Virtual NOAHCon 2020 July 9-12, 2020 A Vision Beyond 2020

Just for Adult PWAs

The sessions below were created especially for adult PWAs! We also encourage you to check out more educational sessions and exciting opportunities to connect with other members of the NOAH community:


Thursday

PWA Paint & Sip 21+

PWA Paint and Sip
5:30pm – 7:00pm PT (8:30pm – 10:00pm ET)
very limited space available!
Do you love to paint? Or have you always wanted to try your hand at a brush but didn’t know where to start? Well, grab a glass of wine, relax, and create your very own Masterpiece with your other PWA’s guided by teaching artist, Gloria Coulston (Mother to NOAH Member, Marleena Barber). Participants can purchase basic paint kit on Amazon https://smile.amazon.com/Art-Supply-14-Piece-Acrylic-Painting/dp/B00PR5L02U, or use their own supplies.

Supplies list:
1 8X10. 10X12 or 12X16 White Canvas
Red, Yellow, White and Black acrylic paint
1 flat 1-2 inch brush
1 thin tipped brush
A cup of water to rinse brush between colors
Paper towels
Paper plate or paint palette for mixing paint
Optional – hair dryer to help paint dry quickly


Friday

Ask the Doctors: Adult PWA

Ask the Doctors: Adults with Albinism
10:30am – 11:30am PT (1:30pm -2:30pm ET)
In this session geared to adults with albinism, a panel of top scientists in the field of albinism research will be available to answer your questions and satisfy your thirst for knowledge about albinism.
This session is moderated by Donna Appell, RN.

Hobbies Breakout: Adult PWA

PWA Hobbies Breakout Sessions
*NEW TIME* 1:00pm – 2:00pm PT (4:00pm – 5:00pm ET)
Interested in connecting with other PWA’s who share the same interests? Share your passion and tips and tricks for doing the things you love!

PWA Cocktail Hour 21+

PWA Cocktail Hour
6:00pm – 7:00pm PT (9:00pm – 10:00pm ET)
(Adults 21+ ONLY)
Learn about the art of mixing cocktails and prepare a special NOAH Conference inspired drink. Enjoy socializing with other PWA’s.
Ingredient list: Gin, orange liquor (like Triple Sec or Cointreau), a lemon (or lemon juice), an egg (optional).


Saturday

PWA Resilience & Self-Care

Resilience & Self-care
Kelsey Thompson, M.S., CRC, CCM, LCPC
10:00am – 11:00am PT (1:00pm -2:00pm ET)
Living with albinism isn’t always easy. To be happy, self-actualized adults, people with albinism and their families need to find ways to cope with and learn from the not-so-good experiences. This quality of resilience is not innate. It can be taught and nurtured in people of any age. In this session, we will discuss what makes resilient people unique and how to help yourself develop these qualities and put them into practice.

PWA Virtual Escape Room

PWA Virtual Escape Room
2:30pm – 3:30pm PT (5:30pm – 6:30pm ET)
THIS SESSION IS NOW FULL!
Work together with fellow PWA’s to solve puzzles and unlock clues to your escape! Have a pencil, scratch paper and magnifier handy!

PWA Virtual Escape Room

PWA Virtual Escape Room
6:00pm – 7:00pm PT (9:00pm – 10:00pm ET)
SESSION FULL!
Work together with fellow PWA’s to solve puzzles and unlock clues to your escape! Have a pencil, scratch paper and magnifier handy!


Sunday

PWA Yoga

PWA Yoga
8:30am – 9:30am PT (11:30am – 12:30pm ET)
Find your breath and enjoy a morning stretch with this Yoga Class specially for Adults with Albinism.

PWA Stares, Smirks & Shout Outs

Stares, Smirks & Shout Outs
Kelsey Thompson, M.S., CRC, CCM, LCPC
10:00am – 11:00am PT (1:00pm -2:00pm ET)
This session, which is intended exclusively for adults with albinism, will address how to deal with negative experiences in public and how to maintain self-esteem and dignity in difficult situations – from the blatantly rude person who yells “Hey, albino!” to the hilariously annoying inquisitor who asks, “Where did you get such white hair?” We will explore the emotions, behaviors and thought processes that these experiences bring about in us and discuss tips to minimize their impact. attendees will receive suggestions they can use in their daily lives to cope with the occasional challenges of living with albinism.

PWA Paint & Sip 21+

PWA Paint and Sip
11:15am – 12:45pm PT (2:15pm – 3:45pm ET)
SESSION FULL!
Do you love to paint? Or have you always wanted to try your hand at a brush but didn’t know where to start? Well, grab a glass of wine, relax, and create your very own Masterpiece with your other PWA’s guided by teaching artist, Gloria Coulston (Mother to NOAH Member, Marleena Barber). Participants can purchase basic paint kit on Amazon https://smile.amazon.com/Art-Supply-14-Piece-Acrylic-Painting/dp/B00PR5L02U, or use their own supplies.

Supplies list:
1 8X10. 10X12 or 12X16 White Canvas
Red, Yellow, White and Black acrylic paint
1 flat 1-2 inch brush
1 thin tipped brush
A cup of water to rinse brush between colors
Paper towels
Paper plate or paint palette for mixing paint
Optional – hair dryer to help paint dry quickly

PWA No-Bake Baking Club

PWA No-Bake Baking Club
12:45pm – 1:45pm PT (3:45pm – 4:45pm ET)
SESSION FULL!
Learn to make some tasty and easy recipes while enjoying the company of other adults with albinism! Share tips and tricks for baking in the kitchen. An ingredient list will be provided in advance to those registered.