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NOAH Connections

NOAH Connections

View upcoming NOAH Connections offerings for:
Youth with Albinism ~ Teens with Albinism ~ Adults with Albinism ~ Parents & Caregivers ~ Grandparents

Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH has been offering virtual opportunities for our community to connect through NOAH Connections for nearly 6 years! As we approach 2026, we’re excited to share an updated approach — designed to make it easier than ever to connect, learn, and build meaningful relationships within the albinism community.

Whether you’re returning or joining for the first time, we’d love to have you be part of NOAH Connections in 2026.

To receive invitations and reminders in 2026, everyone must sign up – including returning participants. This helps us send you the most relevant updates and ensure you’re included in the calls that matter to you. Sign up below for NOAH Connections

After you sign up:

  • Join virtual gatherings on Zoom, unless otherwise noted
  • Confirmation e-mail will be sent containing zoom information
  • Periodic reminders will be sent for the social connection calls you signed up for
  • Revisit this page for updated schedule information
  • Register for educational sessions and workshops as they’re added throughout the year

Why Join NOAH Connections?

  • Connect with people who get it: Meet others navigating different stages of the journey with albinism.
  • Get real-life support: Learn how peers navigate medical care, school, work, relationships, and daily life.
  • Connect with professionals: Receive accurate information about albinism directly from the experts
  • Find inclusive spaces: Join welcoming calls for all ages, identities, and life stages.
  • Explore shared interests: Take part in book clubs, parenting discussions, and special interest groups.
  • Join from anywhere: Free, virtual, peer-led gatherings that build connection and belonging.

View upcoming NOAH Connections offerings for:
Youth with Albinism ~ Teens with Albinism ~ Adults with Albinism ~ Parents & Caregivers ~ Grandparents

Upcoming calls for Youth with Albinism:

Our next call for Kids’ PWA Book Club is in the works. Sign up today & we’ll send you an email with all the details once it’s confirmed!

If you signed up for Kids’ PWA Book Club in 2025, no need to register again! You’re already on our list.

Sign up for Kids’ PWA Book Club! (ages 8-12)

Other upcoming calls for youth with albinism:

  • TBD

Upcoming calls for Teens with Albinism:

Sign up once for Teen Social Connections, and you’re invited to all of our social gatherings for teens! Panels, educational calls, and special interest discussions will require a separate sign up.

Please note: Teen Social Connections are open to teens with albinism ages 13-17.

Sign up for Teen Social Connections!
  • Thursday, April 16th at 8pm ET // 5pm PT – Teen Social Connections
  • Monday, May 4th – What to Expect at Your First Conference
  • Thursday, May 21st at 8pm ET // 5pm PT – Teen Social Connections

Upcoming calls for Adults with Albinism:

Sign up once for Young Adult or Adult Social Connections, and you’re invited to all of our social gatherings for your respective group! Panels, educational calls, and special interest discussions will require a separate sign up.

Please note: Young Adult Social Connections are open to adults with albinism ages 18 – early 30s. Adult Social Connections are open to adults with albinism ages 18+

Sign up for Young Adult Social Connections!
Sign up for Adult Social Connections!

Upcoming calls for Parents & Caregivers of children with albinism:

Sign up once for Parent Social Connections, and you’re invited to all of our social gatherings for parents of PWAs! Panels, educational calls, and special interest discussions will require a separate sign up.

Sign up for Parent Social Connections!

Parent Social Connections are typically held on the last Wednesday of each month. Please see below for confirmed call dates:

Upcoming calls for Grandparents of children with albinism:

Sign up once for Grandparent Social Connections, and you’re invited to all of our social gatherings for grandparents of PWAs! Panels, educational calls, and special interest discussions will require a separate sign up.

Sign up once for Grandparent Social Connections and we’ll send you email reminders for all future calls!

Sign up for Grandparent Social Connections!

Grandparent Social Connections typically meets quarterly. Please see confirmed call dates below:

Aging with Albinism

PWAs 55+, join us to connect and chat with others who just get it! Sign up once and we’ll send you email reminders for all future Aging with Albinism gatherings.

Sign up for Aging with Albinism!

Aging with Albinism calls are typically held on the first and third Thursday of each month. Please see below for confirmed call dates:

  • Tuesday, April 7th at 8pm ET // 5pm PT – hosted by Cynthia Henton
  • Tuesday, April 21st at 5pm ET // 2pm PT – hosted by Mike Sikes
  • Tuesday, May 5th at 8pm ET // 5pm PT – hosted by Cynthia Henton
  • Tuesday, May 19th at 5pm ET // 2pm PT – hosted by Mike Sikes

Doctors with Albinism

Doctors with Albinism is a supportive global community of physicians with albinism who meet monthly to share experiences and nurture and mentor each other. At this time, the group is only open to those that are either attending or completed medical school.

For those interested in careers in medicine or in related health fields, stay tuned for other programs coming soon!

Sign up once and we’ll send you reminders for all future Doctors with Albinism calls.

If you signed up for Doctors with Albinism in 2025, you’re already on our list – no need to sign up again!

Sign up for Doctors with Albinism!

