join Sheila Adamo for this wonderful opportunity to connect and learn!

Registration closes TOMORROW (November 2nd)!
www.albinism.org/workshops

Published: November 1, 2021


Thursday: Adult Connections

November 4th ​​​​​​​at 9:00pm ET // 6:00pm PT

Adults with albinism, don’t miss out! We can’t wait to see you on Thursday for our next session of NOAH Connections.

www.albinism.org/NOAH-Connections/#adults

Published: November 1, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 1, 2021

Monday, November 8th:
NOAH Connections: Dads
Wednesday, November 10th:
NOAH Connections: Could Adults with Albinism Miss HPS?
Thursday, November 11th:
NOAH Connections: Teens
NOAH Connections: LGBTQ+ and Allies
Sunday, November 14th:
NOAH Connections: Podcast Panel
Tuesday, November 16th:
NOAH Workshops: Adults with Albinism
Wednesday, November 17th:
NOAH Connections: Young Adults
Thursday, November 18th:
NOAH Connections: Parents, Grandparents & Caregivers
NOAH Connections: Adults
Sunday, November 21st:
NOAH Workshops: Children & Families
NOAH Connections: NOAH Friendsgiving
Monday, November 22nd:
NOAH Connections: Canadian Parents

Announcing NOAH’s Halloween Costume Contest!

Whether it’s funny, scary, cute, or spooky, we want to see YOUR Halloween costume! PWAs – share a photo of your costume with NOAH by Friday, November 5th to be entered into our first ever, virtual costume contest. Costume photos can be sent via email, social media DM, or posted in the comments on our recent Facebook Post.

Published: October 25, 2021


NOAH Connections Holiday Activities!​​​​​​​

The holiday season is just around the corner, and we can’t wait to celebrate with the albinism community! 

What NOAH Connections holiday activities would YOU like to attend in the coming months? Let us know by commenting on our recent Facebook post, or sending us an email!

Published: October 25, 2021


The Dads’ Call is Back!

Calling all NOAH Dads! Sam McClung invites YOU to join us for a call just for dads, to share in our unique experiences & join together in the goal of being the best dad we can be for our children with albinism. 

Sign up now at: www.albinism.org/NOAH-Connections/#dads or text DADS to (417) 473-2310

Published: October 25, 2021


You’re Invited to NOAH Friendsgiving!

Mark your calendars to join together with NOAH friends for a virtual meal and friendsgiving celebration on Gatherly.

www.albinism.org/NOAH-Connections/#friendsgiving

Published: October 25, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: October 25, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Tuesday: PWAs in the Legal Profession

October 26th at 8:30pm ET // 5:30pm PT

Lawyers, paralegals, law students, and judges – we can’t wait to see you Tuesday at 8:30pm ET // 5:30pm PT! 

New to PWAs in the Legal Profession? Join today for the link to this call, and we’ll invite you to future sessions, too!
www.albinism.org/NOAH-Connections/#legal

Published: October 25, 2021


Thursday: Teen Connections

October 28th ​​​​​​​at 8:00pm ET // 5:00pm PT

Teens, it’s your turn to share your story. Come discuss your journey with Albinism from your childhood until now on our next Teen Connections call, Thursday, October 28th at 8pm ET // 5pm PT.

See you there!
www.albinism.org/NOAH-Connections/#teens

Published: October 25, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 25, 2021

Wednesday, November 3rd:
NOAH Connections: Young Adults
Thursday, November 4th:
NOAH Workshops: Parents, Grandparents, & Caregivers
NOAH Connections: Adults
Monday, November 8th:
NOAH Connections: Dads
Wednesday, November 10th:
NOAH Connections: Could Adults with Albinism Miss HPS?
Thursday, November 11th:
NOAH Connections: Teens
Sunday, November 14th:
NOAH Connections: Podcast Panel
Tuesday, November 16th:
NOAH Workshops: Adults with Albinism
Wednesday, November 17th:
NOAH Connections: Young Adults
Thursday, November 18th:
NOAH Connections: Parents, Grandparents & Caregivers
NOAH Connections: Adults
Sunday, November 21st:
NOAH Workshops: Children & Families
NOAH Connections: NOAH Friendsgiving


Happy 39th Birthday, NOAH!

This past Friday, we celebrated NOAH’s 39th birthday with a fundraiser, BINGO Birthday Bash, and and After Hours Game Night!

Thank you to everyone who joined us in celebrating! Congratulations to all of our BINGO and Game Night winners!

PS – It’s not too late to give NOAH a belated “birthday gift” and help us reach our goal of 39 gifts of any size in honor of 39 years of NOAH!

Published: October 18, 2021


Oh! The Places My White Cane Takes Me!​​​​​​​

In addition to being NOAH’s 39th Birthday, Friday was also White Cane Day! In honor of this occasion, we invited the white cane users in our community to share a photo of a place their white can has taken them. Check out the fun photos shared and add your own on our recent Facebook post!

Published: October 18, 2021


National Disability Employment Awareness Month & NOAH’s Career Corner

October is National Disability Employment Awareness Month (NDEAM)! 

Held each October, NDEAM aims to educate about disability employment issues and celebrate the many and varied contributions of America’s workers with disabilities.
Learn more at: www.dol.gov/NDEAM 

NOAH is thrilled to launch our Career Corner during NDEAM to highlight the jobs and careers of PWAs in our community this October and beyond!

If you are an adult PWA willing to share about your career, please fill out this form:
https://app.donorview.com/pExwA

Published: October 18, 2021


*1* Unread Message

Don’t miss out! Sign up for NOAH text messages today, and we’ll send you reminders for upcoming NOAH Connections sessions! 

Sign up here: https://app.donorview.com/Wb7R7

Published: October 18, 2021


Could Adults with Albinism Miss HPS?

Adult PWAs, don’t miss this informative session about Hermansky-Pudlak Syndrome (HPS) presented by Donna Appell. Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being.

www.albinism.org/NOAH-Connections/#hps

Published: October 18, 2021


Sign up for NOAH Text Messages Today!

