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NOAH News Today


Happy 39th Birthday, NOAH!

This Friday, October 15th is NOAH’s 39th birthday, and we hope our whole community will join us in celebrating.

All friends of NOAH are invited to join Executive Director, Karen Bly for NOAH’s Birthday BINGO Bash at 8pm ET//5pm PT, followed by NOAH After Hours Birthday Game Night just for NOAH adults (18+) at 9pm ET//6pm PT. 

See YOU there!!

Published: October 11, 2021


Announcing, NOAH’s Career Corner!

NOAH’s Career Corner is a new opportunity for adult PWAs to connect with others by sharing their career or job experiences.

If you are an adult PWA willing to share about your career, please fill out this form: https://app.donorview.com/pExwA

Published: October 11, 2021


Last Chance to Register!

Parents, grandparents, & caregivers, have you registered for NOAH’s Adapting to the Diagnosis of Albinism as a Family Workshop? You won’t want to miss this opportunity to learn and connect with our supportive community, facilitated by Sheila Adamo. 

Don’t miss out – register by Saturday, October 16th! 
www.albinism.org/workshops

Published: October 11, 2021


Paralympian Panel!

Join us on Sunday, October 24th at 4:30pm ET for a star-studded panel of Paralympian PWAs hosted by Pam McGonigle & Donté Mickens.

This exciting opportunity is open to all NOAH community members, so spread the word & sign up now!
www.albinism.org/NOAH-Connections/#paralympian

Published: October 11, 2021


Sign up for NOAH Text Messages Today!

Don’t miss out! sign up for NOAH text messages today, and we’ll remind you about upcoming sessions and other opportunities to connect:

Subscribe here: https://app.donorview.com/Wb7R7

Published: October 11, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: October 11, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Thursday: Teen Connections

October 14th at 8:00pm ET // 5:00pm PT

Teens, you’re up next! Join us this Thursday at 8pm ET to make new friends and re-connect with old ones.

Sign up today: www.albinism.org/NOAH-Connections/#teens

Published: October 11, 2021


Thursday: LGBTQ+ & Allies

October 14th ​​​​​​​at 9:00pm ET // 6:00pm PT

YOU belong here! Join us for a social gathering open to all LGBTQ+ and allies with albinism this Thursday, October 14th at 9pm ET. Feel free to leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

www.albinism.org/NOAH-Connections/#lgbtq

Published: October 11, 2021


Friday: NOAH’s BINGO Birthday Bash

October 15th at 8:00pm ET // 5:00pm PT

Will Karen see YOU at NOAH’s BINGO Birthday Bash?!

Join us this Friday, October 15th at 8pm ET / 5pm PT to celebrate NOAH’s 39th birthday!

RSVP at www.albinism.org/NOAH-Connections/#birthday
-OR-
text BINGO to (417) 473-2310 to join the party!

Published: October 11, 2021


Friday: After Hours 18+ Birthday Game Night!

October 15th at 9:00pm ET // 6:00pm PT

NOAH Adults, you’re invited to NOAH’s 39th Birthday after-party! Join us following the BINGO Birthday Bash for a NOAH After Hours 18+ Game Night this Friday, October 15th at 9pm ET / 6pm PT. 

Sign up now: www.albinism.org/NOAH-Connections/#after-hours

or text AFTER-HOURS to (417) 473-2310 to join the party!

Published: October 11, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 11, 2021

Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers
Tuesday, October 19th:
NOAH Connections: Aging with Albinism
Wednesday, October 20th:
NOAH Connections: Young Adults
Thursday, October 21st:
NOAH Connections: Adults
Sunday, October 24th:
NOAH Workshops: Children & Families
NOAH Connections: Paralympian Panel
Tuesday, October 26th:
NOAH Connections: PWAs in the Legal Profession
Thursday, October 28th:
NOAH Connections: Teens
Wednesday, November 3rd:
NOAH Connections: Young Adults
Thursday, November 4th:
NOAH Connections: Adults
Wednesday, November 10th:
NOAH Connections: Could Adults with Albinism Miss HPS?

Did someone say BINGO?!

Executive Director, Karen Bly, invites you to join us in celebrating 39 years of NOAH with a fun-filled evening of BINGO!

-OR-
text BINGO to (417) 473-2310!

Published: October 4, 2021


Young Adult Connections is Moving!

Young Adult NOAH Connections is moving to a new day (and possibly time). Young Adults with albinism, please take the Doodle poll below to help us determine our new meeting day & time. 

Poll: https://bit.ly/3lgyj7b

The poll closes Thursday, October 7th

Published: October 4, 2021


Adapting to the Diagnosis of Albinism as a Family Workshop

Parents, grandparents, & caregivers, join Sheila Adamo for NOAH’s Adapting to the Diagnosis of Albinism as a Family Workshop to learn and connect with our supportive community. 

Register by October 16th! 
www.albinism.org/workshops

Published: October 4, 2021


BabyBanz Sunglasses Needed!

NOAH’s New Parent Program is in need of BabyBanz Sunglasses for New Parent Toolkits and we need YOUR help. If you’d like to purchase a pair of sunglasses to donate to this program, check out our Amazon Charity List:

https://amzn.to/3kSR2VP

Published: October 4, 2021


Resilience & Self-care

Living with albinism isn’t always easy. To be happy, self-actualized adults, people with albinism and their families need to find ways to cope with and learn from the not-so-good experiences. 

Check out Kelsey Thompson’s practical tips for developing resiliency in her NOAHCon 2020 session, Resilience & Self-Care:  https://vimeo.com/445334134

For access to more educational video content, visit NOAH’s full Video Library at: www.albinism.org/vimeo

Published: October 4, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: October 4, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Preschool Connections

October 6th at 12:00pm ET // 9:00am PT

Preschoolers, get ready for some fall fun with Miss Kathi!

Join us this Wednesday, October 6th at 12pm ET for fun fall fingerplays! We’ll also talk about beautiful fall changes, and share treasures from nature or drawings of our favorite fall things!

Sign up today:
www.albinism.org/NOAH-Connections/#preschool

Published: October 4, 2021


Wednesday: PWA Book Club

October 6th ​​​​​​​at 9:00pm ET // 6:00pm PT

Book Club members, finish up reading “Killers of the Flower Moon: The Osage Murders and the Birth of the FBI” by David Grann and get ready to discuss this Wednesday at 9pm ET/6pm PT.

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: October 4, 2021


Thursday: Adult Connections

October 7th at 9:00pm ET // 6:00pm PT

There’s still time to join! 

Adults with albinism, grab your computers and get ready to connect. We can’t wait to “see” you this Thursday!

www.albinism.org/NOAH-Connections/#adults

Published: October 4, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 4, 2021


Thursday, October 14th:
NOAH Connections: Teens
NOAH Connections: Young Adults
NOAH Connections: LGBTQ+ & Allies
Friday, October 15th:
NOAH Connections: 
Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers
Tuesday, October 19th:
NOAH Connections: Aging with Albinism
Thursday, October 21st:
NOAH Connections: Adults
Sunday, October 24th:
NOAH Workshops: Children & Families
NOAH Connections: Paralympian Panel
Tuesday, October 26th:
NOAH Connections: PWAs in the Legal Profession
Thursday, October 28th:
NOAH Connections: Teens

Back to School!

Whether you’ve been back to school for a month or just a few days, we want to see your 2021 back to school pics! 

Check out our recent Facebook post to share your photos. 

Published: September 27, 2021


NOAH’s Back to School Library

Parents & caregivers – we want to hear from YOU! ​​​​​​​

How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route?

Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org for the chance to be included in our Back to School Library!

See www.albinism.org/bts

Published: September 27, 2021


Teens with Albinism, What’s YOUR Story?

Do you have something to say, share, inspire or commiserate? ​Share your story with the community through NOAH’s Teen Spotlight!

Submit your Teen Spotlight today at:
www.albinism.org/teenspotlight

Published: September 27, 2021


Employer Matching

Did you know that 78% of match-eligible donors have no idea whether their employer offers a matching gift program?

Employer gift matching is a great way to make your donation to NOAH go further, so ask your employer about it today!

See www.albinism.org/ways-to-give

Published: September 27, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 27, 2021

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections


Wednesday: Karen’s First Coffee Chat!

September 29th at 8:00pm ET // 5:00pm PT

You’re Invited to Karen’s First Coffee Chat! 

Join us this Wednesday, September 29th at 8pm ET for Karen’s first coffee chat! Coffee chats are open to all NOAH community members, so log in to share your voice, or simply join us for some social time.

www.albinism.org/NOAH-Connections/#coffee

Published: September 27, 2021


Thursday: Teen Connections

September 30th ​​​​​​​at 8:00pm ET // 5:00pm PT

Teens, you’re up next! Join us this Thursday at 8pm ET to make new friends and re-connect with old ones. 

Sign up now!
www.albinism.org/NOAH-Connections/#teens

Published: September 27, 2021


Thursday: Young Adult Connections

September 30th at 9:15pm ET // 6:15pm PT

Young adults with albinism, you’re invited to our next session of Young Adult Connections this Thursday at 9:15pm ET//6:15pm PT. This is a great chance to relax, unwind, connect, and share experiences with fellow PWAs.

What are you waiting for?
Sign up today!
www.albinism.org/NOAH-Connections/#young-adults

Published: September 27, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 27, 2021


Wednesday, October 6th:
NOAH Connections: Preschoolers
NOAH Connections: PWA Book Club
Thursday, October 7th:
NOAH Connections: Adults
Thursday, October 14th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Friday, October 15th:
NOAH Connections: NOAH’s BINGO Birthday Bash
Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers
Tuesday, October 19th:
NOAH Connections: Aging with Albinism

Announcing! NOAHCon 2022 Conference Hotel! 

We are thrilled to share that Hilton Orlando Buena Vista Palace – Disney Springs Area is our NOAHCon 2022 Conference Hotel! 

Attendee Room Block Opens January 2022.

We can’t wait to see YOU in Orlando! ​​​​​​​​​​

Published: September 20, 2021


Congratulations, 2021 SCIVIS Scholarship Winners!

We are thrilled to announce that Aleena H. and Axel D. have each been selected to receive a scholarship for Space Camp 2021

Congratulations, Aleena & Axel!

Learn more about Space Camp for Interested Visually Impaired Students: 
www.albinism.org/space-camp

Published: September 20, 2021


Pop-Up Popcorn Sale!

With the help of 40 supporters from 13 different states, Sonja & Donté’s Pop-Up Popcorn Sale raised over $900 for NOAH in just 4 days! 

Thank you, Sonja, Donté, and everyone who purchased gourmet popcorn to support NOAH!

Published: September 20, 2021


Happy National Hispanic Heritage Month!

Hispanic Heritage Month celebrates the histories, cultures and contributions of Americans descended from Spain, Mexico, the Caribbean, and Central and South America. The celebration begins each year on September 15th, which is the anniversary of independence for Latin American countries Costa Rica, El Salvador, Guatemala, Honduras and Nicaragua. 

Hispanic PWAs and families – how are you celebrating or observing National Hispanic Heritage Month?
Let us know on our recent Facebook Post!

