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NOAH Connections

NOAH Connections, bringing the albinism community together.

Introducing NOAH Connections

Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH is delighted to introduce NOAH Connections, an ongoing series of virtual opportunities to bring the community together. An essential part of NOAH’s mission is to “provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship.” With the participation and engagement of community members like you, NOAH Connections will provide this opportunity for virtual “face to face” connections. Unless otherwise stated, NOAH Connections will be hosted on the Zoom platform.

Looking for a way to help? Let YOUR voice be heard!
Learn more about NOAH Connections Advisory Task Force opportunities!

We hope you’ll join us for one of many upcoming opportunities to connect!


What’s Your Vision?

Do you have a vision for future support forums, interest group meetings, educational sessions or social activities that would benefit the albinism community?

Submit your session ideas using this form to suggest upcoming content and connections for all!


Upcoming Opportunities to Connect:

Preschool ~ Grades K-5 ~ Grades 6-8 ~ Teens
Young Adults ~ Adults ~ Parents, Grandparents, & Caregivers
Special Interest ~ Everyone!

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Tuesday, January 24th ~ Spring for NOAH Coffee Chat

Wednesday, January 25th ~ Young Adults

Thursday, January 26th ~ Parents

Thursday, January 26th ~ Adults

Thursday, February 2nd ~ Teens

Tuesday, February 7th ~ Parenting without Pigment

Wednesday, February 8th ~ Young Adults

Thursday, February 9th ~ Adults

Preschool NOAH Connections

Preschool NOAH Connections

Preschool NOAH Connections
with Kathi Garza

TBD

Join us for some Fun Fall Fingerplays as we chat about the beautiful changes fall brings. If you like spending time outdoors in the fall, collect a few treasures on a nature walk and bring them to Preschool Connections so we can share in the joy together! If you’re unable to go on a nature walk and would like to draw some of your favorite fall things, we’d love to see that, too!

Sign up for Preschool NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Preschool NOAH Connections!


Grades K-5 NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Grades K-5 NOAH Connections

Grades K-5 NOAH Connections

Next Call TBA

Sign up for Grades K-5 NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Grades K-5 NOAH Connections!


Grades 6-8 NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

NOAH Kids’ PWA Book Club
(recommended for grades 4-8)
Meeting on Saturdays at 3pm ET from February 12th – March 12th

Teen NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Teen NOAH Connections

Teen NOAH Connections

Thursday, February 2nd at 8:00pm ET // 5:00pm PT

NOAH Teens, you’re invited to our next Teen Connections call!

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!


Young Adult NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Young Adult NOAH Connections

Young Adult NOAH Connections

Wednesday, January 25th ~ 9:00pm ET // 6:00pm PT
Wednesday, February 8th ~ 9:00pm ET // 6:00pm PT

Young Adults, join us for our next session. This is a great chance to share our experiences and connect with fellow PWAs!

Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Young Adult NOAH Connections!


Adult NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!


Adult NOAH Connections

Adult NOAH Connections

Thursday, January 26th at 9:00pm ET // 6:00pm PT
Thursday, February 9th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections! We hope to see you on Zoom for social time with fellow PWAs. 

Sign up for Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Adult NOAH Connections


NOAH PWA Book Club

PWA Book Club

Next Meeting: TBD

Current Reading Material: TBD

All PWAs (18+ years old) can join NOAH’s Book Club – simply sign up and get your hands on a copy of the current book. Depending on the length of the book, we will meet every 1-2 months in NOAH’s zoom room for a discussion facilitated by the book club member who selected the current book. Members will take turns picking the next reading selection and facilitating the discussion!

Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!

Join NOAH PWA Book Club Today!


Parents, Grandparents, & Caregivers

Are you a parent or caregiver who lives in Canada?
Sign up for NOAH Connections: Canadian Parents today!

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!


Parent Connections
hosted by: Megan Pitt, LMHC

Thursday, January 26th at 8:30pm ET // 5:30pm PT

Join Us! As we meet to support and foster connection!  NOAH parents, we hope you’ll join us on Thursday, January 26th for our open forum discussion. This is a safe place to unload and talk freely.

Megan Pitt is a New York State Licensed Mental Health Counselor. She is a graduate of the University at Buffalo and earned her Masters in Mental Health Counseling from Fordham University. Megan currently lives in the Western New York area with her husband and two sons. Her oldest son has albinism. Megan became connected with the NOAH community after her son was born. Megan is currently a Parent Liaison for NOAH and facilitates a tele-support group for parents of children with Albinism for the Lighthouse Guild. Megan has a private counseling practice where she works with individuals from many backgrounds.

Lighthouse Guild Tele-Support Group for Parents of Children with Albinism

This monthly group allows parents to connect and support one another as they navigate the journey of parenting a child who has Albinism.
Meetings are held on the third Thursday of every month.  These meetings are ongoing, and our next session will occur on January 19, 2023 from 8:30PM-9:30PM EST. 

