Introducing NOAH Connections
Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH is delighted to introduce NOAH Connections, an ongoing series of virtual opportunities to bring the community together. An essential part of NOAH’s mission is to “provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship.” With the participation and engagement of community members like you, NOAH Connections will provide this opportunity for virtual “face to face” connections. Unless otherwise stated, NOAH Connections will be hosted on the Zoom platform.
We hope you’ll join us for one of many upcoming opportunities to connect!
What’s Your Vision?
Do you have a vision for future support forums, interest group meetings, educational sessions or social activities that would benefit the albinism community?
Submit your session ideas using this form to suggest upcoming content and connections for all!
Upcoming Opportunities to Connect:
Friday, February 26th ~ Parenting Without Pigment
Sunday, February 28th ~ Military Families
Thursday, March 4th ~ Teens
Thursday, March 4th ~ Young Adults
Sunday, March 7th ~ Kids Book Club (Recommended for Grades 5-8)
Sunday, March 7th ~ Adults Writing Workshop with Hana Schank
Wednesday, March 10th ~ Coffee Chat: Let’s Talk About Fundraising!
Sunday, March 14th ~ Exploring the World of Accessible Technology Products for Low Vision Solutions with Steve Ricci
Tuesday, March 16th ~ Albinism in the Legal Profession
Thursday, March 18th ~ Teens
Thursday, March 18th ~ Young Adults
Sunday, March 21st ~ Coffee Chat: Let’s Talk About Fundraising!
Wednesday, March 24th ~ PWA Book Club
Sunday, March 28th ~ Positively Unique: What Makes Us Rare:
Grades K-5 ~ Grades 6-8 ~ Teens
Wednesday, April 14th ~ Could Adults with Albinism Miss HPS?
Are you a parent or grandparent looking to connect with others in the albinism community?
Check out Parent Connections and Grandparent Connections!
NOAH Connections by Group:
Preschool ~ Grades K-5 ~ Grades 6-8 ~ Teens ~ Young Adults ~ Adults
Special Events ~ Everyone!
Preschool NOAH Connections
Preschool NOAH Connections
Next Call TBD
Sign up for Preschool NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Preschool NOAH Connections!
Grades K-5 NOAH Connections
Grades K-5 NOAH Connections
Positively Unique: Celebrating What Makes Us Rare
Sunday, March 28th at 2:00pm ET
Join your friends with albinism to celebrate our uniqueness as individuals with a rare genetic condition. Each of us has developed certain skills and coping mechanisms, such as great memorization, that have become second nature to us as we navigate life with albinism. Jocelyn Leworthy a Certified Child Life Specialist and young adult living with Albinism will facilitate our discussion.
Sign up for Grades K-5 NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Grades K-5 NOAH Connections!
Grades 6-8 NOAH Connections
NOAH Kids’ PWA Book Club
(recommended for grades 5-8)
Sunday, March 7th at 3:00pm ET // 12:00pm PT
Join award-winning author (and parent of a daughter with albinism) Beth Vrabel and Certified Teacher of Students with Visual Impairments Kathi Garza for our discussion of “A Blind Guide to Stinkville” by Beth Vrabel.
Sign up for NOAH Kids’ PWA Book Club!
Check out this video of Beth reading the first chapter for us at the NOAH Conference:
Grades 6-8 NOAH Connections
Positively Unique: Celebrating What Makes Us Rare
Sunday, March 28th at 3:00pm ET
Join your friends with albinism to celebrate our uniqueness as individuals with a rare genetic condition. Each of us has developed certain skills and coping mechanisms, such as great memorization, that have become second nature to us as we navigate life with albinism. Jocelyn Leworthy a Certified Child Life Specialist and young adult living with Albinism will facilitate our discussion.
Sign up for Grades 6-8 NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Grades 6-8 NOAH Connections!
Teen NOAH Connections
Teen NOAH Connections
Overcoming Social Pressure
Thursday, March 4th at 8:00pm ET // 5:00pm PT
Sometimes social pressure can feel like it’s pushing down on you, so how do you overcome it? Teens, join hosts Casey Greer and Mackenzie Strong to discuss!
Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Teen NOAH Connections!
Teen NOAH Connections
Thursday, March 18th at 8:00pm ET // 5:00pm PT
NOAH Teens, you’re invited to our next Teen Connections call!
Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Teen NOAH Connections!
Teen NOAH Connections
Positively Unique: Celebrating What Makes Us Rare
Sunday, March 28th at 4:00pm ET
Join your friends with albinism to celebrate our uniqueness as individuals with a rare genetic condition. Each of us has developed certain skills and coping mechanisms, such as great memorization, that have become second nature to us as we navigate life with albinism. Jocelyn Leworthy a Certified Child Life Specialist and young adult living with Albinism will facilitate our discussion.
Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Teen NOAH Connections!
Young Adult NOAH Connections
Young Adult NOAH Connections
Family Dynamics with Albinism
Thursday, February 18th at 9:15pm ET // 6:15pm PT
Young Adults, join us for our next session to discuss family dynamics with albinism. This is a great chance to share our experiences and connect with fellow PWAs!
Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Young Adult NOAH Connections!
Young Adult NOAH Connections
Low Vision Hacks: Tips & Tricks
Thursday, March 4th at 9:15pm ET // 6:15pm PT
Young adults – what is your best low vision hack? Join us Thursday, March 4th at 9:15pm ET to compare and share tips & tricks for living the low vision life!
Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Young Adult NOAH Connections!
Young Adult NOAH Connections
Thursday, March 18th at 9:15pm ET // 6:15pm PT
Young Adults, join us for our next session. This is a great chance to share our experiences and connect with fellow PWAs!
Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Young Adult NOAH Connections!
Adult NOAH Connections
BIPOC NOAH Connections
Saturday, February 20th at 5:00pm ET // 2:00pm PT
The latest addition to our NOAH Connections offerings!
This gathering is intended for adults with albinism who identify as Black, Indigenous, People of Color (BIPOC). Our next session will tentatively focus on a discussion about the intricacies of living as BIPOC and living with albinism, and the nuances of identity in our communities.
This gathering, facilitated by Brandi Green and Natalie Devoramonifa, will take place on Zoom.
Sign up for BIPOC NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join BIPOC NOAH Connections!
Aging with Albinism
The Challenges and Joys of Our Senior Years – hosted by June Waugh
Tuesday, February 23rd ~ 4:00pm ET / 1:00pm PT
NOAH Connections would like to invite you to join us in discussing the challenges and joys of our senior years as adults with albinism. We have made it through many of life’s passages and honed many skills along the way. Hopefully, we became wise as well as experienced! “Aging with Albinism” is an opportunity to connect with others, to share, to renew old friendships, to celebrate, and to acknowledge how albinism continues to be an integral part of our lives.
Sign up for NOAH Connections Aging with Albinism today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join NOAH Connections Aging with Albinism!
Adult NOAH Connections
Hobbies!
Thursday, February 25th at 9:00pm ET // 8:00pm CT // 7:00pm MT // 6:00pm PT
Join Casey Greer for a casual get-together with fellow PWAs to discuss hobbies. Whether you have many hobbies or are looking for something new to get into, this is a great chance to connect with the NOAH community!
Sign up for Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Adult NOAH Connections
Parenting without Pigment NOAH Connections
Friday, February 26th at 9:00pm ET // 8:00pm CT // 7:00pm MT // 6:00pm PT
Are you a PWA with kids? This is the perfect group for you!
Join together with fellow parents without pigment to connect, discuss, share, and more! We hope to “see” you at our next gathering.
Sign up for Parenting without Pigment NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Parenting without Pigment NOAH Connections!
Writing About Albinism
A complimentary workshop for NOAH adults with author Hana Schank
Sunday, March 7th at 4:00pm ET // 1:00pm PT
Back by popular demand, Hana Schank is graciously sharing her time and talents with the NOAH community in Writing About Albinism, a complimentary workshop for NOAH adults. You won’t want to miss this incredible opportunity – mark your calendars now!
Register Now for Writing About Albinism!
People with Albinism in the Legal Profession
hosted by Arielle Lewis and Katy Carroll
Tuesday, March 16th at 8:30pm ET // 6:30pm PT
Calling all law students, lawyers, judges, and paralegals with albinism. You’re invited to join with fellow PWAs in the legal profession for a NOAH Connections social time just for you. Please join us Tuesday, March 16th at 8:30 pm for conversation and connections.
Note: This is a social time for people with albinism in the legal profession – legal advice will not be provided.
Register Now for People with Albinism in the Legal Profession!
PWA Book Club
Next Meeting: Wednesday, March 24th at 9:00pm ET
Current Reading Material: “There There” by Tommy Orange
All PWAs (18+ years old) can join NOAH’s Book Club – simply sign up and get your hands on a copy of the current book. Depending on the length of the book, we will meet every 1-2 months in NOAH’s zoom room for a discussion facilitated by the book club member who selected the current book. Members will take turns picking the next reading selection and facilitating the discussion!
Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!
Join NOAH PWA Book Club Today!
Adult NOAH Connections: Could Adults with Albinism Miss HPS?
Donna Appell, RN
Wednesday, April 14th at 8:30pm ET // 7:30pm CT //6:30pm MT //5:30pm PT
Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being and makes preventative health management possible. HPS founder and president Donna Appell, RN provides an overview of this rare form of albinism.
Sign Up Today!
Are you a parent looking for more information about HPS? Join Donna Appell for our upcoming Parent Connections session, What You Need to Know About HPS.
NOAH Connections for Everyone
NOAH Connections Ask the Doctors – Doctors with Albinism
Sunday, February 21st 5:00 pm ET
Have you ever wondered if you or your loved one with albinism would be able to become a medical doctor despite visual limitations? Well, it can be done–and we’d love to tell you all about it! Our panel will consist of Drs. Bob Gabbay and Megan Duffey and medical student Silpa Tadavarthy, all persons with albinism who have navigated or are navigating the beast that is medical education. We will tell you a little bit about how we did and are doing it and will answer questions from attendees.
Please note: We will not provide medical advice during this session.
Sign up for Ask the Doctors today!
NOAH Connections: Military Families
Sunday, February 28th at 8:30pm ET // 5:30pm PT
Calling all military families (active, reserve, retired), join us to connect, share experiences, and discuss the challenges of being a military family navigating life with albinism. Do you have tips and tricks to share? How you navigated EFMP, PCSing, Tricare, etc?
Sign up for Military Families Connections today!
NOAH Connections Coffee Chat!
Let’s Talk About Fundraising!
Wednesday, March 10th at 5:00pm ET // 2:00pm PT
Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.
Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join NOAH Connections Coffee Chat!
NOAH Connections Coffee Chat!
Let’s Talk About Fundraising!
Sunday, March 21st at 3:00pm ET // 12:00pm PT
Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.
Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join NOAH Connections Coffee Chat!
Special Events
Exploring the World of Accessible Technology Products for Low Vision Solutions
with Stephen Ricci
Sunday, March 14th at 3:00pm ET // 12:00pm PT
More information coming soon!