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NOAH Connections

NOAH Connections, bringing the albinism community together.

Introducing NOAH Connections

Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH is delighted to introduce NOAH Connections, an ongoing series of virtual opportunities to bring the community together. An essential part of NOAH’s mission is to “provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship.” With the participation and engagement of community members like you, NOAH Connections will provide this opportunity for virtual “face to face” connections. Unless otherwise stated, NOAH Connections will be hosted on the Zoom platform.

Do you have suggestions for future NOAH Connections virtual gatherings?
Learn more about the NOAH Connections Advisory Committee and apply today!

NOAH Connections Advisory Committee

We hope you’ll join us for one of many upcoming opportunities to connect!


What’s Your Vision?

Do you have a vision for future support forums, interest group meetings, educational sessions or social activities that would benefit the albinism community?

Submit your session ideas using this form to suggest upcoming content and connections for all!


Upcoming Opportunities to Connect:

Preschool ~ Grades K-5 ~ Grades 6-8 ~ Teens
Young Adults ~ Adults ~ Special Interest ~ Everyone!

Are you a parent or grandparent looking to connect with others in the albinism community?
Check out Parent Connections and Grandparent Connections!

Tuesday, May 11th ~ Coffee Chat

Thursday, May 13th ~ Teens & Young Adults

Sunday, May 16th ~ Kids’ PWA Book Club

Sunday, May 16th ~ Canadian PWAs

Tuesday, May 18th ~ Aging with Albinism

Wednesday, May 19th ~ Canadian Parents

Wednesday, May 19th ~ PWAs in STEM

Thursday, May 20th ~ Adults

Sunday, May 23rd ~ Book Reading & Chat with RobenX: The Colors of Olleh

Wednesday, May 26th ~ Preschool Connections

Thursday, May 27th ~ Teens & Young Adults


Preschool NOAH Connections

Preschool NOAH Connections

Preschool NOAH Connections
with Kathi Garza

Wednesday, May 26th at 12:00pm ET // 9:00am PT

Preschoolers, ask your grown-up to mark their calendar for our next Preschool Connections get-together with Miss Kathi!

Sign up for Preschool NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Preschool NOAH Connections!


Grades K-5 NOAH Connections

You won’t want to miss our Book Reading & Chat with RobenX – Colors of Olleh!

Grades K-5 NOAH Connections
Conversations with Jocelyn

Next Call TBA

This session provides children and youth with opportunity to talk about feelings that can be experienced when living with Albinism as they may relate to frustrations, visual challenges, bullying etc. With Jocelyn’s guidance, kids will learn about healthy expression and coping in a safe and welcoming environment.

Jocelyn Leworthy, a Certified Child Life Specialist and young adult living with Albinism, will facilitate our discussion.

Sign up for Grades K-5 NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Grades K-5 NOAH Connections!


Grades 6-8 NOAH Connections

You won’t want to miss our Book Reading & Chat with RobenX – Colors of Olleh!

NOAH Kids’ PWA Book Club
(recommended for grades 5-8)

Sunday, May 16th at 3:00pm ET // 12:00pm PT

Join award-winning author (and parent of a daughter with albinism) Beth Vrabel and Certified Teacher of Students with Visual Impairments Kathi Garza for a discussion of “A Blind Guide to Normal” by Beth Vrabel.

Sign up for NOAH Kids’ PWA Book Club!


Grades 6-8 NOAH Connections
Conversations with Jocelyn

Next Call TBA

This session provides children and youth with opportunity to talk about feelings that can be experienced when living with Albinism as they may relate to frustrations, visual challenges, bullying etc. With Jocelyn’s guidance, kids will learn about healthy expression and coping in a safe and welcoming environment.

Jocelyn Leworthy, a Certified Child Life Specialist and young adult living with Albinism, will facilitate our discussion.

Sign up for Grades 6-8 NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Grades 6-8 NOAH Connections!

Teen NOAH Connections

Teen NOAH Connections

Teen NOAH Connections

Thursday, May 13th at 8:00pm ET // 5:00pm PT
Thursday, May 27th at 8:00pm ET // 5:00pm PT

NOAH Teens, you’re invited to our next Teen Connections call!

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!

Teen NOAH Connections
Conversations with Jocelyn

Next Call TBA

This session provides teens with opportunity to talk about feelings that can be experienced when living with Albinism as they may relate to frustrations, visual challenges, bullying etc. With Jocelyn’s guidance, we will discuss healthy expression and coping in a safe and welcoming environment.

Jocelyn Leworthy, a Certified Child Life Specialist and young adult living with Albinism, will facilitate our discussion.

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!


Young Adult NOAH Connections

Young Adult NOAH Connections

Young Adult NOAH Connections

Thursday, May 13th at 9:15pm ET // 6:15pm PT
Thursday, May 27th at 9:15pm ET // 6:15pm PT

Young Adults, join us for our next session. This is a great chance to share our experiences and connect with fellow PWAs!

Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Young Adult NOAH Connections!


Adult NOAH Connections


Adult NOAH Connections

Adult NOAH Connections

Thursday, May 20th
9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections! We hope to see you on Zoom for social time with fellow PWAs. 