Thank you for the privilege to get to know you and your families through this wonderful resource. If you have any questions about the group or if you need help registering please feel free to contact me or go to the website listed below.

https://lighthouseguild.org/support-services/telesupport-groups/enroll-in-a-telesupport-group/parent-tele-support-group-enrollment/

Join Parent Connections!


Ocular Albinism – Parents, Grandparents, & Caregivers Connections

Next Call TBD

Join this call to have an open discussion on the unique challenges a parent or grandparent faces when their child or grandchild has Ocular Albinism. This call will bring together this community so that we can learn from one another and share our experiences with others that understand.

Join Ocular Albinism Parents, Grandparents, & Caregivers Connections!


Grandparent Connections!

Next Call TBD

Join Sherry Dinner and Rick Hrach for an open forum discussion just for grandparents!

NOAH grandparents, join us to connect with fellow grandparents of children with albinism! Grandparents of kids of all ages are welcome to attend 🙂

Join Grandparent Connections!


NOAH Connections: Dads!

Next Call TBD

NOAH Dads, join us to connect with fellow dads of children with albinism. We’ll discuss the unique experiences of being a dad to a PWA and come together in the shared goal of being the best dads we can be for our children.

Register for NOAH Connections: Dads today!
-OR-
text DADS to (417) 473-2310 to sign up!


NOAH Connections for Everyone


NOAH Connections – Spring for NOAH Coffee Chat!

Saturday, January 21st at 11:00am ET // 8:00am PT
Tuesday, January 24th at 8:00pm ET // 5:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

Join us for a special coffee chat about NOAH’s annual Spring for NOAH fundraiser! This annual fundraiser Whether you’re a seasoned event host, or have never hosted a fundraiser before and don’t know where to start, this is the perfect chance to connect with NOAH staff and fellow community members, and get excited to Spring for NOAH!

Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Coffee Chat!


New Year with NOAH!
On Gatherly!

Sunday, January 8th ~ 7pm ET // 4pm PT

You’re invited to New Year with NOAH!
All friends of NOAH are invited to join us for a fun and casual get together with the albinism community to ring in the New Year. We can’t wait to see you there!

Activities include:

Marleena’s Empower Flower / Affirmations Vision Board for all ages

Supplies: Colored paper (construction paper or cardstock), glue (glue stick works best), pen or marker, and scissors

RSVP to New Year with NOAH!

Special Interest


NOAH Connections: LGBTQ+ & Allies

Sunday, January 15th at 8:00pm ET // 5:00pm PT

YOU belong here! Join us for a social gathering open to all LGBTQ+ and allies with albinism. Participants are welcome to connect however they are comfortable – leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

Sign up for NOAH Connections LGBTQ+ & Allies today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections: LGBTQ+ & Allies!


PWAs in the STEM Fields
hosted by Sarah Kane & Derek Schindelman

Next Call TBD

PWAs in STEM, you’re invited to a social gathering hosted by Sarah Kane & Derek Schindelman!

Register to participate in this and future PWAs in STEM connections!



NOAH Connections Adults with Albinism Parenting without Pigment

Parenting without Pigment
hosted by: Kathi Garza

Tuesday, February 7th ~ 9:00pm ET // 6:00pm PT

Join us for a special session of Parenting without Pigment to share your best VI parenting hacks! We’ll talk about having food delivered, tips with Uber, getting help from neighbors, and more!

Are you a PWA with kids? This is the perfect group for you!

Sign up for Parenting without Pigment NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Parenting without Pigment NOAH Connections


Aging with Albinism
with special guest host, Karen Bly!

Aging with Albinism is typically held on the third Tuesday of each month. See below for confirmed dates!

Tuesday, January 17th at 5pm ET // 2pm PT

Join June Waugh and friends for our next session of Aging with Albinism.

Sign up for NOAH Connections Aging with Albinism today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Aging with Albinism!


NOAH Connections Black, Indigenous, People of Color

BIPOC NOAH Connections
hosted by: Torey Alford

Next Call TBD

This gathering is intended for adults with albinism who identify as Black, Indigenous, and People of Color (BIPOC).

Sign up for BIPOC NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join BIPOC NOAH Connections!


People with Albinism in the Legal Profession
hosted by Arielle Lewis

Next Call TBD

Calling all law students, lawyers, judges, and paralegals with albinism. You’re invited to join with fellow PWAs in the legal profession for a NOAH Connections social time just for you. Please join us for conversation and connections.

Note: This is a social time for people with albinism in the legal profession – legal advice will not be provided.


Canadian Parents
hosted by: Rebekah Zigby

Next Call TBD!

Calling all Canadian parents of children with albinism! This group is just for YOU! Sign up today for info to join this call and you’ll be invited to future chances to connect with fellow parents from Canada 🙂

Sign Up Now!


Canadian PWAs

Next Call TBD

Sign up for NOAH Connections: Canadian PWAs today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections: Canadian PWAs!


NOAH Connections: Military Families

Next Call TBD

Calling all military families (active, reserve, retired), join us to connect, share experiences, and discuss the challenges of being a military family navigating life with albinism. Do you have tips and tricks to share? How you navigated EFMP, PCSing, Tricare, etc? 

Sign up for Military Families Connections today!