NOAH News Today


Giving Tuesday Double Match!

NOAH has the opportunity for a double match on Giving Tuesday, but we need your help! NOAH’s Board of Directors has pledged to match the first $4,000 in donations made to NOAH on Giving Tuesday. That’s a guaranteed extra $4,000 for NOAH if we can reach our goal of $4,000 in Giving Tuesday gifts.

Additionally, donations made via Facebook beginning at 8:00am ET on 12/1/20 will be eligible for a share of the highly-competitive $7 million Facebook match. The first $2 million in matching funds will be a dollar for dollar match, and the remaining $5 million in matching funds will match at 10%. Can we count on you to help NOAH this Giving Tuesday? 

GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world.​​​​​​​

Posted: November 30th, 2020


Shop for NOAH this Cyber Monday!

Make sure to start at as you fill your Amazon cart with Cyber Monday deals today! When you select NOAH as your designated charity on AmazonSmile, you shop and Amazon gives…it’s really that easy! 

To select NOAH as your charity visit:

Posted: November 30th, 2020

Thank YOU for Joining Us for “Thank You for the Music”

Thank you to everyone who participated in this weekend’s “Thank You for the Music” 10-year anniversary benefit showing. We hope that you were as inspired as we were by the incredible, talented Marleena Barber who so graciously shared this gift with our community. We are thrilled to report that the benefit raised over $2,700 for NOAH!

Posted: November 30th, 2020

Did Someone Say Cookies?

​​​​​​​Cookies with Kathi is just around the corner and we can’t wait! This holiday cookie decorating class fundraiser is the perfect holiday activity for NOAH community members of all ages.

Tickets start at just $10, and all registered attendees will get access to a supply list, Kathi’s sugar cookie recipe, and Kathi’s flood icing recipe. Follow the instructions to bake your cookies and prepare your icing before December 6th, then tune in for a live cookie decorating class (2pm ET for families, 4pm ET for adults with albinism)!

Looking for step-by-step instruction in the kitchen? For just $20, Deluxe Cookies with Kathi ticket holders are given special access to video instruction by Kathi, which will remain available until December 31st for anyone who would like to use Kathi’s fantastic techniques and recipes for holiday baking! 

You won’t want to miss this fun class! Get your tickets today at:

Posted: November 30th, 2020


NOAH T-Shirt Fundraiser

Support NOAH in style and bid farewell to 2020  with this “Turns out 2020 wasn’t all it was cracked up to be.” t-shirt fundraiser! Featuring an image of foggy, cracked glasses and mask, it’s available in multiple colors and styles!

Order yours today and support NOAH at

Posted: November 30th, 2020

NOAH Connections update


NOAH Connections Coffee Chat!

Wednesday, December 2nd at 12:00 pm ET

A recent addition to our Adult NOAH Connections offerings, Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. You’re invited to join us to share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

Sign Up for Coffee Chat Today

Posted: November 30th, 2020


Parenting without Pigment!

Friday, December 4th at 9:00 pm ET

Calling all parents with albinism! Join together with other parents without pigment on Zoom to socialize and share ideas or requests for future programming.

Sign up for Parenting without Pigment NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Parenting without Pigment NOAH Connections!

November 30th, 2020


BIPOC NOAH Connections!

Saturday, December 12th at 5:00 pm ET

The latest addition to our NOAH Connections offerings! This gathering is intended for adults with albinism who identify as Black, Indigenous, Person of Color (BIPOC). This will be a social gathering with the invitation to share ideas or requests for future programming.

This gathering will take place on Zoom.

Sign up for BIPOC NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join BIPOC NOAH Connections!

Posted: November 30th, 2020

Upcoming Opportunities to Connect

In addition to the new calls highlighted above, NOAH Connections offers many opportunities to connect with our community in the coming weeks. We hope to see your smiling face on Zoom for one of our upcoming meet-ups!

Wednesday, December 2nd ~ Coffee Chat
Thursday, December 3rd ~ Teens
Thursday, December 3rd ~ Young Adults
Friday, December 4th ~ Parenting without Pigment
Saturday, December 12th ~ BIPOC

Check out the full NOAH Connections schedule at

Posted: November 30th, 2020


Get Your Tickets Today for “Thank You for the Music!”