Don’t miss out! sign up for NOAH text messages today, and we’ll remind you about upcoming sessions and other opportunities to connect:

Subscribe here: https://app.donorview.com/Wb7R7

Published: October 18, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: October 18, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


TODAY: Adapting to the Diagnosis of Albinism as a Family

October 18th at 8:30pm ET // 5:30pm PT

Pre-registered parents & caregivers – Sheila Adamo looks forward to seeing you for Adapting to the Diagnosis of Albinism as a Family at 8:30pm ET. We’ll learn together and connect with our supportive community. 

Registration for this session closed Saturday, but we invite you to check out the NOAH Workshops page for information about other upcoming workshops:

www.albinism.org/workshops

Published: October 18, 2021


Tuesday: Aging with Albinism

October 19th ​​​​​​​at 5:00pm ET // 2:00pm PT

Join June Waugh & friends this Tuesday at 5:00pm ET / 2:00pm PT to discuss some of the many issues our families had to face: explaining our appearance, learning about vision & sun sensitivity, and more.

Join today!
www.albinism.org/NOAH-Connections/#aging

Published: October 18, 2021


Wednesday: Young Adult Connections

October 20th at 9:00pm ET // 6:00pm PT

Your Albinism Journey

Young Adults PWAs, join us to share your experiences as a young person living with albinism. How has entering adulthood changed your experience?

Sign up today!
www.albinism.org/NOAH-Connections/#young-adults

Published: October 18, 2021


Thursday: Adult Connections

October 21st at 9:00pm ET // 6:00pm PT

Your Albinism Journey

Adult PWAs, come join us this Thursday at 9pm ET/6pm PT as we discuss our albinism journey from diagnosis until now. What have you learned throughout this journey?

Sign up today!
www.albinism.org/NOAH-Connections/#adults

Published: October 18, 2021


Sunday: All the Feels Workshop

October 24th at 3:00pm ET // 12:00pm PT

NOAH kids – how do YOU feel about having albinism? Join Jocelyn for NOAH’s All the Feels Workshop on Oct. 24th to talk about our feelings with a fun story, science experiment, and arts activity!

Register by Oct. 22nd! 
www.albinism.org/workshops

Published: October 18, 2021


Sunday: Paralympian Panel!

October 24th at 4:30pm ET // 1:30pm PT

Join us on Sunday, October 24th at 4:30pm ET for a star-studded panel of Paralympian PWAs hosted by Pam McGonigle & Donté Mickens. This exciting opportunity is open to all NOAH community members, so spread the word & sign up now!

www.albinism.org/NOAH-Connections/#paralympian

Published: October 18, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 18, 2021

Tuesday, October 26th:
NOAH Connections: PWAs in the Legal Profession
Thursday, October 28th:
NOAH Connections: Teens
Wednesday, November 3rd:
NOAH Connections: Young Adults
Thursday, November 4th:
NOAH Connections: Adults
Wednesday, November 10th:
NOAH Connections: Could Adults with Albinism Miss HPS?
Thursday, November 11th:
NOAH Connections: Teens
Sunday, November 14th:
NOAH Connections: Podcast Panel
Tuesday, November 16th:
NOAH Workshops: Adults with Albinism
Thursday, November 18th:
NOAH Connections: Parents, Grandparents & Caregivers
NOAH Connections: Adults

Happy 39th Birthday, NOAH!

This Friday, October 15th is NOAH’s 39th birthday, and we hope our whole community will join us in celebrating.

All friends of NOAH are invited to join Executive Director, Karen Bly for NOAH’s Birthday BINGO Bash at 8pm ET//5pm PT, followed by NOAH After Hours Birthday Game Night just for NOAH adults (18+) at 9pm ET//6pm PT. 

See YOU there!!

Published: October 11, 2021


Announcing, NOAH’s Career Corner!

NOAH’s Career Corner is a new opportunity for adult PWAs to connect with others by sharing their career or job experiences.

If you are an adult PWA willing to share about your career, please fill out this form: https://app.donorview.com/pExwA

Published: October 11, 2021


Last Chance to Register!

Parents, grandparents, & caregivers, have you registered for NOAH’s Adapting to the Diagnosis of Albinism as a Family Workshop? You won’t want to miss this opportunity to learn and connect with our supportive community, facilitated by Sheila Adamo. 

Don’t miss out – register by Saturday, October 16th! 
www.albinism.org/workshops

Published: October 11, 2021


Paralympian Panel!

Join us on Sunday, October 24th at 4:30pm ET for a star-studded panel of Paralympian PWAs hosted by Pam McGonigle & Donté Mickens.

This exciting opportunity is open to all NOAH community members, so spread the word & sign up now!
www.albinism.org/NOAH-Connections/#paralympian

Published: October 11, 2021


Sign up for NOAH Text Messages Today!

Don’t miss out! sign up for NOAH text messages today, and we’ll remind you about upcoming sessions and other opportunities to connect:

Subscribe here: https://app.donorview.com/Wb7R7

Published: October 11, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: October 11, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Thursday: Teen Connections

October 14th at 8:00pm ET // 5:00pm PT

Teens, you’re up next! Join us this Thursday at 8pm ET to make new friends and re-connect with old ones.

Sign up today: www.albinism.org/NOAH-Connections/#teens

Published: October 11, 2021


Thursday: LGBTQ+ & Allies

October 14th ​​​​​​​at 9:00pm ET // 6:00pm PT

YOU belong here! Join us for a social gathering open to all LGBTQ+ and allies with albinism this Thursday, October 14th at 9pm ET. Feel free to leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

www.albinism.org/NOAH-Connections/#lgbtq

Published: October 11, 2021


Friday: NOAH’s BINGO Birthday Bash

October 15th at 8:00pm ET // 5:00pm PT

Will Karen see YOU at NOAH’s BINGO Birthday Bash?!

Join us this Friday, October 15th at 8pm ET / 5pm PT to celebrate NOAH’s 39th birthday!

RSVP at www.albinism.org/NOAH-Connections/#birthday
-OR-
text BINGO to (417) 473-2310 to join the party!

Published: October 11, 2021


Friday: After Hours 18+ Birthday Game Night!

October 15th at 9:00pm ET // 6:00pm PT

NOAH Adults, you’re invited to NOAH’s 39th Birthday after-party! Join us following the BINGO Birthday Bash for a NOAH After Hours 18+ Game Night this Friday, October 15th at 9pm ET / 6pm PT. 

Sign up now: www.albinism.org/NOAH-Connections/#after-hours

or text AFTER-HOURS to (417) 473-2310 to join the party!