Published: September 20, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 20, 2021

Tuesday: Aging with Albinism

September 21st at 4:30pm ET // 1:30pm PT

Join June Waugh for our next session of Aging with Albinism to discuss heredity and tracing albinism in each of our family trees. 

Register now:
www.albinism.org/NOAH-Connections/#aging

Published: September 20, 2021


Thursday: Adult Connections

September 23rd ​​​​​​​at 9:00pm ET // 6:00pm PT

Apple cider or pumpkin spice? 

Adults with albinism, join us this Thursday at 9pm ET/6pm PT to talk about all things fall! 

New to Adult NOAH Connections?
Sign up now to join this session and you’ll be invited to future get-togethers too!
www.albinism.org/NOAH-Connections/#adults

Published: September 20, 2021


Sunday: Worry Creatures Workshop

September 26th at 3:00pm ET // 12:00pm PT

Children & families, join Jocelyn Leworthy this Sunday to decorate your very own worry creature! Worries are a normal part of life, everyone experiences them – together we’ll share ways to cope with our worries as people with albinism.

Register by September 24th!
www.albinism.org/workshops

Published: September 20, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 20, 2021

Wednesday, September 29th:
NOAH Connections: Coffee Chat
Thursday, September 30th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Wednesday, October 6th:
NOAH Connections: Preschoolers
NOAH Connections: PWA Book Club
Thursday, October 7th:
NOAH Connections: Adults
Thursday, October 14th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers

Subscribe to Albinism InSight Today!

The next issue of Albinism InSight is hitting inboxes and mailboxes soon, and you won’t want to miss it! There’s something for everyone in each and every issue.

Subscribe here: www.albinism.org/AI​​​​​​​

Published: September 13, 2021


Worry Creatures Workshop

Children & families, join Jocelyn Leworthy Sunday, September 26th to decorate your very own worry creature! Worries are a normal part of life, everyone experiences them – together we’ll share ways to cope with our worries as people with albinism.

Register by September 24th!
www.albinism.org/workshops

Published: September 13, 2021


Get Ready to Read!

PWAs who love to read, now is the perfect time to join NOAH’s Book Club! We’ve just begun “Killers of the Flower Moon: The Osage Murders and the Birth of the FBI” by David Grann and will meet to discuss October 6th.

Sign up today! www.albinism.org/NOAH-Connections/#pwa-book-club

Published: September 13, 2021


National Guide Dog Month!

September is National Guide Dog Month, so join us in sending an extra-special shoutout to the canines in our community who assist their owners with albinism in navigating all of life’s adventures.​​​​​​​

Check out our recent Facebook post and share a photo of an awesome guide dog in your life!

Published: September 13, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 13, 2021

TODAY: Panel of Grandparents of Children with Albinism

September 13th at 8:30pm ET // 5:30pm PT

Join our hosts Rick, Joann, and Laura for an interactive question and answer session for grandparents to share their triumphs and struggles grand-parenting a child with albinism.

Sign up for Grandparent Connections now to receive the link for tonight’s session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

www.albinism.org/NOAH-Connections/#p-g-c

Published: September 13, 2021


Thursday: Teen Connections

September 16th ​​​​​​​at 8:00pm ET // 5:00pm PT

NOAH Teens, join us this Thursday, September 16th at 8pm ET // 5:00pm PT to talk about all things Back to School.

New to Teen Connections? Join today! 
www.albinism.org/NOAH-Connections/#teens

Published: September 13, 2021


Thursday: Young Adult Connections

September 16th at 9:15pm ET // 6:15pm PT

Let’s Talk About Fall!

Young adults, you’re up next…Join us this Thursday, September 16th at 9:15pm ET // 6:15pm PT to chat about our favorite fall activities, recipes, and more!

New to Young Adult Connections? Join today! www.albinism.org/NOAH-Connections/#young-adults

Published: September 13, 2021


Sunday: NOAH Kids Dance Party

September 19th at 3:30pm ET // 12:30pm PT

NOAH kids of all ages, there’s still time to sign up for an epic dance party with Casey Greer and Mackenzie Strong, September 19th at 3:30pm ET // 12:30pm PT!

Have a song request? Send it to cgreer@albinism.org 

Signup here: www.albinism.org/NOAH-Connections/#dance-party

Published: September 13, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 13, 2021

Monday, September 21st:
NOAH Connections: Aging with Albinism
Thursday, September 23rd:
NOAH Connections: Adults
Sunday, September 26th:
NOAH Workshops: Children & Families
Thursday, September 30th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Wednesday, October 6th:
NOAH Connections: Preschoolers
NOAH Connections: PWA Book Club
Thursday, October 7th:
NOAH Connections: Adults
Thursday, October 14th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Monday, October 18th:
NOAH Workshops: Parents, Grandparents, & Caregivers

Holiday Observances

Wishing a Happy Labor Day, and Happy Rosh Hashanah to all in our community who celebrate!


You’re Invited to a Safe & Enjoyable Adult Weekend!

We are so excited to see you for Adult Weekend fun this fall! As you prepare to join us in Memphis, we invite you take a moment to review NOAH’s plans to provide a safe, enjoyable Adult Weekend experience: www.albinism.org/adult-weekend/#covid

Don’t miss out on this unique opportunity for connection and camaraderie with fellow PWAs  – register by September 10th! 
www.albinism.org/adult-weekend

Published: September 6, 2021


NOAH Workshop: Adapting to the Diagnosis of Albinism as a Family

Parents, grandparents, & caregivers, join Sheila Adamo on Monday, October 18th at 8:30pm ET to discuss adapting to a diagnosis of albinism & learn strategies to support each other.

Register by October 16th! 
www.albinism.org/workshops

Published: September 6, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 6, 2021

Wednesday: PWAs in the Legal Profession

September 8th at 8:00pm ET // 5:00pm PT

Looking to connect with fellow PWAs who are lawyers, judges, paralegals, or law students? Join Arielle Lewis this Wednesday at 8pm ET for social time with PWAs in your field!

www.albinism.org/NOAH-Connections/#legal

Published: September 6, 2021


Thursday: Adult Connections

September 9th ​​​​​​​at 9:00pm ET // 6:00pm PT

Adults with albinism, start September on a high note – join us for our next session of NOAH connections for adult PWAs! 

www.albinism.org/NOAH-Connections/#adults

Published: September 6, 2021


Friday: Parenting without Pigment

September 10th at 9:00pm ET // 6:00pm PT

Parenting without Pigment is Back!!!

PWPs (parents without pigment), we’ve missed YOU! Join Kathi Garza this Friday at 9pm ET // 6pm PT to connect with fellow parents with albinism.

www.albinism.org/NOAH-Connections/#pwp

Published: September 6, 2021


Sunday: Bioptic Driving in Ontario

September 12th at 4:00pm ET // 1:00pm PT

PWAs from Ontario, join Dr. Tammy Labreche for a Q&A about Bioptic Driving, this Sunday, September 12th at 4pm ET!

Any questions you’d like to have answered during the session? 
Send them to Shelly at safas23@gmail.com 

www.albinism.org/NOAH-Connections/#canadian-pwas

Published: September 6, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 6, 2021

Monday, September 13th:
NOAH Connections: Grandparents
Thursday, September 16th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Sunday, September 19th:
NOAH Connections: NOAH Kids Dance Party!
Monday, September 21st:
NOAH Connections: Aging with Albinism
Thursday, September 23rd:
NOAH Connections: Adults
Thursday, September 30th:
NOAH Connections: Teens
NOAH Connections: Young Adults

NOAH Connections strives to provide meaningful opportunities to connect for the diverse members of our community, and we want to make sure YOU feel welcomed and supported.

Are you part of a group you would like to see represented in future programming? 
Let us know through our submission form:
https://app.donorview.com/m4yNW

Published: August 30, 2021


Will We See YOU on Beale St?!​​​​​​​

Our adult weekend crew is growing, and we can wait to recreate our “group photo” in Memphis!

Don’t miss out on this unique opportunity for connection and camaraderie with fellow PWAs  – register by September 10th! 🗓️
www.albinism.org/adult-weekend

Published: August 30, 2021


NOAH Kids Dance Party!

​​​​​​​NOAH kids of all ages, get ready to dance the day away with Casey Greer and Mackenzie Strong on Sunday, September 19th at 3:30pm ET // 12:30pm PT!  

Have a song request? Send it to cgreer@albinism.org 

www.albinism.org/NOAH-Connections/#dance-party

Published: August 30, 2021


Paralympic Spotlight!

The 2020 Paralympic Games kicked off on August 25th, and we’ve been spotlighting awesome athletes with albinism representing Team USA & Team Canada over the past week.

Check out their spotlights on NOAH’s FacebookInstagram, and Twitter, and don’t forget to tune in to watch the remaining Paralympic events!

Published: August 30, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 30, 2021

Wednesday: Preschool Connections

September 1st at 12:00pm ET // 9:00am PT

Preschoolers, grab your grown ups and get ready to see Miss Kathi for our next session of Preschool Connections! We’ll read “The Day The Crayons Quit” and do a coloring activity to examine the letters in our names.

www.albinism.org/NOAH-Connections/#preschool

Published: August 30, 2021


Wednesday: NOAH Book Club

September 1st ​​​​​​​at 9:00pm ET // 6:00pm PT

Book club members, finish up reading “The Martian” by Andy Weird, and get ready to discuss this Wednesday at 9pm ET! 

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: August 30, 2021


Thursday: Teen Connections

September 2nd at 8:00pm ET // 5:00pm PT

Teens, we can’t wait to “see” you this Thursday at 8pm ET // 5pm PT!

New to Teen Connections? There’s still time to sign up!

www.albinism.org/NOAH-Connections/#teens

Published: August 30, 2021


Thursday: Young Adult Connections

September 2nd at 9:15pm ET // 6:15pm PT

Young adults, you’re up next! Kick off September on the right foot & join us for our first Young Adult Connections of the month this Thursday at 9:15pm ET.

www.albinism.org/NOAH-Connections/#young-adults

Published: August 30, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: August 30, 2021

Wednesday, September 8th:
NOAH Connections: PWAs in the Legal Profession
Thursday, September 9th:
​​​​​​​
NOAH Connections: Adults
Friday, September 10th:
NOAH Connections: Parenting without Pigment
Sunday, September 12th:
NOAH Connections: Canadian PWAs – Bioptic Driving in Ontario
Monday, September 13th:
NOAH Connections: Grandparents
Thursday, September 16th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Sunday, September 19th:
NOAH Connections: NOAH Kids Dance Party!
Monday, September 21st:
NOAH Connections: Aging with Albinism
Thursday, September 23rd:
NOAH Connections: Adults

Music Fans, This One’s for YOU!

Don’t miss the Rock ‘n’ Soul museum at this year’s Adult Weekend. 

“It tells the story of musical pioneers who, for the love of music, overcame racial and socio-economic barriers to create the music that shook the entire world.”

Learn more about our plans for this unique gathering of PWAs in Memphis, TN and register today!
www.albinism.org/adult-weekend

Published: August 23, 2021


Bioptic Driving in Ontario​​​​​​​

PWAs from Ontario, join Dr. Tammy Labreche for a Q&A about Bioptic Driving, Sunday, September 12th at 4pm ET!