You won’t want to miss this special 10-year anniversary showing of “Thank You for the Music,” Marleena Barber’s one-woman cabaret about growing up with albinism and how music played a vital role in her journey to self-acceptance. A wonderful, inspiring addition to your holiday season, we are thankful for the opportunity to share this performance as a benefit for NOAH.

Single device access for this inspiring show begins at just $15.00, with available ticket packages including an invitation to a live artist Q&A, digital music downloads, signed performance CDs, and commemorative posters! 

Get your tickets today!

Posted: November 17th, 2020


NOAH Choir Now on iTunes & Amazon Music!

We are excited to announce that the NOAH Virtual Choir performance of “You Will Be Found” is now available for digital download on Apple iTunes and Amazon Music! Download your copy today! 

Amazon Music Download


Search “NOAH Virtual Choir” on iTunes

Posted: November 17th, 2020


It’s Not Too Late to Join NOAH Connections!

Have you joined us for a NOAH Connections virtual get-together? Whether you’re brand new to our community or have been involved for many years, NOAH Connections is a great way to connect with others!

We hope to see your smiling face on one of many upcoming NOAH Connections video calls:

 – Preschool ~ Thursday, November 19th

 – Teens ~ Thursday, November 19th

 – Young Adults ~ Thursday, November 19th

 – Adult Paint Night  ~ Friday, November 20th

 – Teen Paint Night ~ Tuesday, November 24th

Sign up today to receive call information for upcoming virtual meet-ups and we will automatically subscribe you to email updates for future opportunities to connect! 


Posted: November 17th, 2020


Employer Matching

Did you know that 78% of match-eligible donors have no idea whether their employer offers a matching gift program? And only 7% of donors at companies with matching gift programs actually submit a match request! Does your employer match charitable contributions? Would you be willing to spend a few minutes to find out? Employer gift matching is a great way to increase your support of NOAH!

Posted: November 17th, 2020

Other News

Natalie Devora Writes About Being Black With Albinism

Last week, San Francisco Public Radio, KALW interviewed community member Natalie Devora about her memoir “Black Girl, White Skin: A Life in Stories”.

Check it out: ​​​​​​​
Natalie Devora Writes About Being Black with Albinism

Posted: November 17th, 2020


Paralympic gold medalist takes new role at Overbrook School for the Blind

Former NOAH Board Chair, Pam McGonigle, was recently featured in a news segment aired by ABC Philadelphia.

Check out the full story and video:

Paralympic gold medalist takes new role at Overbrook School for the Blind

Posted: November 17th, 2020


FYI – Access and Engagement Survey​​​​​​​

Family members, teachers of students with visual impairments, and O&M specialists are invited to participate in an important access and engagement survey examining the education of students with visual impairments during COVID-19. Take the survey by November 30th.

Access and Engagement Survey 2​​​​​​​

Posted: November 17th, 2020


Looking Back on NOAH’s Birthday

In recognition of 38 years of connection, education and empowerment, NOAH asked our community to consider giving a “birthday gift” of $38 for NOAH’s 38th. Thank you to our generous community members who gave NOAH 38 “birthday gifts” throughout the month of October! 

We are so grateful for the continued support of our community and look forward to celebrating many future birthdays together.

Would you like to give a belated “birthday gift?” You can do so at:!

Posted: November 3rd, 2020


Happy Halloween!

We know that Halloween may have been a bit different this year for most people, but we’re still excited to share our spooky fun with one another! Share your photos and experiences in the comments of our recent Facebook Post!

Posted: November 3rd, 2020


A Great Start to NOAH Connections!

On Sunday, we had our first NOAH Connections virtual meet-ups with Grades K-5 and 6-8. We had a wonderful time getting to know each other and connecting with new and old friends, and can’t wait to connect with more of our community in the next few weeks! 

We hope you’ll join us for one of many upcoming NOAH Connections video calls:

 – Preschool ~ coming soon!