Published: October 11, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 11, 2021

Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers
Tuesday, October 19th:
NOAH Connections: Aging with Albinism
Wednesday, October 20th:
NOAH Connections: Young Adults
Thursday, October 21st:
NOAH Connections: Adults
Sunday, October 24th:
NOAH Workshops: Children & Families
NOAH Connections: Paralympian Panel
Tuesday, October 26th:
NOAH Connections: PWAs in the Legal Profession
Thursday, October 28th:
NOAH Connections: Teens
Wednesday, November 3rd:
NOAH Connections: Young Adults
Thursday, November 4th:
NOAH Connections: Adults
Wednesday, November 10th:
NOAH Connections: Could Adults with Albinism Miss HPS?

Did someone say BINGO?!

Executive Director, Karen Bly, invites you to join us in celebrating 39 years of NOAH with a fun-filled evening of BINGO!

-OR-
text BINGO to (417) 473-2310!

Published: October 4, 2021


Young Adult Connections is Moving!

Young Adult NOAH Connections is moving to a new day (and possibly time). Young Adults with albinism, please take the Doodle poll below to help us determine our new meeting day & time. 

Poll: https://bit.ly/3lgyj7b

The poll closes Thursday, October 7th

Published: October 4, 2021


Adapting to the Diagnosis of Albinism as a Family Workshop

Parents, grandparents, & caregivers, join Sheila Adamo for NOAH’s Adapting to the Diagnosis of Albinism as a Family Workshop to learn and connect with our supportive community. 

Register by October 16th! 
www.albinism.org/workshops

Published: October 4, 2021


BabyBanz Sunglasses Needed!

NOAH’s New Parent Program is in need of BabyBanz Sunglasses for New Parent Toolkits and we need YOUR help. If you’d like to purchase a pair of sunglasses to donate to this program, check out our Amazon Charity List:

https://amzn.to/3kSR2VP

Published: October 4, 2021


Resilience & Self-care

Living with albinism isn’t always easy. To be happy, self-actualized adults, people with albinism and their families need to find ways to cope with and learn from the not-so-good experiences. 

Check out Kelsey Thompson’s practical tips for developing resiliency in her NOAHCon 2020 session, Resilience & Self-Care:  https://vimeo.com/445334134

For access to more educational video content, visit NOAH’s full Video Library at: www.albinism.org/vimeo

Published: October 4, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: October 4, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Preschool Connections

October 6th at 12:00pm ET // 9:00am PT

Preschoolers, get ready for some fall fun with Miss Kathi!

Join us this Wednesday, October 6th at 12pm ET for fun fall fingerplays! We’ll also talk about beautiful fall changes, and share treasures from nature or drawings of our favorite fall things!

Sign up today:
www.albinism.org/NOAH-Connections/#preschool

Published: October 4, 2021


Wednesday: PWA Book Club

October 6th ​​​​​​​at 9:00pm ET // 6:00pm PT

Book Club members, finish up reading “Killers of the Flower Moon: The Osage Murders and the Birth of the FBI” by David Grann and get ready to discuss this Wednesday at 9pm ET/6pm PT.

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: October 4, 2021


Thursday: Adult Connections

October 7th at 9:00pm ET // 6:00pm PT

There’s still time to join! 

Adults with albinism, grab your computers and get ready to connect. We can’t wait to “see” you this Thursday!

www.albinism.org/NOAH-Connections/#adults

Published: October 4, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 4, 2021


Thursday, October 14th:
NOAH Connections: Teens
NOAH Connections: Young Adults
NOAH Connections: LGBTQ+ & Allies
Friday, October 15th:
NOAH Connections: 
Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers
Tuesday, October 19th:
NOAH Connections: Aging with Albinism
Thursday, October 21st:
NOAH Connections: Adults
Sunday, October 24th:
NOAH Workshops: Children & Families
NOAH Connections: Paralympian Panel
Tuesday, October 26th:
NOAH Connections: PWAs in the Legal Profession
Thursday, October 28th:
NOAH Connections: Teens

Back to School!

Whether you’ve been back to school for a month or just a few days, we want to see your 2021 back to school pics! 

Check out our recent Facebook post to share your photos. 

Published: September 27, 2021


NOAH’s Back to School Library

Parents & caregivers – we want to hear from YOU! ​​​​​​​

How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route?

Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org for the chance to be included in our Back to School Library!

See www.albinism.org/bts

Published: September 27, 2021


Teens with Albinism, What’s YOUR Story?

Do you have something to say, share, inspire or commiserate? ​Share your story with the community through NOAH’s Teen Spotlight!

Submit your Teen Spotlight today at:
www.albinism.org/teenspotlight

Published: September 27, 2021


Employer Matching

Did you know that 78% of match-eligible donors have no idea whether their employer offers a matching gift program?

Employer gift matching is a great way to make your donation to NOAH go further, so ask your employer about it today!

See www.albinism.org/ways-to-give

Published: September 27, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 27, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Karen’s First Coffee Chat!

September 29th at 8:00pm ET // 5:00pm PT

You’re Invited to Karen’s First Coffee Chat! 

Join us this Wednesday, September 29th at 8pm ET for Karen’s first coffee chat! Coffee chats are open to all NOAH community members, so log in to share your voice, or simply join us for some social time.

www.albinism.org/NOAH-Connections/#coffee

Published: September 27, 2021


Thursday: Teen Connections

September 30th ​​​​​​​at 8:00pm ET // 5:00pm PT

Teens, you’re up next! Join us this Thursday at 8pm ET to make new friends and re-connect with old ones. 

Sign up now!
www.albinism.org/NOAH-Connections/#teens

Published: September 27, 2021


Thursday: Young Adult Connections

September 30th at 9:15pm ET // 6:15pm PT

Young adults with albinism, you’re invited to our next session of Young Adult Connections this Thursday at 9:15pm ET//6:15pm PT. This is a great chance to relax, unwind, connect, and share experiences with fellow PWAs.

What are you waiting for?
Sign up today!
www.albinism.org/NOAH-Connections/#young-adults

Published: September 27, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 27, 2021


Wednesday, October 6th:
NOAH Connections: Preschoolers
NOAH Connections: PWA Book Club
Thursday, October 7th:
NOAH Connections: Adults
Thursday, October 14th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Friday, October 15th:
NOAH Connections: NOAH’s BINGO Birthday Bash
Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers
Tuesday, October 19th:
NOAH Connections: Aging with Albinism

Announcing! NOAHCon 2022 Conference Hotel! 