Any questions you’d like to have answered during the session? 
Send them to Shelly at safas23@gmail.com 

www.albinism.org/NOAH-Connections/#canadian-pwas​​​​​​​

Published: August 23, 2021


It’s Easy to Create a Facebook Fundraiser for NOAH!​​​​​​​

Starting a fundraiser takes just minutes, and the money raised helps NOAH continue to provide programs and services to the community! 

Log on to your Facebook account, click the link below and follow the graphic to set up a fundraiser for NOAH today.

https://bit.ly/3moiHPF​​​​​​

Published: August 23, 2021


Jessica’s Friday Favorites!

This past Friday, we heard from the NOAH community for another Jessica’s Friday Favorites! This time, we shared favorite tech products and apps. 

Check out community member suggestions and add your own on our recent Facebook post.

Published: August 23, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 23, 2021

TODAY: Parents of Newly Diagnosed Children Workshop

August 23rd at 8:30pm ET // 6:30pm PT

Pre-registered parents & caregivers, Sheila Adamo looks forwards to seeing you for Parents of Newly Diagnosed Children 8/23 at 8:30pm ET. Together, we will begin building a community of fellow parents that understand  and support each other in adapting to parenting a child with albinism. 

Registration for this session closed Saturday, but we invite you to check out the NOAH Workshops page for information about other upcoming workshops:

www.albinism.org/workshops

Published: August 23, 2021


Thursday: Adult Connections

August 26th at 9:00pm ET // 6:00pm PT

Adults with albinism, join Casey Greer this Thursday for social time with fellow PWAs.

New to Adult Connections? Now’s the perfect time to join for the first time! Sign up today for the invite to this session and future chances to connect:

www.albinism.org/NOAH-Connections/#adults

Published: August 23, 2021


Saturday: BIPOC Connections

August 28th at 3:00pm ET // 12:00pm PT

We are thrilled to announce that Charlotte-based photographer, Gavin Boulware will be leading our next session of BIPOC Connections! Join Gavin for social time with fellow BIPOC PWAs Saturday, August 28th at 3pm ET.

New to BIPOC Connections? Sign up today for info on this call, and you’ll be invited to future opportunities to connect too!​​​​​​​
www.albinism.org/NOAH-Connections/#bipoc

Published: August 23, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: August 23, 2021

Wednesday, September 1st:
NOAH Connections: Preschool
NOAH Connections: PWA Book Club
Thursday, September 2nd:
NOAH Connections: Teens
NOAH Connections: Young Adults
Wednesday, September 8th:
NOAH Connections: PWAs in the Legal Profession
Thursday, September 9th:
​​​​​​​NOAH Connections: Adults
Sunday, September 12th:
NOAH Connections: Canadian PWAs – Bioptic Driving in Ontario
Monday, September 13th:
NOAH Connections: Grandparents
Thursday, September 16th:
NOAH Connections: Teens
NOAH Connections: Young Adults
Sunday, September 19th:
NOAH Connections: NOAH Kids Dance Party!
Thursday, September 23rd:
NOAH Connections: Adults

NOAH Workshop: Parents of Newly Diagnosed Children

Parents & caregivers, join Sheila Adamo for Parents of Newly Diagnosed Children, August 23rd at 8:30pm ET, to begin building a community of fellow parents that understand and support each other in adapting to parenting a child with albinism. 

Advance registration is required – be sure to register by 8/21! 
www.albinism.org/workshops

Published: August 16, 2021


Contribute to NOAH’s Back to School Library!​​​​​​​

Last week, we launched NOAH’s new Back to School Library, a place for parents to share ideas for teachers and classmates about what it means to have albinism. We’ve received a few wonderful submissions, but we are still in search of more ideas to help grow our library!

Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org to help grow this wonderful resource for parents!

www.albinism.org/bts

Published: August 16, 2021


TEE Talk: Parenting with Self-Awareness & Authenticity

Check out Tanika Harris’ recent “TEE Talk” for parents/caregivers where she shares her story of raising her son with albinism with self-awareness & authenticity.

https://vimeo.com/587149580

Published: August 16, 2021


Fundraiser Shout-out!​​​​​​​

6-year-old community member, Hunter, learned that NOAH provides information for PWAs interested in driving – something that he wants to do when he gets older. So, he created a business plan for a lemonade stand to support NOAH, and was able to donate over $100 after selling lemonade at his local boat ramp!

Thank you, Hunter! ​​​​​​​​​​​​​​

Published: August 16, 2021


Memories from NOAH Family Summer Camp!

Camp may be over, but we are continuing to receive fun photos and videos from our campers documenting many amazing memories shared at Lions Camp Pride. 

Make sure you’re following NOAH’s FacebookInstagram, and Twitter so you don’t miss any fun memories from camp!

Published: August 16, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 16, 2021

Thursday: Teen Connections

August 19th at 8:00pm ET // 5:00pm PT

Teens with albinism, you’re up next! Join us this Thursday for social time with fellow PWAs.

New to Teen Connections? Now’s the perfect time to join for the first time! Sign up today for the invite to this session and future chances to connect:

www.albinism.org/NOAH-Connections/#teens

Published: August 16, 2021


Thursday: Young Adults

August 19th at 9:15pm ET // 6:15pm PT​​

Young adults with albinism, grab your devices and log on to zoom for our next session of NOAH Connections just for you! Thursday night is the perfect time to socialize and relax with fellow PWAs.

www.albinism.org/NOAH-Connections/#young-adults

Published: August 16, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: August 16, 2021

Monday, August 23rd:
NOAH Workshops: Parents & Caregivers
Thursday, August 26th:
NOAH Connections: Adults
Saturday, August 28th:
NOAH Connections: BIPOC
Wednesday, September 1st:
NOAH Connections: Preschool
NOAH Connections: PWA Book Club
Thursday, September 2nd:
NOAH Connections: Teens
NOAH Connections: Young Adults
Wednesday, September 8th:
NOAH Connections: PWAs in the Legal Profession
Thursday, September 9th:
​​​​​​​NOAH Connections: Adults
Sunday, September 12th:
NOAH Connections: Canadian PWAs – Bioptic Driving in Ontario
Monday, September 13th:
NOAH Connections: Grandparents
Thursday, September 16th:
NOAH Connections: Teens
NOAH Connections: Young Adults

Announcing: NOAH’s Back to School Library!​​​​​​​

Parents & caregivers: we want to hear from YOU! ​​​​​​​

How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route? 

Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org for the chance to be added to our new Back to School Library!

www.albinism.org/bts

Published: August 9, 2021


Will We See YOU on Beale Street?!

Register for Adult Weekend today to join this awesome crew in Memphis this October! 
www.albinism.org/adult-weekend

Already registered? Send your full-body photo to marketing@albinism.org and we’ll add you to our “group photo” on Beale St! 

Published: August 9, 2021


The NOAH Program Umbrella​​​​​​​

NOAH is delighted to announce the reorganization of virtual programming for parents, grandparents, and caregivers to better serve the needs of our community, with added opportunities under the NOAH program umbrella. 

In addition to sessions just for parents or caregivers and just for grandparents, NOAH now offers combined educational programming and NOAH Workshops.

Stay tuned for more updates on the continued expansion of NOAH programming! 

www.albinism.org/NOAH-Connections

​​​​​​​www.albinism.org/workshops​​​​​​​​​​​​​​

Published: August 9, 2021


Announcing: NOAH Workshops!

NOAH Workshops are custom-designed sessions, facilitated by a licensed professional, which address social emotional and educational needs. Alongside NOAH Connections, these sessions will provide a deeper connection to others and build our community.

Our first NOAH Workshop will be “Parents of Newly Diagnosed Children,” a session for parents & caregivers facilitated by Sheila Adamo on Monday, August 23rd.

Learn more about upcoming offerings: www.albinism.org/workshops​​​​​​​

Published: August 9, 2021

Thank You, Camp Staff!

Guided by our awesome camp staff, NOAH campers had a blast at Lions Camp Pride this past week. Join us in thanking our camp director and staff for making the NOAH Camp experience so wonderful for everyone in attendance!

Stay tuned as we continue to share fun memories from camp on the NOAH FacebookInstagram, and Twitter!

Published: August 9, 2021


NOAH Connects Grandparents

In addition to providing social and educational sessions and workshops for grandparents, NOAH also helps put grandparents in touch with others who truly understand the journey of grandparenting a child with albinism. 

Grandparents are invited to send a message to grandparents@albinism.org to be connected with other grandparents, and check out Grandparent Connections offerings at www.albinism.org/NOAH-Connections and www.albinism.org/workshops

Published: August 9, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 9, 2021

TONIGHT: Parenting with Self-Awareness and Authenticity

August 9th at 9:00pm ET // 6:00pm PT

Parents & caregivers, you’re invited to Parenting with Self-Awareness and Authenticity with Tanika Harris TONIGHT at 9pm ET // 6pm PT!

Together we’ll share our unique experiences and perspectives about the journey of raising a child with albinism while acknowledging the levels of privilege and discussing ways to assist others in our community.

Sign up to join Parent Connections today for the link to join this call, and we’ll send you email reminders for future chances to connect!

www.albinism.org/NOAH-Connections/#p-g-c

Published: August 9, 2021


Wednesday: PWAs in the Legal Profession

August 11th at 9:00pm ET // 6:00pm PT

​​Lawyers, judges, paralegals, and law students – join us Wednesday at 9pm ET/6pm PT for NOAH Connections: PWAs in the Legal Profession hosted by Arielle Lewis! 

New to the group? Now is the perfect chance to join in for the first time! Sign up today at: www.albinism.org/NOAH-Connections/#legal

Published: August 9, 2021


Thursday: Adults

August 12th at 9:00pm ET // 6:00pm PT

Adult PWAs, grab your computer, laptop, phone, or tablet, and get ready to join us this Thursday for our next session of NOAH Connections! “See” you soon!

www.albinism.org/NOAH-Connections/#adults

Published: August 9, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, August 19th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, August 23rd:

NOAH Workshops: Parents & Caregivers​​​​​​​

Wednesday, September 1st:

NOAH Connections: PWA Book Club

Thursday, September 2nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, September 12th:

NOAH Connections: Canadian PWAs

Monday, September 13th:

NOAH Connections: Grandparents

Published: August 9, 2021

Greetings from NOAH Camp!

This weekend, NOAH Camp Staff welcomed our campers and their families to beautiful New Hampshire.

Stay tuned for more updates on camp activities and fun by following NOAH on FacebookInstagram, or Twitter!​​​​​​​​​​​​​

Published: August 2, 2021


Space Camp 2021!


NOAH is pleased to offer 2 tuition scholarships for students with albinism in our community to attend SCIVIS 2021.

To apply, complete the Space Camp Scholarship Application Packet in full and return to NOAH by September 3, 2021.

www.albinism.org/space-camp

Published: August 2, 2021


AI Spotlight: Kayak Hack

Lee’s husband, Tim, modified beach chair umbrellas for extra sun protection in their family kayaks, which she says is her “favorite kayak accessory.”

What’s YOUR favorite summer hack?

www.albinism.org/AI

Published: August 2, 2021


Americans with Disabilities Act – 31st Anniversary!

