Learn About Albinism – Reading List

This sampling of writings about albinism can educate and spark conversation. You may find many more books, especially fiction, but we hope you enjoy some of the books listed here.

Please Note:

Listings and links are provided as a convenience and not an endorsement of a particular author or seller.

Not all books are suitable for sensitive or young readers. Please research the pieces and use your best judgement.

 

Nonfiction

Raising a Child with Albinism: A Guide to the Early Years
By The National Organization for Albinism and Hypopigmentation
This is a one-of-a-kind book to help guide parents through the unique challenges of raising a child with albinism. With contributions from about 20 writers, this book provides an authoritative source for parents.

Raising a Child with Albinism: A Guide to the School Years
By The National Organization for Albinism and Hypopigmentation
This book explores a wide variety of topics through the research and knowledge of professionals as well as parents and adults with albinism including: IEPs, assessments, the Expanded Core Curriculum, O&M, transitioning from high school to college and independent living and more.

Article: Truevine: Two Brothers, a Kidnapping and a Mother’s Quest: A True Story of the Jim Crow South
By Beth Macy
This article from NPR gives insight into the story of the brothers and how the author came to learn about the tale of two black brothers with albinism who were forced to work for the circus.

Article: For the Benefit of Those Who See: Dispatches from the World of the Blind
By Rosemary Mahoney
This article explores what it means to “see” as well as how people who are blind are treated, worldwide.

Albinism in Africa: Historical, Geographic, Medical, Genetic, and Psychosocial Aspects
Editors: Dr. Jennifer Kromberg and Dr. Prashiela Manga
This book provides the first in-depth reference for understanding and treating patients of human albinism in Africa. Leading international contributors examine the historical, geographic, psychosocial, genetic and molecular considerations of importance in effectively and sensitively managing this genetic disorder.

White Ebony
By Partricia Willocq
Photographic Essay
This photo essay explores albinism in the Democratic Republic of the Congo in a hopeful and encouraging way.

Memoirs

Beyond the Pale
By Emily Urquhart
A journalist and folklore scholar accustomed to processing the world through other people’s stories, Emily is drawn to understanding her child’s difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness.

Black Girl White Skin: A Life In Stories
By Natalie Devora
This is a memoir of a woman whose life touches upon intersections of identity in so many ways. Her story is also a testament to the power of silences and naming, claiming Truth despite uncomfortable truths, and the healing grace found through story. There is so much to love about this book, and so much to discuss. Readers will be grateful for having spent time with Black Girl White Skin.

Breaking the Boundaries of Impairment: A Life Journey with Low Vision
By Bruce Barton
Bruce has battled for more than half a century to overcome the challenges of impairment. His wide range of life experiences are unique in the low vision community. These experiences range from daily life events to exotic adventures. He has trapped and put radio collars on black bears for science, snorkeled with manta rays, rappelled into caves, and kayaked down rivers. He’ll share many life experiences and offer advice and encouragement so you can live your own adventures. This book covers what Bruce’s boundaries are, why he tries to break through them, and techniques that he has found to be successful at breaking those boundaries. He shares specifics and experiences in the following situations: home, school, work, travel, outdoor adventure, and social settings. In addition, he offers thoughts for parents and other supporting individuals who are interacting with low vision children.

The Edge of Normal
By Hana Schank
Parent Perspective Kindle Singles are longer than an article but shorter than a book. This essay tells a mother’s story of navigating a world filled with a spectrum of ability and disability, filled with both heartbreak and joy, and how she and her daughter learn to balance together on the edge of normal.

Too White to Be Black and Too Black to Be White
By Lee Edwards
This book gives insight into what life can be like for a black person with albinism growing up in the black community and the impact public humiliation, intimidation and ridicule can have long-term. It can serve as a guide for parents and young adults about dealing with the hardships of living with albinism.

Children & Young Adults

Unique
By Arlene Gerrity
This is a story of a robin born with albinism, who matures and succeeds in life, by learning to handle, in a positive manner, her “Unique” genetic condition. She learned to adapt by going over, under, around, and through physical challenges in her path

My Name is Rachel: A Girl with Albinism
By Gene Walker
This book is written from the perspective of an elementary school child and explores her day-to-day life.

Living with Albinism
By Elaine Landau
This book provides introductions to subjects in areas of the middle-grade curriculum including science, social studies and the arts.

Golden Boy
By Tara Sullivan
Although Habo’s family barely accepts him, when the family is forced from their village, they travel across the Serengeti. Suddenly, he has a new word for himself: Albino. But they hunt albinos because body parts are thought to bring good luck. Soon Habo is being hunted. To keep his life, Habo must run, not knowing if he can ever stop.

But Mommy It’s not Fair
By Sherria Elliott
Series
Inspired by the life of her daughter, “Heaven,” this series follows the life of a young girl with albinism who struggles to accept herself and understand why her appearance differs from her friends and family.

My Fair Child
By Maureen A. Ryan
Although a child with albinism has been raised in a loving home, she dreams of a bully. She awakens and shares her dream with her mother and is compassionately reminded of her unique beauty. “Be proud of who you are, let your love shine and hold your head up high fair child of mine.”

Platinum Prison
By Adam Salter
Set against the colorful backdrop of the psychedelic 60s and glam 70s, follow Pete on a journey of discovery as he tries to find his place in life and searches for acceptance and love.

A Blind Guide to Stinkville
By Beth Vrabel
This is a small-town story that explores many different issues—albinism, blindness, depression, dyslexia, growing old, and more

A Blind Guide to Normal
By Beth Vrabel
Sequel to A Blind Guide to Stinkville
Ryder quickly sees the only thing worse than explaining a joke is being the punchline. But with help from his stuck-in-the-70s Gramps and encouragement from Alice, Ryder finds the strength to not only fight back, but to make peace.

סיפור לבן

מאת:  אידן אור גיא

A children’s book in Hebrew. A story about one boy’s introduction of albinism to his new school and his realization that you have to accept yourself before others can accept you

 

Fiction

The Book of Memory
By Petina Gappah
Memory, a woman with albinism, has been convicted for the murder of her adopted father and is in prison in Zimbabwe. Her lawyer insists she write down what happened because there is a mandatory death sentence for murder. Why does she feel no remorse for his death? And did everything happen exactly as she remembers?

Zebra Crossing
By Meg Vandermerwe
On the eve of the World Cup, Chipo and her brother flee to Cape Town, hoping for a better life and to share in the excitement of the sporting event. But it is a dangerous place for an illegal immigrant and an albino. Soon, Chipo is caught up in a get-rich-quick scheme. Exploiting gamblers’ superstitions about albinism, they plan to make money and get out of the city, but their scheming has devastating consequences.

The Likes of Me
By Randall Platt
Cordy is half Caucasian, half Chinese and all albino. She grew up in a lumber town with her distant father and giant stepmother nicknamed Babe (after Paul Bunyan’s ox). She is convinced she is ugly, but in the summer of 1918, when she is fourteen, she falls in love with the dashing Squirl. When Squirl is fired, Cordy runs away to be with him. She begins an adventure that takes her to the sideshows of Seattle, where her unusual looks bring her fame. But her journey also brings tragedy.

Then She Was Born
By Cristiano Gentili
This book is an international human rights campaign supported by eleven Nobel Peace Prize laureates, the Dalai Lama and Pope Francis. Based on an inconceivable reality for many in the world today.