We are thrilled to share that Hilton Orlando Buena Vista Palace – Disney Springs Area is our NOAHCon 2022 Conference Hotel! 

Attendee Room Block Opens January 2022.

We can’t wait to see YOU in Orlando! ​​​​​​​​​​

Published: September 20, 2021


Congratulations, 2021 SCIVIS Scholarship Winners!

We are thrilled to announce that Aleena H. and Axel D. have each been selected to receive a scholarship for Space Camp 2021

Congratulations, Aleena & Axel!

Learn more about Space Camp for Interested Visually Impaired Students: 
www.albinism.org/space-camp

Published: September 20, 2021


Pop-Up Popcorn Sale!

With the help of 40 supporters from 13 different states, Sonja & Donté’s Pop-Up Popcorn Sale raised over $900 for NOAH in just 4 days! 

Thank you, Sonja, Donté, and everyone who purchased gourmet popcorn to support NOAH!

Published: September 20, 2021


Happy National Hispanic Heritage Month!

Hispanic Heritage Month celebrates the histories, cultures and contributions of Americans descended from Spain, Mexico, the Caribbean, and Central and South America. The celebration begins each year on September 15th, which is the anniversary of independence for Latin American countries Costa Rica, El Salvador, Guatemala, Honduras and Nicaragua. 

Hispanic PWAs and families – how are you celebrating or observing National Hispanic Heritage Month?
Let us know on our recent Facebook Post!

Published: September 20, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 20, 2021

Tuesday: Aging with Albinism

September 21st at 4:30pm ET // 1:30pm PT

Join June Waugh for our next session of Aging with Albinism to discuss heredity and tracing albinism in each of our family trees. 

Register now:
www.albinism.org/NOAH-Connections/#aging

Published: September 20, 2021


Thursday: Adult Connections

September 23rd ​​​​​​​at 9:00pm ET // 6:00pm PT

Apple cider or pumpkin spice? 

Adults with albinism, join us this Thursday at 9pm ET/6pm PT to talk about all things fall! 

New to Adult NOAH Connections?
Sign up now to join this session and you’ll be invited to future get-togethers too!
www.albinism.org/NOAH-Connections/#adults

Published: September 20, 2021


Sunday: Worry Creatures Workshop

September 26th at 3:00pm ET // 12:00pm PT

Children & families, join Jocelyn Leworthy this Sunday to decorate your very own worry creature! Worries are a normal part of life, everyone experiences them – together we’ll share ways to cope with our worries as people with albinism.

Register by September 24th!
www.albinism.org/workshops

Published: September 20, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 20, 2021

Wednesday, September 29th:
NOAH Connections: Coffee Chat
Thursday, September 30th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Wednesday, October 6th:
NOAH Connections: Preschoolers
NOAH Connections: PWA Book Club
Thursday, October 7th:
NOAH Connections: Adults
Thursday, October 14th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers

Subscribe to Albinism InSight Today!

The next issue of Albinism InSight is hitting inboxes and mailboxes soon, and you won’t want to miss it! There’s something for everyone in each and every issue.

Subscribe here: www.albinism.org/AI​​​​​​​

Published: September 13, 2021


Worry Creatures Workshop

Children & families, join Jocelyn Leworthy Sunday, September 26th to decorate your very own worry creature! Worries are a normal part of life, everyone experiences them – together we’ll share ways to cope with our worries as people with albinism.

Register by September 24th!
www.albinism.org/workshops

Published: September 13, 2021


Get Ready to Read!

PWAs who love to read, now is the perfect time to join NOAH’s Book Club! We’ve just begun “Killers of the Flower Moon: The Osage Murders and the Birth of the FBI” by David Grann and will meet to discuss October 6th.

Sign up today! www.albinism.org/NOAH-Connections/#pwa-book-club

Published: September 13, 2021


National Guide Dog Month!

September is National Guide Dog Month, so join us in sending an extra-special shoutout to the canines in our community who assist their owners with albinism in navigating all of life’s adventures.​​​​​​​

Check out our recent Facebook post and share a photo of an awesome guide dog in your life!

Published: September 13, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 13, 2021

TODAY: Panel of Grandparents of Children with Albinism

September 13th at 8:30pm ET // 5:30pm PT

Join our hosts Rick, Joann, and Laura for an interactive question and answer session for grandparents to share their triumphs and struggles grand-parenting a child with albinism.

Sign up for Grandparent Connections now to receive the link for tonight’s session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

www.albinism.org/NOAH-Connections/#p-g-c

Published: September 13, 2021


Thursday: Teen Connections

September 16th ​​​​​​​at 8:00pm ET // 5:00pm PT

NOAH Teens, join us this Thursday, September 16th at 8pm ET // 5:00pm PT to talk about all things Back to School.

New to Teen Connections? Join today! 
www.albinism.org/NOAH-Connections/#teens

Published: September 13, 2021


Thursday: Young Adult Connections

September 16th at 9:15pm ET // 6:15pm PT

Let’s Talk About Fall!

Young adults, you’re up next…Join us this Thursday, September 16th at 9:15pm ET // 6:15pm PT to chat about our favorite fall activities, recipes, and more!

New to Young Adult Connections? Join today! www.albinism.org/NOAH-Connections/#young-adults

Published: September 13, 2021


Sunday: NOAH Kids Dance Party

September 19th at 3:30pm ET // 12:30pm PT

NOAH kids of all ages, there’s still time to sign up for an epic dance party with Casey Greer and Mackenzie Strong, September 19th at 3:30pm ET // 12:30pm PT!

Have a song request? Send it to cgreer@albinism.org 

Signup here: www.albinism.org/NOAH-Connections/#dance-party

Published: September 13, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 13, 2021

Monday, September 21st:
NOAH Connections: Aging with Albinism
Thursday, September 23rd:
NOAH Connections: Adults
Sunday, September 26th:
NOAH Workshops: Children & Families
Thursday, September 30th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Wednesday, October 6th:
NOAH Connections: Preschoolers
NOAH Connections: PWA Book Club
Thursday, October 7th:
NOAH Connections: Adults
Thursday, October 14th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers

Holiday Observances

Wishing a Happy Labor Day, and Happy Rosh Hashanah to all in our community who celebrate!