July 26th marked the 31st Anniversary of the Americans with Disabilities Act, a civil rights law that was enacted to protect people with disabilities from discrimination.

In honor of this recent anniversary, we share NOAH’s information bulletin that discusses the social aspect of albinism including its relation to disability.

https://www.albinism.org/information-bulletin-social-aspects-of-albinism/

Published: August 2, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: August 2, 2021

TONIGHT: Education & Albinism

August 2nd at 8:30pm ET // 5:30pm PT

Parents, grandparents, and caregivers, join Kathi Garza and Jill Gorman TONIGHT to learn about typical services that children with albinism may need in school and ways you can assist in the process.

www.albinism.org/NOAH-Connections/#p-g-c

Published: August 2, 2021


Wednesday: PWA Book Club

August 4th at 9:00pm ET // 6:00pm PT

​​Book club members, have you finished reading Effortless? 
You have just a few days to finish up our current book selection before we meet to discuss this Wednesday at 9pm ET // 6pm PT!

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: August 2, 2021


Thursday: Teens

August 5th at 8:00pm ET // 5:00pm PT

Teens, you’re invited to our next session of NOAH connections! We can’t wait to “see” you Thursday to chat and connect with fellow teen PWAs.

www.albinism.org/NOAH-Connections/#teens

Published: August 2, 2021


Thursday: Young Adults

August 5th at 9:15pm ET // 6:15pm PT

Young adults, you’re up next! Put it in your planner, mark the calendar, or set a reminder so you don’t miss the chance for social time with your friends with albinism!

www.albinism.org/NOAH-Connections/#young-adults

Published: August 2, 2021


Sunday: Golden Like Me

August 8th at 3:00pm ET // 12:00pm PT

Join us this Sunday at 3pm ET // 12pm PT for a reading of the soon-to-be-released children’s book “Golden Like Me” followed by a Q&A with author Brandi M. Green.
All are welcome – register today to attend!

www.albinism.org/NOAH-Connections/#golden

Published: August 2, 2021


Sunday: Canadian PWAs

August 8th at 4:00pm ET // 1:00pm PT

Calling all PWAs from Canada!
Join us this Sunday, August 8th at 4pm ET // 1pm PT for Canadian PWA connections led by Shelly Francis.

New to Canadian PWA connections? Now’s the perfect time to join:
www.albinism.org/NOAH-Connections/#canadian-pwas

Published: August 2, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Monday, August 9th:

NOAH Connections: Parents & Caregivers

Wednesday, August 11th:

​​​​​​​NOAH Connections: PWAs in the Legal Profession 

Thursday, August 12th:

NOAH Connections: Adults

Thursday, August 19th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, August 23rd:

NOAH Workshops: Parents & Caregivers​​​​​​​

Thursday, September 2nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

Published: August 2, 2021


Adult Weekend Survey Extended!

We’ve received some great feedback about educational sessions at Adult Weekend 2021, but we want to make sure YOU didn’t miss the chance to share your thoughts!


Fill out the the form by this Friday, July 30th: https://bit.ly/3ztwvvI​​​​​​​​​​​​​​

Published: July 26, 2021

Mentorship Program Deadline Extended!

If you are interested in joining NOAH’s new, year-long, near-peer Mentorship Program, but missed the deadline earlier this summer, now’s your chance!


Learn more and apply by July 31st at: www.albinism.org/mentorship

Published: July 26, 2021


Getting to Know Karen!

We’re still getting to know our new Executive Director with fun videos and activities including “Bly on the Fly” and “Two Truths & A Lie.”

Check out our full Getting to Know Karen video playlist at: https://bit.ly/3ycRjYg and make sure to follow NOAH on FacebookInstagram, or Twitter so you don’t miss out on the fun!

Published: July 26, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 26, 2021

Thursday: Adult Connections

July 29th at 9:00pm ET // 6:00pm PT

Adults with albinism, if you haven’t attended a NOAH Connections call before, there’s still time to join!! Don’t miss out on your next chance to connect, this Thursday, July 29th at 9pm ET // 6pm PT. 

www.albinism.org/NOAH-Connections/#adults

Published: July 26, 2021



Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Monday, August 2nd:

NOAH Connections: Grandparents, Parents, & Caregivers

Wednesday, August 4th:

NOAH Connections: PWA Book Club

Thursday, August 5th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, August 8th:

NOAH Connections: “Golden Like Me” Book Reading​​​​​​​​​​​​​​

NOAH Connections: Canadian Adults

Monday, August 9th:

NOAH Connections: Parents & Caregivers

Thursday, August 19th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, August 23rd:

NOAH Workshops: Parents & Caregivers​​​​​​​

Published: July 26, 2021

Karen’s First Day! 

In honor of Karen’s official first day as NOAH’s Executive Director, NOAH community member, Caroline V. has a few questions for her!

Do YOU have a question for Karen? Send us a video or written question with a photo of you for the chance to hear Karen’s answer!

Published: July 19, 2021


Last Chance to Share Your Opinion!

The Adult Weekend Planning Committee wants to hear from YOU as plans are being made for educational sessions at Adult Weekend 2021.

Today is your last chance to make your voice heard – fill out the form by the end of the day:
https://bit.ly/3r2S7fv

Published: July 26, 2021

Last Chance to Share Your Opinion!

The Adult Weekend Planning Committee wants to hear from YOU as plans are being made for educational sessions at Adult Weekend 2021.

Today is your last chance to make your voice heard – fill out the form by the end of the day:
https://bit.ly/3r2S7fv

Published: July 19, 2021


Jessica’s Friday Favorites!

This Friday, Jessica from NOAH’s Marketing & Communications team joined us to launch our newest segment – Jessica’s Friday Favorites! This is the perfect chance to share links to your favorite products with others in the community.

Since it’s summer, we started with beach must-haves. Check out the awesome beach must-have products shared by community members and add your suggestions on our recent FB post:

https://bit.ly/36LLwMZ

Published: July 19, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 19, 2021

Thursday: Teen Connections

July 22nd at 8:00pm ET // 5:00pm PT

Teens, we can’t wait to “see” you this Thursday for our next session of NOAH Connections. 

Don’t miss out on this chance to connect with fellow teens with albinism, sign up now!

www.albinism.org/NOAH-Connections/#teens

Published: July 19, 2021


Thursday: Young Adult Connections

July 22nd at 9:15pm ET // 6:15pm PT

Let’s chat! Young Adults, join us this Thursday at 9:15pm to relax and connect with fellow PWAs.

New to Young Adult Connections? Now’s the perfect time to sign up!

www.albinism.org/NOAH-Connections/#young-adults 

Published: July 19, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, July 29th:

NOAH Connections: Adults

Monday, August 2nd:

NOAH Connections: Grandparents, Parents, & Caregivers

Wednesday, August 4th:

NOAH Connections: PWA Book Club

Thursday, August 5th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, August 8th:

NOAH Connections: “Golden Like Me” Book Reading

NOAH Connections: Canadian Adults

Monday, August 9th:

NOAH Connections: Parents & Caregivers

Thursday, August 19th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Monday, August 23rd:

NOAH Workshops: Parents & Caregivers

Published: July 19, 2021


Getting to Know Karen!

Since our big announcement at the beginning of the month, we’ve been getting to know our new Executive Director, Karen Bly. Make sure you’re following NOAH on FacebookInstagram, and Twitter to follow along and learn more about Karen!

Published: July 12, 2021


Adults with Albinism – We Want YOUR Opinion!

The Adult Weekend Planning Committee wants to hear from YOU as plans are being made for educational sessions at Adult Weekend 2021.

Make your voice heard – fill out the form at the below link by July 19th:
https://bit.ly/3r2S7fv

Published: July 12, 2021


Get Ready to Slide into Summer with NOAH Family Camp!

In just under 3 weeks, we’ll be sliding on the big slip-and-slide with our NOAH friends.

Will we see you there?!

Register by July 14th at: www.albinism.org/nh-camp

Published: July 12, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 12, 2021

Monday: PWAs in the Legal Profession

July 12th at 9:00pm ET // 6:00pm PT

You won’t want to miss NOAH Connections: People With Albinism in the Legal Profession, TODAY at 9:00pm ET! Join host Arielle Lewis to connect with fellow judges, lawyers, paralegals, and law students with albinism.


Sign up now: www.albinism.org/NOAH-Connections/#legal

Published: July 12, 2021


Thursday: Adult Connections

July 15th at 9:00pm ET // 6:00pm PT

Let’s chat! Join us for our upcoming Adult Connections zoom call this Thursday July 15th, hosted by Casey Greer.

Come see what we’re talking about – sign up today!

www.albinism.org/NOAH-Connections/#adults 

Published: July 12, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, July 22nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

Thursday, July 29th:

NOAH Connections: Adults

Monday, August 2nd:

NOAH Connections: Grandparents, Parents, & Caregivers

Wednesday, August 4th:

NOAH Connections: PWA Book Club

Thursday, August 5th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, August 8th:

NOAH Connections: “Golden Like Me” Book Reading

NOAH Connections: Canadian Adults

Monday, August 9th:

NOAH Connections: Parents & Caregivers

Monday, August 23rd:

NOAH Workshops: Parents & Caregivers

Published: July 12, 2021


Welcome, Karen!

We were thrilled to share the exciting news that Karen Bly will be joining NOAH as our first-ever, full-time Executive Director. 

Want to learn more about Karen? Video ~ Press Release

Published: July 5, 2021


Humble Beginnings

Did you know that NOAH began with a social worker collecting names of people who had albinism like herself, a 14-year-old girl with albinism writing a school paper, and a researcher at the University of Minnesota?

Learn more about how NOAH has grown over the past 40 years – check out our timeline of NOAH milestones:

www.albinism.org/about-NOAH/#milestones

Published: July 5, 2021


*NEW* NOAH Camp Sports Director!

2021 NOAH Camp Director Tricia Thomas is thrilled to welcome Maria Lepore-Stevens, O&M instructor and adapted physical educator, as our Sports Director this summer.

Will we see YOU at camp?

Learn more and register by July 14th! www.albinism.org/nh-camp​​​​​​​

Published: July 5, 2021


Will We See YOU in Memphis?

New to NOAH? If you’re shy or unsure, start small. Adult weekend is the perfect way to meet people just like you. “Sometimes, just showing up is all it takes,” said long-time NOAH member Joni V. “We share albinism, but our stories are all unique.”

Where does your story lead? 

www.albinism.org/adult-weekend

Published: July 5, 2021



NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: July 5, 2021

Thursday: Teen Connections

July 8th at 8:00pm ET // 5:00pm PT

Teens, we can’t wait to see you Thursday for our next session of NOAH Connections!

New to Teen Connections? Join today and you’ll be invited to future calls for teens too!

www.albinism.org/NOAH-Connections/#teens

Published: July 5, 2021


Thursday: Young Adult Connections

July 8th at 9:15pm ET // 6:15pm PT

Young Adults, you’re up next! We hope you’ll join us this Thursday to connect with fellow PWAs. 