 – Teens ~ November 5th

 – Young Adults ~ November 5th

 – Adults ~ November 6th & 20th

Sign up today to receive call information for upcoming virtual meet-ups and we will automatically subscribe you to email updates for future opportunities to connect! 


Posted: November 3rd, 2020


News You Can Use!

The Autumn issue of Albinism Insight contains information you can use in your daily life. 
– Apps That Help Low Vision Students Maximize Success
– Museums that offer remote teleconference tours for B/VI people
– Everyday technology that assists low vision drivers
– What happens after the IEP is signed?

Get your copy today at!

Posted: November 3rd, 2020

Other News


What if Everyone Had Albinism?

Standing out, comes part and parcel with having albinism. Ever wonder what the world would be like if everyone had albinism? Kelsey Thompson, former NOAH board chair, was interviewed for this LiveScience article addressing that very question! Check it out: 

What if Everyone Had Albinism?

Posted: November 3rd, 2020


Allendale Sisters Share a Powerful Message About Beauty

10 year old Ava Fullington is in the news and sharing a powerful message that is wise beyond her years: “You don’t have to look a certain way to be beautiful.”

Check out the full story:

Posted: November 3rd, 2020


Happy Birthday, NOAH!

We had so much fun getting to know you with the scavenger hunt and singing “happy birthday” to NOAH at our virtual birthday celebrations. Thanks to all who joined us to reconnect and celebrate NOAH’s 38th birthday this weekend!

In recognition of 38 years of connection, education and empowerment, NOAH is asking our community to help us reach our goal of 380 gifts by the end of October. Please consider giving $38 for NOAH’s 38th (or any amount that works for your situation). Your “birthday gift” makes it possible for NOAH to carry on the important work our founders started 38 years ago.

Will we make it to 380 gifts? Give today and follow our progress at!

Posted: October 21st, 2020


Introducing, NOAH Connections!

Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH is delighted to introduce NOAH Connections, an ongoing series of virtual opportunities to bring the community together. An essential part of NOAH’s mission is to “provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship.” With the participation and engagement of community members like you, NOAH Connections will provide this opportunity for virtual “face to face” connections.

We hope you’ll join us for one of many upcoming opportunities to connect!

 – Preschool ~ coming soon!

 – Grades K-5

 – Grades 6-8

 – Teens

 – Young Adults

 – Adults

Check out more information about upcoming virtual gatherings at:

Posted: October 21st, 2020


Calling All NOAH Dads!

NOAH Dads – Thursday’s Parent Connections call is JUST FOR YOU! 

Fathers of Children with Albinism, Thursday, October 22nd
9:00PM ET // 8:00PM CT // 7:00PM MT // 6:00PM PT

Dads of all ages are invited to join and to share the joys and challenges we experience as a father of a child with albinism. Join this group to ask questions or just listen to others on their journey to being the best dad they can be for our kids with albinism.

Not a member of Parent Connections? Sign-up now!

Posted: October 21st, 2020

Other News


Congratulations, Pam!

Join us in congratulating former NOAH Board Chair, Pam McGonigle, on her appointment as Director of Development and Communications for the Overbrook School for the Blind!

Posted: October 21st, 2020


FYI – Voting Blind: Promises, Challenges and Opportunities of the 2020 Voting Experience

Training Compliance Support Access is hosting a lively and informative moderated webinar discussing voting challenges, whether in person at a polling station or by absentee ballot, for the citizen who is blind or visually impaired.

The discussion will include two leading experts on the issue of accessible voting: Jim Dickson, former Vice President for Organizing and Civic Engagement of American Association of People with Disabilities (AAPD) and Clark Rachfal, ACB’s Director of Advocacy and Governmental Affairs and will be moderated by Harris Rosensweig, TCS Access’ Director, Accessibility with 30 years of experience working with persons who are blind around digital accessibility.  The conversation will focus on election related challenges surrounding COVID-19 for the blind and visually impaired as well as initiatives for accessible voting. ​​​​​​​

Register today:

Posted: October 21st, 2020

A Message to the NOAH Community

Dear NOAH Community,

I am deeply honored to have been asked to serve NOAH as your interim Executive Director during the search for a permanent Executive Director. The Board of Directors is currently formalizing the search process, which they anticipate will take approximately six months.