You’re Invited to a Safe & Enjoyable Adult Weekend!

We are so excited to see you for Adult Weekend fun this fall! As you prepare to join us in Memphis, we invite you take a moment to review NOAH’s plans to provide a safe, enjoyable Adult Weekend experience: www.albinism.org/adult-weekend/#covid

Don’t miss out on this unique opportunity for connection and camaraderie with fellow PWAs  – register by September 10th! 
www.albinism.org/adult-weekend

Published: September 6, 2021


NOAH Workshop: Adapting to the Diagnosis of Albinism as a Family

Parents, grandparents, & caregivers, join Sheila Adamo on Monday, October 18th at 8:30pm ET to discuss adapting to a diagnosis of albinism & learn strategies to support each other.

Register by October 16th! 
www.albinism.org/workshops

Published: September 6, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 6, 2021

Wednesday: PWAs in the Legal Profession

September 8th at 8:00pm ET // 5:00pm PT

Looking to connect with fellow PWAs who are lawyers, judges, paralegals, or law students? Join Arielle Lewis this Wednesday at 8pm ET for social time with PWAs in your field!

www.albinism.org/NOAH-Connections/#legal

Published: September 6, 2021


Thursday: Adult Connections

September 9th ​​​​​​​at 9:00pm ET // 6:00pm PT

Adults with albinism, start September on a high note – join us for our next session of NOAH connections for adult PWAs! 

www.albinism.org/NOAH-Connections/#adults

Published: September 6, 2021


Friday: Parenting without Pigment

September 10th at 9:00pm ET // 6:00pm PT

Parenting without Pigment is Back!!!

PWPs (parents without pigment), we’ve missed YOU! Join Kathi Garza this Friday at 9pm ET // 6pm PT to connect with fellow parents with albinism.

www.albinism.org/NOAH-Connections/#pwp

Published: September 6, 2021


Sunday: Bioptic Driving in Ontario

September 12th at 4:00pm ET // 1:00pm PT

PWAs from Ontario, join Dr. Tammy Labreche for a Q&A about Bioptic Driving, this Sunday, September 12th at 4pm ET!

Any questions you’d like to have answered during the session? 
Send them to Shelly at safas23@gmail.com 

www.albinism.org/NOAH-Connections/#canadian-pwas

Published: September 6, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 6, 2021

Monday, September 13th:
NOAH Connections: Grandparents
Thursday, September 16th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Sunday, September 19th:
NOAH Connections: NOAH Kids Dance Party!
Monday, September 21st:
NOAH Connections: Aging with Albinism
Thursday, September 23rd:
NOAH Connections: Adults
Thursday, September 30th:
NOAH Connections: Teens
NOAH Connections: Young Adults

NOAH Connections strives to provide meaningful opportunities to connect for the diverse members of our community, and we want to make sure YOU feel welcomed and supported.

Are you part of a group you would like to see represented in future programming? 
Let us know through our submission form:
https://app.donorview.com/m4yNW

Published: August 30, 2021


Will We See YOU on Beale St?!​​​​​​​

Our adult weekend crew is growing, and we can wait to recreate our “group photo” in Memphis!

Don’t miss out on this unique opportunity for connection and camaraderie with fellow PWAs  – register by September 10th! 🗓️
www.albinism.org/adult-weekend

Published: August 30, 2021


NOAH Kids Dance Party!

​​​​​​​NOAH kids of all ages, get ready to dance the day away with Casey Greer and Mackenzie Strong on Sunday, September 19th at 3:30pm ET // 12:30pm PT!  

Have a song request? Send it to cgreer@albinism.org 

www.albinism.org/NOAH-Connections/#dance-party

Published: August 30, 2021


Paralympic Spotlight!

The 2020 Paralympic Games kicked off on August 25th, and we’ve been spotlighting awesome athletes with albinism representing Team USA & Team Canada over the past week.

Check out their spotlights on NOAH’s FacebookInstagram, and Twitter, and don’t forget to tune in to watch the remaining Paralympic events!

Published: August 30, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 30, 2021

Wednesday: Preschool Connections

September 1st at 12:00pm ET // 9:00am PT

Preschoolers, grab your grown ups and get ready to see Miss Kathi for our next session of Preschool Connections! We’ll read “The Day The Crayons Quit” and do a coloring activity to examine the letters in our names.

www.albinism.org/NOAH-Connections/#preschool

Published: August 30, 2021


Wednesday: NOAH Book Club

September 1st ​​​​​​​at 9:00pm ET // 6:00pm PT

Book club members, finish up reading “The Martian” by Andy Weird, and get ready to discuss this Wednesday at 9pm ET! 

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: August 30, 2021


Thursday: Teen Connections

September 2nd at 8:00pm ET // 5:00pm PT

Teens, we can’t wait to “see” you this Thursday at 8pm ET // 5pm PT!

New to Teen Connections? There’s still time to sign up!

www.albinism.org/NOAH-Connections/#teens

Published: August 30, 2021


Thursday: Young Adult Connections

September 2nd at 9:15pm ET // 6:15pm PT

Young adults, you’re up next! Kick off September on the right foot & join us for our first Young Adult Connections of the month this Thursday at 9:15pm ET.

www.albinism.org/NOAH-Connections/#young-adults

Published: August 30, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: August 30, 2021

Wednesday, September 8th:
NOAH Connections: PWAs in the Legal Profession
Thursday, September 9th:
​​​​​​​
NOAH Connections: Adults
Friday, September 10th:
NOAH Connections: Parenting without Pigment
Sunday, September 12th:
NOAH Connections: Canadian PWAs – Bioptic Driving in Ontario
Monday, September 13th:
NOAH Connections: Grandparents
Thursday, September 16th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Sunday, September 19th:
NOAH Connections: NOAH Kids Dance Party!
Monday, September 21st:
NOAH Connections: Aging with Albinism
Thursday, September 23rd:
NOAH Connections: Adults

Music Fans, This One’s for YOU!

Don’t miss the Rock ‘n’ Soul museum at this year’s Adult Weekend. 

