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NOAH Connections

NOAH Connections, bringing the albinism community together.

Introducing NOAH Connections

Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH is delighted to introduce NOAH Connections, an ongoing series of virtual opportunities to bring the community together. An essential part of NOAH’s mission is to “provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship.” With the participation and engagement of community members like you, NOAH Connections will provide this opportunity for virtual “face to face” connections. Unless otherwise stated, NOAH Connections will be hosted on the Zoom platform.

Looking for a way to help? Let YOUR voice be heard!
Learn more about NOAH Connections Advisory Task Force opportunities!

We hope you’ll join us for one of many upcoming opportunities to connect!


What’s Your Vision?

Do you have a vision for future support forums, interest group meetings, educational sessions or social activities that would benefit the albinism community?

Submit your session ideas using this form to suggest upcoming content and connections for all!


Upcoming Opportunities to Connect:

Preschool ~ Grades K-5 ~ Grades 6-8 ~ Teens
Young Adults ~ Adults ~ Parents, Grandparents, & Caregivers
Special Interest ~ Everyone!

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Tuesday, September 20th ~ NOAH Research Program Coffee Chat

Wednesday, September 21st ~ Young Adults

Thursday, September 22nd ~ Adults

Sunday, September 25th ~ PWAs in STEM

Sunday, September 25th ~ LGBTQ+ and Allies

Tuesday, September 27th ~ Parenting without Pigment

Thursday, September 29th ~ Teens

Tuesday, October 18th ~ Aging with Albinism

Preschool NOAH Connections

Preschool NOAH Connections

Preschool NOAH Connections
with Kathi Garza

TBD

Join us for some Fun Fall Fingerplays as we chat about the beautiful changes fall brings. If you like spending time outdoors in the fall, collect a few treasures on a nature walk and bring them to Preschool Connections so we can share in the joy together! If you’re unable to go on a nature walk and would like to draw some of your favorite fall things, we’d love to see that, too!

Sign up for Preschool NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Preschool NOAH Connections!


Grades K-5 NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Grades K-5 NOAH Connections

Grades K-5 NOAH Connections

Next Call TBA

Sign up for Grades K-5 NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Grades K-5 NOAH Connections!


Grades 6-8 NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

NOAH Kids’ PWA Book Club
(recommended for grades 4-8)
Meeting on Saturdays at 3pm ET from February 12th – March 12th

Teen NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Teen NOAH Connections

Teen NOAH Connections

Thursday, September 15th at 8:00pm ET // 5:00pm PT
Thursday, September 29th at 8:00pm ET // 5:00pm PT

NOAH Teens, you’re invited to our next Teen Connections call!

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!


Young Adult NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Young Adult NOAH Connections

Young Adult NOAH Connections

Wednesday, September 21st ~ 9:00pm ET // 6:00pm PT

Young Adults, join us for our next session. This is a great chance to share our experiences and connect with fellow PWAs!

Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Young Adult NOAH Connections!


Adult NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!


Adult NOAH Connections

Adult NOAH Connections

Thursday, September 22nd at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections! We hope to see you on Zoom for social time with fellow PWAs. 

Sign up for Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Adult NOAH Connections


NOAH PWA Book Club

PWA Book Club

Next Meeting: TBD

Current Reading Material: TBD

All PWAs (18+ years old) can join NOAH’s Book Club – simply sign up and get your hands on a copy of the current book. Depending on the length of the book, we will meet every 1-2 months in NOAH’s zoom room for a discussion facilitated by the book club member who selected the current book. Members will take turns picking the next reading selection and facilitating the discussion!

Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!

Join NOAH PWA Book Club Today!


Parents, Grandparents, & Caregivers

Are you a parent or caregiver who lives in Canada?
Sign up for NOAH Connections: Canadian Parents today!

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Supporting the Psychosocial Well-Being of Children and Youth with Albinism
with Jocelyn Leworthy, Certified Child Life Specialist

Tuesday, September 13th ~ 9:00pm ET // 6:00pm PT

This session designed for parents, caregivers, educators, clinicians, or any other individuals will provide an overview of psychosocial development throughout childhood and adolescence and describe how aspects of living with Albinism such as appearance, visual functioning, societal perceptions etc. can influence individuals throughout various ages and stages. We’ll discuss how this relates to self-identity, peer/intimate relationships, independence, self-esteem, school/career life etc. and explore protective factors and practical strategies adults can implement to support coping throughout life stages/experiences.