Doctors with Albinism calls are typically held on the first Sunday of each month. Please see below for confirmed call dates:

  • Sunday, April 12th at 9am ET // 6am PT
  • Sunday, May 3rd at 9am ET // 6am PT

LGBTQ+ & Allies Connections

YOU belong here! Join us for a social gathering open to all LGBTQ+ and allies with albinism. Participants are welcome to connect however they are comfortable – leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

Sign up once & we’ll send you reminders for all future LGBTQ+ and Allies Connections calls.

Sign up for LGBTQ+ & Allies Connections
  • Monday, May 18th at 8pm ET // 5pm PT

Parenting without Pigment

Join fellow parents with albinism for our next call! You won’t want to miss this chance to connect and chat with others who “just get it!”

Sign up once & we’ll send you reminders for all future Parenting without Pigment calls.

Sign up for Parenting without Pigment!

Parenting without Pigment is typically held monthly. Please see below for confirmed dates:

  • Tuesday, April 14th at 9pm ET // 6pm PT – Spring Cleaning with Andrew & Katherine Sartorius

PWA Book Club

Are you an adult PWA (18+) who loves to read? Join us for NOAH Book Club! Get a copy of our current reading material, and join us to discuss.

Sign up once & we’ll send you reminders for all future PWA Book Club meetings.

Sign up for PWA Book Club

PWA Book Club is typically held every 2 months on the 2nd Monday of the month. Please see our next confirmed meeting date below:

Current Reading Material: “The Year of Less” by Kait Flanders

Join us to discuss on Monday, May 11th at 8pm ET // 5pm PT


Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!

Parents and Caregivers of Newly-Diagnosed Children & Young Children with Albinism

This workshop, hosted by Megan Pitt, LMHC-D, will provide an opportunity for parents whose children have been newly diagnosed, or who are still in the early years of parenting to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. The workshop will provide tools and strategies that will assist parents while providing a space to discuss concerns and gain support from a community of parents that truly understand. We will discuss the common challenges and struggles parents may face and provide a guide to managing them while providing the best possible support for your child.

Sign up for Newly-Diagnosed Workshop!
  • Wednesday, May 13th at 8:30pm ET // 5:30pm PT

About Megan Pitt, LMHC-D

Megan Pitt, LMHC-D is a NYS Licensed Mental Health Counselor and a graduate of the University at Buffalo and Fordham University. Megan currently resides in NYS with her husband and two sons. Megan’s oldest son has Albinism. Megan currently owns her own private counseling practice. She manages NOAH’s New Parent Program in addition to being a regular workshop presenter, and is a Tele-Support group facilitator for The Lighthouse Guild.

Canadian Parent Connections

Join fellow parents of children with albinism living in Canada to connect and share!

Sign up once & we’ll send you reminders for all future Canadian Parent Connections calls.

Sign up for Canadian Parent Connections!

Canadian Parent Connections will generally be held every other month. Please see below for confirmed dates:

  • Next call TBA – sign up for Canadian Parent Connections and we’ll send you the details when our next call is confirmed!!

Seeing Beyond: Pediatric Eye Care Professionals

Join Drs. Thomas Porter, Katherine Kindle, and Halle Neyens as they answer your questions about Pediatric Eye Care!

Sign up for Seeing Beyond: Pediatric Eye Care Professionals!
  • Thursday, April 2nd at 9pm ET // 6pm PT

Meet our panel:

Dr. Thomas Porter is an Associate Professor and Director of Low Vision Services at Saint Louis University’s department of ophthalmology. He also serves as an Assistant Professor at the University of Missouri College of Optometry. For his entire 44 year career, Dr. Porter has limited his practice to patients with low vision such as albinism. His clinic sees in excess of 1,000 low vision patients each year. Dr. Porter has also served as a clinical consultant to several manufacturers of low vision aids as well as a medical advisor to the Vision Council of America.

Dr. Halle Neyens grew up in Iowa and attended the University of Iowa for her bachelor’s degree. She graduated from the University of Missouri – St. Louis with her doctorate of optometry and now serves as a pediatric optometrist at SLUCare Physician Group. She has two daughters and lives in St. Louis City with her husband in a 130-year old home they rehabbed. In her spare time, she likes to read and explore St. Louis restaurants. 

Dr. Katherine Kindle is an ophthalmologist who specializes in pediatric ophthalmology and strabismus (crossed eyes) for patients of all ages. She provides comprehensive eye care, specifically the medical and surgical management of eye disorders commonly found in children. Some of these eye disorders may include childhood and adult strabismus; nasolacrimal duct obstruction; pediatric cataracts; and ptosis.

Albinism Gaming Chat

Adults with albinism – join Shawn Wilt Sr. to chat about all things gaming!

Sign up for Albinism Gaming Chat!
  • Monday, April 6th at 8pm ET // 5pm PT

Shawn Wilt Sr. is an adult with albinism who has a home based business building custom made high-end work and gaming PC’s for people. Additionally, he writes code & creates mods for PC based games. As a avid, lifelong gamer, if there is a game be it video games, tabletop gaming, RPG gaming, card games, board games he has probably played it. Shawn has a passion for gaming and making gaming more accessible to anyone with disabilities, but especially for those with visual impairments.

What to Expect at Your First Conference!

Featuring: Terri Nigro, Erika Evans, Scott Gibson, Tim Laughlin

Are you curious about what the NOAH Conference is all about? Come hear from PWA and parents alike about their conference experiences and get your questions answered!

Sign up for What to Expect at Your First Conference!
  • Monday, May 4th at 8pm ET // 5pm PT