“It tells the story of musical pioneers who, for the love of music, overcame racial and socio-economic barriers to create the music that shook the entire world.”

Learn more about our plans for this unique gathering of PWAs in Memphis, TN and register today!
www.albinism.org/adult-weekend

Published: August 23, 2021


Bioptic Driving in Ontario​​​​​​​

PWAs from Ontario, join Dr. Tammy Labreche for a Q&A about Bioptic Driving, Sunday, September 12th at 4pm ET!

Any questions you’d like to have answered during the session? 
Send them to Shelly at safas23@gmail.com 

www.albinism.org/NOAH-Connections/#canadian-pwas​​​​​​​

Published: August 23, 2021


It’s Easy to Create a Facebook Fundraiser for NOAH!​​​​​​​

Starting a fundraiser takes just minutes, and the money raised helps NOAH continue to provide programs and services to the community! 

Log on to your Facebook account, click the link below and follow the graphic to set up a fundraiser for NOAH today.

https://bit.ly/3moiHPF​​​​​​

Published: August 23, 2021


Jessica’s Friday Favorites!

This past Friday, we heard from the NOAH community for another Jessica’s Friday Favorites! This time, we shared favorite tech products and apps. 

Check out community member suggestions and add your own on our recent Facebook post.

Published: August 23, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 23, 2021

TODAY: Parents of Newly Diagnosed Children Workshop

August 23rd at 8:30pm ET // 6:30pm PT

Pre-registered parents & caregivers, Sheila Adamo looks forwards to seeing you for Parents of Newly Diagnosed Children 8/23 at 8:30pm ET. Together, we will begin building a community of fellow parents that understand  and support each other in adapting to parenting a child with albinism. 

Registration for this session closed Saturday, but we invite you to check out the NOAH Workshops page for information about other upcoming workshops:

www.albinism.org/workshops

Published: August 23, 2021


Thursday: Adult Connections

August 26th at 9:00pm ET // 6:00pm PT

Adults with albinism, join Casey Greer this Thursday for social time with fellow PWAs.

New to Adult Connections? Now’s the perfect time to join for the first time! Sign up today for the invite to this session and future chances to connect:

www.albinism.org/NOAH-Connections/#adults

Published: August 23, 2021


Saturday: BIPOC Connections

August 28th at 3:00pm ET // 12:00pm PT

We are thrilled to announce that Charlotte-based photographer, Gavin Boulware will be leading our next session of BIPOC Connections! Join Gavin for social time with fellow BIPOC PWAs Saturday, August 28th at 3pm ET.

New to BIPOC Connections? Sign up today for info on this call, and you’ll be invited to future opportunities to connect too!​​​​​​​
www.albinism.org/NOAH-Connections/#bipoc

Published: August 23, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: August 23, 2021

Wednesday, September 1st:
NOAH Connections: Preschool
NOAH Connections: PWA Book Club
Thursday, September 2nd:
NOAH Connections: Teens
NOAH Connections: Young Adults
Wednesday, September 8th:
NOAH Connections: PWAs in the Legal Profession
Thursday, September 9th:
​​​​​​​NOAH Connections: Adults
Sunday, September 12th:
NOAH Connections: Canadian PWAs – Bioptic Driving in Ontario
Monday, September 13th:
NOAH Connections: Grandparents
Thursday, September 16th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Sunday, September 19th:
NOAH Connections: NOAH Kids Dance Party!
Thursday, September 23rd:
NOAH Connections: Adults

NOAH Workshop: Parents of Newly Diagnosed Children

Parents & caregivers, join Sheila Adamo for Parents of Newly Diagnosed Children, August 23rd at 8:30pm ET, to begin building a community of fellow parents that understand and support each other in adapting to parenting a child with albinism. 

Advance registration is required – be sure to register by 8/21! 
www.albinism.org/workshops

Published: August 16, 2021


Contribute to NOAH’s Back to School Library!​​​​​​​

Last week, we launched NOAH’s new Back to School Library, a place for parents to share ideas for teachers and classmates about what it means to have albinism. We’ve received a few wonderful submissions, but we are still in search of more ideas to help grow our library!

Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org to help grow this wonderful resource for parents!

www.albinism.org/bts

Published: August 16, 2021


TEE Talk: Parenting with Self-Awareness & Authenticity

Check out Tanika Harris’ recent “TEE Talk” for parents/caregivers where she shares her story of raising her son with albinism with self-awareness & authenticity.

https://vimeo.com/587149580

Published: August 16, 2021


Fundraiser Shout-out!​​​​​​​

6-year-old community member, Hunter, learned that NOAH provides information for PWAs interested in driving – something that he wants to do when he gets older. So, he created a business plan for a lemonade stand to support NOAH, and was able to donate over $100 after selling lemonade at his local boat ramp!

Thank you, Hunter! ​​​​​​​​​​​​​​

Published: August 16, 2021


Memories from NOAH Family Summer Camp!

Camp may be over, but we are continuing to receive fun photos and videos from our campers documenting many amazing memories shared at Lions Camp Pride. 

Make sure you’re following NOAH’s FacebookInstagram, and Twitter so you don’t miss any fun memories from camp!

Published: August 16, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 16, 2021

Thursday: Teen Connections

August 19th at 8:00pm ET // 5:00pm PT

Teens with albinism, you’re up next! Join us this Thursday for social time with fellow PWAs.

New to Teen Connections? Now’s the perfect time to join for the first time! Sign up today for the invite to this session and future chances to connect:

www.albinism.org/NOAH-Connections/#teens

Published: August 16, 2021


Thursday: Young Adults

August 19th at 9:15pm ET // 6:15pm PT​​

Young adults with albinism, grab your devices and log on to zoom for our next session of NOAH Connections just for you! Thursday night is the perfect time to socialize and relax with fellow PWAs.

www.albinism.org/NOAH-Connections/#young-adults

Published: August 16, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: August 16, 2021

Monday, August 23rd:
NOAH Workshops: Parents & Caregivers
Thursday, August 26th:
NOAH Connections: Adults
Saturday, August 28th:
NOAH Connections: BIPOC
Wednesday, September 1st:
NOAH Connections: Preschool
NOAH Connections: PWA Book Club
Thursday, September 2nd:
NOAH Connections: Teens
NOAH Connections: Young Adults
Wednesday, September 8th:
NOAH Connections: PWAs in the Legal Profession
Thursday, September 9th:
​​​​​​​NOAH Connections: Adults
Sunday, September 12th:
NOAH Connections: Canadian PWAs – Bioptic Driving in Ontario
Monday, September 13th:
NOAH Connections: Grandparents
Thursday, September 16th:
NOAH Connections: Teens
NOAH Connections: Young Adults

Announcing: NOAH’s Back to School Library!​​​​​​​

Parents & caregivers: we want to hear from YOU! ​​​​​​​

How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route? 

Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org for the chance to be added to our new Back to School Library!

www.albinism.org/bts

Published: August 9, 2021


Will We See YOU on Beale Street?!

Register for Adult Weekend today to join this awesome crew in Memphis this October! 
www.albinism.org/adult-weekend

Already registered? Send your full-body photo to marketing@albinism.org and we’ll add you to our “group photo” on Beale St! 

Published: August 9, 2021


The NOAH Program Umbrella​​​​​​​

NOAH is delighted to announce the reorganization of virtual programming for parents, grandparents, and caregivers to better serve the needs of our community, with added opportunities under the NOAH program umbrella. 

In addition to sessions just for parents or caregivers and just for grandparents, NOAH now offers combined educational programming and NOAH Workshops.

Stay tuned for more updates on the continued expansion of NOAH programming! 

www.albinism.org/NOAH-Connections

​​​​​​​www.albinism.org/workshops​​​​​​​​​​​​​​

Published: August 9, 2021


Announcing: NOAH Workshops!

NOAH Workshops are custom-designed sessions, facilitated by a licensed professional, which address social emotional and educational needs. Alongside NOAH Connections, these sessions will provide a deeper connection to others and build our community.

Our first NOAH Workshop will be “Parents of Newly Diagnosed Children,” a session for parents & caregivers facilitated by Sheila Adamo on Monday, August 23rd.

Learn more about upcoming offerings: www.albinism.org/workshops​​​​​​​

Published: August 9, 2021

Thank You, Camp Staff!

Guided by our awesome camp staff, NOAH campers had a blast at Lions Camp Pride this past week. Join us in thanking our camp director and staff for making the NOAH Camp experience so wonderful for everyone in attendance!

Stay tuned as we continue to share fun memories from camp on the NOAH FacebookInstagram, and Twitter!

Published: August 9, 2021


NOAH Connects Grandparents

In addition to providing social and educational sessions and workshops for grandparents, NOAH also helps put grandparents in touch with others who truly understand the journey of grandparenting a child with albinism. 

Grandparents are invited to send a message to grandparents@albinism.org to be connected with other grandparents, and check out Grandparent Connections offerings at www.albinism.org/NOAH-Connections and www.albinism.org/workshops

Published: August 9, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 9, 2021

TONIGHT: Parenting with Self-Awareness and Authenticity

August 9th at 9:00pm ET // 6:00pm PT

Parents & caregivers, you’re invited to Parenting with Self-Awareness and Authenticity with Tanika Harris TONIGHT at 9pm ET // 6pm PT!

Together we’ll share our unique experiences and perspectives about the journey of raising a child with albinism while acknowledging the levels of privilege and discussing ways to assist others in our community.

Sign up to join Parent Connections today for the link to join this call, and we’ll send you email reminders for future chances to connect!

www.albinism.org/NOAH-Connections/#p-g-c

Published: August 9, 2021


Wednesday: PWAs in the Legal Profession

August 11th at 9:00pm ET // 6:00pm PT

​​Lawyers, judges, paralegals, and law students – join us Wednesday at 9pm ET/6pm PT for NOAH Connections: PWAs in the Legal Profession hosted by Arielle Lewis! 

New to the group? Now is the perfect chance to join in for the first time! Sign up today at: www.albinism.org/NOAH-Connections/#legal

Published: August 9, 2021


Thursday: Adults

August 12th at 9:00pm ET // 6:00pm PT

Adult PWAs, grab your computer, laptop, phone, or tablet, and get ready to join us this Thursday for our next session of NOAH Connections! “See” you soon!

www.albinism.org/NOAH-Connections/#adults

Published: August 9, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, August 19th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, August 23rd:

NOAH Workshops: Parents & Caregivers​​​​​​​

Wednesday, September 1st:

NOAH Connections: PWA Book Club

Thursday, September 2nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, September 12th:

NOAH Connections: Canadian PWAs

Monday, September 13th:

NOAH Connections: Grandparents

Published: August 9, 2021

Greetings from NOAH Camp!

This weekend, NOAH Camp Staff welcomed our campers and their families to beautiful New Hampshire.

Stay tuned for more updates on camp activities and fun by following NOAH on FacebookInstagram, or Twitter!​​​​​​​​​​​​​

Published: August 2, 2021


Space Camp 2021!


NOAH is pleased to offer 2 tuition scholarships for students with albinism in our community to attend SCIVIS 2021.

To apply, complete the Space Camp Scholarship Application Packet in full and return to NOAH by September 3, 2021.

www.albinism.org/space-camp

Published: August 2, 2021


AI Spotlight: Kayak Hack

Lee’s husband, Tim, modified beach chair umbrellas for extra sun protection in their family kayaks, which she says is her “favorite kayak accessory.”

What’s YOUR favorite summer hack?

www.albinism.org/AI

Published: August 2, 2021


Americans with Disabilities Act – 31st Anniversary!

July 26th marked the 31st Anniversary of the Americans with Disabilities Act, a civil rights law that was enacted to protect people with disabilities from discrimination.

In honor of this recent anniversary, we share NOAH’s information bulletin that discusses the social aspect of albinism including its relation to disability.

https://www.albinism.org/information-bulletin-social-aspects-of-albinism/

Published: August 2, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 2, 2021

TONIGHT: Education & Albinism

August 2nd at 8:30pm ET // 5:30pm PT

Parents, grandparents, and caregivers, join Kathi Garza and Jill Gorman TONIGHT to learn about typical services that children with albinism may need in school and ways you can assist in the process.

www.albinism.org/NOAH-Connections/#p-g-c

Published: August 2, 2021


Wednesday: PWA Book Club

August 4th at 9:00pm ET // 6:00pm PT

​​Book club members, have you finished reading Effortless? 
You have just a few days to finish up our current book selection before we meet to discuss this Wednesday at 9pm ET // 6pm PT!