The session will incorporate discussion & interactive activities throughout.

Sign Up Today!


Parent Connections

Next Call TBD

Parents of PWAs: join us for an open forum discussion. This is a safe place to unload and talk freely.

Join Parent Connections!


Grandparent Connections!
hosted by: Sherry Dinner and Rick Hrach

Monday, September 12th at 8:00pm ET // 5:00pm PT

Join Sherry Dinner and Rick Hrach for an open forum discussion just for grandparents!

NOAH grandparents, join us to connect with fellow grandparents of children with albinism! Grandparents of kids of all ages are welcome to attend 🙂

Join Grandparent Connections!


NOAH Connections: Dads!

Next Call TBD

NOAH Dads, join us to connect with fellow dads of children with albinism. We’ll discuss the unique experiences of being a dad to a PWA and come together in the shared goal of being the best dads we can be for our children.

Register for NOAH Connections: Dads today!
-OR-
text DADS to (417) 473-2310 to sign up!


NOAH Connections for Everyone


NOAH Connections Coffee Chat

NOAH Research Program Coffee Chat!
with Executive Director, Karen Bly

Tuesday, September 20th ~ 8:00pm ET // 5:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

Join Executive Director, Karen Bly, and the NOAH Research Program Committee for a special coffee chat about the NOAH Research Program on September 20th!

Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Coffee Chat!

Special Interest


NOAH Connections: LGBTQ+ & Allies

Sunday, September 25th at 8:00pm ET // 5:00pm PT

YOU belong here! Join us for a social gathering open to all LGBTQ+ and allies with albinism. Participants are welcome to connect however they are comfortable – leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

Sign up for NOAH Connections LGBTQ+ & Allies today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections: LGBTQ+ & Allies!


PWAs in the STEM Fields
hosted by Sarah Kane & Derek Schindelman

Sunday, September 25th at 5:00pm ET // 2:00pm PT

PWAs in STEM, you’re invited to a social gathering hosted by Sarah Kane & Derek Schindelman!

Register to participate in this and future PWAs in STEM connections!



NOAH Connections Adults with Albinism Parenting without Pigment

Parenting without Pigment: Kids in Sports!
hosted by: Kathi Garza

Tuesday, September 27th ~ 9:00pm ET // 6:00pm PT

Are you a PWA with kids? This is the perfect group for you!

Huddle up with your fellow Parents without Pigment as we chat about kids in sports. We’ll cover topics from getting the right equipment to getting to the game, and of course, we’ll chat about actually seeing your kiddo in action! Bring your wisdom and questions to help us kick off another exciting NOAH Connection!

Sign up for Parenting without Pigment NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Parenting without Pigment NOAH Connections


Aging with Albinism
hosted by June Waugh

Tuesday, October 18th ~ 5:00pm ET // 2:00pm PT

Join June Waugh and friends for our next session of Aging with Albinism.

Sign up for NOAH Connections Aging with Albinism today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Aging with Albinism!


NOAH Connections Black, Indigenous, People of Color

BIPOC NOAH Connections
hosted by: Torey Alford

Next Call TBD

This gathering is intended for adults with albinism who identify as Black, Indigenous, and People of Color (BIPOC).

Sign up for BIPOC NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join BIPOC NOAH Connections!


People with Albinism in the Legal Profession
hosted by Arielle Lewis

Next Call TBD

Calling all law students, lawyers, judges, and paralegals with albinism. You’re invited to join with fellow PWAs in the legal profession for a NOAH Connections social time just for you. Please join us for conversation and connections.

Note: This is a social time for people with albinism in the legal profession – legal advice will not be provided.


Canadian Parents
hosted by: Rebekah Zigby

Next Call TBD!

Calling all Canadian parents of children with albinism! This group is just for YOU! Sign up today for info to join this call and you’ll be invited to future chances to connect with fellow parents from Canada 🙂

Sign Up Now!


Canadian PWAs

Next Call TBD

Sign up for NOAH Connections: Canadian PWAs today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections: Canadian PWAs!


NOAH Connections: Military Families

Next Call TBD

Calling all military families (active, reserve, retired), join us to connect, share experiences, and discuss the challenges of being a military family navigating life with albinism. Do you have tips and tricks to share? How you navigated EFMP, PCSing, Tricare, etc? 

Sign up for Military Families Connections today!