Virtual NOAHCon 2020 July 9-12, 2020 A Vision Beyond 2020

Family Sessions

The sessions below were created with our NOAH families in mind. We also encourage you to check out more educational sessions and exciting opportunities for family members of all ages to connect:


Taking the Angst Out of Literacy Media Decisions

Taking The Angst Out of Literacy Media Decisions – Spoiler Alert: It’s not Either/Or
Chrissy Cowan M.Ed. TVI & Kathi Garza M.Ed. TVI
10:00am – 11:30am PT (1:00pm -2:30pm ET)
Collaborating with your child’s instructional team regarding literacy media decisions can result in more questions than answers. This session focuses on the selection of appropriate literacy media by providing information on the laws related to literacy, the components for thorough and rigorous evaluations, and the intricacies of print, braille, and auditory media. Participants will be introduced to the concept of a “customized literacy access plan” with guidance on how to create this with your child and instructional team.

Ask the Doctors: Parents & Family

Ask the Doctors: Parents and Family
11:30am – 12:30pm PT (2:30pm – 3:30pm ET)
In this session geared to parents and grandparents of children with albinism, a panel of top scientists in the field of albinism research will be available to answer your questions and satisfy your thirst for knowledge about albinism.
This session is moderated by Donna Appell, RN.

Family Game Night

Family Game Night!
4:00pm – 5:00pm PT (7:00pm – 8:00pm ET)
Gather your family and join your NOAH friends for an evening of trivia, and other family friendly games!


IEP Workshop

IEP Workshop
Kim Avila, Anne Corn, Kathi Garza, Marjie Wood, Jill Gorman
11:30am – 12:30pm PT (2:30pm – 3:30pm ET)
Preparing for the 2020-2021 school year brings new challenges to students, parents and teachers. This session will discuss the dynamics of navigating the IEP process for hybrid classes (partially in person) and virtual programming.

Ask a Teen with Albinism

Family Ask a Teen with Albinism
2:30pm – 3:30pm PT (5:30pm – 6:30pm ET)
A talkative team of teens with albinism will tell their tales. This session will be an opportunity for family members to quiz a panel of high school aged people with albinism about their experience living with albinism.


Transition to College

Are You Ready for the Transition to College?
Sue Dalton
8:30am – 9:30am PT (11:30am – 12:30pm ET)
It’s essential to be aware of the services and accommodations available after high school. Is your child prepared to transition into college or the workforce as their own advocate in pursuit of their personal and professional goals? What agencies are available to provide the assistance your child needs to be successful in this new adventure?