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: August 2, 2021


Thursday: Teens

August 5th at 8:00pm ET // 5:00pm PT

Teens, you’re invited to our next session of NOAH connections! We can’t wait to “see” you Thursday to chat and connect with fellow teen PWAs.

www.albinism.org/NOAH-Connections/#teens

Published: August 2, 2021


Thursday: Young Adults

August 5th at 9:15pm ET // 6:15pm PT

Young adults, you’re up next! Put it in your planner, mark the calendar, or set a reminder so you don’t miss the chance for social time with your friends with albinism!

www.albinism.org/NOAH-Connections/#young-adults

Published: August 2, 2021


Sunday: Golden Like Me

August 8th at 3:00pm ET // 12:00pm PT

Join us this Sunday at 3pm ET // 12pm PT for a reading of the soon-to-be-released children’s book “Golden Like Me” followed by a Q&A with author Brandi M. Green.
All are welcome – register today to attend!

www.albinism.org/NOAH-Connections/#golden

Published: August 2, 2021


Sunday: Canadian PWAs

August 8th at 4:00pm ET // 1:00pm PT

Calling all PWAs from Canada!
Join us this Sunday, August 8th at 4pm ET // 1pm PT for Canadian PWA connections led by Shelly Francis.

New to Canadian PWA connections? Now’s the perfect time to join:
www.albinism.org/NOAH-Connections/#canadian-pwas

Published: August 2, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Monday, August 9th:

NOAH Connections: Parents & Caregivers

Wednesday, August 11th:

​​​​​​​NOAH Connections: PWAs in the Legal Profession 

Thursday, August 12th:

NOAH Connections: Adults

Thursday, August 19th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, August 23rd:

NOAH Workshops: Parents & Caregivers​​​​​​​

Thursday, September 2nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

Published: August 2, 2021


Adult Weekend Survey Extended!

We’ve received some great feedback about educational sessions at Adult Weekend 2021, but we want to make sure YOU didn’t miss the chance to share your thoughts!


Fill out the the form by this Friday, July 30th: https://bit.ly/3ztwvvI​​​​​​​​​​​​​​

Published: July 26, 2021

Mentorship Program Deadline Extended!

If you are interested in joining NOAH’s new, year-long, near-peer Mentorship Program, but missed the deadline earlier this summer, now’s your chance!


Learn more and apply by July 31st at: www.albinism.org/mentorship

Published: July 26, 2021


Getting to Know Karen!

We’re still getting to know our new Executive Director with fun videos and activities including “Bly on the Fly” and “Two Truths & A Lie.”

Check out our full Getting to Know Karen video playlist at: https://bit.ly/3ycRjYg and make sure to follow NOAH on FacebookInstagram, or Twitter so you don’t miss out on the fun!

Published: July 26, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 26, 2021

Thursday: Adult Connections

July 29th at 9:00pm ET // 6:00pm PT

Adults with albinism, if you haven’t attended a NOAH Connections call before, there’s still time to join!! Don’t miss out on your next chance to connect, this Thursday, July 29th at 9pm ET // 6pm PT. 

www.albinism.org/NOAH-Connections/#adults

Published: July 26, 2021



Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Monday, August 2nd:

NOAH Connections: Grandparents, Parents, & Caregivers

Wednesday, August 4th:

NOAH Connections: PWA Book Club

Thursday, August 5th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, August 8th:

NOAH Connections: “Golden Like Me” Book Reading​​​​​​​​​​​​​​

NOAH Connections: Canadian Adults

Monday, August 9th:

NOAH Connections: Parents & Caregivers

Thursday, August 19th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, August 23rd:

NOAH Workshops: Parents & Caregivers​​​​​​​

Published: July 26, 2021

Karen’s First Day! 

In honor of Karen’s official first day as NOAH’s Executive Director, NOAH community member, Caroline V. has a few questions for her!

Do YOU have a question for Karen? Send us a video or written question with a photo of you for the chance to hear Karen’s answer!

Published: July 19, 2021


Last Chance to Share Your Opinion!

The Adult Weekend Planning Committee wants to hear from YOU as plans are being made for educational sessions at Adult Weekend 2021.

Today is your last chance to make your voice heard – fill out the form by the end of the day:
https://bit.ly/3r2S7fv

Published: July 26, 2021

Last Chance to Share Your Opinion!

The Adult Weekend Planning Committee wants to hear from YOU as plans are being made for educational sessions at Adult Weekend 2021.

Today is your last chance to make your voice heard – fill out the form by the end of the day:
https://bit.ly/3r2S7fv

Published: July 19, 2021


Jessica’s Friday Favorites!

This Friday, Jessica from NOAH’s Marketing & Communications team joined us to launch our newest segment – Jessica’s Friday Favorites! This is the perfect chance to share links to your favorite products with others in the community.

Since it’s summer, we started with beach must-haves. Check out the awesome beach must-have products shared by community members and add your suggestions on our recent FB post:

https://bit.ly/36LLwMZ

Published: July 19, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 19, 2021

Thursday: Teen Connections

July 22nd at 8:00pm ET // 5:00pm PT

Teens, we can’t wait to “see” you this Thursday for our next session of NOAH Connections. 

Don’t miss out on this chance to connect with fellow teens with albinism, sign up now!

www.albinism.org/NOAH-Connections/#teens

Published: July 19, 2021


Thursday: Young Adult Connections

July 22nd at 9:15pm ET // 6:15pm PT

Let’s chat! Young Adults, join us this Thursday at 9:15pm to relax and connect with fellow PWAs.

New to Young Adult Connections? Now’s the perfect time to sign up!

www.albinism.org/NOAH-Connections/#young-adults 

Published: July 19, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, July 29th:

NOAH Connections: Adults

Monday, August 2nd:

NOAH Connections: Grandparents, Parents, & Caregivers

Wednesday, August 4th:

NOAH Connections: PWA Book Club

Thursday, August 5th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, August 8th:

NOAH Connections: “Golden Like Me” Book Reading

NOAH Connections: Canadian Adults

Monday, August 9th:

NOAH Connections: Parents & Caregivers

Thursday, August 19th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, August 23rd:

NOAH Workshops: Parents & Caregivers

Published: July 19, 2021