New to Young Adult NOAH Connections? There’s still time to sign up:
www.albinism.org/NOAH-Connections/#young-adults

Published: July 5, 2021


Sunday: Canadian PWAs

July 11th at 4:00pm ET // 1:00pm PT

Calling all PWAs from Canada! Join host Shelly Francis for our next session of NOAH Connections this Sunday at 4pm ET // 1pm PT.

There’s still time to sign up!

www.albinism.org/NOAH-Connections/#canadian-pwas

Published: July 5, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Monday, July 12th:

NOAH Connections: PWAs in the Legal Profession

Thursday, July 15th:

NOAH Connections: Adults

Thursday, July 22nd:

NOAH Connections: Teens

NOAH Connections: Young Adults

Thursday, July 29th:

NOAH Connections: Adults

Monday, August 2nd:

Grandparent Connections: Education & Albinism

Sunday, August 8th:

NOAH Connections: “Golden Like Me” Book Reading​​​​​​​​​​​​​​

NOAH Connections: Canadian Adults

Published: July 5, 2021


BIG Announcement Coming Soon!

NOAH has exciting news to share that represents an important milestone in our history. Before our BIG announcement, follow us on social media as we look back at NOAH’s humble beginnings and how we’ve grown as an organization over nearly 4 decades.

Published: June 28, 2021


Register Today for NOAH Family Summer Camp!

New to NOAH Family Camp?

This year is the perfect chance to experience camp for the first time! With a $200 discount for kids w/ albinism 16 & under, the magical NOAH camp experience is more affordable than ever.

Register by this Wednesday, June 30th at: www.albinism.org/nh-camp

Published: June 28, 2021


What’s YOUR Vision?

We Want To Hear From YOU!

What topics would you like to see covered in NOAH Connections?

Share your thoughts with us: https://app.donorview.com/m4yNW

Published: June 28, 2021


¿Hablas Español?

NOAH needs your help!

 
If you are a Spanish-speaking parent of a child with albinism who would like to assist NOAH as an occasional volunteer, please email info@albinism.org

Published: June 28, 2021


Have You Seen the Summer Issue of Albinism InSight?


The most recent issue of NOAH’s quarterly magazine is jam-packed with awesome content for the whole family and there’s still time to get YOUR copy!


Subscribe today at: www.albinism.org/AI

Published: June 28, 2021




NOAH Events This Week!

Published: June 28, 2021

Wednesday: Preschool Connections

June 30th at 12:00pm ET // 9:00am PT

All Things Summer! 


Preschool friends, Miss Kathi can’t wait to see you this Wednesday for Preschool Connections! Bring your crayons, markers, & paper, and get ready for lots of fun with your albinism friends .


www.albinism.org/NOAH-Connections/#preschool

Published: June 28, 2021


Thursday: Adult Connections

July 1st at 9:00pm ET // 6:00pm PT

Adult PWAs, kick off July with your NOAH friends!

Join us for our next session of Adult NOAH Connections this Thursday at 9pm ET // 6pm PT. 

New to Adult NOAH Connections? There’s still time to sign up:
www.albinism.org/NOAH-Connections/#adults

Published: June 28, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, July 8th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, July 11th:

NOAH Connections: Canadian Adults

Monday, July 12th:

NOAH Connections: PWAs in the Legal Profession

Thursday, July 15th:

NOAH Connections: Adults

Thursday, July 22nd:

NOAH Connections: Teens

NOAH Connections: Young Adults


Adult Weekend Registration is Now Open!

Adults with albinism, we can’t wait to see you in Memphis, TN this October!


Don’t miss out on this weekend of connection, friendships, and fun – register today at: www.albinism.org/adult-weekend

Published: June 21, 2021


Register Today for NOAH Family Summer Camp!

NOAH Camp is a great chance for kids with albinism and their families to share a fun-filled, outdoor vacation with others like them. 

Registration closes June 30th. Don’t miss out – register now: www.albinism.org/nh-camp!

Published: June 21, 2021


NOAH Research Program: Call for Proposals

NOAH is THRILLED to announce that we’ve officially launched our first call for proposals to support research on the visual system in albinism!

The Summer 2021 Call for Proposals aims to fund up to a total of $100,000 in research, through both an Established Researcher Program and a Pilot Grant/New Innovations Program.

To support this exciting initiative or learn more about the request for proposals, visit: albinism.org/research/#proposals

Published: June 21, 2021


NOAH Night Recording Available!

Did you miss out on NOAH Night? Fear not! The recording of this exciting celebration of the albinism community is available now through June 30th! To purchase access visit: www.albinism.org/NOAHNight

Already purchased tickets for NOAH Night? Current ticket holders will be given complimentary access to the recording – check your inbox for more details!

Published: June 21, 2021


Fundraiser Shout-Out!

Shout-out to NOAH member, Finn J., who used his origami skills in a unique fundraiser that raised over $200 for NOAH! Thank you, Finn! 

Looking to raise money for NOAH? The options are endless! Learn more at: www.albinism.org/fundraisers

Published: June 21, 2021


  • Did you know that NOAH Connections host and parent, Hana Schank, wrote a book? Barak Obama says Power to the Public is “worth a read for anyone who cares about making change happen…”
    Check it out:https://bit.ly/3h6RY6f
    ​​
    ​​​​​​​
  • Submissions for the Rare Artist Program are now Open!
    The Rare Artist Contest provides a national platform for rare artists to showcase their artwork and highlight their stories.
    Learn more or submit your art at: https://everylifefoundation.org/rare-artist/

NOAH Events This Week!

Published: June 21, 2021

Tuesday: Aging with Albinism – Summer Fun, Not in the Sun!

June 22nd at 4:30pm ET // 1:30pm PT

Calling All PWAs 55+! 


You’re invited to our next session of Aging with Albinism this Tuesday, June 22nd hosted by June Waugh! Please join us to share your summer experiences, present and past.

New to Aging with Albinism? Join today:
www.albinism.org/NOAH-Connections/#aging

Published: June 21, 2021


Tuesday: PWAs in the Legal Profession

June 22nd at 8:30pm ET // 5:30pm PT

Looking to connect with fellow lawyers, law students, judges, or paralegals? We have the perfect group for you! 


Join hosts Arielle & Katy for social time for PWAs in the Legal Profession this Tuesday, 6/22 at 8:30pm ET.


Join today at: www.albinism.org/NOAH-Connections/#legal

Published: June 21, 2021


Thursday: Teen Connections

June 24th at 8:00pm ET // 5:00pm PT

NOAH teens, we can’t wait to see you this Thursday at 8pm ET! 

New to NOAH Connections? Sign up now and you’ll be invited to future Teen Connections sessions too! www.albinism.org/NOAH-Connections/#teens

Published: June 21, 2021


Thursday: Young Adult Connections

June 24th at 9:15pm ET // 6:15pm PT

Young adults – you’re up next! Grab your computer and get ready for social time with fellow PWAs this Thursday at 9:15pm ET.

New to NOAH Connections? Sign up now and you’ll be invited to future Young Adult Connections sessions too! www.albinism.org/NOAH-Connections/#young-adults

Published: June 21, 2021


Saturday: BIPOC Connections

June 26th at 3:00pm ET // 12:00pm PT

Adult PWAs who identify as Black, Indigenous, People of Color (BIPOC), join hosts Staci & Karen this Saturday, June 26 at 3pm ET for BIPOC Connections!


New to NOAH Connections? Sign up to join this call and you’ll be invited to future sessions for BIPOC:
www.albinism.org/NOAH-Connections/#bipoc

Published: June 21, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Wednesday, June 30th:

NOAH Connections: Preschool

Thursday, July 1st:

NOAH Connections: Adults

Thursday, July 8th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, July 11th:

NOAH Connections: Canadian Adults

Thursday, July 22nd:

NOAH Connections: Teens

NOAH Connections: Young Adults


Happy International Albinism Awareness Day!

International Albinism Awareness Day was yesterday, Sunday, June 13th. How did YOU celebrate or observe this special day?

Let us know on our recent Facebook post!

Published: June 14, 2021


NOAH Night Recording Available!

We had so much fun celebrating the albinism community at NOAH Night on Saturday night – thanks to all who tuned in to celebrate with us or joined for the replay on Sunday!

Did you miss the event? Fear not! We are excited to announce that access to the NOAH Night recording is available now through June 30th! To purchase access visit: www.albinism.org/NOAHNight

Already purchased tickets for NOAH Night? Current ticket holders will be given complimentary access to the recording – check your inbox for more details!

Published: June 14, 2021


*NEW* This Year!! Camp Fun for Grown-Ups


Did you hear? This year at NOAH Family Camp, we’ve added tons of special activities just for grown-ups!


Don’t miss out on fun for the whole family, register for camp today!
www.albinism.org/nh-camp

Published: June 14, 2021


SPF Shout-Out!

A special shout-out to the NI NOAH Walks for NOAH team, who held their SPF event yesterday on International Albinism Awareness Day. Thank you for your support, NI NOAH!

There’s still time to join in on the FUNdraising! Learn more at: www.albinism.org/spf

Published: June 14, 2021



NOAH Events This Week!

Published: June 14, 2021

Wednesday: PWA Book Club

June 16th at 9:00pm ET // 6:00pm PT

Book club members, finish up reading Akata Witch and get ready to join us to discuss this Wednesday! 

New to book club but ready to join in on the discussion? Sign up today: www.albinism.org/NOAH-Connections/#pwa-book-club

Published: June 14, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Tuesday, June 22nd:

NOAH Connections: Aging with Albinism

NOAH Connections: PWAs in the Legal Profession

Thursday, June 24th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Saturday, June 26th:

NOAH Connections: BIPOC

Wednesday, June 30th:

NOAH Connections: Preschool

Thursday, July 1st:

NOAH Connections: Adults

Thursday, July 8th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, July 11th:

NOAH Connections: Canadian Adults


What Are YOU Looking Forward to at NOAH Night?

NOAH Night is just days away, and we can’t wait for all of the exciting things planned! What part of NOAH Night are YOU most looking forward to??

Don’t miss out on the fun, get your tickets now:

www.albinism.org/NOAHNight


NOAH Night is sponsored in part by Epstein Ostrove, LLC , Gatherly SPOT MY UV, eSight, Ocutech, and IYellow Group

Posted: June 7, 2021


Congratulations, JT!

NOAH is pleased to recognize JT Stevens as the 2021 Michael J. McGowan Leadership Scholarship Honorable Mention Applicant.

This fall, JT will attend Eastern University majoring in computer science and business.

www.albinism.org/leadership21

Posted: June 7, 2021


SPF Shoutout!

Shoutout to Team Liam, Team Schvitz, and Level Up for Jayson! These three awesome SPF fundraising teams surpassed their fundraising goals and made a difference in the albinism community. Thank you for your support!!

It’s not too late to join in on the FUNdraising – sign up today at:
www.albinism.org/spf

Posted: June 7, 2021



NOAH Events This Week!

Posted: June 7, 2021

Thursday: Teen Connections

June 10th at 8:00pm ET // 5:00pm PT

Teens with albinism, you’re invited to our next session of Teen Connections. 

New to Teen Connections? Sign up now and you’ll be invited to future sessions for teens, too!

www.albinism.org/NOAH-Connections/#teens


Thursday: Young Adult Connections

June 10th at 9:15pm ET // 6:15pm PT


Young adults, you won’t want to miss our next session of NOAH Connections, this Thursday. 