As we embark on this transition, I’d like to share a little about myself. Professionally, I have been working in community and organization development with a focus in education and the nonprofit sector for over twenty years. I’m connected to the albinism community through my three kids, who are students, athletes, musicians and artists but above all, they are “amazing great”. (We use the expression “amazing great” to celebrate our determination to do hard things, because when my oldest son was four, upon completion of a two-mile, largely unassisted, hike, he looked up at me and said, “Mom, I’m doing amazing great!”)

To me, NOAH’s vision of a world where people with albinism are empowered to be fully-functioning members of society, where barriers and the stigma of difference no longer exist, and where people with albinism have a quality of life that is rewarding, dignified and fulfilling is more than an organizational vision; it is deeply personal and something I work towards every day, both personally and professionally. Since my stories of NOAH Magic are too numerous to retell in such a short space, I decided that sharing my core values may provide a better understanding of who I am, as a person and as a leader. I’m a huge fan of Brené Brown’s work. In her book “Daring to Lead,” she speaks to the importance of core values, not just for the organization but personal core values. She defines a value as “a way of being or believing that we hold most important.” My core values are transparency and showing up.

I believe that transparency is clear, truthful communication. Showing up is simply doing what you say you are going to do. Brown further defines what it means to live into our values “…we do more than profess our values, we practice them. We walk our talk-we are clear about what we believe and hold important, and we take care that our intentions, words, thoughts, and behaviors align with those beliefs.”

Dear NOAH community, this is me walking my talk-showing up to support NOAH, with transparency, during a time of transition.

I look forward to working with you over the next six months. Please feel free to contact me at any time; my virtual office door is always open.



Let’s Talk About…Non-Verbal Communication

On Facebook, we recently asked about the strategies to use when unable to see a person’s facial expression or other non-verbal cues. Among the suggestions shared were tone of voice and listening carefully to avoid interrupting. Check out our Facebook Post to join in the conversation, and share your experiences, challenges, and suggestions.

Posted: October 5th, 2020


Celebrating our NOAH Athletes!

Last week was United States Association of Blind Athlete’s National Blind Sports Week, and many athletes in our community took this opportunity to share photos of themselves engaged in their favorite sports. Checkout these awesome athletes with albinism pictured, and tell us about your favorite sport on our recent Facebook post.

Posted: October 5th, 2020

Other News


Meet Legacy, from This is Me from A to Z!

This is ME from A to Z is a children’s alphabet picture book by Rachel Chardea that celebrates children with unique characteristics and abilities. One of the characters is Legacy, a child with albinism! Recently, Legacy took over the book’s social media accounts and shared information about albinism and NOAH. Check it out on This is ME from A to Z’s Facebook Page!

October 5th, 2020


FYI: Participants Needed for Research Study

Community member and Professor of Rehabilitation and Mental Health Counseling at The University of Iowa, Noel Estrada-Hernández, PhD, CRC, is conducting an anonymous research study to better understand the eye and vision problems of people with albinism, as well as its effect on social and psychological factors.

For more information or to take the survey visit:

Posted: October 5th, 2020


FYI: Participants Needed for American Foundation for the Blind Workplace Technology Study

The American Foundation for the Blind (AFB) is seeking sighted and visually impaired workers for focus groups to understand how people use technology in the workplace. AFB recognizes that “for job seekers who are visually impaired, there are often obstacles that impact their obtainment of employment and that once employed they may encounter barriers that make doing their job challenging.” Their Workplace Technology Study aims to “shed light on these challenges, and mitigate them” in the sectors of information technology and communications, telemedicine, and banking/finance.