Sign up for Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Adult NOAH Connections


NOAH PWA Book Club

PWA Book Club

Next Meeting: Wednesday, May 5th at 9:00pm ET

Current Reading Material: “The Dog Stars” by Peter Heller

All PWAs (18+ years old) can join NOAH’s Book Club – simply sign up and get your hands on a copy of the current book. Depending on the length of the book, we will meet every 1-2 months in NOAH’s zoom room for a discussion facilitated by the book club member who selected the current book. Members will take turns picking the next reading selection and facilitating the discussion!

Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!

Join NOAH PWA Book Club Today!

NOAH Connections for Everyone

NOAH Connections Coffee Chat

NOAH Connections Coffee Chat!

Tuesday, May 11th at 8:00pm ET // 5:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Coffee Chat!


Teal background with image of The Colors of Olleh book to the left and photo of RobenX to the right. Text reads: The Colors of Olleh NOAH Connections Book Reading & Chat with Author RobenX

NOAH Connections
Book Reading & Chat with RobenX
The Colors of Olleh

Sunday, May 23rd at 2:00pm ET // 11:00am PT

Join author RobenX for a reading of his book, The Colors of Olleh, followed by a Q&A!

About The Colors of Olleh:
“A fascinating story that intrigues readers from the very first page and holds their attention throughout, while instilling the narrative’s welcome message that sometimes all you need is to believe to see the beauty around you. If you are looking for a book that encourages the vibrant imagination in children and teaches them love, this is the book to start with.”

All NOAH Community members are invited to attend this exciting book reading and Q&A!

Sign Up for Book Reading & Chat with RobenX Now!

Special Interest


Pale yellow background with Burgundy bar at top. Photo of Shelly to the left, NOAH Connections laptop screen logo in center, and Canadian flag to the right. Text reads: Canadian PWAs NOAH Connections hosted by Shelly Francis

Canadian PWAs
hosted by Shelly Francis

Sunday, May 16th ~ 4:00pm ET / 1:00pm PT

Join host Shelly Francis for social time with fellow adult PWAs from Canada! We hope to see you there 🙂

Sign up for NOAH Connections: Canadian PWAs today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections: Canadian PWAs!


Aging with Albinism – Your Albinism Adventure
hosted by June Waugh

Tuesday, May 18th ~ 4:30pm ET / 1:30pm PT

“Aging with Albinism” is an opportunity to connect with others, to share, to renew old friendships, to celebrate, and to acknowledge how albinism continues to be an integral part of our lives.

Your Albinism Adventure: what challenges brought you do where you are today?
Please join us to share your story of the impact albinism has had in your life, how it shaped your decisions, and influenced who you are today.

Sign up for NOAH Connections Aging with Albinism today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Aging with Albinism!


NOAH Connections: Canadian Parents
hosted by Katie Bailey & Emily Urquhart

Wednesday, May 19th at 8:00pm ET // 7:00pm CT //6:00pm MT //5:00pm PT

Calling all Canadian parents of children with albinism! Please join us for an open discussion led by NOAH parent volunteers Katie Bailey (Alberta) and Emily Urquhart (Ontario) and a chance to connect with other parents of children with albinism across the country. Parents of children of all ages and all parts of the country are welcome.

Sign Up Now!


PWAs in the STEM Fields
hosted by Sarah Kane & Derek Schindelman

Wednesday, May 19th at 9:00pm ET // 6:00pm PT

PWAs in STEM, you’re invited to a social gathering hosted by Sarah Kane & Derek Schindelman!

Register to participate in this and future PWAs in STEM connections!

People with Albinism in the Legal Profession
hosted by Arielle Lewis and Katy Carroll

Next Call TBD

Calling all law students, lawyers, judges, and paralegals with albinism. You’re invited to join with fellow PWAs in the legal profession for a NOAH Connections social time just for you. Please join us for conversation and connections.

Note: This is a social time for people with albinism in the legal profession – legal advice will not be provided.

Register Now for People with Albinism in the Legal Profession!


NOAH Connections Black, Indigenous, People of Color

BIPOC NOAH Connections

Next Call TBD

The latest addition to our NOAH Connections offerings!
This gathering is intended for adults with albinism who identify as Black, Indigenous, People of Color (BIPOC). Our next session will tentatively focus on a discussion about the intricacies of living as BIPOC and living with albinism, and the nuances of identity in our communities.

This gathering, facilitated by Silpa Tadavarthy, will take place on Zoom.

Sign up for BIPOC NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join BIPOC NOAH Connections!


NOAH Connections Adults with Albinism Parenting without Pigment

Parenting without Pigment NOAH Connections

Next Call TBD

Are you a PWA with kids? This is the perfect group for you!
Join together with fellow parents without pigment to connect, discuss, share, and more! We hope to “see” you at our next gathering.

Sign up for Parenting without Pigment NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Parenting without Pigment NOAH Connections


NOAH Connections: Military Families

Next Call TBD

Calling all military families (active, reserve, retired), join us to connect, share experiences, and discuss the challenges of being a military family navigating life with albinism. Do you have tips and tricks to share? How you navigated EFMP, PCSing, Tricare, etc? 

Sign up for Military Families Connections today!