New to Young Adult Connections? Sign up today to get the invite to this session and future opportunities to connect!

www.albinism.org/NOAH-Connections/#young-adults


Saturday: NOAH Night!

June 12th at 8:00pm ET // 5:00pm PT

Get ready for this year’s most exciting celebration of the albinism community….NOAH Night! There’s something for everyone at NOAH Night, so get YOUR tickets, spread the word to your friends, and get ready for an evening of fellowship, albinism awareness, and FUNdraising to benefit NOAH!

Get your tickets now at:

www.albinism.org/NOAHNight


Sunday: Candian PWA Connections

June 13th at 4:00pm ET // 1:00pm PT

Calling All Canadian Adult PWAs! 
You’re invited to our next session of NOAH Connections: Canadian PWAs, hosted by Shelly Francis! Join us this Sunday, June 13th to connect and chat with fellow PWAs from Canada.


www.albinism.org/NOAH-Connections/#canadian-pwas


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Monday, June 14th:

Parent Connections: To Whom Much is Given, Much is Required

Wednesday, June 16th:

NOAH Connections: PWA Book Club

Tuesday, June 22nd:

NOAH Connections: Aging with Albinism

NOAH Connections: PWAs in the Legal Profession

Thursday, June 24th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Wednesday, June 30th:

NOAH Connections: Preschool

Thursday, July 1st:

NOAH Connections: Adults


Memorial Day

This Memorial Day, NOAH remembers and honors those who have given their lives serving our country. 

Posted: June 1st, 2021


Have YOU Registered for NOAH Camp?!


Don’t miss out on fun for the whole family with your NOAH friends – register for 2021 NOAH Family Summer Camp today! www.albinism.org/nh-camp

Check out this awesome camp memories slideshow made by NOAH member, Drake T.! See any familiar faces?

Posted: June 1st, 2021


NOAH Night Updates!

Get Your NOAH Night Tickets Today!!

NOAH Night is just around the corner, and we can’t wait to celebrate the albinism                   community with our hosts Marleena & Casey  (and special guest Rupert!).


Check out our NOAH Night plans and get YOUR tickets now: www.albinism.org/NOAHNight

Special thanks to our NOAH Night Sponsors: Gatherly, Spot My UV, and Ocutech!

Posted: June 1st, 2021


Want to See YOUR Favorite Company’s Name in Lights?

We are still accepting sponsors for NOAH Night! If you know of an awesome company that would want to join in supporting this celebration of the albinism community, share our sponsorship packet with them!​​​​​​​

www.albinism.org/NOAHNight/

Posted: June 1st, 2021


  • Check out this awesome news feature about 2021 McGowan Leadership Scholarship Recipient, Bianca McEvoy, who recently achieved her life-long dream of being accepted to Harvard College! https://bit.ly/34vgHv3
    ​​​​​​​
  • NOAH Board Chair, Donté Mickens, was recently appointed by Governor Ron DeSantis to the Florida Rehabilitation Council for the Blind. Congratulations, Donté!! https://bit.ly/3fWVf7s​​​​​​​

Posted: June 1st, 2021


Wednesday: Parenting without Pigment

June 2nd at 8:30pm ET // 5:30pm PT

PWPs (parents without pigment), we can’t wait to see you for our next get-together this Wednesday! Join hosts Andrew & Katherine S. to connect with fellow parents.


www.albinism.org/NOAH-Connections/#pwp

Posted: June 1st, 2021


Thursday: Adult Connections

June 3rd at 9:00pm ET // 6:00pm PT

Adult PWAs, we hope to see you this Thursday for our next session of NOAH Connections!

New to Adult Connections? Join today for the invite to this call and future opportunities to connect:

www.albinism.org/NOAH-Connections/#adults

Posted: June 1st, 2021


Friday: Parent Connections

June 4th at 1:00pm ET // 10:00am PT

Parents of young children, we can’t wait to see you for our next Parent Connections call! Join Sheila Adamo to ask questions, share stories, and learn about adapting to the new role of a parent of a child with albinism.

Enroll in Parent Connections Today!
www.albinism.org/parent-connections

Posted: June 1st, 2021


Sunday: Parent Connections

June 6th

Grades K-5 at 2pm ET // 11am PT

​​​​​​​Tweens/Teens at 3pm ET // 1pm PT 

NOAH Kids & Teens, join Jocelyn this Sunday for an afternoon of fun activities that promote the practice of mindfulness. We’ll learn grounding exercises, make our own stress balls, and more!


www.albinism.org/NOAH-Connections

Posted: June 1st, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, June 10th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, June 13th:

NOAH Connections: Canadian PWAs

Monday, June 14th:

Parent Connections: To Whom Much is Given, Much is Required

Wednesday, June 16th:

NOAH Connections: PWA Book Club

Tuesday, June 22nd:

NOAH Connections: Aging with Albinism

NOAH Connections: PWAs in the Legal Profession

Thursday, June 24th:

NOAH Connections: Teens

NOAH Connections: Young Adults

Wednesday, June 30th:

NOAH Connections: Preschool

Posted: June 1st, 2021


Register for Camp Today!

The moment we’ve been waiting for is finally here….registration is now open for NOAH Family Summer Camp 2021! 

Will we see YOU there? 

Register today! www.albinism.org/nh-camp

PS – have questions about camp? Join us for Family Camp Coffee Chat for more info.

Posted: May 24th, 2021


One Week Left to Apply for NOAH Mentorship Program

The NOAH Mentorship Program seeks to connect young adult PWAs with older community members with shared interests. This near-peer mentorship program will pair participants over a year-long term.


Learn more and sign up now! www.albinism.org/mentorship

Posted: May 24th, 2021


NOAH Night Updates!

Get Your NOAH Night Tickets Today!!

NOAH Night is just around the corner, and we can’t wait to celebrate the albinism                   community with our hosts Marleena & Casey  (and special guest Rupert!).


Check out our NOAH Night plans and get YOUR tickets now: www.albinism.org/NOAHNight

Posted: May 24th, 2021


Introducing! NOAH Virtual Choir 2021 Ft. RobenX


Don’t miss YOUR chance to be part of the NOAH Has Talent! Showcase alongside this talented group! Send in a video featuring your talent or unique skill by this Friday, May 28th. 


Learn more & submit your talent:
www.albinism.org/NOAHNight/

Posted: May 24th, 2021


Want to see YOUR name in lights?


There’s still time to sponsor NOAH Night! Join our NOAH Night sponsors, Gatherly & Ocutech, in supporting this celebration of the albinism community, and YOU could be featured throughout this exciting event.


www.albinism.org/NOAHNight/

Posted: May 24th, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Wednesday: Preschool Connections

May 26th at 12:00pm ET // 9:00am PT

Preschoolers, You’re Next! 


Miss Kathi can’t wait to see your smiling faces for Preschool Connections next Wednesday, May 26th at 12pm ET. We’ll read “My No, No, No Day!” and share about hard days and the ways we can make them better.


www.albinism.org/NOAH-Connections/#preschool

Posted: May 24th, 2021


Wednesday: Makeup Basics for PWAs

May 26th at 8:30pm ET // 5:30pm PT

Calling all PWAs ages 12-25! Interested in makeup but not sure where to start? Join Mashall and Mackenzie as they discuss makeup basics and share their personal tips & tricks for PWAs!


www.albinism.org/NOAH-Connections/#makeup

Posted: May 24th, 2021


Thursday: Teen Connections

May 27th at 8:00pm ET // 5:00pm PT

Teens, join Gabriella & Yasmine Straker for our next session of Teen Connections to discuss advocating for yourself at school. Whether you have suggestions to share, or would like some new tips & tricks, you won’t want to miss out on this chance to connect!

www.albinism.org/NOAH-Connections/#teens

Posted: May 24th, 2021


Thursday: Young Adult Connections

May 27th at 9:15pm ET // 6:15pm PT

Young adults, we hope to see you this Thursday for our next session of NOAH Connections!

New to Young Adult Connections? Join today for the invite to this call and future opportunities to connect:

www.albinism.org/NOAH-Connections/#young-adults

Posted: May 24th, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Tuesday, June 1st:

NOAH Connections: All About Guide Dogs

Wednesday, June 2nd:

NOAH Connections: Family Camp Coffee Chat

NOAH Connections: Parenting without Pigment

Thursday, June 3rd:

NOAH Connections: Adults

Saturday, June 6th:

NOAH Connections: Conversations with Jocelyn – Mindfulness

Grades K-5 ~ Tweens & Teens

Thursday, June 10th:

NOAH Connections:

Posted: May 24th, 2021


Family Camp Registration Opening Soon!

Get ready to slide into summer with NOAH Family Camp! 


Camp registration is opening soon and we can’t contain our excitement! In just a few short months, we’ll be sliding on the big slip-and-slide with our NOAH friends. Will we see you there?!


www.albinism.org/nh-camp

Posted: May 17th, 2021


Help Us Spread the Word!


Exciting NOAH Night Sponsorship opportunities are available, and we need your help finding sponsors! Do you know someone who would be eager to celebrate and support the albinism community? Make sure they don’t miss out!


www.albinism.org/NOAHNight/

Posted: May 17th, 2021


Posted: May 17th, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: Aging with Albinism – Your Albinism Adventure

May 18th at 4:30pm ET // 1:30pm PT

Join host June Waugh this Tuesday to share your story of the impact albinism has had in your life, how it shaped your decisions, and influenced who you are today.


www.albinism.org/NOAH-Connections/#aging

Posted: May 17th, 2021


Wednesday: Canadian Parents Connections

May 19th at 8:00pm ET // 5:00pm PT

Canadian Parents, we can’t wait to see you this Wednesday at 8pm ET!  Led by Katie B. and Emily U., we’ll connect with other parents of kids with albinism of all ages across the country for an open discussion.


www.albinism.org/NOAH-Connections/#canadian-parents

Posted: May 17th, 2021


Wednesday: PWAs in STEM

May 19th at 9:00pm ET // 6:00pm PT

Calling All PWAs in the STEM Fields! 


You’re invited to a social gathering just for PWAs in STEM! Join Sarah and Derek this Wednesday to connect with others in the field.


Sign up now! www.albinism.org/NOAH-Connections/#STEM

Posted: May 17th, 2021


Thursday: Adult Connections

May 20th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections, hosted by Casey Greer! Log on at 9pm ET // 6pm PT on Thursday, May 20th for social time with fellow adults with albinism!


www.albinism.org/NOAH-Connections/#adults

Posted: May 17th, 2021


Thursday: Parent Connections – Fathers Only

May 20th at 9:00pm ET // 6:00pm PT

Dads, You’re Up Next! 