For more information or to sign up, visit:

Posted: October 5th, 2020

NOAH Board Appoints New Interim Executive Director

NOAH Board Appoints Interim Executive Director

On Tuesday, September 22, 2020, the NOAH Board of Directors approved the appointment of Diana McCown as Interim Executive Director. Diana holds a M.Ed. in Human, Organization and Community Development from Vanderbilt University and brings diverse professional experience in both non-profit and for-profit organizations serving the low vision and blindness communities. She served eight years on the NOAH Board of Directors and is a parent of three children with albinism. Her appointment will allow NOAH to continue to fulfill its mission while the search committee completes the hiring process for a permanent Executive Director.

Posted: September, 25, 2020


Subscribe to Albinism InSight Today!

The Autumn issue of Albinism InSight, featuring the incredible members of the 2020 NOAH Virtual Choir on the cover, has recently been hitting mailboxes and inboxes. We are so excited to share this issue with the NOAH community!

Are you subscribed to NOAH’s quarterly magazine? Don’t miss out – subscribe to Albinism InSight today!

Posted: September, 21, 2020


Join us for PWA Book Club!

NOAH’s PWA Book Club fall selection is Song of Solomon by Toni Morrison. Now is the perfect time to join with other adults in the community in sharing your love of reading. Sign up today at! Our Zoom discussion will be in late October /early November.

Posted: September 21, 2020

What I Wish I Knew…

We recently asked adults in the NOAH community to share something they know now about living with albinism, that they wish they knew in their teens or 20s. Countless PWAs shared wonderful advice about self-confidence, asking for help when needed, embracing uniqueness, taking advantage of technology, and much more. Check out the many insightful responses or share your own thoughts on our Facebook post!

Posted: September 21, 2020


Calling All Teens!

Teens with Albinism, we want to hear your story! Inspire others by telling us about your thoughts, dreams, accomplishments, or concerns. Send your story to

Posted: September 21, 2020


And the Next PWA Activity Will Be…

Throwback to the Virtual Paint & Sip session at #VirtualNOAHCon2020! This awesome activity was a big success….can you recommend other activities to bring adults with albinism together? Share your ideas on our Facebook post!

Posted: September, 21, 2020

Back to School


Advice from Adults!

As kids are heading back to school, we asked adult PWAs to share their best back-to-school advice. Check out some great suggestions from the NOAH community or add your own advice on our Facebook post!

During back-to-school season, don’t miss our weekly #WelcomeBackWednesday posts to share back-to-school pics, tips, and much more!

Posted: September 9th

Thank you!

Let’s Celebrate NOAH Facebook Fundraisers!

Do Facebook fundraisers really make a difference? ABSOLUTELY! Since 2018, NOAH has received more than 2,000 donations totaling nearly $74,000 from fundraisers created by our followers! And because Facebook covers the processing fees, NOAH gets every penny donated. If you’d like to join NOAH’s Facebook fundraising team and celebrate a birthday or other special event by raising funds for NOAH, visit

Posted: September 9th, 2020

Other news!


Imagine That!

NOAH virtual choir director, Marleena Barber, and choir member, 12-year-old Coco J. were recently part of an exciting project creating a children’s album with award-winning Broadway, film, and television actress and singer Rena Strober. The album, Imagine That!, features the Sesame Street music of Joe Raposo & Jeff Moss, and was released on Friday, August 28th. To learn more about this project, visit the Imagine That! BandCamp Page.

Posted: September 9th, 2020



Have you heard about the Mexican film,
Asfixia, starring Johana Fragoso Blendl, an actress with albinism? The film will be streaming (with English subtitles) as part of the Hola Mexico Film Festival ​​​​​​​September 11-20.


Posted: September 9th, 2020


You’re Invited to the Low Vision Driving Workshop!

If you’re a person with low vision considering exploring the driving privilege or other alternate means of independent transportation, we hope you’ll join us for NOAH’s Virtual Workshop, Driving with Low Vision and Bioptics: Gearing Up or Down on Saturday, September 12th from 8:00 am – 5:00 pm ET! This jam-packed day-long workshop includes sessions addressing the clinical low vision exam, bioptic telescopes, pre-driver readiness; behind-the-wheel training and testing; transportation as a non-driver; gaining control of transportation needs; how a bioptic driving bill becomes law, and more! For more details or to register, visit:

ADED Contact Hours available.

Posted: August 24th, 2020

NOAH Virtual Choir

We are beyond excited to share the NOAH Virtual Choir’s amazing performance of the song “You Will Be Found” from the Broadway Musical Dear Evan Hansen. Coordinated by Marleena Barber, this video made its world premiere on July 12th, during the closing session of Virtual NOAHCon2020. Special thanks and congratulations to the participants!

Posted: August 24th, 2020

Summer Fun!

This summer has been different than expected, but people everywhere have found creative ways to enjoy time with friends and family!

In a recent social media post, NOAH asked adults with albinism to share what they’ve been doing for safe, socially distant, summer fun. It turns out, our community has been quite busy enjoying awesome and safe activities! Check out the fun outdoor and virtual activities that have been shared, and let us know what you’ve been up to this summer: Summer Fun Facebook Post

Posted: August 24th, 2020


Back to school season has begun and we can’t wait to see your pictures! We know our NOAH kids (and teachers!) are going to back to school at different times (and in different ways), so each Wednesday, we’ll be inviting our social media followers join in on the fun by sharing back to school pics. Do you have an awesome setup for virtual learning? An exciting first day of school outfit? Share your photos on our #WelcomeBackWednesday Post, or tag NOAH in your Instagram or Twitter post!

Posted: August 24th, 2020

‘Sharing Thoughts About Money’

Parents, we’re pleased to share the full manuscript of Dr. Anne Corn’s article, ‘Sharing Thoughts About Money’, of which an abbreviated version was printed in the Summer edition of Albinism InSight. In it, Dr. Corn explores various aspects of financial literacy and money issues that a parent of a child with albinism might want to consider.

Sharing Thoughts About Money by Dr. Anne Corn

Posted: August 24th,2020

Other News
FYI – American Foundation for the Blind (AFB) needs YOU for their photos!

AFB wants to show authentic images of real people on their website, social media channels, and other publications. Would you like to be featured? Learn more about submission guidelines and the types of photos needed:

Submit your photos by September 8th for a chance to win a $25 Amazon gift card!

Posted: August 24th, 2020

A Vision Beyond 2020

If you missed #VirtualNOAHCon2020, have no fear! Now you can register for access to the conference platform and recorded content by signing up at

Conference attendees – use your conference login information to access recorded content on the home page. Login just as you did to attend during conference weekend. No need to sign up again!

While you’re reflecting on the conference or catching up on recorded content, we want to hear from you! Do you have a vision for future support forums, interest group meetings, educational sessions or social activities that would benefit the albinism community? Share your ideas today at

Posted: July 27th, 2020


Calling all Educators with Albinism!

We hope you’ll join us for our first post-conference session to share and discuss managing vision challenges in your teaching environment. This call will take place at Wednesday, August 5th at 2:00pm ET.

For more information visit

See you there!

Posted: July 27th, 2020


Informational Call for Prospective Board Members

Applications are currently being accepted to fill open positions on the NOAH Board of Directors. Serving on the Board can be a very meaningful experience for members of the albinism community looking to take on an active leadership role within NOAH. If you’re interested in learning more, we invite you to join in our information call on Wednesday, August 5th. For more details or to apply today, visit

Applications due August 31st!

Posted: July 27th 2020


PWA Book Club

“All the Light We Cannot See” by Anthony Doerr is the next book being read by NOAH’s PWA Book Club. If you haven’t joined yet, what are you waiting for? Sign up today at Members will discuss the book in late August/early September.
We hope you will join us!

Posted: July 27th, 2020


Angela’s Send-Off at Family Social Hour!

We hope you’ll join us for a very special Family Social Hour this Tuesday, July 28th at 3pm ET. This call will be a special back to school celebration with your NOAH friends as we thank Angela for being our awesome Family Social Hour host these past four months!

We can’t wait to see your smiling faces!

Posted: July 27th, 2020


Announcing: NOAH Family Summer Camp 2021!

Save the (tentative) dates for next summer’s NOAH Family Summer Camp! We’re looking forward to a time when we can come together in person in New Hampshire, July 10-14, 2021.

Posted: July 27th, 2020