We hope to see you this Thursday at 9pm ET // 8pm CT for a Parent Connections call just for fathers. This is a great chance to connect with other dads of kids with albinism. Fathers with children of all ages are welcome!


www.albinism.org/parent-connections

Posted: May 17th, 2021


Sunday: Book Reading & Chat with RobenX

May 23rd at 2:00pm ET // 11:00am PT

We are so excited to have author RobenX join us this Sunday to read and chat about his book, “The Colors of Olleh”.  All community members are welcome to join us for this special session of NOAH Connections.


www.albinism.org/NOAH-Connections/#RobenX

Posted: May 17th, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Wednesday, May 26th

NOAH Connections: Preschool

NOAH Connections: Make-Up Basics for PWAs

Thursday, May 27th

NOAH Connections: Teens

NOAH Connections: Young Adults

Tuesday, June 1st:

NOAH Connections: All About Guide Dogs

Thursday, June 3rd:

NOAH Connections: Adults

Saturday, June 6th:

NOAH Connections: Conversations with Jocelyn – Mindfulness

Grades K-5 ~ Tweens & Teens

Thursday, June 10th:

NOAH Connections: Teens

Posted: May 17th, 2021


Announcing! Adult Weekend 2021


We are thrilled to announce that Adult Weekend 2021 will be held in Memphis, TN! Adults with albinism, save the date and clear your schedules for October 1-3, 2021. We can’t wait to see you there!


www.albinism.org/adult-weekend

Posted: May 10th, 2021


NOAH Night Talent Search!


Calling all PWAs! Do you have a noteworthy talent that makes YOU uniquely you? Share your skills in our talent showcase, NOAH Has Talent!, during our NOAH Night celebration.


Learn more & submit YOUR talent today (submissions due May 19th): www.albinism.org/NOAHNight/#talent

Posted: May 10th, 2021


NOAH Research Program

With your support, NOAH will become a leading voice in albinism research through the work of its self-sustained Research Program to support and enhance quality of life for PWAs of all ages.

Learn more: www.albinism.org/research

Posted: May 10th, 2021


Spring for NOAH 

Shout out to our #SpringForNOAH teams who are off and running, walking, biking, stitching and more! 

How will YOU use YOUR passion and skills to raise awareness and funds with your community? 

Sign up today to join in the fun! www.albinism.org/fundraisers

Posted: May 10th, 2021


Don’t Miss Out!!

Do you want a commemorative finisher t-shirt from NOAH’s Inaugural SPF 3K-5K-10K? Don’t wait – sign up today! 

Register by May 16th and select “Entry with Shirt” or “SPF Super Supporter with Shirt” to get your very own, stylish SPF race shirt!

Don’t miss out! Sign up today: www.albinism.org/spf​​​​​​​

Posted: May 10th, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Monday: Grandparent Connections – Grandparenting a Child with Albinism

May 10th at 8:30pm ET // 5:30pm PT

Do you have a special Grandma, Grandpa, Papa, Nana or other grandparent in your life?

Let them know about our next Grandparent Connections call,  tonight at 8:30pm ET!

Grandparents, enroll now!

albinism.org/grandparentconnections

Posted: May 10th, 2021


Tuesday: Coffee Chat

May 11th at 8:00pm ET // 5:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

https://www.albinism.org/noah-connections/#coffee

Posted: May 10th, 2021


Thursday: Teen Connections

May 13th at 8:00pm ET // 5:00pm PT

Teens, you’re invited to our next Teen Connections call, this Thursday at 8pm ET. 

New to Teen Connections? Sign up today and you’ll be invited to future virtual gatherings too!

www.albinism.org/NOAH-Connections/#teens

Posted: May 10th, 2021


Thursday: Parent Connections – Mothers Only

May 13th at 9:00pm ET // 6:00pm PT

Mom, it’s your turn!

Join us for our next Parent Connections call, Mothers Only, this Thursday at 9pm ET, to connect with fellow moms of PWAs! Moms with children of all ages are welcome to join.

Not a member? Enroll in Parent Connections today! www.albinism.org/parent-connections

Posted: May 10th, 2021


Thursday: Young Adult Connections

May 13th at 9:15pm ET // 6:15pm PT

Young adults, we can’t wait to see you this Thursday!

New to Young Adult Connections? Sign up today and you’ll be invited to future virtual gatherings too!

www.albinism.org/NOAH-Connections/#young-adults

Posted: May 10th, 2021


Sunday: Kids’ PWA Book Club

May 16th at 3:00pm ET // 12:00pm PT

Book club kids, finish up reading “A Blind Guide to Normal” and get ready to join Kathi & Beth for a discussion this Sunday at 3:00pm ET // 12:00pm PT. We can’t wait to hear what you thought of the book!

www.albinism.org/NOAH-Connections/#book-club

Posted: May 10th, 2021


Sunday: Canadian Adult PWA Connections

May 16th at 4:00pm ET // 1:00pm PT

Calling All Canadian PWAs!

Join host Shelly Francis for social time with fellow Canadian adults with albinism this Sunday, May 16th at 4pm ET / 1pm PT.

www.albinism.org/NOAH-Connections/#canadian-pwas

Posted: May 10th, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Tuesday, May 18th

NOAH Connections: Aging with Albinism

Wednesday, May 19th 

NOAH Connections: Canadian Parents

NOAH Connections: PWAs in STEM

Thursday, May 20th 

Parent Connections: Fathers Only

Posted: May 10th, 2021


Announcing the NOAH Research Program!

With your support, NOAH will become a leading voice in albinism research through the work of its self-sustained Research Program to support and enhance quality of life for PWAs of all ages.

Learn more: www.albinism.org/research

Posted: May 3rd, 2021


Announcing the NOAH Mentorship Program!

​​​​​​​

An initiative of the Junior Advisory Council, the NOAH Mentorship Program seeks to connect young adult PWAs with older members of the community who share their interests. This near-peer mentorship program will pair high school students, college/trade students, and recent graduates in the workforce for a year-long term.

Learn more and sign up today! www.albinism.org/mentorship

Posted: May 3rd, 2021


New Date for NOAH Night!

We’re so excited for International Albinism Awareness Day that we’re starting the party early! Join us on Saturday, June 12th for NOAH Night: A Cause for Celebration. You won’t want to miss this virtual celebration of the albinism community – the perfect blend of fellowship, albinism awareness, and FUNdraising!

For more details including sponsorship opportunities  www.albinism.org/NOAHNight

Posted: May 3rd, 2021


The Colors of Olleh

We are so excited to have author RobenX join us Sunday, May 23rd at 2pm ET to read and chat about his book, “The Colors of Olleh”.  All community members are welcome to join us for this special session of NOAH Connections.

www.albinism.org/NOAH-Connections/#RobenX

Posted: May 3rd, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: PWAs in the Legal Profession

May 4th at 8:30pm ET // 5:30pm PT

Law students, lawyers, judges, and paralegals – we can’t wait to see you for social time this Tuesday!

New to PWAs in the Legal Profession? Sign up now and you’ll be invited to future gatherings too! www.albinism.org/NOAH-Connections/#legal

Posted: May 3rd, 2021


Wednesday: PWA Book Club

May 5th at 9:00pm ET // 6:00pm PT

Book club members, finish up reading “The Dog Stars” by Peter Heller, and get ready to discuss on Wednesday!

www.albinism.org/NOAH-Connections/#pwa-book-club

Posted: May 3rd, 2021


Thursday: Adult Connections

May 6th at 9:00pm ET // 6:00pm PT

Adults, we can’t wait to see you this Thursday for our next session of Adult Connections. 

New to Adult Connections? Sign up today and you’ll get reminders for future sessions of Adult Connections: www.albinism.org/NOAH-Connections/#adults

Posted: May 3rd, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Tuesday, May 11th

NOAH Connections: Coffee Chat

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Parent Connections: Mothers Only 

Sunday, May 16th

NOAH Connections: Kids’ PWA Book Club

Tuesday, May 18th

NOAH Connections: Aging with Albinism

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Thursday, May 20th 

Parent Connections: Fathers Only

Friday, May 21st

NOAH Workshop Fundraiser: Opinion Writing Workshop with Hana Schank

Sunday, May 23rd

NOAH Connections: Book Reading & Chat with RobenX – The Colors of Olleh

Thursday, May 27th

NOAH Connections: Teens

NOAH Connections: Young Adults

Posted: May 3rd, 2021


Thank You, Volunteers!

This past week was National Volunteer Week, and NOAH took to social media to thank its many, wonderful volunteers. The volunteers pictured represent only a fraction of the many individuals who share their time, energy, talents, and more with NOAH. 

Thank you to each and every one of our volunteers!

Posted: April 28th, 2021


NOAH Camp: Save the Dates!

​​​​​​​We are planning to hold NOAH Family Summer Camp in-person from July 31-August 4, 2021, and we can’t wait to see you there! 

More details will be available in mid-May.

www.albinism.org/nh-camp

Posted: April 28th, 2021


Less Than One Week Left to Apply!

Applications for the McGowan Leadership Scholarship are due May 1st, which means there’s less than one week left to apply.

Do you know a young leader with albinism? Remind them to finish up their application!

www.albinism.org/leadership

Posted: April 28th, 2021


FYI: A.S.P.E.C.T. Program

​​​​​​​The Prevent Blindness A.S.P.E.C.T. Program aims to empower individuals to be engaged in their eye health. NOAH community member Brandi Green participated last year, and encourages interested community members to apply. 

Learn more and apply by May 28th:

https://bit.ly/3era4hK

Posted: April 28th, 2021


  • Check out this article about Paralympic bronze medal sprinter, Kym Crosby, and how running track increased her confidence.https://go.teamusa.org/2QS4r4e
  • ReBokeh, created for low vision users by founder and PWA, Rebecca Rosenberg, needs your help to create the next generation of vision assistive technology for people with low vision! ReBokeh is seeking engaged beta testers of all ages, genders, and races to try out their app and provide critical feedback that will shape the future of the technology. 

    Sign up through their online form to receive free, pre-release access to the ReBokeh mobile app assistive technology system: https://bit.ly/3gAtzad

Posted: April 28th, 2021


NOAH Events this week

Check out the great opportunities to connect this week!

Monday: Parents that have Adopted Children with Albinism

April 26th at 9:00pm ET // 6:00pm PT

Parents that have adopted children with albinism – join Martha Bonneau today at 9pm ET to hear about her journey as an adoptive mother of two children, one PWA, and connect with fellow parents in an open discussion. 

Enroll in Parent Connections Today!
www.albinism.org/parent-connections

Posted: April 28th, 2021


Wednesday: Preschool Connections

April 28th at 12:00pm ET // 9:00am PT

Preschoolers, you’re invited to a fun, Earth Day-Themed Activity with Kathi Garza on Wednesday, April 28th at 12pm ET! 

Grown-ups, check out the craft supply list and register your preschooler now: www.albinism.org/NOAH-Connections/#preschool

Posted: April 28th, 2021

Wednesday: PWAs in STEM

April 28th at 8:30pm ET // 5:30pm PT

You’re invited to a social gathering just for PWAs in STEM! Join Sarah Kane and Derek Schindelman this Wednesday to connect with others in the field.


Sign up now! www.albinism.org/NOAH-Connections/#STEM

Posted: April 28th, 2021


Thursday: Teen Connections

April 29th at 8:00pm ET // 5:00pm PT

NOAH Teens, you’re invited to our next Teen Connections call! We will be saying farewell to Aidan on his last call as our host and thanking him for facilitating many great get-togethers.


https://www.albinism.org/noah-connections/#teens ​​​​​​​

Posted: April 28th, 2021


Thursday: Young Adult Connections

April 29th at 9:15pm ET // 6:15pm PT

Young Adults, join us for our next session to say farewell to Aidan on his last call as our host, and thank him for hosting many of our recent gatherings!

https://www.albinism.org/noah-connections/#young-adults

Posted: April 28th, 2021


Sunday: Conversations with Jocelyn – Coping with Feelings

May 2nd

NOAH Kids & Teens – how do you deal with not-so-great feelings that might come from visual challenges, bullying, and more? Join Jocelyn and your NOAH friends on Sunday, May 2nd to discuss and learn healthy ways to cope.


K-5 at 1:30pm ET // 10:30am PT


6-8 at 2:15pm ET // 11:15am PT


Teens at 3:00pm ET // 12:00pm PT

Posted: April 28th, 2021


Sunday: The Beauty of Inclusion

May 2nd at 4:00pm ET // 1:00pm PT

Watch The Beauty of Inclusion with Thando Hopa at https://youtu.be/_q-aP_Ru4w8, then join Dr. Niya Pickett Miller this Sunday for a cultivated conversation open to all NOAH community members.

www.albinism.org/NOAH-Connections/#thando-hopa

Posted: April 28th, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:​​​​​​​

Tuesday, May 4th

NOAH Connections: PWAs in the Legal Profession

Wednesday, May 5th

NOAH Connections: PWA Book Club

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Tuesday, May 11th

NOAH Connections: Coffee Chat

Thursday, May 13th

NOAH Connections:

Posted: April 28th, 2021



Spread the Word!

We’re looking for our next Executive Director, and we need your help to share the job listing with your networks. 


Letter of interest and resumé due by Wednesday, April 21st!


For more information, visit: www.albinism.org/ed-search

Posted: April 19th, 2021


You’re Invited to NOAH’s  Inaugural SPF 3K-5K-10K!


NOAH member & board member, Kris Baker, will be running for NOAH’s Inaugural SPF 3K-5K-10K, and she wants YOU to join her! Check out her video message at https://fb.watch/4XedlZQjYC/.


Register today: www.albinism.org/spf

Posted: April 19th, 2021


NOAH needs YOU!


Help NOAH keep virtual programming fresh and relevant – apply to join the NOAH Connections Advisory Committee. 

Learn more or apply today: www.albinism.org/NOAH-Connections/advisory

Posted: April 19th, 2021


McGowan Leadership Scholarship – Where are they now?

We caught up with Trisha Laughlin, Silpa Tadavarthy, and Joe Adamo to see what they’ve been up to since receiving the McGowan Leadership Scholarship Award.

Check out their stories and apply for the McGowan Leadership Scholarship today. Applications due May 1st!

​​​​​​​

www.albinism.org/leadership

Posted: April 19th, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

McGowan Leadership Scholarship – Where are they now?

We caught up with Trisha Laughlin, Silpa Tadavarthy, and Joe Adamo to see what they’ve been up to since receiving the McGowan Leadership Scholarship Award.

Check out their stories and apply for the McGowan Leadership Scholarship today. Applications due May 1st!

​​​​​​​

www.albinism.org/leadership

Posted: April 19th, 2021


Thursday: Adult Connections 

April 22nd at 9:00pm ET // 6:00pm PT

Adult PWAs, join host Anne Harris this Thursday for social time to discuss life hacks and tips/tricks for low vision! 

​​​​​​​

New to NOAH Connections? Sign up now for the link to this call and you’ll also be invited to future opportunities to connect! 

www.albinism.org/NOAH-Connections/#adults

Posted: April 19th, 2021


Sunday: BIPOC Connections

April 25th at 4:00pm ET // 1:00pm PT

Adults with albinism who identify as Black, Indigenous, People of Color (BIPOC), join host Silpa Tadavarthy for our next session of BIPOC Connections this Sunday. 

www.albinism.org/NOAH-Connections/#bipoc

Posted: April 19th, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Tuesday, April 28th

NOAH Connections: PWAs in the STEM Fields

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, May 2nd

NOAH Connections: Thando Hopa: The Beauty of Inclusion

NOAH Connections: Coping with Feelings

Grades K-5 ~ Grades 6-8 ~ Teens

Tuesday, May 4th

NOAH Connections: PWAs in the Legal Profession

Wednesday, May 5th

NOAH Connections: PWA Book Club

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Parent Connections: Mothers Only 

Sunday, May 16th

NOAH Connections: Kids’ PWA Book Club

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Thursday, May 20th 

Parent Connections: Fathers Only

Friday, May 21st

NOAH Workshop Fundraiser: Opinion Writing Workshop with Hana Schank

Posted: April 19th, 2021


Spring for NOAH
Shout Out!

Shout out to our first Spring for NOAH teams who are off and running, walking, biking, hiking ,etc. How will YOU use YOUR passion and skills to raise awareness and funds with your community? Sign up today to join in the fun! www.albinism.org/fundraisers

Posted: April 14th, 2021


We need YOU for the NOAH Night Committee!

NOAH has many exciting ideas for the NOAH Night celebration on IAAD, but we need your help to make our dreams a reality! Apply to join the NOAH Night Committee for the chance to be involved with this fun celebration of the albinism community that will bring PWAs and their loved ones together while raising much-needed funds and awareness.

Apply today: www.albinism.org/NOAHNight

Posted: April 14th, 2021


Support New Parents!

Purchase an item from NOAH’s New Parent Program Wish List today to help welcome parents of newly-diagnosed or newly-adopted kids into our NOAH family!

https://amzn.to/31OHa5u

Posted: April 14th, 2021


The Beauty of Inclusion

Watch The Beauty of Inclusion with Thando Hopa at https://youtu.be/_q-aP_Ru4w8, then join Dr. Niya Pickett Miller on May 2nd at 4pm ET for a cultivated conversation to unpack and discuss.

www.albinism.org/NOAH-Connections/#thando-hopa

Posted: April 14th, 2021


  • Shoutout to former Board Chair, Pam McGonigle, who was recently featured in USABA’s “45-for-45” series: https://fb.watch/4Jx6R2s9Q6/
  • Congratulations to community member and long-time teacher, Erika Evans, who was recently named as the recipient of the 2021 Alma J. Washington Educator of the Year award: https://bit.ly/2PLRatT

Posted: April 14th, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Wednesday: Could Adults with Albinism Miss HPS?

April 14th at 8:30pm ET // 5:30pm PT

Adult PWAs, don’t miss this informative session about Hermansky-Pudlak Syndrome (HPS) presented by Donna Appell. Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being.

www.albinism.org/NOAH-Connections/#HPS

Posted: April 14th, 2021


Thursday: Teen Connections 

April 15th at 8:00pm ET // 5:00pm PT

Teens, join host Aidan O’Connor for social time with fellow teens with albinism.

www.albinism.org/NOAH-Connections/#teens-4-15

Posted: April 14th, 2021


Sunday: NOAH Kids’ PWA Book Club

April 18th at 3:00pm ET // 12:00pm PT

Join Kathi Garza and Beth Vrabel for NOAH Kids’ PWA Book Club, this Sunday as they introduce our next book choice, “A Blind Guide to Normal” by Beth Vrabel. 

Not a member? Register today! 


www.albinism.org/NOAH-Connections/#book-club


Executive Director Search Update

NOAH has launched a search for our next Executive Director, and we need your help to share info about the position with your network. Read an update from Pam McGonigle (Chair, Executive Director Search Committee) at www.albinism.org/ed-search

Posted: April 5th, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Tuesday, April 20th

NOAH Connections: Aging with Albinism

Thursday, April 22nd

NOAH Connections: Adults

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, May 2nd

NOAH Connections: Thando Hopa: The Beauty of Inclusion

Tuesday, May 4th

NOAH Connections: PWAs in the Legal Profession

Wednesday, May 5th

NOAH Connections: PWA Book Club

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Parent Connections: Mothers Only 

Sunday, May 16th

NOAH Connections: Kids’ PWA Book Club

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Thursday, May 20th 

Parent Connections: Fathers Only

Friday, May 21st

NOAH Workshop Fundraiser: Opinion Writing Workshop with Hana Schank

Posted: April 14th, 2021


We Need YOU for the NOAH Night Committee!

NOAH has many exciting ideas for the NOAH Night celebration on IAAD, but we need your help to make our dreams a reality! Apply to join the NOAH Night Committee for the chance to be involved with this fun celebration of the albinism community that will bring PWAs and their loved ones together while raising much-needed funds and awareness.

Apply today: www.albinism.org/NOAHNight

Posted: April 5th, 2021


There’s Still Time to Register for NOAH Virtual Choir!

Emails have been sent to registered choir participants with a link to practice materials. 

If you are interested in being part of this exciting project, get a jump-start on learning your music and register today!

www.albinism.org/choir

Posted: April 5th, 2021


1 Month Left to Apply!

PWAs in the US or Canada enrolled in an undergraduate program, don’t miss your chance to apply for the 2021 McGowan Leadership Scholarship Award! 

Learn more and apply by May 1st at: www.albinism.org/leadership

Posted: April 5th, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: PWAs in the Legal Profession

April 6th at 8:30pm ET // 5:30pm PT

Law students, lawyers, paralegals, and judges with albinism – you’re invited to a gathering just for PWAs in the legal profession! 

www.albinism.org/NOAH-Connections/#legal

Posted: April 5th, 2021


Thursday: Adult Connections 

April 8th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections hosted by Kathi Garza! We hope to see you on Zoom for social time with fellow PWAs. 

www.albinism.org/NOAH-Connections/#adults-4-8

Posted: April 5th, 2021


Friday: Parent Connections – What You Need to Know About HPS

April 9th at 3:00pm ET // 12:00pm PT

Parents – Wondering About HPS?

Join Donna Appell, RN this Friday for a safe & supportive session about Hermansky-Pudlak Syndrome (HPS). NOAH encourages HPS screening for all PWAs and this call will lead you in the right direction. 

Enroll in Parent Connections today: www.albinism.org/parent-connections

Posted: April 5th, 2021


Sunday: Albinism & Performing Arts

April 11th at 4:00pm ET // 1:00pm PT

Join Marleena B., Caroline V., & Casey G. on Sunday to discuss albinism and the performing arts.

All are welcome to join to hear their stories, ask questions, and connect. 


www.albinism.org/NOAH-Connections/#performing-arts

Posted: April 5th, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:


Wednesday, April 14th

NOAH Connections: Could Adults with Albinism Miss HPS?

Thursday, April 15th

NOAH Connections: Teens

NOAH Connections: Young Adults

Sunday, April 18th

NOAH Connections: NOAH Kids’ PWA Book Club

Tuesday, April 20th

NOAH Connections: Aging with Albinism

Monday, April 26th 

Parent Connections: Parents that have Adopted Children with Albinism

Thursday, April 29th

NOAH Connections: Teens

NOAH Connections: Young Adults

Thursday, May 6th

Parent Connections: Mothers Only 

Monday, May 10th

Grandparent Connections: Grandparenting a Child with Albinism

Thursday, May 13th

NOAH Connections: Teens

NOAH Connections: Young Adults

Wednesday, May 19th 

NOAH Connections: Canadian Parents

Posted: April 5th, 2021

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